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Kidney Cancer

To Fox
Fox: know you are either reading or having someone read to you; so, I want you to know how much I think of you and that I am sending you karma in huge doses. Sarah
Scanxiety
Going for my 2 year CT tomorrow. Anxious and not sure what to expect. Hope all goes well. Sept 2016 partial neph right kidney stage 1A grade 2 clear cell.
Robotic Partial Question
Hello everyone. Newly diagnosed and scheduling a robotic partial nephrectomy at Mayo Clinic in early October. My issue is that I live 9 hours from Mayo. My daughter lives about 45 minutes from there. I can either fly there then fly back or fly one way and she could drive me back 4 days after surgery. That would save me…
FLY !
Fox Loves You!!! Karma David and family. So sorry. I do not remember much of this year. I have failed every treatment when they all used to work. My memory and comprehension have been affected by brain mets. Very forgetful. I don't have a clue to the date.... I am also down about 100 pounds. Extremely weak througout my…
NED!
Had my first CT done after surgery in March yesterday and my PCP sent me an email to let me know it's NED! woohoo! I will be struggling with getting the right follow up. The oncologist I saw refused to do the 6 month CT and said if I wanted that to return to the Urologist. I called the Urology office who ordered it right…
Well, it's that time of the year
Going to NY tomorrow for my 4.5 year check up. US, CT, and blood work on Thursday and meeting with onc on Friday. Please wish me luck and a nice visit from Uncle NED. I'm really nervous. Love you all, Andi xo
To all my friends on the board
This study done between 2009 and 2012 you can imagine the huge success in the past 6 years pleas watch this video right To the very end it will help you https://youtu.be/blUI-ZzcViE
Small bowel blockage
Just more things we have to deal with. So three weeks ago I started having lower back pain, then two days later woke up middle of night with pain from my head to feet. Then next night bad pain again plus chills and low fever. Had all flu symptoms. Went to doctor, he tested me for everything. Ordered CT scan, I had the…
I'm back
Hey, guys, Very cool to see so many of you doing so well. I've been absent, only popping in here and there over the last couple years. To be honest, a lot of things have fallen by the wayside (but in a good way). Our son has been diagnosed on the autism spectrum and is still nonverbal at 3 years old. He's a great kid, but…
Dad diagnosed with clear cell RCC pT1a grade 1. Experience? Advice? Anything.
hi, My Dad (64yr) is diagnosed with RCC clear cell, PT1a grade 1. He went through partial nephrectomy one week ago. Any survivors? Any advice? I am worried sick.
6 years free and its come back
Not sure how many are still on here since I was on last, but I had a 21 cm tumor on my Right Kidney. Luckily it was encapsulated and didn't spread. Well, wouldn't you know, it's come back on my left adrenal gland and in my lungs! I have an appointment with an oncologist on the 19th of September at Dana Farber and a second…
BDS?
I'm sorry I don't login and post a lot. I do lurk and read from time to time. BDS had some great information and I don't remember seeing him on here in awhile. I'm just wondering if he is ok. Does anyone know anything?
I have a small mass - what should/can I do other than wait?
I'm looking for some advice on what my next step should be? Symptoms About 6 weeks ago I had a terrible pain in my RUQ. The was was pretty persistent and over the next week it seemed to vary in pain level, but was mostly there. It was to the point where car vibrations were really painful. I started taking Ibuprofen and it…
Urine test
I am scheduled to have a partial nepherectomy at the end of the month for a stage 1, 3.7 cm tumor. The tumor is located near the collection system but we are unsure if it is interfering with it. I am experiencing painful swelling in my feet, hands and other joints. My rheumatologist thinks the swelling is either Lupus or…
Help please
Hi, Im a 46 year old lady from Sweden that basically has given up on life. Been looking at your site for a while and although i dont understand everything i understand a lot. Now pardon my language and let me say i know i should be very grateful for my eaarly cancerverdicts and i am so very thankful but now it looks like a…
6 Year NED - Ultrasounds Only?
Just got back from the oncologist with my wife Holly who had her kidney removed (Stage 1, 2012) and another NED. Thank God. She only had an ultrasound this time and they said that this was SOP going forward. Sound about right to others who have reached this milestone? Thanks! Tom
My husband was recently put on Immunotherapy. What can we expect?
