This is so surreal I still can't quite believe it...
4 years ago last february I decided to post for the first time here. I had had a partial nephrectomy September 2014 for RCC. That post led to many more and thanks to this board and to many members past and present I retained my sanity and got thru the mental rollercoaster that threatened to play havoc with my mind and emotions. Many generous and loving people were there for me... a very special mention for Fox who accepted nothing less than courage and positivity and with whom I became very close with. Miss him always and more so today.
Time has gone by and its been awhile that I don't think about it everyday. Last Sunday I saw blood in the toilet and checked and knew it was not me. Today, after first trying antibiotics for infection or checking out for kidney stones, my husband was diagnosed this afternoon with kidney cancer, almost same size and same right side as me. I can't believe such a rare cancer has struck us both in such similar ways. My forst reaction was crying and saying no, no, no, no... unable to accept or believe this could be true. That was 5 hours ago. He told one of our sons, the other is frlying back from China tonight. He is calm, as he was for me, that is his way God bless him. We had a bottle of wine and he was saying; at least we know who the good doctor is and where to find him. I feel like Im in a bad dream. We still don't know much more. We are just telling our sons right now but I needed to come here to the place were I found so much confort some year ago. Im hoping we can pass this very hard test with the courage thar Fox would have thought me and all of us capable of. May you all be well. My best thoughts to all. Thank you for being there!
Comments
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oh man-
On one hand, I'm shaken by the terrible luck, imagining what you and your family have already gone through and must face again. On the other hand, how fortunate that your husband has a living example of what can be done at his side. You know what to do and you've done it before - you'll do it again.
We're here for you. Sending you and your family prayers and virtual hugs. You've got this.
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Oh Marosa, so sorry for your
Oh Marosa, so sorry for your husband! It is hard to believe indeed!
At the same time, you both know now that kidney cancer is not a death sentence. You've been through it, you survived and you are and will be NED. So he will be as well. You know what to do, what to check, what to expect, how to support.
You both will be fine. Husband will be nephed and NED, you will be brave and great support to him. Things will be all right!
Hugs,
Alla
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Crazy but your experience
Crazy but your experience should go a long way towards keeping him and the rest of the family positive. Will be thinking of you and him as you traveerse through this!
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I'm sorry
Sorry to hear that tough news, but your husband is right, you mnow someone who can help get you through it. You are in a unique position too because having gone through it you will be able to help him through in a way only a veteran survivor can... You will quite possibly have more insight into how he is feeling and thinking and can help him get through it. I will be praying for your husband and your family!
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Wow. What are the chances?
Wow. What are the chances? Really, they have to be astronomical.
Just to echo what everyone else has said we will definitely be praying for a quick and uneventful surgery. Secondly, you know the enemy, you know he can be defeated.
Big hugs to you guys!
Chad & Pam
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I am so sorry to hear this
I am so sorry to hear this news. It's so unfair. The only good thing is that you do know how to proceed in his treatment. No learning curve this time.
I think it would be a good idea to request a visit with a genetic specialist.
When my husband was diagnosed, we were concerned about the cause. We live in a farming community. It still amazes me that nobody seems to monitor what we all might have in common or been exposed to. I would truly like to limit exposure to environmental causes. Noone has even asked about family history.
I've read quite a few of your posts, and I think you will be an inspiration for your husband. Best wishes to you both.
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So sorry to hear your news
But it sounds like you have a plan. You both have been thru the "routine" and I'm sure you'll come out the other side a bit worse for wear but successful.
All good wishes to both of you and your family.
Hugs,
donna_lee
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Unbelievable
I am so sorry to hear the news... but at least you two already have an idea of what comes next.
You both will be in my prayers.
Cin
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Awful news
It's awful news to hear twice. You and your husband have been through this before now on the others side. Hopefully he will get through this without complications. Sending positive thoughts for you and your husband.
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I would like to challenge the idea of....
RCC being a "rare" cancer. For example, I live in a small town in Iowa with a population of just over 2,000 people. Less than 6 blocks from me is another man about my age that was diagnosed with RCC about 6 months before me. The father of one of my colleagues recently passed away from mRCC. I also personally know another person with RCC. I find it hard to believe that there are only 60,000 new cases each year.
Marosa, I'm so sorry about this news. Your husband is lucky to have you as a resource and advocate. I know you guys will pull through this.
Wishing you and your family only the best.
Stub
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Thank you all for your caring messages
We know how much it means for us to stick together and help each other. In many ways, we do it better than anyone else because we are or have been there. I appreciate every single word in your messages. They give me strength and help me be positive for my husband. We will be busy getting ready to leave on Saturday to France. I will get back with news when we are there and know more. Thank you again, old friends and new. Be well
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Wow thats
Alot to take-luckily your husband has a great support (you) and with your knowledge and experience you will guide him first hand. Of course we will all be here along with you with prayers and hugs. Best of luck-keep us posted-June
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Crazy!
A big positive is that you both know what to expect and how to deal with everything.
In the 13 months since my surgery, two people I know have been diagnosed with kidney cancer. One, like me, was found early when looking for something else. The other had actual symptoms and does have some mets. I thought the odds of that were big - but you have me beat!
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Be Strong.
Be Strong.......
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