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I'm either freezing or sweating?
Hello Everyone, I'm new here and have had a nagging problem I need help with. I had a partial left nephrectomy on July 22nd. So I am almost 3 weeks post-op. I have had a continued problem since, that is driving me crazy. Around 4 or 5 times an hour, I will within seconds, feel myself get hot and then I break out in a…
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info on Chromophobe, furhman grade 2
I just got my pathology report. My tumor was 3.9 cm, overall features best resemebles Chromophobe, and was fuhrman grade 2. The pathology report indicated the fuhrman grading utility has not been firmly established for this tumor. Does anyone have any infomation on this tumor type, or if you have experience please let me…
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newly dx kidney and lung both
Hello everyone, My husband just got the dx from our doctor about his lung biopsy. He has a 1.2 nodule that is cancer. I do not know the type of cancer yet. His kidney has a cancer mass also and has been dx as transitional cell carcinoma. Because of the location of the mass, 2.8 x 2.4cm, our urologist will take the whole…
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HDIL2 worked for me!
I just got the results of my first CT scan after undergoing HDIL2. The mass on my chest wall was reduced dramatically. My oncologist is not sure if the little bit left is cancer or scar tissue. I have another scan in 6 weeks which will probably tell which it is. My oncologist told me that in a very small amount of people…
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Cord Decompression- has anyone went through neurosurgery?
My mom has stage 4 with mets to her back. MRI from 5 weeks ago showed cord decompression. She is on steroids and went through course of 15 radiations with little relief. Not only the radiation did not relieve mom's pain, it made it even worse. Now we are in the hospital for a week trying to control mom's pain, but still…
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staples out Thursday ER on Friday for Incision open
So I had my staples removed Thursday (8 days after partial nephrectomy), a whoping 17, the longest incision was about 1.5 inches. Removing the staples was painless, and quick, possibly 30 seconds. They put these thin short steri strips on and said they will probably fall off the next, daym which they did. I asked do I put…
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Acor.org users?
Based on a recommendation posted here, I've been trying to view the "cancer types" links on acor.org for several weeks and I keep getting an error message saying "unable to connect to server." The rest of their links work fine. Anyone else having this problem? I have sent them four emails but they have not responded.
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Struggling with the pain after nephrectomy
Hi guys I was wondering if you can steer me in the right direction. I had a radical, open nephrectomy on June 20 this year, and the tumor was a Grade 2 RCC. So, im about 5 weeks out. I cant take the pain. I still take Oxycotin at night and just paracetomol during the day. I have the most horrible pains in my back and the…
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Waiting for surgery re: Kidney removal
Hi I was diagnosis wth stage 1 kidney cancer two weeks ago. I'm currently waiting for a date for the surgery. I would appreciate any advise on things to prepare for and, things to expect after surgery. Thanks in advance this is a wonderful site
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Surgery July 20th, this is what I've learned so far
The 20th seems like such a far way away, and with each day I get more nervous. My 2.9 cm tumor is on my right kidney, it is exophytic, and at the bottom pole. My urologist indicated I am a good candidate for laroscopic robotic partial nephrectomy. Based on my research, and the urologist feedback, the prognosis for open…
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How long do you have to wait to go on RollerCoasters?
How long should someone wait after a radical nephrectomy to go on a roller coaster?
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Surgery in 6 hours
I'm going in for my surgery in about 6 hours. Not sure yet what that surgery will be, but it will, unfortunately, be an open procedure. It could be a total nephrectomy, partial, or cryoablation, depending on the tumor infiltration of the renal artery. Latest images showed we might be able to get away with a cryoablation,…
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Hi guys from Brisbane Australia
Hi guys I had 2/3 of my stomach removed as a weight loss measure (sleeve gastrectomy) in August 2010. I had incredible pain in the tummy and went to the ER thinking something was wrong with my tummy on May 27, 2011. My vitals dropped very low and they put me in for the CT urgently as they believed I was bleeding…
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home after partial nephrectomy
Hello everyone, I had my sugery wednesday afternnon, a laproscopic partial nephrectomy using davinci robot. The margins were clear, and all tests were fine. They are now staining to see if it is clear cell, chromophobe, or papillary. The tumor by CT was 2.9 but actual sive was a little over 3 cm, cant remember exact size.…
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Antihistamine - Itchy/Hives
Hi all, I was just wondering if anyone has had issues with Hives/Itching after nephrectomy? About six months after mine I developed Hives/Chronic Urticaria, which at one point was put down to contrast die. Allergist said this was unlikely. Dermatologist said it was most likely the cause. Go figure. The only way to keep the…
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Are there any additional popular discussion groups for kidney cancer in the US?
