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Sorry, trying to figure this all out
I feel cooky, I replied to a message from 2005. Trying to figure this all out. I will post tomorrow, a new thread to get feedback after my urologist appointment. BG
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RCC Nephrectomy Dec 1, 2006 Everett, WA 10.5cm, FNG 4 w. sarcomatoid features. Now 68 feel like 2
Stage IV at dianosis. Lung matastasis present at diagnosis was removed 2 years out. Did some Sutent early on. DCA. Fresh squeezed vegetable juice. Suppliments. Strict vegan diet. Doctors are amazed but smirk at diet, DCA, suppliments. Evidently they are great believers in luck and/or prayer. I will share additional diet…
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Ultrasound found 4cm mass - neoplasm cannot be excluded - fraking out
36 y/o male, just taken control of my life, started eating better and excersizing.. Never felt better, no symptoms other then muscle soreness after heavy gym sessions. On the annuel physical all blood and urine tests came back mostly good, slightly high cholesterol, a bit low vitamin D, etc. PCP asked if I had any other…
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da vinci laproscopic partial nephrectomy
Hello all, I went to the urologist today, and he is planning on a da vinci (robotic) laproscopic partial nephrectomy. I looked at the website that I found when reseraching him, and found several individuals who posted positvely about the procedure from several different states, not all his patients of course. I have a 2.9…
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Hand Assisted Laproscopic Partial Nephrectomy
I am new to this group and to RCC. I am having a hand assisted laproscopic partial nephrectomy for stage one RCC this Thursday. What should I expect? My dr. said I'd probably be in the hospital for 2-3 days. I asked him how this surgery would compare to my gall bladder surgery as far as recovery time and such-he said it is…
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just diagnosed
I went in for elevated liver enzyme scan, during the scan they found a 3-4 cm tumor on my right kigney via ultrasound by chance, and confirmed by CT scan yesterday. They will take a wedge of my kidney, not sure if open or laprscope, I go to urologist tuesday of next week to discuss. I am a 48 year old male, and freaked…
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Concerned about follow-up plan
Greetings, Praise God that my kidney tumor was discovered incidentally with a CT-Scan exam. After radical nephrectomy, the cancer was classified as 4 centermeter RCC T1a grade 2. Radical nephrectomy was required because the tumor was centrally located. I visited the surgeon 2-3 weeks after surgery. The surgeon said no…
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Wilms Tumor
Hi I'm new to the board and honestly didn't foresee needing another place to blog or seek support but here I am - the grandmother to a darling 3 yr old grandson who they believe has a Wilms Tumor on his right kidney. They have surgery scheduled for Tuesday morning. It had been previously scheduled for last Wed then changed…
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6 AM surgery for radical nephrectomy
Hello all, I will be going in tomorrow am for my surgery, having RN of left kidney. I will post updates when I can and thanks to everyone for there helpful words and blessing. Heath
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Update
Hope everyone who's recently gone through surgery is doing well. I continue to recover, I do get sleepy around 8 p.m. which is totally unnatural for me, other than that, I'm doing well. My little incision holes are pulling and itching like &%#*, and I have somewhat of a backache...not continually. I'm getting around, and…
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Worried....
Hi everyone. I'm new here....had a radical nephrectomy for a big ol' tumor on my right kidney on May 4 of this year. I'm FINALLY starting to feel better. It's "a new kind of normal". Anyways, I had my first follow up cat scan today. The urinalysis that I did last week showed some red and white blood cells. So now I'm…
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Question regarding Cryoablation
What is the criteria for having cryoablation as an option? My concern is not being able to know the grade of the tumor if cryoablation was done. Does anyone have any info on this? I'd like to hear more from folks who have had that, and what size their tumor is. Mine is 1.8 cm, and the doctor basically laid out three…
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Anyone treated by Dr. Landman at NY Presbyterian?
We are looking for someone who had surgery at NY Presbyterian. How was your experience? We are considerign surgery there?
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can surgery lead to RCC spead ?
how high is the risk that surgey leads to RCC spread ?
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Feeling Better!
It's been 5 days since my left kidney was removed. I'm surprised at how well I'm actually getting around! The incision site doesn't bother me, but the 5 little port holes from my robot hurt like the dickens. I'm walking a lot, not overdoing, I've gone for a ride to my daughters for a change of scenery Mon night, she drove…
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recommend kidney cancer surgeons in MD/DC area
Hi, Just had a surgery to remove a 1.5cm tumor (RCC, clear cell) in my right kidney. But pathology report shows that the tumor extends to the margin of resection. I need a second opinion to see if I need another surgery to completely remove the tumor. Anyone can recommend experienced kidney cancer surgeons in MD/DC area?…
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Just got pathology results...
