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Kidney Cancer

Interleukin 2 here I come!
Well on my last scan I was stable. No growth and no shrink. So I have gone through all the test to qualify for interleukin(Stress, lung, MRI of the brain) and past. I will go in the Hospital on the 20th of September for my first round. I am looking forward to having this and also getting it over with. Any tips are greatly…
Hi.
Good morning guys, my name is Jay, I'm an ER nurse. I went for my annual physical March 7, found microscopic hematuria with no clear source. I had no symptoms whatsoever. I was sent for a ct scan to r/o kidney stone. Had it done March 10 and March 11 I was told that I have a 5.3 cm mass in my right kdiney. Needless to say,…
Seeking inexpensive partial nephrectomy
I am self pay, no insurance, so obviously I wish not to pay an exhorbinate sum for my operation. I have a 2 cm growth on my kidney. I am a 56 years old man in otherwise good health. I have been told I need a partial laprascopic nephrectomy. I have a couple appointments with local doctors scheduled, but I am thinking this…
Back from Seattle
I met with an oncologist ...wasn't super impressed. She was informative but basically since I'm not at the point of needing systemic treatment she didn't really seem interested in my case. So my response to that was.. look I am at this referral because insurance requires it but should I need systemic treatment I will be…
Did I Cause This?
Hi all! Quick question... Almost 6 mths post radical and my creatinine keeps going up and my eGFR down. I have had 3 blood tests. Things were improving on the 2nd one, but now are worse as of yesterday. Here are the results: Dec 21 - Creatinine 130 gfr 45 Feb 15 - Creatinine 127 gfr 46 Apr 27 - Creatinine 139 gfr 41 Is it…
I got another NED today..........
Which in itself is unusual the Drs tell me, considering I had mets to both lungs, which were removed by two different lung surgeries in April of 2016 and Jan of 2017 , so thats a year being NED. And to think back in April of 2016 and again January of 2017 they wanted me to go on either Sutent or Votrient after my surgeries…
5.8 centimeter mass
Hello: I've attemtped at posting this message more than a few times. Its very hard to belive that I am even needing this kind of support. Nevertheless I'm here so let me start at the beginning. Last year (February) we lived in San Deigo and my husband had complained about his stomach. He was a little constipated, gassy and…
6 weeks post-op
Well, it's been 6 weeks since the surgery, and I am feeling quite well, but... I have noticed that since the surgery I have been urinating a whole lot more than I did before. My urine is always fairly light colored, with minimal to no concentration. I seem to have a whole lot more edema in my legs than I did pre-op also. I…
Any experience with Hyperbaric treatment?
It's being recommended for John as a accompanying treatment along with his Opdivo. It sounds like the jury is out whether it actually does any good or not, but we're more concerned about the side effect potential of the air pressure itself...ear drums, eye pressure, lung issues, etc. And with his weak trachea due to the…
RCC chromophobe
Hello. I was diagnosed with RCC chromophobe type, 3.5 mm, stage one, grade 2 five weeks ago after my open partial nephrectomy. It was found incidentally when I was having gallbladder issues. Had to have the gallbladder out first, wait 6 weeks to heal, then the open partial on my left kidney. Since I had so much lag time I…
Much ado about Pancreatic Lesions
About a month ago I posted a question about my CT scan that showed two small pancreatic lesions. I'm four years past my partial nephrectomy for a stage 1, 2 cm tumor, and have had relatively clean scans in the interim. Of course, my urologist was on Spring break vacation, so it took a few weeks to get in to see him. His…
New here--RCC metastasized to lungs
Greetings. My husband, age 58, was diagnosed last year with Kidney cancer--clear cell kind. His kidney was removed. At same time small nodules were seen on lungs. Later scans showed growth in the tumors in lungs. Biopsy confirmed cancerous. They cannot be removed. Good news--we are told that these tuomors are very slow…
Back to back surgeries
Hi Folks - I'm a 41 year old male, who recently found out that I have a leaky heart valve (mitral) and needed to undergo mitral valve repair to fix my severe regurgitation. The surgery for that is scheduled for next week (3rd May) and as part of the pre-op workup, a CT of the chest revealed the presence of a 4.8cm tumor on…
Follow up
So my appt for my refferal to Seattle is tomorrow. I would be lying if I said I wasn't nervous. I will meet an Oncologist for the first time (up till now I have been seeing just a urologist) and I will consult with a new Urologist. My Urologist that performed my surgery and has been my DR so far on this journey has spoken…
