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Avastin and interferon
Anyone been on this combination? Afinitor did nothing for Don and this looks like what the dr. will suggest next. Don is determined to keep trying, but I've read the side effects. I know not everyone gets every side effect, but if you've been on this combination, I'd appreciate knowing what it was like for you. Don has a…
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Renal Cell Patient on Torisel
I have a friend who is a renal cell patient and she is currently taking torisel and was looking for someone to talk with who is dealing with the same diagnosis. Any suggestions? Thanks Littletenie
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kidney cancer recurrence in thyroid
Just ovver 3 years ago I was diagnosed with an 11cm renal cell carcinoma, had a radical (12" incision) to remove kidney and had a lot of discomfort following surgery due to scar tissue and adhesians; am still taking a nightly painkiller to help with that. Then at the beginning of this year I had a lump on my thyroid which…
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need translation
Renbal cell carcinoma clear cell type Fuhrman's grade 2 I know what the renal cell is. What does the rest of this mean? Need to know.
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pain on wrong side - could it mean other organs affected?
Hello, I'm a 55 yr. old female and rec'd the shocking news this past Friday...kidney mass, approx 6 cm in size, possibly Stage 1 or 2. No appearance on the CT scan that it spread beyond the kidney. The Dr. was prepared with a referral and a Monday morning appt w/a general surgeon to discuss options. I feel shell-shocked.…
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EXTREAMLY CONFUSED!!
Hi my name is Angela and my mother has been diagnosed with Kidney Cancer. She went in for a urine test for a new medication and they found blood. Well she had a sonogram and then another urine test. A week later she had a CT and today (a week from the CT) she has had a MRI. She talked to the surgeon on Wed of last week and…
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Adreno Cortical Carcinoma
My 12 yr old son was diagnosed in September. Tumor removed from Kidney and Heart. Anyone familiar with this cancer or knows someone?
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Adreno Cortical Carcinoma
I have a 12 yr. old son with ACC, anyone heard of it or had it? If so ever been in contact with a teenager who was diagnosed?
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Adreno Cortical Carcinoma
I have a 12 yr. old son with ACC, anyone heard of it or had it? If so ever been in contact with a teenager who was diagnosed?
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renal diet
Waiting for surger to remove kidney . A nurse friend askled if I had been put on a renal diet but as a nurse she could't explain. Said my doctor had to. I can't wait for this information. Need to know now. Please advise.;
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Scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
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given stage 3b TODAY what does that mean??Please help
My husband had a nephrectomy on Monday. He had 2 tumors, one was 3 cm and the other was 6, We were told probable stage 2. The surgeon (very good doctor) said he thought he got it all, but we'll wait till the path report, which we got today.The tumors were encapsulated but tonight we found that there was some tumor INSIDE…
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unclasified renal cell carcinoma
My dad was recently diagnosed with stage 4 unclassified renal cell carcinoma with metastases. Not a lot of research has been done on this kind of cancer, so I am very interested in hearing from anyone with this diagnosis -- especially about clinical trials producing good results. Thank you.
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Xp11.2/TFE3 Gene Fusion Renal Cell Carcinoma Help!
