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Had some borderline tests come back - metanephron numbers
I am a 22 year cancer survivor of non hodgkins lymphoma, had a couple of bouts of it ages ago and the good news is it's a cure bad news is I am left with alot of late effects from the treatments. About a month ago I asked to see an internal specialist because I was having weird symptoms and my GP gave me a referral. I went…
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bone mets and Sutent
I am 10 weeks out of surgery for removal of right kidney, After bone scan, they have found tumor in lower spine. I see an oncologist tomorrow. Has anyone had luck with Sutent or one of the other treatments and bone mets?
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DiVinci Surgery- partial
I had a right partial kidney removal using the DiVinci robotic equipment on Jan 20th. It reduced recovery time. My question is- The margins did not come out clear. The doctor said that he nicked the top of the tumor and then "back out the blade". He said that this caused the path report to come back margins unclear. It…
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Looking for a top notch Cancer Treatment Facility
I was diagnosed with a Wilms tumor (kidney) in 2007. I had my right kidney removed and I now have a reoccurence in the chest and possibly lung area. I am looking for a cancer treatment center that would be the best for my case, as it is rather rare. Any advice would be very much appreciated.
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Cancer Drug Sutent
I have a 60 day supply 50mg of Sutent any ideas on where or how I can donate this drug??
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Got the Final Word today
Had a visit with the second urologist for his take on everything. This appointment was so much clearer and I left with a better understanding of it all. First of all, I do not have a hyperdense cyst; I have a Bosniak Category II cyst, which has a 15-20% chance of being cancerous. The urologist explained to me that, right…
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Papillary Renal Cell Carcinoma- Anyone Experiencing This or is a Survivor?
Hi, In 2007, my mom tried her hardest to find out the cause for her lower back pain and leg weakness, and after a long run-around and missed diagnosis by her Primary Care doctor, she finally was diagnosed by a urologist with Papillary Renal Cell Carcinoma in her right kidney, which had been there for quite a while. As if…
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Transitional Cell Carcinoma metastasis to lymph nodes
My Mom was diagnosed with transitional cell carcinoma of the right kidney in June of 2008. She had her right kidney, ureter, adrenal gland and cuff of the bladder removed. The pathologist report said she had high grade TCC but that it was stage 1. Last month she had a CT that showed nodes in the pelvic area. She then had a…
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The waiting goes on
Went to the urologist yesterday. Good news – there is only a 10% chance of cancer. Bad news – no explanation of how he came to that diagnosis, did not go over the CT scans with me, gave me two different types of cyst that I have, neither matching the percentage he gave me for chance of cancer, put out with answering our…
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cancer treatment centers of america
anyone have experience with these hospitals
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4 months on Assure Trial after surgery, found some cancer. Going to Houston
Did my 3 month scan after the trial start, think I was getting Sutent, found a 1.2 x 1.8 lesion on tissue where the kidney was and two "too small to biopsy" on the same lung. Biopsied the lesion was cancer. Dr wanted me to start IL2 on the 13th of Sept. Made a few calls and with some good fortune made contacts at MD…
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Complex Cyst
I was just diagnosed with a 4.5 cm by 4.3 cm renal cyst on my right kidney. We do not know the category yet, but I do go in Wednesday for a Contrast CT, and meet with the urologist after that. I am quite terrified and panicked, and I am trying to understand what this means. I have looked at the different categories, and I…
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Chemotherapy experiences
I am due to have chemotherapy next week Cisplatin and Gemcitabine. Would like to hear of others experiences with these drugs as I am not sure of what to expect.
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phase III sunitinib study for stage 3 kidney cancers - any experience?
