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Vicodin is not my friend!!!
I just can't take it anymore! The nausea and then yesterday I started throwing up, what a setback. Even in the hospital they had to give me anti-nausea meds to go with it. No matter how much food I had on my stomach I just couldn't tolerate it. So now I'm just going to take the extra strength Tylenol. I'd rather deal with…
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Back pain after surgery
It has now been almost 4 weeks since I have an open radical nephrectomy on my right kidney. The incision site is still tender and not healed up completely. My back has been bothering me quite a bit on my shoulders and all down the left side of my back because I still lean slightly towards my right side (because it still…
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surgery date scheduled for Thursday morning
Well I just got the date for my surgery. It will be next Thursday the 9th of June. I will be glad to get it over with but do not look forward to the recovery time. I will be having open style surgery. I have been told that the cut can be from 6 to 14 inces long. that is a big cut of an old man. I have seen the support from…
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The surgery is behind me now!
Had my surgery yesterday and they were able to do it laproscopically. They were going to release me today but I wasn't quite ready... have a 3 hour drive home so will be released tomorrow morning. Looks like everything was contained in my kidney! Thanks again for all your support and words of wisdom!
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Miracles do happen
Hello everyone These past few weeks I've read so many of your wonderful stories as I have been awaiting my surgery. I was diagnosed in August with a 12.5 cm cyst on my right kidney....softball size. I had no signs like so many it was found on a CT scan looking for something else. My doctor used the divinci robot and had a…
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New Kidney cancer diagnosis.....What now?
Hi: To everyone here,much continued health and happiness to you and your families. Yesterday the Kidney Doctor told me that I have a 4cm tumor on my right kidney. His exact words were its a tumor, its malignant and its cancer..... Wow.. After that I just went numb. He said he only removes the entire kidney so I have been…
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T1a survalence type and frequency?
Hello everyone, I am going to be going in to see my urologist to discuss survalence type and frequency for a T1a tumor that was removed laproscopically. I wanted to get feedback on what others have been told survalence type (chest x-ray, CT, US, MRI) and frequency (first year, years 2-5, and beyond). Any information would…
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6 month scan done
They did a six month scan on my wife and found a 1 inch mass where my wife's kidney use to be We are devastated at the moment. My wife was diagnosed with stage 2 chromophobe kidney cancer. It was an 8 cm mass. Her lungs were clear.
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I'm new and nervous...
Hello! Wow, what a difference a week makes. Enjoyed the birth of my 3rd grandchild one week and found out I had cancer the next. Still walking around in a bit of a daze. I feel GREAT, how on earth could I have a 8cm mass and not know it!? The mass does abut and slightly efface the liver without gross invasion is what my CT…
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23 Yr Old getting open radical nephrectomy - Any advice?
Hello everyone, This past summer I have discovered that I have an unclassified malignant tumour my right kidney. All of the specialists that I have seen seem to be baffled as to exactly what it is. The only thing they know is that it is malignant, but have no other information. Even the way the mass has formed is extremely…
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3 month check up Q's
I have to have some blood work done later this week and see my surgeon next Friday. Maybe someone can answer a few questions for me? 1. It sounds like I'm just going in to see the surgeon for a follow up. Shouldn't this have happened before 3 months? 2. What should I expect from the check up? Reading of my lab report,…
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Recurrence risks for Stage T1b RCC
I am a 46-year old woman who was diagnosed and surgically treated for stage T1b RCC in November 2008. I had my 2-year check up and all was clear (Thank God!) However, I continue to have lower quadrant pelvic pain and no one can tell me why. I've been told it's probably "muscular." Of course I can't help but think that his…
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Lack of oncology & Nephrology involvement and all seem to get resolved by urologist in a 30 to 60 da
I see a pattern in most of these stories. 1. CT only identifying a MASS in the kidney 2. Not a lot of mention of Ultrasound identifying kidney mass. 3. NO discussion of kidney creatinine levels 4. NO urine cytology results 5. Referral to Cancer centers or 2nd opinions from oncology. 6. No inclusion of Nephrology in…
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Vagusto/Valerie
I noticed that your father passed away from kidney cancer. Is there a genetic factor? I am going to be tested for VHL soon as my father also had kidney cancer. I haven't seen too much discussion here of hereditary rcc. Rae
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Phantom pain
I had my left kidney laproscopically removed on July 16, 2011. I thought that I was recovering nicely. I have returned to work(desk job). Right after I returned I felt like I had a pulled muscle at my incision site. The pain got worse. I attributed it to wearing jeans too soon, so I went back to wearing dresses and skirts…
