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New to the Family
Hello everyone. I was diagnosed with RCC in Aug 2009 when I was 39. I am now 40 and nearing my 1 year mark. In Aug 09, I had a 7cm tumor in my kidney and had my rt kidney removed-stage 2 clear cell. I have been going in for CAT scans every 3 months since then. Before the surgery they did a scan of my lungs and found a…
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Do I have cancer?
Hi All, I just joined and I feel like maybe I shouldn't have. 4 weeks ago I went in to the ER with stomach pain and had to have my appendix removed. While I was there the PA told me that they found a spot on my kidney. When I asked her what she meant by spot she said...it could be nothing, it could be cancer, I wouldn't…
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Newly diagnosed...please help
I'm a 41 year old female, relatively healthy exept for being overweight and (in the last year) taking high blood pressure meds. I've just been diagnosed with RCC: 2.5cm in the upper lobe of my right kidney. They showed me on a CT...it sort of looks like a golf ball half in/half out of the top of my kidney. It was just…
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Renal cell again
I had left kidney removed in 2006 with large rcc mass, also lost speen, damaged during the surgery. Just had a marble size spot removed from right lung, a recurrance of the rcc. I will see an oncologist in a few days to learn more. I have so many questions and fears. What should I ask the doctor when I go? I had no…
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I am so afraid....
Hi everyone my name is Jacqueline and it has been a week now that my small family is living in a nightmare. After taking my father to the doctor due to a car accident he had a few months back he has had Cat Scans of his back left and right and blood test left and right and now the doctor tells us he has a large amounts of…
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ASSURE Trial
I had a radical nephrectomy March 25, 2010, with great recovery , completely confined to kidney. Pathology showed chromophobe subtype of RCC which is less aggressive form. Only negative was size of tumor, 14cm. I was told my likelihood not having a recurrence in 5 years is 83%. My oncologist suggested ASSURE trial. I am…
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metastasized papillary kidney cancer in lymph glands
If there anyone who has survived this without taking treatment drugs? And if so, for how long?
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Papillary RCC treated w/RFA
Six years ago a 1 cm tumor was found incidently by CT, for another reason, in my left kidney. Doctors at the University of Michigan recommended a watchful wait after my having additional CT's at three, six, nine and 12 months. I continued with annual scans and would have gone to every other year THIS year if the thing…
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Accidentally found 2cm RCC approx 3 wks ago - scared and have alot of questions
I am a 38 year old female with two small children. I was having difficulty urinating about 3 weeks ago. I was sent to have an abdomen ultrasound by my primary care doc. They found gallstones and what looked to be a renal mass. So she sent me back for an MRI with and without contrast. They found a 2 x 1.8 cm mass suspicious…
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Bone Mets
I have heard some people say they have "bone mets". What is this exactly?
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Lap Radical Nephrectomy - What should I expect post-op?
I am 39 years old and I was recently diagnosed with a T1 Renal Tumor. I am scheduled for a laparoscopic radical nephrectomy the end of April. I have found multiple blogs about open nephrectomies but not many from people who have undergone a lap procedure. Can anyone give me some information about what to expect…
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Top Notch Cancer Center Near Tampa/Clearwater
I am new to this site. My mother was advised by her family doctor that she has kidney cancer. Can anyone recommend a cancer center/oncologist that specializes in this type of cancer?
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cyrogenic surgery for kidney cancer
Has anyone had cyrogenic surgery for kidney cancer and survived. Can anyone tell me whether there were any complications.
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cyrogenic surgery for kidney cancer
Has anyone had cyrogenic surgery for kidney cancer and survived. Can anyone tell me whether there were any complications.
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cyrogenic surgery for kidney cancer
Has anyone had cyrogenic surgery for kidney cancer and survived. Can anyone tell me whether there were any complications.
