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Happy Easter
I hope you all have a wonderful Easter and are able to spend time with loved ones. Last year I spent Easter at Mayo while I was waiting for my nephrectomy the next morning. I am so thankful that I am able to celebrate with my family my Savior’s victory over death. He is risen. I do not fear this disease. I will keep…
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Newly diagnosed
Hello all, I recently was diagnosed with RCC. My journey started with a severe stomach ache and weight loss. I visted my doctor and they sent me to the hospital for a Cat scan that showed nothing. I was told I had a infection that would be taken care of with antibiotics. I felt a little better for about 2 weeks and the…
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Relay for life
i am going to be in Blacksburg Virginia this Friday a Relay for Life event at Virginia Tech. Is there anyone close by that may be attending as well?
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Its crazy...
I started acupuncture again on friday. Turns out my acupuncturist is female and is also in her early 30's, clear cell RCC, also on her right kidney! Stage 1, grade 2, 1 year NED as well! I'm told over and over how rare it is to have this cancer soo young. Well, guess its not as uncommon as it used to be. It's nice having…
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This is so surreal I still can't quite believe it...
4 years ago last february I decided to post for the first time here. I had had a partial nephrectomy September 2014 for RCC. That post led to many more and thanks to this board and to many members past and present I retained my sanity and got thru the mental rollercoaster that threatened to play havoc with my mind and…
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Ipi/Nivo did not work
Hello All, I have not posted in a while because I was putting all my time and effort in my immunotherapy treeatmemtn (Ipi/Nivo). Unfortunately, my latest scan indicates it did not work and my doctor wants to put me on Sutent. Anyone have luck with this therapy? Thank you for your time, Iggyrip
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Showtime!
insurance approved. Waiting on blood work but other than that, I’m next. Surgery to begin in about 20 min. 2.9 cm left kidney. partial neph. Robotic.
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NED!
3 month Ct scan chest, abdomen, pelvis was NED! My first of hopefully many visits from Uncle Ned who I am throwing out the door quickly so he. Can come to visit all of you! So relieved as they had not done a chest or pelvic ct before my surgery and I was concerned there might have been something hiding from the x rays.…
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Uncle NED!!
Uncle NED just stopped by. Boy was I glad to see him!!!! I still asked about my pain and the Dr referred me to my PCP as it might be linked to my daily activities. Next scan will be in one year. Now I’ve got to get back on my diet and lose the weight I have gained back since my surgery.
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Scheduled at Cleveland Clinic for second opinion
Received a call from my PCP today that I am scheduled for a second opinion with a new Urologist with the Cleveland Clinic! Original Urologist (stand alone practice) recommended active Surveillance without a biopsy. Didn’t sit right with me And talked to my PCP about it. He agreed and set Me up with a new doc. I looked him…
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And the results are in.
T2a N0 MX. 10 cm Renal cell carcinoma. Clear cell type. No sarcomatoid features. No rhabdoid features. Tumor necrosis: not identified. Fuhrman grade 2. Tumor extension: limited to kidney. Margins uninvolved by invasive carcinoma Lymphovascular invasion: not identified. Other tumors: none. Negative for metastatic carcinoma.…
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Surgery scheduled for tomorrow.......maybe
Met with the surgeon today. left with a scheduled surgery on the 29th. Got a call as soon as I got home. The surgeon had a cancellation for tomorrow and wanted to know if I wanted the slot. After several phone calls to parents and work, we are tentative for 4:30 tomorrow at Cleveland Clinic Fairview. Robotic partial neph…
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Waiting for scan results
I am impatiently waiting for my scan results. My EGFR was 79 which is down a bit.
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6 months already!
So, good news to report. 6 months have passed and CT of chest, abdomen, and pelvis show no specific evidence of recurrence or metastasis. I have spent the past few days reflecting and wanted to share this. I am advancing to annual CT scans. It's crazy to think 6 months have passed. With those six months came aches and…
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Welp here we go
Welp here we go.. the next ten days will be spent treating my two lung mets... I know I do not post a lot but I do read everyday. I want to thank you all for always being informative, supportive and encouraging. I hope this finds you all well, happy and hopeful! Wish me luck Cin
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"Beyond" worrying about so many tests.
