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Kidney Cancer

Weaning Myself off Nivo
After having been on combination immunotherapy (Ipi/Nivo) for three years, and having been NED at the last six of my regular three-monthly scans, I have decided to stop the treatment. The medical team thinks it has done all it can for me, and my immune system should be able to do the job by itself from now on (if needed).…
65 GFR
Eight or nine years ago when I had gout and was a bit heavier my GFR went down to 39 or so. It is now up to 65 and I will be 76 years young in a few months. Over the past 5 years I have lost 75 pounds and put back 20 or so. I really think losing weight is the best way to get your GFR up to a decent level. Much of the…
Mountain lion
Just read this on a Facebook page I'm following, I think you'll like it. They didn't mention who the author is. ................. In case you've ever wondered................ "What’s it like to go through cancer treatment? It’s something like this: one day, you’re minding your own business, you open the fridge to get some…
Why don't people listen?
As a cancer patient and now survivor, I've learned alot as far as being a survivor. I've learned to be my own advocate, I've learned where to get information. I've learned generally what to expect with scans and how people react. It's funny what happens when you tell someone you have cancer. I wish I would have had someone…
Treatment done anxiety lingers
Hey all, I hope you all are well and enjoying life. I finished my SBRT on the 8th but since then I cannot seem to shake this anxiety/scared feeling. I scan on May 13th and I find myself so nervous. I am not on any systemic treatment but cant help but wonder what they will find next.... I was stage T2B at diagnosis and even…
Trial drug Sorafenib (nexaval) - anybody have any info on this
Hi Just wondered if anyone in here has been on a trial drug called Sorafenib (nexaval). My mother recently had a radical nephrectomy and her oncologist has asked if she would like to take part in a trial therapy which could stop the reoccurance of kidney cancer. We have written information on the drug and side effects but…
A confession to make...
I will be lying to you all if I said that I am doing exceedingly well. Oh, I am well. Still hurtin' from the surgery, but well enough. Previous to the surgery, I was a heavy drinker. Not necessarily a cause of the RCC, but a contribution to it for sure. You know, the type of guy that would drink in excess more often than…
Bulge?
im 8 weeks post surgery partial nephrectomy feeling pretty close to 100 percent at this point during most activity but I still have a bulge On the top side of my incision. I had open surgery. I found a few older posts that seem to indicate this may be permanent? Has anyone around here had this issue? At 8 weeks is it still…
New here
Hello peeps. 35 years old and newly diagnosed since RCC took advantage of my welcoming nature to find refuge in my right kidney. Fortunately, it was caught before it could wreak a complete havoc. Incidental find was based on pelvic floor muscle tightness trigerred urinary issues (I have some series muscle issue going)…
WHO/ISUP grade vs Fuhrman
Happy Friday peep! I'm not sure if this has been already discused here, but pathology reports over the last 5 years or so have embraced the WHO/ISUP grade for the surgicl tumor as opposed to the Fuhrmans which was pretty much the norm for ccRCC. I have observed that a lot of research data (including nomograms) for…
Still NED but---
Had my Kidney US last week and saw URO today. Same small sub cm cyst in other kidney wh1ch they have been watching for years. Officially NED for almost 17 years. But PSA is higher and retest in 90 days. Then maybe Prostate biopssy. Trying to get discharged from URO. icemantoo
laparoscopic partial pain
almost 3 month passed after LPN. still have pain from time to time sometime very discouraged. My doctor ordered ct and after reviewing result told me that it is nothing to do with a surgery because laparoscopic partial could not cause this pain. he said that disc regeneration trigered this pain. I do not believe him.…
Successful Partial Nephrectomy u
I had a successful partial nephrotomy on March 21, 2019 and I am recovering well. Thanks be to God for His mercies. The pathology report says t1b, clear cell carcinoma, Fuhrman Grade II. I’m grateful!
2.5 years for my cystic ccrcc
Hi all, I have been having some pretty bad scanxiety this time causing some physical issues like loss of voice and gum infection. I have never known stress can contribute to such a problem. High ferritin perhaps from my fatty liver and etc. The good news is my 2.5 years scan (this time chest X-ray + US again) came back…
Small t3 hemangioma
