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Kidney Cancer

Votrient to Opdivo after 3 months. Thoughts?
I met with my oncologist yesterday and he wants to take me off of the 800 mg Votrient and start Opdivo. I am currently "stable" on Votrient with a small tumor burden - appx. 1.8 x 2.3 cm mediastinal lymph node with mild pet scan activity, 2 nodules both still "indeterminant" due to size. Given the small tumor burden, my…
Back Pain/Shoulder Pain
so I’m two months post partial neph for chrimophobe RCC 3.9cm. This was found incidentally due to my complaint regarding back and shoulder pain neither of which has in any way dissipated post surgery. I’ve spoken to my doctors,both my PCP and my urological surgeon who is handling my scans and they insist it’s not related…
BP medications
Good morning, I hope everyone is safe from the cyclone snow storm. I'm wondering if members would be willing to update their blood pressure medicine experiences. Most of the forum answers are a few years old. I had my kidney and 6.5cm chromophobe tumor removed Oct., 2017. Normal BP (no medication) until November, 2018 then…
pain and burning sansation
I am on my 5th week of recovery from robotic partial neph. Did anybody had burning sensation under shoulder blade on the site of surgery?
Glad to Find this Group!
Hi all, im 51 and was diagnosed last month with a 2.5cm renal mass, likely RCC. Scheduled for robotic partial the week after next. I feel very lucky that t was found early, during a routine scan I get for unrelated reasons. I was reading through this forum and was quite touched by the amazing support you give one another,…
The results are in
So my biopsy was positive for RCC Meeting today with Radiation oncology to set up SRBT. The plan is to zap those two spots and bring me back to NED. I will re scan May 13th. In the meantime I'll just be plugging along one foot in front of the other... I hope this finds you all well and happy! Sending out love Cin
Treatment Provider Selection
I'm new here and am glad finding this incredible forum. I was incidentally diagnosed with a solid-appearing enhancing left exophytic renal mass in CT and MRI last December. The mass is in posterior midpole measures 10x4x15 mm. I feel very lucky that it was found early. My previous urologist oncologist offered me three…
Managing Votrient Side Effects
I just took my first (800 mg) dose of Votrient last night. Today, we'll be going out to get some "supplies" for managing side effects. Among the things suggested are: * Biotene - it was suggested to use that before mouth sores start to help either prevent them or to manage them when they do come around * Bag Balm - for…
VOTRIENT
Stage 4 RCC -- just started a new drug, "Votrient" --- anyone out there familiar with this medication ?? Please advise - and thanks.
Colon thickened and Free Fluid at the Pelvic
Hi! Everyone! I had a laparoscopic partial nephrectomy in July 2017. My pathology is Clear Cell RCC, 4cm, T1a Nx Mx Today is my 3rd time MRI scan & chest X ray. Everyhing are OK. But they accidentally found my descending colon had thickened and there are some free fluid at the pelvic area. After consulted 2 radiologists…
Vertigo
Hello everyone and hope all are well! I've been on Sutent since December, completed 2 rounds and just started my third round yesterday 3/6/19. Had scans done on Monday and they showed a 25% shrink of my tumors on the adrenal glan and lungs. They are going to continue the Sutent as it is working at this point. One thing…
Curative Surgery
I am a bit confused by the verbiage my doctor uses. He uses the term curative quite a bit and he said that following the pathology report there is an 87% chance of the surgery being curative (I had a radical nephrectomy). Does that mean there is an 87% chance I will not have mets down the road? What about secondary…
Renal Cell Carcinoma--Surgery Recovery
First time to a "survivor" discussion board. Everyone's experiences are so different. I had my kidney surgery for Stage 1 RCC on April 15, 2009, knowing that there was an 80% chance that the "inadvertent" find of a 2.5 cm growth was cancer. I came out of surgery with a 9" cut in my side (one of our toughest decisions was…
Weight loss
When is unexplained weight loss a concern? I weigh at the same time every day and lately I have been eating more (an not all clean but mostly lower sodium) and have lost about 5 lbs. over the last week (I weight right around 200 lbs). I went to my PCP and he said that if the weight loss continues and hits 20-40lbs. in 6…
CT Scans
Anyone else have items like this show up on their scans? Is it pretty normal? 4 mm low-attenuation focus in the medial left lobe adjacent to the falciform ligament most likely benign such as focal fat. 3 mm low-attenuation lesion in left hepatic dome (3:13), also most likely benign.
