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Plan of Care
I have been spending a bunch of time at the bedside of a friend of mine who's been quite ill and in the hospital. Nope, the admitting diagnosis wasn't RCC, but the "Plan of Care" I saw written on my friend's in-room white board the other day is definitely applicable for us RCC folks. Plan of Care * Wake up * Nutrition *…
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Stage 4 Renal Cell Carcinoma
My husband is in stage 4 kidney cancer that has spread to his lungs and lymph nodes by his trachea. We have made the difficult desicion to stop treatment. We have been doing this for 4 years now and he is sick and tired of being sick and tired. He is only 47, and he wants to enjoy what time he has left feeling better. The…
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Scanxiety
So my Dr’s office just called to schedule my 6 month appointment/scans. My 3 month scans were NED. The bad thing is my Scan/appointment isn’t until the end of July. I was just starting to mentally feel better and then bam!!! This board has been a blessing to me. Even though I don’t post a lot I read most of the posts and…
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Fuhrman Grade IS VERY IMPORTANT - even for small tumors
I noticed another good discussion on this topic. When was last at the oncologist, I asked him to "re-tell" me some of the information he shared at an initial meeting - and I was finally in a place to process it. He showed me a chart with 5-year survival rates for Kidney cancer. Yes, those with stage 1 tumors that are grade…
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Pathology question
I happened to see my pathology report after almost four years again. I read it again and I'm confused I got it correctly four years ago. I mean this line: Nuclear grade II/IV furhman system Does it mean it's grade two out of four possible grades? Or it means it's combination of both two and four grades? I don't remember…
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radiation induced lumbar plexopathy
Does anyone here have any experience with radiation induced lumbar plexopathy? Is there anything that helps?
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Scar cream
My beautiful 6 1/2 inch scar needs some love. Where my drain was is raised and don't know if thats ever going to fade. Any suggestions for scar cream? When did you start using it? I'm currently using mederma pm intensive treatment cream. My incision is still tender and don't know if I should waite or try something else.…
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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…
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Need help read my Path report
Can anyone explain this for me. I just got my pathology report today. My PCP said I am 100% good. I just want to get our survivors opinion. Tumor size: 4.6 x 4.5x 3.5 cm Focality: single gross lesion Limited to the kidney/ clear cell Grade 4 Pathologic TNM Classification: pT1b, pNX Stage grouping: Stage 1 Sarcomatoid…
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Genetic Testing Complete
Hello all. Whew, follow-up appointment with my genetic counselor yesterday, Gloria Morris, MD PhD at Upstate. She is wonderful if anyone in Upstate NY is seeking genetic testing after a cancer diagnosis. She's at the Upstate Cancer Center. No gene mutations were noted after a very comprehensive panel (testing of 50+…
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Abunai
My thoughts and mind are with Abunai who is suffering at the minute Hope he gets on top of the pain and strong for the next challenge ahead of him We love you Abunai Annie
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Thank you to all for great info....
I had a kidney stone in December and when they did an ultrasound, they found an unusual mass (5cm) on my other kidney. Long story short, after several CT scans it was determined to be a cancerous tumor. Added complication...I have a heart condition and am on blood thinners; hence, the Mayo Clinic Urologist was a little…
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When?
When do you get to think we might be okay? When do we get to think we might have dodged this bullet? For 2 years, I've had clean scans, but always think that something is wrong. I'm just now feeling halfway normal, but very guarded. I had a dream that the cancer was back. We were looking at scans and the doctor kept saying…
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Amy Jo
Amy Jo is not having a good time now we are praying for you and here whenever you need anything Please keep in contact so we can help Annie
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Decision made
So I finally talked to my surgeon and went over what the referral Urologist had to say. At the end of the day I have made the decision to get a biopsy followed by a cyroablation. I am going to call tomorrow to schedule the appt. I feel good about my decision. I also received my referral for genetic testing. I will schedule…
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Second opinion
I posted on here quite some time ago about how a kidney lesion was found by acciden. At that time which was over a year ago it was 5.5mm so very small. I had my 6 month follow up appt in December 17 with an ultrasound done. That ultrasound showed it had grown to 1.3cm. So now about 5 months later I saw a new urologist.…
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Brand new to group - today's diagnosis
Hey everyone - a little life curveball thrown my way today with the (official) diagnosis - although I've known in my mind for a little while now. Still strange to get the official word. I became super sick last June following a business trip to Mexico and ended up going into completely-unrelated kidney failure. During that…
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Lets lighten up for a change
Guy goes to his MD, “Doc, i’m having terrible headaches.” Doctor gives him prescription strength Ibuprofen and come back in 2 weeks. Two weeks pass, ”Doc, i’m still having terrible headaches.” Doctor gives him Imitrex and come back in 2 weeks. Two weeks pass, “Doc, i’m still having terrible headaches.” Doctor says nothing…
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transitional cell carcinoma in the kidney
My husband had a radical left nephrectomy June 30. The doctors were certain they were treating renal cell carcinoma because of the location of his tumor. Only after the pathology results come back did they realize it was transitional cell. For that he said they should have removed the entire ureter and really examined his…
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Interleukin 2 here I come!