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ICEMANTOO ARE YOU OUT THERE GOT A QUESTION
HI I NOTICED IN YOUR POSTS YOU'VE MENTIONED GOING ON CRUISES. WELL, I AM GOING ON MY FIRST CRUISE EVER AND I WAS WONDERING ABOUT SEASICKNESS MEDS. DO YOU TAKE ANYTHING? IS THERE ANYTHING THATS NOT SAFE TO TAKE WITH ONE KIDNEY? I DON'T KNOW IF I SHOULD BRING SOMETHING WITH ME OR JUST SEE WHAT HAPPENS ON THE SHIP, I…
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Avastin
My mother, with Stage 4 RCC, got put on Avastin this week. I haven't heard of anyone discussing this drug. Has anyone tried Avastin? She is 74 with Type 2 diabetes. I am not sure she can handle Sutent's side effects. Also, what are bone mets? I am trying to educate myself about the disease and treatments so I can help her.…
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transitional cell cancer
My dad had his right kidney and ureter tube removed last week. Unfortunately, on his pathology report, it said that nine out of ten lymph nodes removed tested positive for cancer. His ct scan didnt show cancer in other parts of his body. We have yet met with an oncologist. We are from Alaska, and are presently in Seattle…
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Kidney PNET
Does anyone know about Kidney PNET? I had radical left nephrectomy 5 weeks ago, recovery very slow and painful. Is this normal? What is prognosis if surgeon says he "got it all"? Thanks!
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new patient
Hi, My husband just found out that he has a 1cm, tumor on the vein in his left kidney. apparently no where else. Do you scan the rest of the body after this? Do you remove the whole kidney? Do you do the laproscopy? or the big surgery in hopes of saving the kidney? What are the survival chances? Chances of re occurrence?
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Had kidney cryo surgery & it was 98% successful. But still have other symptoms:
My son just had his cancer mass on the left kidney removed through CRYO procedure & they told him it went well. He does not have cancer in his bones or lymnoids.Yet he is still having problems with cronic constipation & a feeling of fullness after eating a few bites of solid foods & drink.And some pain. He has lost weight.…
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Just venting - but -
I was at the grocery store the other day and at the checkout I was asked if I would contribute to the Prostate Cancer drive. At another place it was for breast cancer. Then colon cancer. I'm headed for my next set of scans for followup of metastic RCC and it was like my last nerve had been mashed! I said "when other…
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New to this group
Hello, I'm kind of stuck. I'm hoping someone out there can help me with my questions. My father is 81 years old. He was diagnosed with RCC about 5 years ago. He told his family nothing and has done nothing about it. Two weeks ago, he was complaining of severe chest pains and was admitted into the hospital. He's been in/out…
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question about post operation
I am hoping that all you wise members can help me with a couple of questions. I just had surgery on May 27th. I had a open partial nephrectomy. The tumor was a t1a clear cell renal cell carcinoma. I have a problem with epilepsy so I can not take pain meds. The docs did not even mention to ice. Would that not help? I have a…
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Husband has had success with Sutent
My husband was diagnosed with Stage 3 RCC in 1/2009. Had right radical nephrectomy 2 weeks later. October 2009 diagnosed with mestastic RCC to the lungs. He has done 2 rounds of 50mg Sutent. Latest ct scan has showed: * Nodule in the left lower lobe is 3mm - it was 11mm. * Largest nodule measures 5x6mm - previously…
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Survivors
I've been coming to this site for a long time and I wonder how many of us are still here. I'd like to believe that many of us have found good doctors, treatments, surgical procedures that continue to give us hope and health. Seems like few are responding to posted messages and I wonder why. As for me? RCC (Stage 1)…
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Hello
I am the carer for my husband, Redden Crisp. He is a kidney cancer survivor, Stage IV grade 3. He had a nephrectomy in 2004. He was clear until Nov 2009 when the rcc met to his lungs. 1 spot on each lung. He was lucky in that he was able to have surgery to remove the 2 spots. Currently no evidence of cancer. He just had…
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Pet Scan Results
My doctor called me this morning on my way to work, had to pull over, he said the Pet scan showed nothing suspicious and looked good. He said that there was some iregularities in the neck area but he believes this is from the surgery and radiation.He said it was a darkening. He said that the rad doctor wants to do an MRI…
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cryo Procedure/ kidney removal
On 5-1-2010 my 41 yr old son found out he has kidney cancer. Monday he goes in for either the cryo procedure or if they can not perform that, he will have his left kidney removed. We do not know to much about his recovery time & what he will be experiencing. He has a high blood reading from his pancreatis. Yet nothing is…
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cryo Procedure/ kidney removal
On 5-1-2010 my 41 yr old son found out he has kidney cancer. Monday he goes in for either the cryo procedure or if they can not perform that, he will have his left kidney removed. We do not know to much about his recovery time & what he will be experiencing. He has a high blood reading from his pancreatis. Yet nothing is…