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Waiting on that dreaded appointment
It's about time for me to have my six-month follow up. Every time I get it in the mail it makes me have an anxiety attack. I have been doing this since 2007. Does anyone else ever dread/worry when you have your follow up scans. I have to take medication during that time because I can't do anything w/o thinking about my…
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Radical Nephrectomy on 08-11-11
Hi all, I am supporting a loved-one who will be having a radical nephrectomy on August 11th. Can anyone share some tips, advice, experience with me? Anything you'd like to say is fine by me. The patient is 64, male, and had colorectal cancer in 2006 - went thru operation/chemo/radiation in 2006/2007. Don't be afraid to…
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Introduction
Hello there, my name is Jeanne. I am a 43 year old SAHM of soon to be 7 year old ADHD/Autistic twin boys. My husband had a kidney removed in May 2009 and they found a grapefruit sized cancerous tumor inside. He was diagnosed with Stage 4 Renal Cancer in February this year and I have been looking for online support or a…
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Surgery Monday 8/22
I have 1 word....Scared! I am only 45 and the Dr. found a 4cm tumor on my left kidney right next to the uretha. Not sure if he will be preforming partial or complete. I read your posts about what to expect: pain, recovery, etc. My worry is "did it spread", will I need chemo and if I am only left with 1 kidney what drastic…
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Kidney Cancer Mentors, 4th Angel, Cleveland Clinic
About a year ago I signed up to be a 4th Angel Mentor which is sponsored by the Cleveland Clinic, but open to all free of charge.I received training by way of program materials as well as a 1 or 2 hour telephone session with the program director. I limited my interest as a Mentor to RCC stage 1 as that is the only area…
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Radical Nephrectomy to be done 8.17.11 on my husband
My husband, 51yrs old, came into the ER 8.09.11 for severe side pain he had been having for 3 days w/o sleep or eating. They did a CT expecting to find kidney stones. Instead they found a 13cm tumor on the left kidney also blocking the renal vein. After seeing the Urologist and another set of tests (CT w/ contrast, biopsy,…
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STF-62247 and STF- 31
Has anyone heart about treating kidney cancer with STF- 62247 and STF-31??
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Partial Nephrectomy
I am 14 months post right partial nephrectomy & cholecystectomy and have been diagnosed with a urinoma. Also just found out that the partial kidney is dead. Recommendation from the doctor is to leave the urinoma and partial kidney as is. I have continued to have back/right side pain. Has anyone else gone thru anything like…
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Post Nephrectomy Gas Pains - Any Personal Experience/Suggestions?
My mother (a very healthy and active 69 yr. old) was recently diagnosed with Stage IV kidney cancer, Grade T3A. She had a 10 cm tumor in her kidney and metastasis to her lungs, thyroid, and trachea. She recently had her main tumor removed along with her right kidney. In good time too, it seems, since the tumor had grown 12…
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I'm either freezing or sweating?
Hello Everyone, I'm new here and have had a nagging problem I need help with. I had a partial left nephrectomy on July 22nd. So I am almost 3 weeks post-op. I have had a continued problem since, that is driving me crazy. Around 4 or 5 times an hour, I will within seconds, feel myself get hot and then I break out in a…
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info on Chromophobe, furhman grade 2
I just got my pathology report. My tumor was 3.9 cm, overall features best resemebles Chromophobe, and was fuhrman grade 2. The pathology report indicated the fuhrman grading utility has not been firmly established for this tumor. Does anyone have any infomation on this tumor type, or if you have experience please let me…
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newly dx kidney and lung both
Hello everyone, My husband just got the dx from our doctor about his lung biopsy. He has a 1.2 nodule that is cancer. I do not know the type of cancer yet. His kidney has a cancer mass also and has been dx as transitional cell carcinoma. Because of the location of the mass, 2.8 x 2.4cm, our urologist will take the whole…
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HDIL2 worked for me!
I just got the results of my first CT scan after undergoing HDIL2. The mass on my chest wall was reduced dramatically. My oncologist is not sure if the little bit left is cancer or scar tissue. I have another scan in 6 weeks which will probably tell which it is. My oncologist told me that in a very small amount of people…
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Cord Decompression- has anyone went through neurosurgery?
