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Kidney Cancer

Kidney Cancer, treatment options and the return of Hope!!!
Folks: I posted this post on the ACOR.org site and wanted to post it here as an update and to talk a little about a new tool in my arsenal against this disease. Having posted a few times and reading the posts from others, I wanted to share a message of hope with those either still here or just getting here and reading…
My Mother Recently had her Right Kidney Remove
Merry Christmas to each of you. It has been very enlightening to read some of your posts. My mother had surgery Dec 13th to remove her right kidney, adrenal gland and a couple of lymph-nodes. She had pain in her right side Dec. 8th, went to the Doctor and they did an Ultra Sound and CT Scan Dec. 9th and confirmed she had a…
Waxing poetic for Christmas...
Forgive me please...I was overcome with emotion or maybe alcohol and felt the need to share...read on at your own risk! TWAS TWO NIGHTS BEFORE CHRISTMAS AND ALL ACROSS THE BOARD THE MEMBERS KEPT SHARING TIS A KIND THOUGHTFUL HOARD THERE'S KAT DOWN IN FLORIDA WE HAVE MIKES GALORE I'M SURE I'VE FORGOTTEN SO MANY MANY MORE IN…
Post Surgery and Awaiting Chemotherapy
Hello Everyone: So I had my surgery on November 28th and d/c on December 6th. Open abdominal surgery-8.5 hours. I had transitional cell carcinoma of the right ureter and right kidney. Due to my Lynch Syndrome (Muir Torre Syndrome)and the subsequent potential risk to the other kidney, the surgeon hoped to save the kidney.…
After Kidney Cancer
I am new to this but want to say in advance God bless you all! I am 35 years old and I had my left kidney removed June of 2010 from RCC. I had to have a open nephrectomy. My incision did not heal on the inside so I have a 14 inch hernia.. Has anyone else had these complications? I have seen 4 surgeons and they all have…
Anemia after surgery
It's been over four months (Oct 8) since my radical nephrectomy of my left kidney and though I went back to work full time after seven weeks off, I don't have the energy I used to. I get winded very easily, fatigue is more common than before, my fingernails and toenails are splitting and breaking and I was told at my first…
hors d'oeuvres
Since I am going to whine a bit, I thought I would offer some cheese and crackers to go along with it. I read all of the amazing recoveries, marathons, mountain climbing and ocean swimming going on and I need to know if there are others lurking in the shadows that are still not the same as pr-surgery? It's been over a year…
Just joined the club
Hi All, Wife and I were having a stay-cation at a local motel on 12/4/11. We were just relaxing and enjoying the hotel amenities. We spent some time in the hot tub and I had the jets pounding my lower back. A few hours later I had blood in my urine. I freaked out a bit,but remembered that had happened once as a child when…
Kidney Mass - RCC?
I am 48 yrs old dad with two beautiful young daughters, and had a sudden right low back dull pain and pressure 3 days ago. Went to the ER, and found there is 6cm kidney mass from CT. "There appears be hemorrhage in the upper portion of the mass". I asked being transferred to another hospital for a second opinion. Had a…
Merry Christmas
I'd like to take this opportunity to wish everyone a Merry Christmas and a very Happy Healthy New Year. I pray for each and every one of us, and I want to thank everyone for all the support I've gotten here these last 6 months. God Bless Katie
My Mother Recently had her Right Kidney Remove
Merry Christmas to each of you. It has been very enlightening to read some of your posts. My mother had surgery Dec 13th to remove her right kidney, adrenal gland and a couple of lymph-nodes. She had pain in her right side Dec. 8th, went to the Doctor and they did an Ultra Sound and CT Scan Dec. 9th and confirmed she had a…
I need to vent
I need to vent. Please excuse me. I pay $1,100 a month for my health insurance (not mine and my wife’s but just mine) because, as you might think, I am considered a high risk. My wife and I were paying $1,000 a month for both of us while on Cobra. (She is now on Medicare.) But the insurance company (an HMO) was forced to…
Tis the season...
As the Christmas spirit will be flowing over the holidays I would like to share an experience with you all, about drinking and driving. As you may know, some of us have been known to have had brushes with the authorities on our way home from the odd social session over the years, myself included. A couple of nights ago, I…
A valuable resource - http://www.bloodpressure-drs-practical-guide.com/pulsepressure.html
Love and marriage; horse and carriage; kidneys and blood pressure - inadequate kidney function can cause high blood pressure and high blood pressure can cause serious kidney damage. So, those of us in the Lone Kidney Club need to pay particular attention to our blood pressure. In following up on some speculations I'd…
Waiting...