Is there any other popular discussion group for kidney cancer we can join?
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newly diagnosed with PRCC-soliciting questions to ask and advice?
Hi! I am a 36 year old female and am new to this. It all came on very suddenly. I was diagnosed with what was thought a non cancerous tumor/cyst on my left kidney. We only discovered it during the diagnosis of a very large kidney stone in the same kidney which I had removed. I've never had a kidney stone or any kidney…
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donation of unused Sutent
I have a 60 day Supply and would like to donate. Any ideas where??
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Considering having Laparoscopic partial nephrectomy/DaVinci® robotic laparoscopic partial versus
I would like to share the advice my Veterans Administration Urologist doctor told me on my choice of surgery, he recommended the Open partial nephrectomy verus Laparoscopic partial nephrectomy , yes you will have a big scar, yes it will take a lttle longer to heal, he said having the Laparoscopic partial nephrectomy there…
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Cancer in both kidneys
I was diagnosed 5 weeks ago with a complex cyst about 7cm on my right kidney, 95% chance it is cancer. Have a tumor on my left kidney also 95% cancer. In 3 weeks I am having surgery on right kidney with cyst that covers the center of right kidney. Doctor says I will have dog ears after cyst is removed and he will try to…
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Thank you
To one and all that have contributed to these pages over the years I thank you for your time and effort from the bottom of my heart. I am truly overwhelmed and so relieved to have found your discussion board. Finally I feel that I have found some insight from people who do know exactly how I feel, and that are going…
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Sorry, trying to figure this all out
I feel cooky, I replied to a message from 2005. Trying to figure this all out. I will post tomorrow, a new thread to get feedback after my urologist appointment. BG
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RCC Nephrectomy Dec 1, 2006 Everett, WA 10.5cm, FNG 4 w. sarcomatoid features. Now 68 feel like 2
Stage IV at dianosis. Lung matastasis present at diagnosis was removed 2 years out. Did some Sutent early on. DCA. Fresh squeezed vegetable juice. Suppliments. Strict vegan diet. Doctors are amazed but smirk at diet, DCA, suppliments. Evidently they are great believers in luck and/or prayer. I will share additional diet…
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Ultrasound found 4cm mass - neoplasm cannot be excluded - fraking out
36 y/o male, just taken control of my life, started eating better and excersizing.. Never felt better, no symptoms other then muscle soreness after heavy gym sessions. On the annuel physical all blood and urine tests came back mostly good, slightly high cholesterol, a bit low vitamin D, etc. PCP asked if I had any other…
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da vinci laproscopic partial nephrectomy
Hello all, I went to the urologist today, and he is planning on a da vinci (robotic) laproscopic partial nephrectomy. I looked at the website that I found when reseraching him, and found several individuals who posted positvely about the procedure from several different states, not all his patients of course. I have a 2.9…
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Hand Assisted Laproscopic Partial Nephrectomy
I am new to this group and to RCC. I am having a hand assisted laproscopic partial nephrectomy for stage one RCC this Thursday. What should I expect? My dr. said I'd probably be in the hospital for 2-3 days. I asked him how this surgery would compare to my gall bladder surgery as far as recovery time and such-he said it is…
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just diagnosed
I went in for elevated liver enzyme scan, during the scan they found a 3-4 cm tumor on my right kigney via ultrasound by chance, and confirmed by CT scan yesterday. They will take a wedge of my kidney, not sure if open or laprscope, I go to urologist tuesday of next week to discuss. I am a 48 year old male, and freaked…
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Concerned about follow-up plan
Greetings, Praise God that my kidney tumor was discovered incidentally with a CT-Scan exam. After radical nephrectomy, the cancer was classified as 4 centermeter RCC T1a grade 2. Radical nephrectomy was required because the tumor was centrally located. I visited the surgeon 2-3 weeks after surgery. The surgeon said no…
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Wilms Tumor
Hi I'm new to the board and honestly didn't foresee needing another place to blog or seek support but here I am - the grandmother to a darling 3 yr old grandson who they believe has a Wilms Tumor on his right kidney. They have surgery scheduled for Tuesday morning. It had been previously scheduled for last Wed then changed…
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6 AM surgery for radical nephrectomy
Hello all, I will be going in tomorrow am for my surgery, having RN of left kidney. I will post updates when I can and thanks to everyone for there helpful words and blessing. Heath