My mom has stage 4 with mets to her back. MRI from 5 weeks ago showed cord decompression. She is on steroids and went through course of 15 radiations with little relief. Not only the radiation did not relieve mom's pain, it made it even worse. Now we are in the hospital for a week trying to control mom's pain, but still…
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staples out Thursday ER on Friday for Incision open
So I had my staples removed Thursday (8 days after partial nephrectomy), a whoping 17, the longest incision was about 1.5 inches. Removing the staples was painless, and quick, possibly 30 seconds. They put these thin short steri strips on and said they will probably fall off the next, daym which they did. I asked do I put…
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Acor.org users?
Based on a recommendation posted here, I've been trying to view the "cancer types" links on acor.org for several weeks and I keep getting an error message saying "unable to connect to server." The rest of their links work fine. Anyone else having this problem? I have sent them four emails but they have not responded.
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Struggling with the pain after nephrectomy
Hi guys I was wondering if you can steer me in the right direction. I had a radical, open nephrectomy on June 20 this year, and the tumor was a Grade 2 RCC. So, im about 5 weeks out. I cant take the pain. I still take Oxycotin at night and just paracetomol during the day. I have the most horrible pains in my back and the…
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Waiting for surgery re: Kidney removal
Hi I was diagnosis wth stage 1 kidney cancer two weeks ago. I'm currently waiting for a date for the surgery. I would appreciate any advise on things to prepare for and, things to expect after surgery. Thanks in advance this is a wonderful site
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Surgery July 20th, this is what I've learned so far
The 20th seems like such a far way away, and with each day I get more nervous. My 2.9 cm tumor is on my right kidney, it is exophytic, and at the bottom pole. My urologist indicated I am a good candidate for laroscopic robotic partial nephrectomy. Based on my research, and the urologist feedback, the prognosis for open…
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How long do you have to wait to go on RollerCoasters?
How long should someone wait after a radical nephrectomy to go on a roller coaster?
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Surgery in 6 hours
I'm going in for my surgery in about 6 hours. Not sure yet what that surgery will be, but it will, unfortunately, be an open procedure. It could be a total nephrectomy, partial, or cryoablation, depending on the tumor infiltration of the renal artery. Latest images showed we might be able to get away with a cryoablation,…
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Hi guys from Brisbane Australia
Hi guys I had 2/3 of my stomach removed as a weight loss measure (sleeve gastrectomy) in August 2010. I had incredible pain in the tummy and went to the ER thinking something was wrong with my tummy on May 27, 2011. My vitals dropped very low and they put me in for the CT urgently as they believed I was bleeding…
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home after partial nephrectomy
Hello everyone, I had my sugery wednesday afternnon, a laproscopic partial nephrectomy using davinci robot. The margins were clear, and all tests were fine. They are now staining to see if it is clear cell, chromophobe, or papillary. The tumor by CT was 2.9 but actual sive was a little over 3 cm, cant remember exact size.…
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Antihistamine - Itchy/Hives
Hi all, I was just wondering if anyone has had issues with Hives/Itching after nephrectomy? About six months after mine I developed Hives/Chronic Urticaria, which at one point was put down to contrast die. Allergist said this was unlikely. Dermatologist said it was most likely the cause. Go figure. The only way to keep the…
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Are there any additional popular discussion groups for kidney cancer in the US?
Is there any other popular discussion group for kidney cancer we can join?
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newly diagnosed with PRCC-soliciting questions to ask and advice?
Hi! I am a 36 year old female and am new to this. It all came on very suddenly. I was diagnosed with what was thought a non cancerous tumor/cyst on my left kidney. We only discovered it during the diagnosis of a very large kidney stone in the same kidney which I had removed. I've never had a kidney stone or any kidney…
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donation of unused Sutent
I have a 60 day Supply and would like to donate. Any ideas where??
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Considering having Laparoscopic partial nephrectomy/DaVinci® robotic laparoscopic partial versus
I would like to share the advice my Veterans Administration Urologist doctor told me on my choice of surgery, he recommended the Open partial nephrectomy verus Laparoscopic partial nephrectomy , yes you will have a big scar, yes it will take a lttle longer to heal, he said having the Laparoscopic partial nephrectomy there…
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Cancer in both kidneys
I was diagnosed 5 weeks ago with a complex cyst about 7cm on my right kidney, 95% chance it is cancer. Have a tumor on my left kidney also 95% cancer. In 3 weeks I am having surgery on right kidney with cyst that covers the center of right kidney. Doctor says I will have dog ears after cyst is removed and he will try to…
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Thank you
To one and all that have contributed to these pages over the years I thank you for your time and effort from the bottom of my heart. I am truly overwhelmed and so relieved to have found your discussion board. Finally I feel that I have found some insight from people who do know exactly how I feel, and that are going…