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Couple of days out. A report.
So, I've been on the up. Sleeping has gotten progressively better, and I'm trying to stay off of the pain medication during the day. Not that they're as powerful as what they gave me in the hospital, but I'd rather control that as much as I can. Changed into 'civvies' today and walk around half a mile without an issue. The…
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5 Years NED & Discharged!
Hi All. Not quite sure how I feel about the discharged bit @ 5 years. But, apparently I have been very lucky. I am fit, healthy and oficially a survivor of PT3a Kidney Cancer. I feel humble and very blessed. I was looked after with love, respect and care by everyone of my medical team. I hope this gives you hope in your…
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Question
Has anyone experienced "brain fog" after surgery? I'm 15 months post surgery and all my kidney function numbers are normal but something hasn't seemed quite right for about a year now. I'm not sure if it could be related to having kidney cancer or not.
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3 Month Scan
I am getting my 3 month scan next Wednesday and just found out its only of my abdomen. How come they dont scan my whole body? After having cancer at such a young age - Im 33- I want to be sure its no where else in my body. Is this common to just do abdomen? This news isnt sitting well with me :(
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SBRT
Well a week from today I will be starting radiation treatment to my lung nodules. I'm really nervous. My goal is to stay off systemic treatment for as long as I can. Has anyone undergone this? I am a little worried about long term effects. My left side is in a tricky spot. Any insight would be appreciated. Hope you all are…
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Lung Nodules
Went for 1.5 year check up. CT of chest and ultra sound of kidneys. DOC wanted CT of chest, abdomina and pelvis but insurance got in the way.. Anyway, had a 4mm stable nodule since the beginning now I have another 4mm nodule that showed up this time- not sure how worried I should be or what I should ask for if anything?…
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Still standing. More or less...
The deed is done. Had my kidney removed yesterday. Still in the hospital, but on the up and up. Want to share my experience for all, and maybe for to help others if they ever get into this situation. * Got here bright and early. The nurses were all lovely and attentive. They recognized that I was nervous and tried to…
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Initial diagnosis to active surveillance in 5 min flat.
Ok. here Goes. -42 yo.Male, smoker (Until last week), slightly over weight, Apnea. No other major health issues -2.5 cm mass on Left kidney. found Last week during an appendicitis CT scan In a city that was not my home. -Surgeon recommended seeing Urologist and said they would probably opt for a biopsy. Sent me home with…
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3 month vs 6 month following surgery
I am seeing quite a few people who are having CT's at 3 months following surgery. My first isn't scheduled until 6 months. I was just wondering what everyone else had? Thanks!
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3 month Scan TOday- worried about GB
I just received my results from my MRI - I am 3 months post surgery. Everything said remarkable except my gallbladder. Says my gallbladder is intrinsically T1 hyperintense? Then at the bottome says this "Intrinsic gallbladder T1 hyperintensity is indeterminant and may be secondary to biliary sludge, prior contrast…
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Is 6 month CT scan correct protocol?
Today, I went to see my oncologist Dr. Randall at UCSD for my 3 month post surgery CT scan and blood work. The result is NED and my blood work is great so therefore my oncologist set me for CT and blood work every 6 month instead of 3 month. I told my Doctor that I am not comfortable to have 6 month CT scan because on my…
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Rash
Did any of you experience a rash that just won't quit following surgery? I had surgery back in November and at the beginning of February I had a rash that started to develop and it really blew up over the course of a couple of weeks. I went to 3 doctors and I'm on my 3rd dermatologist. I did get some relief for a few weeks…
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Eug91's radical nephrectomy story
[ORIGINALLY POSTED DECEMBER 29, 2018. Lost in the great CSN Outage of January 2019. Re-posted because I'm hoping it can still be useful to others.] Left kidney robotic-assisted laparoscopic radical nephrectomy. Apologies for the length. I thought it'd be fun to share my experience, and hopefully be useful to anyone who's…
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Scared Not sure what to expect Need some advise
Well I went to the doctor yesterday thinking I was having a problem with my appendix. She examined me and felt that it was probably pain and nausua related to appendix or gallbladder. Dr asked me to have some blood tests and really wanted to do a CT scan just to see if this was an emergency situation or if we had more time…
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Here we go!
