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Survivors
I've been coming to this site for a long time and I wonder how many of us are still here. I'd like to believe that many of us have found good doctors, treatments, surgical procedures that continue to give us hope and health. Seems like few are responding to posted messages and I wonder why. As for me? RCC (Stage 1)…
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Hello
I am the carer for my husband, Redden Crisp. He is a kidney cancer survivor, Stage IV grade 3. He had a nephrectomy in 2004. He was clear until Nov 2009 when the rcc met to his lungs. 1 spot on each lung. He was lucky in that he was able to have surgery to remove the 2 spots. Currently no evidence of cancer. He just had…
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Pet Scan Results
My doctor called me this morning on my way to work, had to pull over, he said the Pet scan showed nothing suspicious and looked good. He said that there was some iregularities in the neck area but he believes this is from the surgery and radiation.He said it was a darkening. He said that the rad doctor wants to do an MRI…
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cryo Procedure/ kidney removal
On 5-1-2010 my 41 yr old son found out he has kidney cancer. Monday he goes in for either the cryo procedure or if they can not perform that, he will have his left kidney removed. We do not know to much about his recovery time & what he will be experiencing. He has a high blood reading from his pancreatis. Yet nothing is…
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cryo Procedure/ kidney removal
On 5-1-2010 my 41 yr old son found out he has kidney cancer. Monday he goes in for either the cryo procedure or if they can not perform that, he will have his left kidney removed. We do not know to much about his recovery time & what he will be experiencing. He has a high blood reading from his pancreatis. Yet nothing is…
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treatment choices
Tomorrow I will meet with an oncologist to discuss possible treatments for my kidney cancer. I had surgery Jan. 7 to remove a kidney and other tumors (this is Stage 4, I assume). Things went well, I was back on my feet in an amazingly short time. But now the cancer is showing signs of coming back, and I face a choice of 1)…
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I'm new to this wholeeee thing!
hi everyone, i'm a 17 year old female from Redford, Michigan and was just diagnosed about a month ago with Wilm's tumor (the children's form of kidney cancer) I am said to be the oldest person ever to be seen with this certain type of cancer and my doctors were surprised we hadn't caught it before...basically what I am…
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Cut into RCC tumor, spread cancer?
I was 35 years old when diagnosed and did not fit any of the criteria. My RCC type was Chromophobe, stage I. The tumor was 2.5cm and fully enclosed in the kidney. But, the doctor tried to do a partial nephrectomy and cut too close to the tumor. I had the full kidney removed but he used the same scapel to cut the rest of…
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Recently Diagnosed with Stage II Kidney Cancer - Very Scared of the Surgery
I was recently diagnosed with Stage II Kidney Cancer. I have a tumor in the upper pole of my right kidney. I have seen two local urologists (in Northwest Suburbs, IL) and due to some varying opinion on additional tests needed to adequately plan for surgery, I have a third opinion scheduled for this Thursday (6/11) in…
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Kidney cancer that spread to spine.. anyone experiance this??
Hello.. Recently, my dad was diagnosed with renal cancer that spread to his spine (3 spots), and lung. The docs are more concerned about the spots on his sign, and started him on radiation treatment, and got him accepted for a clinical drug trial. It was a shocker to us. He's a 60 year old that never had any major health…
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work + disability
Hello, I had a nephrectomy for rcc last June, was stage 1. Six months later at my follow up ct, it was determined that I had more cancer and am now a stage 4. I am due to have surgery later this month for removal of lymph nodes and possible dissection of the vena cava. Then I will go on sutent.I work full time and my…
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Assure Trial: Sutent/Nexavar users, I have a Question.
Had a radical neph on March 16, recovery has been super. Started on the Assure trial on April 20, and started feeling effects the last few days: Taste changes, heels hurt, not too spunky. I am 39, heavy set male, decent shape, big chested, but never with "boobs." Two more weeks of this and I'll be working at Hooters…
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Hello
I'm a kidney cancer survivor. Currently Stage IV. Had lung mets removed last January. I work as a Registered Nurse at the UCLA neuropsychiatric hospital. Redden
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complex cyst which is mildly enhanced in a 9 yr old girl
Our nine year old daughter has tuberous sclerosis complex (causes tumors to grow on the vital organs of the body-typically they are benign). She has had MRI scans for a couple of years now. Last year they discovered bilateral simple cysts (typical for tsc) but only 12 months later they found a tumor that tripled in size…
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pain under breast
Hi I have pain on both side of my breast and under my breast for a few weeks and it is getting worse day by day so I am really worried if it is kidney cancer or lung infection and I also want to know if I should see lung specialist for this pain. And I also have severe cough for a few weeks and it is getting worse.