Seeking advice
I am new to this forum. I have been reading quite a number of discussions on this forum and found them very informative and helpful. I am a not so old guy (61 years old) with pretty good health generally. However, last Dec, I was found to have a small renal tumor in my left kidney (about 1.6 cm) which was highly likely to…
Question.
How bad is Furhman grade 4 and does that even matter 2 years after neph?
Sutent 2 weeks on 1 week off
Hi, I haven't been on this site since I started my chemo in April. Was on 50 mg Sutent and had problems with my thyroid. Put me down to 25 mgs of Sutent and still have problems with my thyroid. I am of thyroids meds but they can't seem to get it adjusted My nubers go back and forth from 1 to 25. It was suggested that I do…
Port or intravenously
I am beginning inumatherpy infusions for my renal cancer. The kidney has been removed but tumors were found in my lungs as well. I love to use my hot tub. Its so cold outside. My oncologist says no with a port. My infusions are once every two weeks. Anyone hear of being allowed to us the hot tub with a port?
Rebirth Day
My birthday was two days ago. My re-birthday is today - the one year anniversary since my nephrectomy. There were some complications (a clipped artery), and a four-day stint in ICU. I have extra scars (from the laproscopic start and the opening me up to fix my artery finish). There's what I call my 'navel shelf'...which a…
Been a while..
Sorry to see so much lost content! I know it's been a while since I posted... Last scans show 3 spots in my lungs. Two in right, one in left. Onc scheduled repeat scans and one "spot" resolved itself?? They, however, want to biopsy the one in the left lung. I have been spending a lot of my time on smart patients but I…
Need advice... Doctor recommend yearly scan
I am 40 year old DX in May 2018 with a tumor4.6 cm, well contained, no spread, stage 1b tumor, grade 4. Partial nephrectomy, Clear cell with Sarcomatoid and Necrosis features. I am currently see Dr.Randall at UCSD- Koman Family Outpatient Pavilion. August 2018, my 3 month post surgery CT scan is NED. Today I went to see my…
Exercise Post Surgery
I am about 2.5 months post surgery and have been feeling great. I am wanting to begin working out and exercising again as I just had a baby before my surgery. I recently tried to do some abdominal exercises and noticed that my incisions are actually hurting from the inside. Is this normal? And if so, should I not be…
Confused about post Surgery Follow-ups
So I know things can be handled differently dependent on your treatment center and your individual doctor. I am being treated at Memorial Sloan Kettering and I have a urological cancer surgeon caring for me. In our meeting post-surgery he suggested we would put together a scan schedule for 5 years, a combination of…
I hate it
I hate when we lose people from here. It's funny how we are really just a bunch of strangers with an odd common thread. But, it's funny what a weird feeling it gives me when we lose someone. Fox yes, but others as well. It's never easy. I know we will lose more, this is not a winning game. I suspect one day it will be me.…
NED
I just visited my oncologist and he told me that there no evidence of disease (NED) I will visit him again in 6 months... Feeling very relieved.
Travel
So I had a trip booked for 2/15 to go to Puerto Rico with my family to visit friends that we haven’t see. Since the hurricane. Little did I know when I booked that I’d be having a partial nephrectomy on 1/15. I stand to lose a good amount of money if I cancel, which was what I intended to do until my doc reassured me that…
EGFR
Hey all, I was just wondering what yours (and what's considered normal) EGFR and Creatinine levels following a radical nephrectomy? Thank you!
No evidence of metastatic disease vs NED ??
I got the call and the nurse said that my scans were back and that there was No Evidence of Metastatic disease. She didnt say No evidence of disease. I trying to understand the difference. Should I be concerned. I didnt think to ask her the difference. I had a partial hysterctomy in 2016 because of heavy bleeding. I still…
New here saying hi
Hello, New here and wanted to say hello. My story is in my "About Me" page under the expressions tab, shorter version is this: 12/2016 discovered cyst on left kidney 30x22x23 cm, 01/2017 hand assisted laproscopic radical nephrectomy Pathology shows positive for HLRCC and tumor is of the Tubulocystic variety. Cancer free…

Kidney Cancer

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