I made it through the initial discover via ultrasound. I made it through the CTs, MRIs, Biopsies, the diagnosis of RCC (clear cell) and finally, a radical nephrectomy (lap). I did ok through all of it, didn't freak out too much, am now healing pretty well from my surgery exactly 2 weeks ago. But yesterday my surgeon called…
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what causes kidney cancer?
I turn 50 next week. 3 months ago I had my kidney removed .80% of it was covered in tumor.Luckily it was localized and has not spread,I have another CT scan next week. I had no signs or symptoms. The first 30 years of my life I was not so concerned about my health. I had the average American diet but was around second hand…
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much needed support to stand strong for what's to come for Little Rio:(
I would like to speak to some wilm's survivors out there. can u pls tell about your stories of how your treatments were like and their side affects. I'm terrified as I look forwarf to this coming wed when they want to start my little 3 year old on Chemo not sure for how long yet. Terrified of how she will react to this…
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incomplete removal of kidney tumor, how to do next?
From CT and MRI scans, it was incidentally found in Feb that there was a 1.5x1.5x1.4cm solid mass near the lower pole of my right kidney. I went to a local urologist and the doctor (in fact, who was not good at kidney surgery, I found later and now regret very much to let him do surgery) said this was the simple and most…
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12 weeks post open radical nephrectomy
Hi everybody....it's been a while since I have been on here but I was just wondering if anybody can give me some advice. I had surgery for stage 3 kidney cancer on March 3rd. My left kidney was removed, I had a 12cm mass and the Doctor said it was very aggressive. The surgery went well and I have recovered ok for the most…
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How do they define what kind of Mass you have priro to surgery?
What kind of testing do they do to determine if the mass in the kidney is benign or malignant, and what kind, prior to performing a radical procedure? I understand that with Renal Cancer needle biopsy is not recommended. So How do they know in advance, so they don't remove a kidney if you merely have something benign?
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Great to be home
Well, things didn't go as planned for me. I did have the robotic surgery, but because of some anatomical problems the doctor was forced to take my left kidney. I was discharged Sat morning. Still quite a bit sore. I have 5 openings from the robotic and a good 4 in incision from where the removed the kidney. I'm trying to…
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Anyone from Cleveland Clinic?
We are consider Cleveland Clinic. If anyone on this board had a nephrectomy done there, I would be happy to hear - partial? laparascopic? which surgeon? Thank you all for all the infomraiton you are providing. It is very helpful in our decision-making, and I hope one day we could help others with information. We have…
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Please help!
I was just asking about vitamins after kidney removal - i do not know if it is dangerous to take vitamins with only one functioning kidney? thank you
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lesons on ct scan
After recently having a 7 month scan, after a partial nephrectomy, a few liver lesions were discovered. I guess what concerns me is that the report says they are stable from previous scan, but I could see no mention of them on previous scan. My internist who ordered the scan says to wait till my next scan in october and…
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Surgery in a.m.
Well, the hospital called, I'm to report at 9:30 tomorrow morning. Did the Citrate ordeal, it wasn't bad. Funny thing, I'm only allowed clear liquids today, and I'm really not hungry. I thought I'd go crazy with hunger, but it's not happening. Seemed like a long time coming, but the day is finally here. I've put all my…
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The Best Kidney Cancer Treatment Institution in the United States?
My mom has recently discovered a mass on her right kidney. The report on the CT scan and the ultrasound both stated that renal cell carcinoma can not be excluded. We took her films to a urologist in Los Angeles at UCLA and he said that he was unable to give her a definite answer as to whether or not the mass is cancerous.…
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Natural fertility options - Wilms Tumour survivor 35
Hi, I'm a wilms tumour survivor from aged 4, now 35. Previously I was on synthetic hormone replacement with irregular cycles then if I forgot to take them would experience menopausal symptons. For the last year I have been on BHT creams, which is the natural alternative and my body is starting to repair itself, and…
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8 Months On...
Hi everyone, It's great to see that so many folks are doing well after their surgery. My open partial neph was in September last year and healing has been fairly straightforward. Huge scar, but pretty cute as scars go! After my 6 month checkup some new cysts have showed up on ultrasound, and there is a solid mass at the…