Hi, My husband was recently put on a combination infusion of two different types of immunotherapy (Yervoy and Opdivo) for Stage 4 kidney cancer. We've read all of the documents that the doctors gave us, but a lot is still unknown. Is anyone else on this treatment? If so, how long have you been on it, and do you have any…
hardo718--Donna??
We've just learned about BDS, which was a sad outcome. Since we're checking on members, I've been worried about Donna (hardo718) . I sent her a couple personal messages to check in on her mid and late July without a response. She was last online June 1. I understand that people come and go on many boards, but she was such…
Fantastic experience at Mayo, MN - partial nephrectomy
Hi all: I have been meaning to post here for some time. To anyone facing the terrifying diagnosis of possible or even confirmed kidney cancer, I highly recommend the Mayo Clinic Urology Dept. in Rochester MN. In 2016, a small tumor on my right kidney was discovered incidentally (as most are). I consulted many surgeons here…
Nobel Prize given to two scientists whose research led to ipi and nivo
This is so amazing. I am so thankful for the research and hard work from these two men as well as the countless scientists, doctors, healthcare professionals, and fellow cancer survivors whose contributions led to the creation of the immunotherapy drugs that are literally saving my life. If I could hug these guys I would.…
Hope
I read this post (link below) the other day and it is just too good not to share with you all. I know that many of us Stage IV survivors are on the immunotherapy treatment mentioned in this article (IPI/NIVO). This story gives me hope that the scientists and doctors are closer to a cure than we may realize. Keep fighting…
Follow Up CT
I just had a follow up CT for severe pain throughout my entire right side (I had nephrectomy on R side in April 2018) and it came back normal My Dr. is wanting to put me on Gabepentin to see if that helps as even my skin is sensitive..... I will have a follow up ultrasound in 6-10 weeks for a large cyst that they found on…
PENDING TO SURGERY
hello every one, my name is jorge I'm 43 years old, I had I disconfort for about a month in the left flank of my abdomen i went to ultrasound and I find out I have a RRC ON my left kidney , i work in the medical field as a radilogy tegnologyst I'm squedule for robotic surgery next month on august 15 but I have to confese…
Greetings
Hi friends. 59 year old male. Last year (2017), had a couple of weird fainting spells. August of 2017 pee'd a 50 cent piece sized blood clot. Immediately went to GP and he set up appointment with urologist. Scope of bladder was clean - set up for CT. CT showed 10 cm tumor on right kidney. Operated on Halloween 2017,…
Chat groups for kidney cancer
If you are a Facebook user, these groups for the various types of kidney cancer may be of interest. https://www.facebook.com/groups/clearcellkidneycancer/ https://www.facebook.com/groups/UnclassifiedRCC/ https://www.facebook.com/groups/papillarykidneycancer/ https://www.facebook.com/groups/translocationRCC/…
It's Flu Shot Season
Just a reminder to all. If your Oncologist thinks it's safe for you to get yours, do so ASAP, as it takes 2 weeks for it to be effective. The "old wives tale" about getting a flue shot and coming down with the flue is just that, a tale. The person had already been exposed; or contracted another variant of what was out…
Red patches on bladder and elevated creatinine
After having blood in urine and ruling out urinary tract infection, had a cystoscope showing multiple red patches on bladder wall. Also lab showed creatinine of 3.5. Scheduled for cystoscope with general anesthesia Monday for biopsies. After a clear CT scan in May this is quite unsettling. Doctor says may or may not be…
It's so anticlimactic...
I read messages from Fox and news about Dave. Then I go in for my 12 year check up and get to come out with good news. To say my road has been easy is just plain, not true. But somehouw, I have come out of the tunnel with another NED. I say 12 years, but the little sh*t popped up at years 11 and 10; and I have had a few…
Update on Newly Diagnosed
Hello, Back on 8/13 I was diagnosed with a 2 cm mass suspicious of RCC: Incidental find. Chest and abdomen CT were both clean other than the proverbial isolated 3mm pulmonary nodule that was labeled to be inflammation worthy of observation but not associated with the kidney cancer. After consults with multiple surgeons and…
Question for male patients
when i found out i had kidney cancer my urologist said i had enlarged prostrate which he said was common for men my age(65). He said that with the enlarged prostate and the fact i would only have one kidney left after my surgery, i would need to take flomax and finasteride for rest of my life to be sure i didn't have…

Kidney Cancer

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