Is there a kidney "cancer survivors network" facebook group?

Devastated Wife

Are any of you in a kidney "cancer survivors network" facebook group? 

I don't know of any groups.  

If so, please share the group name or link so that I (and others) could find it and join.    Thank you.

icemantoo

Here is one

 https://www.facebook.com/groups/58663571961/videos/

 

The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

 

 

icemantoo

icemantoo

try this instead

https://www.facebook.com/groups/58663571961/?ref=bookmarks

Devastated Wife

icemantoo said:

Here is one

 https://www.facebook.com/groups/58663571961/videos/

 

The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

 

 

icemantoo

Thanks, icemantoo.

Thanks, icemantoo.   I agree with you.   Also, the group is "public" and not closed.  I like closed facebook groups so that it is more private and so that all my friends/family can't see my comments in the group.  If I were to make a comment or a "like" in a public group it would show up in all my friends feeds.

paintergrl

Here is one

Renal Cell Carcinoma Support Group. Its closed. https://www.facebook.com/groups/279630142502937/

msjax

Privacy is a concern for me,

Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

thanks,

MS

paintergrl

msjax said:

Privacy is a concern for me,

Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

thanks,

MS

closed group

It is a closed group so no one else can see posts or comments. Maybe I'll see you on there.