Is there a kidney "cancer survivors network" facebook group?

Devastated Wife
Devastated Wife CSN Member Posts: 52 Member
edited April 2018 in Kidney Cancer #1

Are any of you in a kidney "cancer survivors network" facebook group? 

I don't know of any groups.  

If so, please share the group name or link so that I (and others) could find it and join.  Smile  Thank you.

Comments

  • icemantoo
    icemantoo CSN Member Posts: 3,362
    #2
    Here is one

     https://www.facebook.com/groups/58663571961/videos/

     

    The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

     

     

    icemantoo

  • icemantoo
    icemantoo CSN Member Posts: 3,362
    #3
    try this instead

    https://www.facebook.com/groups/58663571961/?ref=bookmarks

  • Devastated Wife
    Devastated Wife CSN Member Posts: 52 Member
    #4
    icemantoo said:

    Here is one

     https://www.facebook.com/groups/58663571961/videos/

     

    The problem with this and other Facebook Groups is that they are not anonomous, the questions and answers are superficial in that you have little background on the poster and each post gets lost with new ones very quickly..

     

     

    icemantoo

    Thanks, icemantoo.

    Thanks, icemantoo.   I agree with you.   Also, the group is "public" and not closed.  I like closed facebook groups so that it is more private and so that all my friends/family can't see my comments in the group.  If I were to make a comment or a "like" in a public group it would show up in all my friends feeds.

  • paintergrl
    paintergrl CSN Member Posts: 47
    #5
    Here is one

    Renal Cell Carcinoma Support Group. Its closed. https://www.facebook.com/groups/279630142502937/

  • msjax
    msjax CSN Member Posts: 20 Member
    #6
    Privacy is a concern for me,

    Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

    thanks,

    MS

  • paintergrl
    paintergrl CSN Member Posts: 47
    #7
    msjax said:

    Privacy is a concern for me,

    Privacy is a concern for me, do you know paintergrl if this FB page is private where only I can see and post comments (not out there for others to see)

    thanks,

    MS

    closed group

    It is a closed group so no one else can see posts or comments. Maybe I'll see you on there. :)

Discussion Boards