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Test(s) news
It's been a hurry up and wait past couple of weeks. Had my yearly CT and they saw nodes in the thyroid gland the Dr. wanted checked more. Had an ultrasound of the thyroid, and yes the gland is enlarged and there are solid and semi-solid nodes. Next is a nuclear scan of the thyroid; but since I had contrast dye during the…
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Partial on right side now on Dialysis
My Dad had a partial kidney removal on the right side removing a 6.6cm tumor that was stage 3 cancer. His left kidney had been damaged early in life and is very, very small. They were able to save a little more than 80% of his right kidney but it is not working. He is 85 and had his surgery 9/21/11. He spent 12 days in the…
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Kidney/Genitourinary Cancer Support Group - Charlotte, NC
A new support group is starting at the Carolinas Medical Center in Charlotte, NC.The first meeting will take place Monday, October 24, 2011 at 2:00 - 3:30 pm. It is open to survivors, caregivers and friends. Kidney/Genitourinary Cancer Support Group Monday, October 24, 2011 2:00 - 3:30 pm Carolinas Medical Center 1000…
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Trying to Make a Decision on RCC Surgery
Hello Everyone Just joined today. As the story goes, I found my RCC about 30 days ago by accident. Was having my first ever CAT scan for something unrelated, when they found a mass > 4cm on my left kidney and classified it as T2 and thankfully limited to my left kidney. My primary care physician sent me to a Urology here…
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One week post surgery-What now?
Exactly one week ago at this hour, I was getting in a car with my wife, daughter and sister to head for my DaVinci Surgery. I had a 2.5 cm mass on my left kidney, (found by accident) which turned out to really be close to a 4 cm mass post surgery. I have gone through most of the post surgical issues I have read on these…
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Kidney Cancer and will I ever get answers from my doctors?
Survivor Septic Shock,complete organ failure,fungal infection, resulted from a doctor accidentally puncturing my intestines during surgery. My family says I was swollen like a balloon, I remember my hands and feet peeling so bad & my hair falling out from daily CTs. My story: I had surgery on Dec 17,2008 to remove my…
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Nexavar?
Has anyone tried the new FDA Approved Nexavar?
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Anxious. Again.
I had my 3 month scan on Monday. Yesterday my Dr. calls to tell me he doesn't have the images yet, but the radiologist report sees something in the liver. The dr. says it may be from the surgery, (I had a bit of my liver taken along with my right kidney) in that it would be unusual to find this just 4 months after surgery.…
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I'm new here.
Hello, I just passed my 5 yr mark in July of this year. I had stage 1 RCC and not aggressive but I know better than to think that I never have to worry about the RCC returning. I gave up my left kidney with a 3cm tumor and most of the time I forget that I even had cancer. I give thanks to God for the early discovery of it.…
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More recovery questions
To those of you who have been through this, may I ask a few more questions? I am now 10 days post op, robotic partial laparoscopy. 1. My incisions are itching like crazy! I know this means they are healing, and it is good, but is there anything I can do? Cortisone cream maybe? Or just leave them alone? 2. Discomfort - I…
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Pity Party
Hello I guess that I'm having one of those days, and I told myself who better to understand than you guys! I was diagnosed with kidney cancer when I was 46, almost two years ago. I had the kidney/tumor removed. Been following up every three months. Recently found a small lesion on my remaining kidney. Doctor plans to watch…
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Kidney Cancer Survivor writes Inspirational Autobiography (A Higher Calling)
I have lost both kidneys, ureters, bladder and a lung due to cancer. I wrote an inspirational autobiogrpahy. If you need a pick me up you can purchase my book at www.xlibris.com/SLMenzel.html. God Bless Everyone who suffers from this cancer. I am on dialysis three days per week it is no fun. However, I am still alive to…
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Pain after surgery
Ok guys. I have some questions about pain after surgery. I am 12 days post surgery and was just wondering if anyone has experienced what I am going through now. In the right kidney area where my tumor was removed it has started to ache terribly the past day or so. It has pulled a bit when I walk around however it didn't…
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follow up
My follow up with my oncologist was today and I am happy and blessed to report that the mass has reduced in size, my lungs are "exceptionally clear", nothing looks suspicious and I should be coughing that furball up soon. I am good to go for another six months. Rae
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Frustrated daughter of kidney cancer survivor
Hi everyone. It's been a long time since I posted here. My mom was diagnosed with kidney cancer 2 years ago and had a radical neph. At the time the doctor said they got everything they could see and he sounded pretty encouraging even though he said her cancer was much more aggressive than what they had anticipated. In the…