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Successful Partial Nephrectomy u
I had a successful partial nephrotomy on March 21, 2019 and I am recovering well. Thanks be to God for His mercies. The pathology report says t1b, clear cell carcinoma, Fuhrman Grade II. I’m grateful!
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2.5 years for my cystic ccrcc
Hi all, I have been having some pretty bad scanxiety this time causing some physical issues like loss of voice and gum infection. I have never known stress can contribute to such a problem. High ferritin perhaps from my fatty liver and etc. The good news is my 2.5 years scan (this time chest X-ray + US again) came back…
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Small t3 hemangioma
so I got my ct scan results in writing. My doc never mentioned this funding and I’ve been having back pain at night as I’ve written about on this board for many months going back to before surgery in this exact location. does anyone have experience with a finding like this. I plan To call my doc. wondering if this could be…
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2nd kidney also has lesion
Grandfather had kidney cancer @73 — didn’t do any operation but just took homeopathy and survived for more than 10 years My father got diagnosed with highly aggressive lungs cancer at stage 4 and survived hardly for an year i was not so lucky Nd got diagnosed at 28 with left kidney RCC by chance had no symptoms got left…
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Help
Hi! I need some advice from those who have "been there". In 2017 during a ct scan for something else they found a tumor on my left kidney (on the bottom). At that time is was 0.5 x 0.6 x 0.5 cm. I was placed on active surveillance with alternating u/s and ct scans every six months. My last ct was the end of October 2018…
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Post op question - feelings.
So the recovery is ongoing, and I'm on the up. I wanted to ask something here to my nephed brethren as yo post surgery issues. The scars are healing well. The area where the big incision was made, were my kidney came out, is of course still sensitive. Around and below it. What I've noticed since last weekend was some…
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Pathology is in...... sort of.
Just got some fantastic news! Thanks to a bad signal, I missed the docs call with the pathology report from my partial neph last week but he did send an accompanying email message. He said the results are good. There were not many details on the message as I’m sure he wants to go over them with me but he said the results…
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NED for me too!
Happy to report that my scan this week was clear. It was a little scary for awhile as my doctor noticed some nodules in the lung scan. The radiologist confirmed they were calcified and had been there for a couple of years, so that was a huge relief. Now i'm good for another 6 months!!
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Husband 1 year checking in
Hi All, Well it has been almost a full year since my husband's diagnosis of stage 4 RCC with mets on 3 rib bones. Had Kidney removed in June, and started immunotherapy 7-30-18, checkmate 214 nivolumb and Ipilimumab. About November he had lots of fatigue and bone pain for about 3 months. We got CBD salve for the bone pain…
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Happy Easter
I hope you all have a wonderful Easter and are able to spend time with loved ones. Last year I spent Easter at Mayo while I was waiting for my nephrectomy the next morning. I am so thankful that I am able to celebrate with my family my Savior’s victory over death. He is risen. I do not fear this disease. I will keep…
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Newly diagnosed
Hello all, I recently was diagnosed with RCC. My journey started with a severe stomach ache and weight loss. I visted my doctor and they sent me to the hospital for a Cat scan that showed nothing. I was told I had a infection that would be taken care of with antibiotics. I felt a little better for about 2 weeks and the…
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Relay for life
i am going to be in Blacksburg Virginia this Friday a Relay for Life event at Virginia Tech. Is there anyone close by that may be attending as well?
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Its crazy...
I started acupuncture again on friday. Turns out my acupuncturist is female and is also in her early 30's, clear cell RCC, also on her right kidney! Stage 1, grade 2, 1 year NED as well! I'm told over and over how rare it is to have this cancer soo young. Well, guess its not as uncommon as it used to be. It's nice having…
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This is so surreal I still can't quite believe it...
4 years ago last february I decided to post for the first time here. I had had a partial nephrectomy September 2014 for RCC. That post led to many more and thanks to this board and to many members past and present I retained my sanity and got thru the mental rollercoaster that threatened to play havoc with my mind and…
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Ipi/Nivo did not work
Hello All, I have not posted in a while because I was putting all my time and effort in my immunotherapy treeatmemtn (Ipi/Nivo). Unfortunately, my latest scan indicates it did not work and my doctor wants to put me on Sutent. Anyone have luck with this therapy? Thank you for your time, Iggyrip
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Showtime!
insurance approved. Waiting on blood work but other than that, I’m next. Surgery to begin in about 20 min. 2.9 cm left kidney. partial neph. Robotic.
