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Update
Hope everyone who's recently gone through surgery is doing well. I continue to recover, I do get sleepy around 8 p.m. which is totally unnatural for me, other than that, I'm doing well. My little incision holes are pulling and itching like &%#*, and I have somewhat of a backache...not continually. I'm getting around, and…
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Worried....
Hi everyone. I'm new here....had a radical nephrectomy for a big ol' tumor on my right kidney on May 4 of this year. I'm FINALLY starting to feel better. It's "a new kind of normal". Anyways, I had my first follow up cat scan today. The urinalysis that I did last week showed some red and white blood cells. So now I'm…
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Question regarding Cryoablation
What is the criteria for having cryoablation as an option? My concern is not being able to know the grade of the tumor if cryoablation was done. Does anyone have any info on this? I'd like to hear more from folks who have had that, and what size their tumor is. Mine is 1.8 cm, and the doctor basically laid out three…
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Anyone treated by Dr. Landman at NY Presbyterian?
We are looking for someone who had surgery at NY Presbyterian. How was your experience? We are considerign surgery there?
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can surgery lead to RCC spead ?
how high is the risk that surgey leads to RCC spread ?
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Feeling Better!
It's been 5 days since my left kidney was removed. I'm surprised at how well I'm actually getting around! The incision site doesn't bother me, but the 5 little port holes from my robot hurt like the dickens. I'm walking a lot, not overdoing, I've gone for a ride to my daughters for a change of scenery Mon night, she drove…
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recommend kidney cancer surgeons in MD/DC area
Hi, Just had a surgery to remove a 1.5cm tumor (RCC, clear cell) in my right kidney. But pathology report shows that the tumor extends to the margin of resection. I need a second opinion to see if I need another surgery to completely remove the tumor. Anyone can recommend experienced kidney cancer surgeons in MD/DC area?…
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Just got pathology results...
I made it through the initial discover via ultrasound. I made it through the CTs, MRIs, Biopsies, the diagnosis of RCC (clear cell) and finally, a radical nephrectomy (lap). I did ok through all of it, didn't freak out too much, am now healing pretty well from my surgery exactly 2 weeks ago. But yesterday my surgeon called…
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what causes kidney cancer?
I turn 50 next week. 3 months ago I had my kidney removed .80% of it was covered in tumor.Luckily it was localized and has not spread,I have another CT scan next week. I had no signs or symptoms. The first 30 years of my life I was not so concerned about my health. I had the average American diet but was around second hand…
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much needed support to stand strong for what's to come for Little Rio:(
I would like to speak to some wilm's survivors out there. can u pls tell about your stories of how your treatments were like and their side affects. I'm terrified as I look forwarf to this coming wed when they want to start my little 3 year old on Chemo not sure for how long yet. Terrified of how she will react to this…
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incomplete removal of kidney tumor, how to do next?
From CT and MRI scans, it was incidentally found in Feb that there was a 1.5x1.5x1.4cm solid mass near the lower pole of my right kidney. I went to a local urologist and the doctor (in fact, who was not good at kidney surgery, I found later and now regret very much to let him do surgery) said this was the simple and most…
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12 weeks post open radical nephrectomy
Hi everybody....it's been a while since I have been on here but I was just wondering if anybody can give me some advice. I had surgery for stage 3 kidney cancer on March 3rd. My left kidney was removed, I had a 12cm mass and the Doctor said it was very aggressive. The surgery went well and I have recovered ok for the most…
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How do they define what kind of Mass you have priro to surgery?
What kind of testing do they do to determine if the mass in the kidney is benign or malignant, and what kind, prior to performing a radical procedure? I understand that with Renal Cancer needle biopsy is not recommended. So How do they know in advance, so they don't remove a kidney if you merely have something benign?
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Great to be home
Well, things didn't go as planned for me. I did have the robotic surgery, but because of some anatomical problems the doctor was forced to take my left kidney. I was discharged Sat morning. Still quite a bit sore. I have 5 openings from the robotic and a good 4 in incision from where the removed the kidney. I'm trying to…
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Anyone from Cleveland Clinic?
We are consider Cleveland Clinic. If anyone on this board had a nephrectomy done there, I would be happy to hear - partial? laparascopic? which surgeon? Thank you all for all the infomraiton you are providing. It is very helpful in our decision-making, and I hope one day we could help others with information. We have…
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Please help!