Day 2 post-op
morning y'all. The doctor came today after a rough night. Finally got good pain relief and they made amazing heat packs which moved the gas out of my shoulder! When the doctor changed my dressing she let me know they got the path results and it was papillary RCC. She thinks it said stage 2. But I'll get the full path…
Keytruda Off Label
I just started a monotherapy of Keytruda (Off Label) 1 week ago this past Thursday. I saw on another post that Nano happened to start Keytruda on the same day (although it appears not to a monotherapy). Does anyone else have any experience with Keytruda?
Probability of stage1 recurrence
Hello What are the stats of stage1 recurrence? Thanks Justin
Renal Cystic Lesion
Hello all, I got an ultrasound about a week ago and while waiting for my doctor to call me, I went to get the report from the radiologist and this is what the report indicated: Large cystic structure, mid-left kidney, 7cm x 7cm x 6cm containing several internal septations and thickening of the wall. I am very worried,…
Second opinions?
So, I had my 2 week post-op today. I wasn't really impressed with the Urologist. (The same one who downplayed the mass last summer and said it was probably just benign). I got my pathology report from him today and I could tell he was a little annoyed with my questions. It's a Type 2 Papillary RCC 4.5cm x 3.2 cm T1b NX The…
Almost three weeks since surgery
Had my surgery on April 3 and everything went well. My surgeon utilizeses the Da Vinci robot and it was quite intimidating being wheeled into the OR and seeing this massive machine in the corner...then it was sleepy time. I was originally supposed to have a partial nephrectomy, but because of the tumor size (larger than…
almost 6 weeks Post surgery
I had my robotic partial Neph on 3-21 around 1pm. Got to a room around 8 that night. Stayed in the hospital until around 12 the next day and then they sent me home. I was pretty tender but able to move around fine. Had my follow up on April 10th, got the pathology that confirmed it was RCC but they got it all. I am back to…
If you would like to look at any results on various clinical trials, here's the link: https://www.cl
If you would like to look at any results on various clinical trials: Here's the link: https://www.clinicaltrials.gov/
Kidney cancer
2nd Visit to Oncologist today - Scan results
I'm a little nervous, not too bad. This is my first scan post-op and I can't wait to see what they've found. Or not found! I had quite an extensive, 10 hour surgery and I have 16 1/2" of cuts. An upside down "Y" it is. Quite the battle scar. Surgery was Mar. 8th and doing good from that. At age 63 it was not a picnic in…
AnnissaP?, Jan4you?
Where are they? They both disappeared from here a couple weeks ago. Especially after Anissa proudly posted her videos. She was here every day. Jan never missed the chance to share someones stress. It doesn't feel right.
How to find me
So a couple of us thought it might be a good idea to get to know each other a little better outside of this forum so I thought I would let you all know that you can reach me here by sending me a private message or I am on Facebook as well under Cinammen Townsend Zeilstra. Hope you all are well! Cin
TUMOR
Hi All, Last Thursday my mother got some bad news that she has a tumor that is rapid growing tumor located on her kidney (it has grown 1cm between scans within a 4 week peroid). Mum has been told that she will need to wait until the 26.04.2018 for the next board meeting so they can discuss where to go from here. They did…
NED
Had my scans and blood work last week. Talked to the oncologist yesterday. No changes. That's good news. I was a little more anxious this time just because I've been sick alot (flu, shingles, two colds in succession) and just tired all the time. Just a bit worried thinking my immune system is down and wondering what that's…
cyberknife
So, I have stage 4 RCC that has moved into my spine. I have a tumor at my L3/L4 spine that is crushing the nerves in that area. One of the issues that causes is that I can't lay down flat for any length of time without immense, intractable pain in that area. Well, I need to lay on my back in order to do the CT Sim…
Update on my son-in-law, John
As some of the longer-term members on this forum may know, my SIL was diagnosed with Stage IV, grade 4, 60% sarcomatoid RCC just about two years ago. He had a total left nephrectomy for a 13 cm tumor. After a nasty stint on Votrient he moved on to Opdivo which appeared to be keeping the beast away. His last three scans…

Kidney Cancer

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