Has anybody had experience with the clinical trial for sunitinib and sorefaneb? What was your staging and what helped you decide to join or not join the study? The side effects from the drugs seem to be very severe and these are possibly very toxic to the body. I was staged with pT3a tumor because my small kidney cancer…
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Bosniak 3 confusion
Hi everyone, I have recently been diagnosed with a 5cm tumour on my left kidney, classified as a Bosniak 2-3. Everything I've read so far suggests that this in an "indeterminate" lesion but my specialist has referred me for a radical lap nephrectomy. He says that partials are difficult to do- I will be operated on by a…
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Kidney Cancer Advice
My husband came down with a bad stomach bug last week which we found out was Salmanella, we believe from the egg recall that is in the news. Anyway, he was hospitalized for 4 days with it, but the really bad news is that when he was in the ER they did a CT scan of his abdomen and found a tumor on his kidney. It was…
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3.2 Solid Mass on kidney was benign Leiomyoma
I have been told that it is rare but after going through the fright of incidentally finding out that I had a 3.2 solid mass on my left kidney and having a partial nephrectomy I was told in the recovery room that it was BENIGN ! It was a leiomyoma on my kidney. Unbelievable...! Just wanted to share so that people know that…
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Transitional Cell Carcinoma
Hi everyone,Iam desperately seeking advice as I have no one to turn to who understands our problem.Ifeel as though I have been on a roller coaster ride the past six weeks. I will try and make my story short. Seven weeks ago I had a nephrectomy for kidney cancer as well as a neck lymph node removal.I was first told that the…
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SYMPTOMS OF KIDNEY CANCER YOU SHOULD
In the early stage of kidney cancer, there are often no symptoms. Kidney tumors can become very large before causing symptoms. When symptoms do occur, the most common one is blood in the urine (hematuria). There is generally no pain during urination. Other common symptoms include mass or lump in the abdomen and back pain…
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35 year old recovering from nephreureterectomy have questions
I am a 35 year old male that is now 2 weeks into recovery from nephreureterectomy. It was thought that I had TCC from the scope that the urologist took of my kidney, but they have analyzed my tumor and told me that I am the 8th case of primary thyroid-like follicular cancer of the kidney. There is one case study on this…
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prior symptom - polycythemia vera
Prior to being diagnosed with RCC by the rupture of a primary tumor, I was diagnosed with idiopathic polycythemia vera. It turns out that my primary tumor was making an erythropoietin loke substance that functioned in the same manner but was not specific enough to be picked up on the lab assay. I was wondering if anyone…
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new cancer pt
Hi just found out about 3 weeks ago I had a mass on my right kidney about 5cm due for surgery on July 16,2010 a little nervous but know everything will be fine. My surgery will be where they move my 11th and 12th rib to remove the kidney. Anyone else have this type of surgery? Would like more info. Thanks
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Kidney Cancer Warriors
Hello Everyone ~ My husband Allen was diagnosed with renal cell carcinoma Stage IV, Furman IV in October 2006. Together with other kidney cancer warriors, we have created a great blog full of stories told by kidney cancer warriors sharing their personal journey in their own words. The blog also contains valuable…
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Newly diagnosed kidney cancer.
Hi, my name is Judy. I have recently been diagnosed with Renal Cell Carcinoma and underwent a nephrectomy last week. I also had a metastatic neck lymph node removed. I am due to see an Oncologist neck week and am petrified that she is going to suggest Chemotherapy.All the research I have done on RCC indicates that…
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stageIV kidney cancer without treatment
I had my right kidney removed in 2002. In 2009 2 spots were found on the lungs and 2 spots in the thyroid. because there were four areas involved surgery was out. sutent was discussed and i have a bottle on hold but was told not to use it yet. now we are just watching it to see how fast it is growing. i am just sitting…
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Ten years out and still looking over my choulder... any advice?
Hi all, I'm new here and just wanted to introduce myself to the board. I was diagnosed with Stage II renal cell carcinoma in June of 2000 at the age of 37, had a right radical nephrectomy (kidney, adrenal gland, lymph nodes) and so far everything seems to be 'okay' except that now I've got a few cysts on my left kidney and…
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New to the Family
Hello everyone. I was diagnosed with RCC in Aug 2009 when I was 39. I am now 40 and nearing my 1 year mark. In Aug 09, I had a 7cm tumor in my kidney and had my rt kidney removed-stage 2 clear cell. I have been going in for CAT scans every 3 months since then. Before the surgery they did a scan of my lungs and found a…
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Do I have cancer?
Hi All, I just joined and I feel like maybe I shouldn't have. 4 weeks ago I went in to the ER with stomach pain and had to have my appendix removed. While I was there the PA told me that they found a spot on my kidney. When I asked her what she meant by spot she said...it could be nothing, it could be cancer, I wouldn't…
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Newly diagnosed...please help
I'm a 41 year old female, relatively healthy exept for being overweight and (in the last year) taking high blood pressure meds. I've just been diagnosed with RCC: 2.5cm in the upper lobe of my right kidney. They showed me on a CT...it sort of looks like a golf ball half in/half out of the top of my kidney. It was just…
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Renal cell again
I had left kidney removed in 2006 with large rcc mass, also lost speen, damaged during the surgery. Just had a marble size spot removed from right lung, a recurrance of the rcc. I will see an oncologist in a few days to learn more. I have so many questions and fears. What should I ask the doctor when I go? I had no…