I was just asking about vitamins after kidney removal - i do not know if it is dangerous to take vitamins with only one functioning kidney? thank you
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lesons on ct scan
After recently having a 7 month scan, after a partial nephrectomy, a few liver lesions were discovered. I guess what concerns me is that the report says they are stable from previous scan, but I could see no mention of them on previous scan. My internist who ordered the scan says to wait till my next scan in october and…
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Surgery in a.m.
Well, the hospital called, I'm to report at 9:30 tomorrow morning. Did the Citrate ordeal, it wasn't bad. Funny thing, I'm only allowed clear liquids today, and I'm really not hungry. I thought I'd go crazy with hunger, but it's not happening. Seemed like a long time coming, but the day is finally here. I've put all my…
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The Best Kidney Cancer Treatment Institution in the United States?
My mom has recently discovered a mass on her right kidney. The report on the CT scan and the ultrasound both stated that renal cell carcinoma can not be excluded. We took her films to a urologist in Los Angeles at UCLA and he said that he was unable to give her a definite answer as to whether or not the mass is cancerous.…
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Natural fertility options - Wilms Tumour survivor 35
Hi, I'm a wilms tumour survivor from aged 4, now 35. Previously I was on synthetic hormone replacement with irregular cycles then if I forgot to take them would experience menopausal symptons. For the last year I have been on BHT creams, which is the natural alternative and my body is starting to repair itself, and…
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8 Months On...
Hi everyone, It's great to see that so many folks are doing well after their surgery. My open partial neph was in September last year and healing has been fairly straightforward. Huge scar, but pretty cute as scars go! After my 6 month checkup some new cysts have showed up on ultrasound, and there is a solid mass at the…
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Surgery date set
I got the call from my Urologist's office yesterday....Surgery is scheduled for June 2nd...they will call me the day before to set up a time...I have an apt. on the 26th for the hystory/physical and pre op orders.... I'm glad the surgery will take place so soon....Patience isn't one of my strongest qualities...Are bone…
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possible bone mets 3 yrs post op radical nephrectomy
Hi everybody, My names Dougie and I live in Glasgow Scotland U.K. I had my nephrectomy in July 2008 and have been well since having 6 monthly CT scans.I recently found bone mass in chest and I'm getting some pain.Docs prescribed Diclofenac for pain while he organises bone scan to investigate.Hoping it's not bone mets from…
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After surgery
I had My right kidney removed on Mar 4, 2011, I came home after afew days in the hospital, just to go back to the hospital, but I am back home now "hope to stay, this time", I am doing ok, just sore and tired and weak, and as fare as I have told , I can eat most what I want as long as I stay away from drinking coke. I…
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Help Please!
My dad had kidney surgery and had the left tumor and kidney removed....They did a cat scan and found some tumors or they said they think it good be inflammation because my dad had so much fluid build up in his chest. ITS ALL GONE NOW. They did a test of the fluid and it came back negative so idk. He has a small kidney…
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RCC cryotherapy on small 1cm cancer on kidney, any recommendations?
Hi everyone, I am a 18 month survivor of a partial nephrectomy. Doctors found another spot on my other kidney. They say that it is not unusual to have something on other kidney. Primary doctor wants to do cryotherapy, but I have gotten a second opinion and the other doc says I am to young and that I should have open…
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panic attacks
I had my left kidney removed on April fifth.'There was no involvment of blood vessels, arteries or lymph nodes. My doctor says he is extremely confident that he got all of the tumor and that it was totally contained. Of course, I have to have theusual follow ups etc... I still get so fatigued, and sometimes it hurts so…
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New CT Scan
I had a partial nephrectomy in 12/09 cancer was in the upper pole of my right kidney. I just had a CT Scan done withour intravenous contrast due to ckd in the ER, it shows I have a 2mm non obstructing calculus on my lower right pole. Could this be a cancer recurrence?
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Re Mass Followup
Finally had my apt. with my Urologist yesterday....After looking at the MRI with contrast I had last Tuesday, he said the mass/tumor definitely has to go....I can't describe the fear I felt at that moment, or for that fact, the desperate fear I still have...He said there is a blood supply, and said he'll be doing a partial…
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Transitional Cell Carcinoma
Just wondering how many of you had Transitional Cell Carcinoma rather than Renal Cell Carcinoma. I had TCC and my kidney, ureter, etc were removed 8 weeks ago. It's been a rough time getting my energy back and not being so fatigued. Typically TCC affects men, smokers or those who've worked in the chemical industry. I have…