Well, Sort of. In the past three months: Mammogram-OK, Check off the list. Vaccines-OK, Flue and 2 dose Shingrix. Oncology labs & check up-OK, see me back in 6 months. Colonscopy-OK, no polyps. No need to see Dr., he'll send a letter. 76th Birthday-OK. The day after the last named test, so I got to enjoy a good dinner.…
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Mom's Cancer Diagnosis
At the beginning of this year my mom had an issue with a bulging disc so painful that I had to take her to the ER. We came home that day with more than we bargained for. They did a CT of her spine because she was in so much pain and while in the ER the doctor informed us that she had Cancer of her Kidney and smaller cells…
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Scared. Optimistic, but scared.
So I was just told by the ER that they found Renal Cell Cancer in one of my kidneys. This, am afraid, is something I brought upon myself. Long time drinker, to the point of blacking out frequently. Last year, after a bout of drinking, I pissed blood, but thought nothing of it and it never happened again. Flash forward to…
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Possible small renal mass
First os all sorry my English, I'm from Brazil. Incidental detection of an Exophytic Small renal mass like 1.5cm has been detected in unenhanced CT scan. Actually thebl image is a slight lobulation. After that, I did three US (one total abdomen and two urinary sistem specific) and showed just an small lobulation with the…
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Moved up annual scans
All of a sudden a few weeks ago when I would lay on my right side, as I’m a side sleeper I would have a pain. Nothing severe just enough to get my attention. It doesn’t hurt any other time and I can go about my daily routine not feeling a thing. I decided to move up my scans with a different Dr to get a fresh set of eyes.…
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Six weeks from surgery and it appears to be back
Hi everyone. I am new to the group. On 2/7/19 I had my right kidney and tumor(6.2) removed. Additionally the cancer was in my renal vein and vena cava. The surgery went well and I was beginning to feel better about things until my scan results yesterday. There are a couple 4MM nodules in my lung and a 1 cm. in a lymph node…
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Elevated Ferritin, is it a biomarker?
Does anyone has experience with elevated ferritin level? I am having rotator cuff tendonitis which inflammation can be the reason. But wondering does ferritin related to RCC as well? Also, for follow ups, what are they looking in the blood test? Thank you!
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Newbie
Hi! I am so glad to find this group! I went to the ER the end of February with a suspected kidney stone. The CT scan showed a 1.6 cm mass on the top of my right kidney. A follow up scan and and MRI confirmed the mass, and an additional mass on the lower left part of my kidney (which isn't quite as suspicious as the top…
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2 months post open partial neph with a pain in kidney area
l have this pain that won’t go away just past the end of my incision for open partial neph right side. It’s a persistent pain that feels muscular right under my rib cage. Hurts when I bend certain ways and hurts more at night when I’m sleeping on my side then during the day. During the day I feel it at times when I stretch…
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3 month Scan
My first post operative appointment with my doctor is on Wednesday morning and I just found out they want me to go for a CT scan of my chest, abdomen and pelvis on Monday. At first I was under the impression that the doc was only doing an ultrasound, but I received this call today. Of course now I am wondering if there is…
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3.5 cms
Am silent reader of this site. I almost log in every day to read and absorb as much as information as I can. Information on the internet is so overwhelming. Just wondering what is the prognosis for 3.5 cm Rcc? Out of your own experiences.Thank you all!
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Second Opinion Results
Well........ not so much has changed. Met with a doc doc today that I thought was going to end up being my surgeon. Turns out he doesn’t do Nephs any more. He looked at my scans and agreed that it should come out sooner than later though. This was a bit of a surprise to me. He said that once you get to 3cm, the potential…
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Low Urine Gravity
All i have had 2 recent urine tests about 2 weeks apart. Everything looked good (even my UA which has always been a problem) but one came back flagged with a very low gravity (Below 1.005). The one before that was within the lower but normal regions. It is true that since I have been diagnosed that I am drinking a lot more…
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Kidney cancer diagnosis
I am a 41 year old white female diagnosed on March 4 with Kidney cancer. My surgery is April 5, surgeon is doing a partial. in 2016 I went to the ER with horrible pain on my right side. Felt like a bullet hit me. It was a burst ovarian cyst. But they also fount a cyst about 3 cm in size on my left kidney. I was told it was…