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Kidney Cancer

Moved up annual scans
All of a sudden a few weeks ago when I would lay on my right side, as I’m a side sleeper I would have a pain. Nothing severe just enough to get my attention. It doesn’t hurt any other time and I can go about my daily routine not feeling a thing. I decided to move up my scans with a different Dr to get a fresh set of eyes.…
Six weeks from surgery and it appears to be back
Hi everyone. I am new to the group. On 2/7/19 I had my right kidney and tumor(6.2) removed. Additionally the cancer was in my renal vein and vena cava. The surgery went well and I was beginning to feel better about things until my scan results yesterday. There are a couple 4MM nodules in my lung and a 1 cm. in a lymph node…
Elevated Ferritin, is it a biomarker?
Does anyone has experience with elevated ferritin level? I am having rotator cuff tendonitis which inflammation can be the reason. But wondering does ferritin related to RCC as well? Also, for follow ups, what are they looking in the blood test? Thank you!
Newbie
Hi! I am so glad to find this group! I went to the ER the end of February with a suspected kidney stone. The CT scan showed a 1.6 cm mass on the top of my right kidney. A follow up scan and and MRI confirmed the mass, and an additional mass on the lower left part of my kidney (which isn't quite as suspicious as the top…
2 months post open partial neph with a pain in kidney area
l have this pain that won’t go away just past the end of my incision for open partial neph right side. It’s a persistent pain that feels muscular right under my rib cage. Hurts when I bend certain ways and hurts more at night when I’m sleeping on my side then during the day. During the day I feel it at times when I stretch…
3 month Scan
My first post operative appointment with my doctor is on Wednesday morning and I just found out they want me to go for a CT scan of my chest, abdomen and pelvis on Monday. At first I was under the impression that the doc was only doing an ultrasound, but I received this call today. Of course now I am wondering if there is…
3.5 cms
Am silent reader of this site. I almost log in every day to read and absorb as much as information as I can. Information on the internet is so overwhelming. Just wondering what is the prognosis for 3.5 cm Rcc? Out of your own experiences.Thank you all!
Second Opinion Results
Well........ not so much has changed. Met with a doc doc today that I thought was going to end up being my surgeon. Turns out he doesn’t do Nephs any more. He looked at my scans and agreed that it should come out sooner than later though. This was a bit of a surprise to me. He said that once you get to 3cm, the potential…
Low Urine Gravity
All i have had 2 recent urine tests about 2 weeks apart. Everything looked good (even my UA which has always been a problem) but one came back flagged with a very low gravity (Below 1.005). The one before that was within the lower but normal regions. It is true that since I have been diagnosed that I am drinking a lot more…
Kidney cancer diagnosis
I am a 41 year old white female diagnosed on March 4 with Kidney cancer. My surgery is April 5, surgeon is doing a partial. in 2016 I went to the ER with horrible pain on my right side. Felt like a bullet hit me. It was a burst ovarian cyst. But they also fount a cyst about 3 cm in size on my left kidney. I was told it was…
Hi, old friends!
i just read iof Fox’s passing. Those of you who recognize my name have been here a while. Those that are new(er) to the site, will not recognize my name at all, not know my story. My apologies for not being the solid support like Iceman has been for such a long time. I do want to simply share my progress. I am an BMS 1106…
My 12 month Kidney Cancer journey
For: Your edification Me: 57 year old male, living in the US, in otherwise good physical condition Feb 2018: First found out I had a possible 2 cm growth on my right kidney from a scan done during an emergency room visit for a kidney stone. April 2018: After having some additional testing (with contrast MRI) done two…
FLY, FLY, FLY
Fox and I were cyber friends and connected immediately; I know how hard he fought and how much he appreciated the years of life that he survived following a dreadful prognosis. There was no treatment he didn’t try and never did he complain about his situation; he didn’t ask why because he knew that the answer was why not.…
when do you take votrient?
After reading updates from Matt and Bruce, I thought I'd raise this issue again. When do you (votrient takers), take your votrient? I take mine at night before bed. Supposedly so I sleep through the side effects. But I am no longer sure. I still have morning diarrhea although not as intense as it had been. I also live with…
CRP
I noticed my CRP is elevated now a little more than two months post surgery. It was elevated before surgery but to a lesser extent. Has anyone else had any conversations with docs regarding elevated CRP? I was at .8 mg/dL before surgery and now 1.5 mg/dL post surgery. I am reading elevated CRP can have an association with…