so I got my ct scan results in writing. My doc never mentioned this funding and I’ve been having back pain at night as I’ve written about on this board for many months going back to before surgery in this exact location. does anyone have experience with a finding like this. I plan To call my doc. wondering if this could be…
2nd kidney also has lesion
Grandfather had kidney cancer @73 — didn’t do any operation but just took homeopathy and survived for more than 10 years My father got diagnosed with highly aggressive lungs cancer at stage 4 and survived hardly for an year i was not so lucky Nd got diagnosed at 28 with left kidney RCC by chance had no symptoms got left…
Help
Hi! I need some advice from those who have "been there". In 2017 during a ct scan for something else they found a tumor on my left kidney (on the bottom). At that time is was 0.5 x 0.6 x 0.5 cm. I was placed on active surveillance with alternating u/s and ct scans every six months. My last ct was the end of October 2018…
Post op question - feelings.
So the recovery is ongoing, and I'm on the up. I wanted to ask something here to my nephed brethren as yo post surgery issues. The scars are healing well. The area where the big incision was made, were my kidney came out, is of course still sensitive. Around and below it. What I've noticed since last weekend was some…
Pathology is in...... sort of.
Just got some fantastic news! Thanks to a bad signal, I missed the docs call with the pathology report from my partial neph last week but he did send an accompanying email message. He said the results are good. There were not many details on the message as I’m sure he wants to go over them with me but he said the results…
NED for me too!
Happy to report that my scan this week was clear. It was a little scary for awhile as my doctor noticed some nodules in the lung scan. The radiologist confirmed they were calcified and had been there for a couple of years, so that was a huge relief. Now i'm good for another 6 months!!
Husband 1 year checking in
Hi All, Well it has been almost a full year since my husband's diagnosis of stage 4 RCC with mets on 3 rib bones. Had Kidney removed in June, and started immunotherapy 7-30-18, checkmate 214 nivolumb and Ipilimumab. About November he had lots of fatigue and bone pain for about 3 months. We got CBD salve for the bone pain…
Happy Easter
I hope you all have a wonderful Easter and are able to spend time with loved ones. Last year I spent Easter at Mayo while I was waiting for my nephrectomy the next morning. I am so thankful that I am able to celebrate with my family my Savior’s victory over death. He is risen. I do not fear this disease. I will keep…
Newly diagnosed
Hello all, I recently was diagnosed with RCC. My journey started with a severe stomach ache and weight loss. I visted my doctor and they sent me to the hospital for a Cat scan that showed nothing. I was told I had a infection that would be taken care of with antibiotics. I felt a little better for about 2 weeks and the…
Relay for life
i am going to be in Blacksburg Virginia this Friday a Relay for Life event at Virginia Tech. Is there anyone close by that may be attending as well?
Its crazy...
I started acupuncture again on friday. Turns out my acupuncturist is female and is also in her early 30's, clear cell RCC, also on her right kidney! Stage 1, grade 2, 1 year NED as well! I'm told over and over how rare it is to have this cancer soo young. Well, guess its not as uncommon as it used to be. It's nice having…
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This is so surreal I still can't quite believe it...
4 years ago last february I decided to post for the first time here. I had had a partial nephrectomy September 2014 for RCC. That post led to many more and thanks to this board and to many members past and present I retained my sanity and got thru the mental rollercoaster that threatened to play havoc with my mind and…
Ipi/Nivo did not work
Hello All, I have not posted in a while because I was putting all my time and effort in my immunotherapy treeatmemtn (Ipi/Nivo). Unfortunately, my latest scan indicates it did not work and my doctor wants to put me on Sutent. Anyone have luck with this therapy? Thank you for your time, Iggyrip
Showtime!
insurance approved. Waiting on blood work but other than that, I’m next. Surgery to begin in about 20 min. 2.9 cm left kidney. partial neph. Robotic.
NED!
3 month Ct scan chest, abdomen, pelvis was NED! My first of hopefully many visits from Uncle Ned who I am throwing out the door quickly so he. Can come to visit all of you! So relieved as they had not done a chest or pelvic ct before my surgery and I was concerned there might have been something hiding from the x rays.…

Kidney Cancer

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