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Kidney Cancer Konnection
Hi folks, My hubby Jeff, is a 14 year survivor of RCC, the past 7 as Stage 4 ... so there are some good news stories out there. He has developed and built a new web site for Kidney cancer that is very user friendly and is a patient/caregiver initiative, with the hope that it is in "plain" speak rather than medical speak.…
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26 y.o. w/ 2.5cm X 2.5cm Kidney tumor, May 6 scheduled Divinchi Partial nephrectomy
I am a 26 year old male. I was sent for a CT scan for stomach pains. They found I had a fatty liver, Enlarged Spleen, Hernia, Enlarged portal vein, and worst of all a 2.5cm X 2.5 cm Tumor on my right kidney. The urologist said he is 80% sure it is renal cell carcenoma. I am scheduled May 6, 2010 for a robotic partial…
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Ibuprophen and bad kidneys
I just wanted to ask any of you about your thoughts on using ibuprophen after being diagnosed with kidney cancer. I am having pain and thats what my General doctor has advised me to take. I am hearing that this is a bad idea? If I shouldn't take this what should I take? I am still waiting to talk to a specialist. Thanks…
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spouse insensitity to your emotional needs
I have tried to get my wife to understand the emotional war I'm fighting. She doesn't understand how a simple hug, kiss can mean so much. I'm in a weight spiral where I can't retain weight. It's a dangerous situation. Yet I can't get love and affection at this grave time in my cancer. Depression is a nasty thing and robs…
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Kidney removal and recovery
While having an MRI scan it was discovered purely by chance that I had 2 Tumors in my right kidney,I had the Kidney removed using key hole surgery. After leaving hospital after 3 nights I went home feeling okay. Unfortunately after 10days of feeling poorly one of my entry points burst as was infected, approx 100mils not…
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loved one with kidney cancer- fatigue
My father found out in Feb 2010 that his kidney cancer has returned. He was first dianosed in March 2009, had one kidney removed and the cancer removed from his vena cava. He immediately went on a drug trial for targeted therapy, but the cancer came back. Now it is incurable and inoperable. He is on once a week Torisel and…
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New to this site
Hello, I'm new here and I have been "lurking" as it were, over many cancer related sites, and decided to join this one.... A year ago today, I fell and broke my upper arm (Right Humorus) and I went to the ER..They took xrays and told me that I should contact an Orthopedic Surgeon ASAP because the xray showed a "pathologic…
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How long till surgery?
I am a 29 year old female with a family history of RCC (grandmother died at 50 yrs old from RCC that went undiagnosed for many years). In Jan. of this year I went to a urologist for bladder pain (since diagnosed with IC). The uro sent me in for a CT w/ and w/o contrast to check for other possible problems and they found a…
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Wilm's Tumor
My name is Yvonne, I am a mother of three. My youngest son who will turn 2 on the 23rd had a wilm's tumor and had it taken out in may. I just need someone to talk to...help??
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Kidney removal and recovery
As mentioned earlier I had my right kidney removed laprasopicaly 3 months ago on the 11th January. I am anxious a lot about my first Scan since the removal. Could anyone advise me on how soon after surgery should I have another Scan. I think if I had one soon it may ease my anxiety, possibly not as I guess I will feel…
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hurtful
Hello im new here, but my mother has kidney cancer and it spread to her shoulder,neck, and her brian. She is taking chemo and rad. its very hard to deal with it, a yr ago i kept telling her to go to the doctor almost everyday but she kept saying its okay.. now she finds out that she has cancer. First, she went to our…
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Has anyone taking torisel chemo developed diabetics
My wife has been taking torisel for her kidney cancer and since then she have developed type 2 diabetics. This week will be her 16th infusion of the torisel and happy to say her last ct scan the tumor has stablized
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Personal symptoms of renal cancer
Hi there! I'm very eager to hear about the symptoms that people have experienced before they were diagnosed with renal cancer. I know that many were found "by accident" with no previous symptoms. I've also read that kidney cancer isn't supposed to cause pain, though many experience it. This being said I would dearly love…
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Two weeks post radical, back on a tractor. Anyone on ASSURE study?
On 3/16 had left kidney removed, open surgery, climbed back on two days ago, only for light smooth work. This was not worth all the worrying except for what lies ahead. I am having trouble accepting the wait for if this comes back. Getting on the ASSURE study. Anyone else on it or familiar with?
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Papillary Renal Cell Carcinoma- Anyone Experiencing This, Is A Survivor? PART 2 - STILL GOING STRONG
Since my original post entitled Papillary Renal Cell Carcinoma- Anyone Experiencing This or Is A Survivor? has become quite lengthy with over 89 posts on it, with the suggestion of a few of my fellow posting friends, I've decided to start a Part 2 so that we may more easily read our posts. Today is the 1 month aniversary…