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NED!
3 month Ct scan chest, abdomen, pelvis was NED! My first of hopefully many visits from Uncle Ned who I am throwing out the door quickly so he. Can come to visit all of you! So relieved as they had not done a chest or pelvic ct before my surgery and I was concerned there might have been something hiding from the x rays.…
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Uncle NED!!
Uncle NED just stopped by. Boy was I glad to see him!!!! I still asked about my pain and the Dr referred me to my PCP as it might be linked to my daily activities. Next scan will be in one year. Now I’ve got to get back on my diet and lose the weight I have gained back since my surgery.
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Scheduled at Cleveland Clinic for second opinion
Received a call from my PCP today that I am scheduled for a second opinion with a new Urologist with the Cleveland Clinic! Original Urologist (stand alone practice) recommended active Surveillance without a biopsy. Didn’t sit right with me And talked to my PCP about it. He agreed and set Me up with a new doc. I looked him…
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And the results are in.
T2a N0 MX. 10 cm Renal cell carcinoma. Clear cell type. No sarcomatoid features. No rhabdoid features. Tumor necrosis: not identified. Fuhrman grade 2. Tumor extension: limited to kidney. Margins uninvolved by invasive carcinoma Lymphovascular invasion: not identified. Other tumors: none. Negative for metastatic carcinoma.…
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Surgery scheduled for tomorrow.......maybe
Met with the surgeon today. left with a scheduled surgery on the 29th. Got a call as soon as I got home. The surgeon had a cancellation for tomorrow and wanted to know if I wanted the slot. After several phone calls to parents and work, we are tentative for 4:30 tomorrow at Cleveland Clinic Fairview. Robotic partial neph…
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Waiting for scan results
I am impatiently waiting for my scan results. My EGFR was 79 which is down a bit.
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6 months already!
So, good news to report. 6 months have passed and CT of chest, abdomen, and pelvis show no specific evidence of recurrence or metastasis. I have spent the past few days reflecting and wanted to share this. I am advancing to annual CT scans. It's crazy to think 6 months have passed. With those six months came aches and…
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Welp here we go
Welp here we go.. the next ten days will be spent treating my two lung mets... I know I do not post a lot but I do read everyday. I want to thank you all for always being informative, supportive and encouraging. I hope this finds you all well, happy and hopeful! Wish me luck Cin
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"Beyond" worrying about so many tests.
Well, Sort of. In the past three months: Mammogram-OK, Check off the list. Vaccines-OK, Flue and 2 dose Shingrix. Oncology labs & check up-OK, see me back in 6 months. Colonscopy-OK, no polyps. No need to see Dr., he'll send a letter. 76th Birthday-OK. The day after the last named test, so I got to enjoy a good dinner.…
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Mom's Cancer Diagnosis
At the beginning of this year my mom had an issue with a bulging disc so painful that I had to take her to the ER. We came home that day with more than we bargained for. They did a CT of her spine because she was in so much pain and while in the ER the doctor informed us that she had Cancer of her Kidney and smaller cells…
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Scared. Optimistic, but scared.
So I was just told by the ER that they found Renal Cell Cancer in one of my kidneys. This, am afraid, is something I brought upon myself. Long time drinker, to the point of blacking out frequently. Last year, after a bout of drinking, I pissed blood, but thought nothing of it and it never happened again. Flash forward to…
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Possible small renal mass
First os all sorry my English, I'm from Brazil. Incidental detection of an Exophytic Small renal mass like 1.5cm has been detected in unenhanced CT scan. Actually thebl image is a slight lobulation. After that, I did three US (one total abdomen and two urinary sistem specific) and showed just an small lobulation with the…
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Moved up annual scans
All of a sudden a few weeks ago when I would lay on my right side, as I’m a side sleeper I would have a pain. Nothing severe just enough to get my attention. It doesn’t hurt any other time and I can go about my daily routine not feeling a thing. I decided to move up my scans with a different Dr to get a fresh set of eyes.…