So surgery in Wednesday. The urologist confirmed the tumor's size, but he also confirmed that it has not spread outside of the kidney. So it's going to be a radical kidney procedure, as opposed to the radical 'plus'. I'm relieved that it's not that extensive, so there. Any pointers for before and after will be appreciated.…
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Working after op. Experience?
Sorry to open another high level post. So I've been adviced to take it easy, of course, after the surgery. Recap: it's a radical nephrectomy. They're not removing anything else. If you didn't know (and pretty much everybody here knows) my op is tomorrow. There is a circumstance where I would need to be working Monday…
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results and status
Hi all! Thanks again for all of your information and support to date! I wanted to give a summary of where I’m at, and what my experience was. 51 years old, 2.5cm tumor found on kidney 1/21/19 during a routine MRI (for other purposes). Began the process of freaking out, but given the combination of reading this board,…
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Vitamin B 17/Laetrile
Will not hurt to checkout YouTube : World without Cancer By: G. Edward Griffin. Very interesting.
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How does kidney cancer spread
Im really trying hard to avoid google search and one question i never really asked the doc was how does it spread exactly. Iv wondered if the cells are floating around but the body immune system takes care of them until it gets to big and overwhelms the immune system. Whats the difference between a 2cm tumor and say a 4…
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Terrified about this...
I know it's irratio.nal, but I'm terrified at the prospect of going under anesthesia. I've never had surgery before. In my 44 years of life, I've had minor stuff done but never surgery that puts me under. My main concern is as a patient of high blood pressure. How's that going to affect me? IDK! I do realize that patients…
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Tiny blood clots in urine
I had open partial nephrectomy over 5 weeks ago and recently, I saw a few tiny black or brown particles in a couple of my urines almost daily. (However, my urine is still clear) My urological oncologist said that they could be tiny clots from my old blood left in my kidney while back. I am kind of worried and would like to…
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Votrient to Opdivo after 3 months. Thoughts?
I met with my oncologist yesterday and he wants to take me off of the 800 mg Votrient and start Opdivo. I am currently "stable" on Votrient with a small tumor burden - appx. 1.8 x 2.3 cm mediastinal lymph node with mild pet scan activity, 2 nodules both still "indeterminant" due to size. Given the small tumor burden, my…
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Back Pain/Shoulder Pain
so I’m two months post partial neph for chrimophobe RCC 3.9cm. This was found incidentally due to my complaint regarding back and shoulder pain neither of which has in any way dissipated post surgery. I’ve spoken to my doctors,both my PCP and my urological surgeon who is handling my scans and they insist it’s not related…
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BP medications
Good morning, I hope everyone is safe from the cyclone snow storm. I'm wondering if members would be willing to update their blood pressure medicine experiences. Most of the forum answers are a few years old. I had my kidney and 6.5cm chromophobe tumor removed Oct., 2017. Normal BP (no medication) until November, 2018 then…
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pain and burning sansation
I am on my 5th week of recovery from robotic partial neph. Did anybody had burning sensation under shoulder blade on the site of surgery?
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Glad to Find this Group!
Hi all, im 51 and was diagnosed last month with a 2.5cm renal mass, likely RCC. Scheduled for robotic partial the week after next. I feel very lucky that t was found early, during a routine scan I get for unrelated reasons. I was reading through this forum and was quite touched by the amazing support you give one another,…
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The results are in
So my biopsy was positive for RCC Meeting today with Radiation oncology to set up SRBT. The plan is to zap those two spots and bring me back to NED. I will re scan May 13th. In the meantime I'll just be plugging along one foot in front of the other... I hope this finds you all well and happy! Sending out love Cin
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Treatment Provider Selection
I'm new here and am glad finding this incredible forum. I was incidentally diagnosed with a solid-appearing enhancing left exophytic renal mass in CT and MRI last December. The mass is in posterior midpole measures 10x4x15 mm. I feel very lucky that it was found early. My previous urologist oncologist offered me three…
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Managing Votrient Side Effects
I just took my first (800 mg) dose of Votrient last night. Today, we'll be going out to get some "supplies" for managing side effects. Among the things suggested are: * Biotene - it was suggested to use that before mouth sores start to help either prevent them or to manage them when they do come around * Bag Balm - for…
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VOTRIENT
Stage 4 RCC -- just started a new drug, "Votrient" --- anyone out there familiar with this medication ?? Please advise - and thanks.