I've been reading posts off and on since my surgery back in August and love seeing everyone's positive words and the encouraging situations as I watch many of you go in for your CT scans and come back with clear results. Today I had my CT scan. It was supposed to be last Monday but I got the flu. Since I had to reschedule…
Staying positive.
I'll tell you what. Here is how I do it. And I ALWAYS do it. For the last 40 years... When most people are asked ," How are you". They answer, "Not bad." To me, I think,( Gee if only they whey felt worse, they might be happier.) They have already set themselves up in a negative state. Why not say. " I am great, or fine, or…
I wore REAL pants ALL day today!
This may seem trivial, but we all know you have to celebrate the little victories. My hand-assisted lap surgery was July 6. I've been back at work since August 29 and for the FIRST TIME I was comfortable all day in my suit pants! It's nice to have an option beside skirts and dresses... particularly since yoga pants are not…
Chemo after surgery?
Hi Everyone, I had my surgery about 2 months ago and have been told that they have removed the tumour and I had clear margins. I now have been referred to and seen an oncologist and have been told that I will need to undergo chemotherapy. I was not expecting this at all. I assumed after the surgery it would be the end of…
recommend oncologist in DC-Baltimore area
Hi, Can anyone recommend experienced RCC oncologists in DC-Baltimore area ? already 6 month after surgery, need an expert to monitor in addition to surgeon. thanks,
CT Scan Monday AM......Can't sleep
I'm having my 5 month scan 12/5. I haven't been anxious about the scan until this afternoon. Now, I can't think of anything else. Then the long week of waiting until Friday to get the results.....Arghhh Too cold in MT right now to go for a long walk to keep my mind clear. I guess I'll just put in a long week of work in, so…
Praise report
I received the results of my scans today and they are all CLEAR!!! The small Nodules in the lungs ate gone and there is no evidence Of metastatc disease, only the healed rib fractures and the hardware from my fractured clavicle. Now the question is how long ti stay on the votrient. It looks like l will stay on it another…
First visit with nephrologist tomorrow..
Well, six months into this adventure and I'm going to meet my nephrologist tomorrow. Not exactly sure what his role will be in my future, but I'm hoping to learn everything that I can possibly do to take extra good care of my remaining kidney. I've made some lifestyle changes that I hope will help, I've almost completely…
Pain in lower back
I had an open radical of my left kidney on November 18th. Two days ago I started getting a pain in my lower left back when I take a deep breath on burp. Not with every deep breath , but often. It does seem worse when I first wake up.I ask the Dr. about this. He said if it continues I would need to get some x-rays. Have any…
creatinine post surgery
Hi, I had my surgery (lap.partial)on wednesday (12/7/12)and was released friday night. I was released with a drain intact because the surgeon said that I still had a little fluid in the surgical area and that my creatinine level was 1.5 I was totally loopy from the meds and didnt really understand what was going on. Does…
work place cancer? does it mater? maybe for the next guy?
Just reading about a possible cause of kidney cancer being; Polycyclic aromatic hydrocarbons (PAHs) a group of over 100 different chemicals that are formed during the incomplete burning of coal, oi, wood, gas, garbage, or other organic substances like tobacco or charbroiled meat. PAHs are usually found as a mixture…
mass above left kidney, very scared right now
Past few days I had bad stomach swelling, and a little pain and swelling on my sides above my hips. I went to the doctor about it and he initially thought it was muscle inflammation.That night, I woke up with difficulty breathing and went to the ER. They did some blood tests and X-Rays. The blood tests all came back great,…
recovery after lap. partial
I'm having my surgery this Wednesday (laparocscopic partial on right kidney) and even though I've spent a lot of time talking to my doctor and reading all your posts on this board, I don't think I know what to expect as far as recovery is concerned. It seems like a lot of people had open surgery, which I know is supposed…
Nesting or what?
I know, kind of a strange topic. I've had my nephrectomy and recent dx of mets. On Monday, I begin my infusion of MDX-1106. The magic bullet!!! Anyway, I had decided to retire and found myself really enjoying my hobbies. My motorcycles, VW's and guitars. Weight training and running. Working in the yard ,shopping, and…
social security
Just became aware that kidney cancer is a qualifier for social security disability. Worth looking into. Maybe others here who can benefit. Hope this is helpful.
Drug Therapy
Anyone hear been treated with Interluekin 2? Would like any and all info from you about what to expect and how it went during treatment. Im scheduled for this in 30ish days.

Kidney Cancer

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