Hello all, I posted before under 17 year old daughter. We finally got the pathology back on her tumor (removed with her right kidney on Oct. 15) and this is what they have diagnosed her with. She is preliminarily staged at T2 NxMx. So, I think until we get to an oncologist, we won't know further if it has spread or not.…
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October 19, 2009 I had surgery
Hello everyone, I was diagnosed with cancer 2 weeks before I turned 30. I was very scared, I just wanted to know how I could get better having two small children. On October 19,2009 They removed my whole left kidney. I have a 12 inch cut in the upper part of my stomach. I had a tumor that was 20 cm. I thank God that it was…
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Long time survivor
My husband was first diagnosed with kidney cancer in 1994 at age 31. He had one kidney removed along with the adrenal gland. A few years later he had another part of his adrenal gland removed. Then he got Lymphoma which was totally unrelated. Survived that. He has had recent bouts of nodules found in the lungs and the…
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New Patient with Questions - Help Please
Hello. I am 39 and just had a partial nephrectomy on my left kidney last week. I had a 2.2 centimeter clear cell tumor. The surgery was done lap and I am slowly recovering. I wanted to ask some questions and thank anyone in advance for some help or insights. First, my surgeon said that removal of the tumor is the only…
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Nervous and Scared
I was diagnosed with kidney cancer in April 2009 and I had a partial nephrectomy on my left kidney. I am going to get a follow up CT scan next week and I am nervous. I'm not sure what to expect. Lately I have had a pain in my lower left back and I'm afraid it has something to do with my kidney. I am only 30 years old and I…
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New here, need support
I am a 32 yr old married mom that has recently been diagnosed with recurrence. I had a radical nemphrectomy in Sept. '06. I had an 8 cm tumor. Now the cancer is back in a muscle in my back near my bowel. At this time, I don't know if surgery is an option. Nodule is 1.8cm at last scan, Jan. 23. Does radiation work? Have any…
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Atypical Cyst and other LINGO
I went to the doctor with right side and back pain. A very persistent pain that I felt for at least two months before going to the doctor. Doctor suggested a CT to look for kindey stones. No stones....but they did see a lesion in the right kidney. He next suggested a Ultrasound. The Ultrasound showed the same lesion...also…
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night sweats
Hello, I was diagnosed with probable renal cell carcinoma in April and had my kidney removed in June. During the time I was waiting for my surgery I had many symptoms, including night sweats, which I had never had before. My biopsy showed a stage one, grade 4, carcinoma. The margins were clear. My urologist wants me to…
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kidney cancer here but fingers are numb
i was told i have kidney cancer stage 3 we will have the kidney removed on thursday 1-25-07. about two weeks ago my finger tips on my left side same as the kidney started feeling numb any one else have this please let me know what it is .has this spread to the brain or blood? please help Ann 52year old artist
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Advise on Follow Up CAre
I am due to go in for my 3rd year follow up. I had my left kidney taken out almost 3 years ago. After reading some of what you all say I am wondering if I should have the CT Scan this time. I had 2 in the first year that looked good so he gave me a year off of the CT Scan and just a chest x ray last year. I do have a…
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Invasive vs. In situ RCC?
My pathology report says I had "invasive" RCC. When I asked my surgeon about it, he it didn't mean anything & thinking it did was a common misconception. However, I have read that your path report will say either Invasive or In situ & that invasive does mean something - and not a good something. Has anyone else looked into…
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Dad surgeries
Hi my father is 61yrs young he was building a 3 car garage prior to being diagnosed with cancer on both his kidneys in December 2006. His first surgery was the end of January 07 was 4hr surgery and complete removal of the kidney, lymph node, some belly fat, and extensive cleaning of the vena cava. The lymph node came back…
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Is kidney removal needed for RCC?
My father was diagnosed with stage 4 kidney cancer 1 month ago. He has metastatic nodules in the lungs, but otherwise no symptoms except for choking caugh, when talking for more than 1-2 minutes. He is in relatively good physical shape (he is 71), aside from side effects from Sutent taken for 10 days now. Physician thought…
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RCC patient taking new clinical trial AS1411
Hello, We found out last oct, 07, the my RCC had returned and had met to my liver. In Nov, 07 I began taking Torisel, it worked well until may 08, then the RCC met to my left hip bone,(I had been having pain there for a year, was told it was arthritis, but it turned out to be a tumor that started growing, (the torsil was…
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Looks like we've got some new treatments on the way
Drugs Show New Hope in Fighting Cancer By ANDREW POLLACK, The New York Times NEW ORLEANS (June 6) - Several new drugs are showing unprecedented promise in treating kidney cancer, a form of cancer that has been particularly hard to treat, doctors said on Sunday. "I think they are a leap above anything we've seen…
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Mom diagnosed with Cancer on Thanksgiving
Hello there. I am very new to this site as well as to this topic. My mother went in for a CAT scan on the 23rd of November for a flank pain she was having. She had no other symptoms. The CAT discovered a 4 inch tumor on her kidney. The uroligist told her that he would not opperate as it was too big. And she has to wait…
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Are you in the Sorafenib + Interferon Clinical Trial
If anyone here is or has been enrolled in a study using Sorafenib (BAY43-9006) in combination with Interferon alpha 2-b for metastatic renal cell carcinoma, I would love to ask you some questions about how you are doing with the trial. Things such as severity of side effects, etc. I know these vary by individual but at…