Well on my last scan I was stable. No growth and no shrink. So I have gone through all the test to qualify for interleukin(Stress, lung, MRI of the brain) and past. I will go in the Hospital on the 20th of September for my first round. I am looking forward to having this and also getting it over with. Any tips are greatly…
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Hi.
Good morning guys, my name is Jay, I'm an ER nurse. I went for my annual physical March 7, found microscopic hematuria with no clear source. I had no symptoms whatsoever. I was sent for a ct scan to r/o kidney stone. Had it done March 10 and March 11 I was told that I have a 5.3 cm mass in my right kdiney. Needless to say,…
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Seeking inexpensive partial nephrectomy
I am self pay, no insurance, so obviously I wish not to pay an exhorbinate sum for my operation. I have a 2 cm growth on my kidney. I am a 56 years old man in otherwise good health. I have been told I need a partial laprascopic nephrectomy. I have a couple appointments with local doctors scheduled, but I am thinking this…
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Back from Seattle
I met with an oncologist ...wasn't super impressed. She was informative but basically since I'm not at the point of needing systemic treatment she didn't really seem interested in my case. So my response to that was.. look I am at this referral because insurance requires it but should I need systemic treatment I will be…
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Did I Cause This?
Hi all! Quick question... Almost 6 mths post radical and my creatinine keeps going up and my eGFR down. I have had 3 blood tests. Things were improving on the 2nd one, but now are worse as of yesterday. Here are the results: Dec 21 - Creatinine 130 gfr 45 Feb 15 - Creatinine 127 gfr 46 Apr 27 - Creatinine 139 gfr 41 Is it…
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I got another NED today..........
Which in itself is unusual the Drs tell me, considering I had mets to both lungs, which were removed by two different lung surgeries in April of 2016 and Jan of 2017 , so thats a year being NED. And to think back in April of 2016 and again January of 2017 they wanted me to go on either Sutent or Votrient after my surgeries…
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5.8 centimeter mass
Hello: I've attemtped at posting this message more than a few times. Its very hard to belive that I am even needing this kind of support. Nevertheless I'm here so let me start at the beginning. Last year (February) we lived in San Deigo and my husband had complained about his stomach. He was a little constipated, gassy and…
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6 weeks post-op
Well, it's been 6 weeks since the surgery, and I am feeling quite well, but... I have noticed that since the surgery I have been urinating a whole lot more than I did before. My urine is always fairly light colored, with minimal to no concentration. I seem to have a whole lot more edema in my legs than I did pre-op also. I…
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Any experience with Hyperbaric treatment?
It's being recommended for John as a accompanying treatment along with his Opdivo. It sounds like the jury is out whether it actually does any good or not, but we're more concerned about the side effect potential of the air pressure itself...ear drums, eye pressure, lung issues, etc. And with his weak trachea due to the…
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RCC chromophobe
Hello. I was diagnosed with RCC chromophobe type, 3.5 mm, stage one, grade 2 five weeks ago after my open partial nephrectomy. It was found incidentally when I was having gallbladder issues. Had to have the gallbladder out first, wait 6 weeks to heal, then the open partial on my left kidney. Since I had so much lag time I…
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Much ado about Pancreatic Lesions
About a month ago I posted a question about my CT scan that showed two small pancreatic lesions. I'm four years past my partial nephrectomy for a stage 1, 2 cm tumor, and have had relatively clean scans in the interim. Of course, my urologist was on Spring break vacation, so it took a few weeks to get in to see him. His…