Wondering about surgical urgency
A question for everyone: 2.9 CM mass on left kidney. Mostly outer portion about 3/4 from top. No signs of node inflammation or Mets signs. No urologic function issues. Minor occasional discomfort from tumor area like it’s pushing on something. Orig doc called for active surveillance. Second opinion with cleveland clinic…
Kidney Surgery for Stage 1 Renal Cancer
I will be undergoing open a partial nephrectomy on March 21, 2019 for a 4cm mass on the lower lobe of my left kidney! Any advice on what to expect during and after surgery? The doctor intitial diagnosis is Stage 1 renal cancer but will not be confirmed for a fact if malignant until the mass is removed and patholigacally…
Perinephric fluid collection
I had my partial nephrectomy done and had a small RCC in my left kidney removed about two months ago and 4 weeks after the surgery, I started to have some tiny blood clotts in my urine now and then for about 3 weeks now (But it is turning better now). My doctor says that i am still in the process of healing up and asks me…
Nessun Dorma...
Well, got a call today from the urologist. It was a T2 clear cell carcinoma. Even though it was large, 10cm, it did not spread outside of the kidney. Glands are clean, as are other areas. He told me that no further therapy would be necessary. Still have an appointment with him on Tuesday. Clean. Clean. That word is…
Couple of days out. A report.
So, I've been on the up. Sleeping has gotten progressively better, and I'm trying to stay off of the pain medication during the day. Not that they're as powerful as what they gave me in the hospital, but I'd rather control that as much as I can. Changed into 'civvies' today and walk around half a mile without an issue. The…
5 Years NED & Discharged!
Hi All. Not quite sure how I feel about the discharged bit @ 5 years. But, apparently I have been very lucky. I am fit, healthy and oficially a survivor of PT3a Kidney Cancer. I feel humble and very blessed. I was looked after with love, respect and care by everyone of my medical team. I hope this gives you hope in your…
Question
Has anyone experienced "brain fog" after surgery? I'm 15 months post surgery and all my kidney function numbers are normal but something hasn't seemed quite right for about a year now. I'm not sure if it could be related to having kidney cancer or not.
3 Month Scan
I am getting my 3 month scan next Wednesday and just found out its only of my abdomen. How come they dont scan my whole body? After having cancer at such a young age - Im 33- I want to be sure its no where else in my body. Is this common to just do abdomen? This news isnt sitting well with me :(
SBRT
Well a week from today I will be starting radiation treatment to my lung nodules. I'm really nervous. My goal is to stay off systemic treatment for as long as I can. Has anyone undergone this? I am a little worried about long term effects. My left side is in a tricky spot. Any insight would be appreciated. Hope you all are…
Lung Nodules
Went for 1.5 year check up. CT of chest and ultra sound of kidneys. DOC wanted CT of chest, abdomina and pelvis but insurance got in the way.. Anyway, had a 4mm stable nodule since the beginning now I have another 4mm nodule that showed up this time- not sure how worried I should be or what I should ask for if anything?…
Still standing. More or less...
The deed is done. Had my kidney removed yesterday. Still in the hospital, but on the up and up. Want to share my experience for all, and maybe for to help others if they ever get into this situation. * Got here bright and early. The nurses were all lovely and attentive. They recognized that I was nervous and tried to…
Initial diagnosis to active surveillance in 5 min flat.
Ok. here Goes. -42 yo.Male, smoker (Until last week), slightly over weight, Apnea. No other major health issues -2.5 cm mass on Left kidney. found Last week during an appendicitis CT scan In a city that was not my home. -Surgeon recommended seeing Urologist and said they would probably opt for a biopsy. Sent me home with…
3 month vs 6 month following surgery
I am seeing quite a few people who are having CT's at 3 months following surgery. My first isn't scheduled until 6 months. I was just wondering what everyone else had? Thanks!
3 month Scan TOday- worried about GB
I just received my results from my MRI - I am 3 months post surgery. Everything said remarkable except my gallbladder. Says my gallbladder is intrinsically T1 hyperintense? Then at the bottome says this "Intrinsic gallbladder T1 hyperintensity is indeterminant and may be secondary to biliary sludge, prior contrast…
Is 6 month CT scan correct protocol?
Today, I went to see my oncologist Dr. Randall at UCSD for my 3 month post surgery CT scan and blood work. The result is NED and my blood work is great so therefore my oncologist set me for CT and blood work every 6 month instead of 3 month. I told my Doctor that I am not comfortable to have 6 month CT scan because on my…

Kidney Cancer

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