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First visit with nephrologist tomorrow..
Well, six months into this adventure and I'm going to meet my nephrologist tomorrow. Not exactly sure what his role will be in my future, but I'm hoping to learn everything that I can possibly do to take extra good care of my remaining kidney. I've made some lifestyle changes that I hope will help, I've almost completely…
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Pain in lower back
I had an open radical of my left kidney on November 18th. Two days ago I started getting a pain in my lower left back when I take a deep breath on burp. Not with every deep breath , but often. It does seem worse when I first wake up.I ask the Dr. about this. He said if it continues I would need to get some x-rays. Have any…
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creatinine post surgery
Hi, I had my surgery (lap.partial)on wednesday (12/7/12)and was released friday night. I was released with a drain intact because the surgeon said that I still had a little fluid in the surgical area and that my creatinine level was 1.5 I was totally loopy from the meds and didnt really understand what was going on. Does…
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work place cancer? does it mater? maybe for the next guy?
Just reading about a possible cause of kidney cancer being; Polycyclic aromatic hydrocarbons (PAHs) a group of over 100 different chemicals that are formed during the incomplete burning of coal, oi, wood, gas, garbage, or other organic substances like tobacco or charbroiled meat. PAHs are usually found as a mixture…
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mass above left kidney, very scared right now
Past few days I had bad stomach swelling, and a little pain and swelling on my sides above my hips. I went to the doctor about it and he initially thought it was muscle inflammation.That night, I woke up with difficulty breathing and went to the ER. They did some blood tests and X-Rays. The blood tests all came back great,…
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recovery after lap. partial
I'm having my surgery this Wednesday (laparocscopic partial on right kidney) and even though I've spent a lot of time talking to my doctor and reading all your posts on this board, I don't think I know what to expect as far as recovery is concerned. It seems like a lot of people had open surgery, which I know is supposed…
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Nesting or what?
I know, kind of a strange topic. I've had my nephrectomy and recent dx of mets. On Monday, I begin my infusion of MDX-1106. The magic bullet!!! Anyway, I had decided to retire and found myself really enjoying my hobbies. My motorcycles, VW's and guitars. Weight training and running. Working in the yard ,shopping, and…
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social security
Just became aware that kidney cancer is a qualifier for social security disability. Worth looking into. Maybe others here who can benefit. Hope this is helpful.
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Drug Therapy
Anyone hear been treated with Interluekin 2? Would like any and all info from you about what to expect and how it went during treatment. Im scheduled for this in 30ish days.
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Kidney cancer follow up
I had a partial nephrectomy on august 24th. It went ok, 8 days in the hospital and 6 weeks off work. I am back to work and everything is good except that the lower left part of my abdomen is still numb and I am tired a lot. On December 27th I go in for a follow up appointment to see if the cancer has spread to my lungs. I…
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Kidney Cancer?
Survivor Septic Shock,complete organ failure,fungal infection, resulted from a doctor accidentally puncturing my intestines during surgery. My family says I was swollen like a balloon, I remember my hands and feet peeling so bad & my hair falling out from daily CTs. My story: I had surgery on Dec 17,2008 to remove my…
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New diagnosis of transitional cell
Hello everyone, I am new to this forum. I have just been diagnosed with transitional cell carcinoma of the renal pelvis, right side. The ureter has a mass where it meets the kidney. There are also cells in the kidney itself. I just went for my initial consultation with a urologic oncologist at OHSU in Portland, OR. Since I…
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post surgery update
Surgery was scheduled for noon on Friday unfortunately they had to wait three hours for the davinci then once he got in and found my little bugger it was what he thought. It was entangled in the viens and arteries that feed the kidney so his choice was not to take the kidney because the tumor was so small he froze and…
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I plan to be known as a cancer SURVIVOR
As I have read the many posts here over the last week or so, it has lifted my spirits to hear so many brave stories. I'm a 51 yr old male, been healthy most of my life, so the news of a 7.5-8.0 cm tumor on my kidney was quite a shock. Even worse, the surgeon thought I already knew....until I turned pale! But, I am…
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Need to see an oncologist?
I am 43 and my cancer was found 'accidentally' on a CT for diverticulitis. Fortunately, the tumor was less than 3 cm. Because of its placement, I had to have a radical nephrectomy. My surgery was July 6 and I'm on the road to recovery. We will see my urologist in one week and get the full pathology report. Initially, he…
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Question about Diagnosis
First, a big thank you and good wishes to everyone here. I've been lurking for over a week and because of your strength and kindness, I have taken the plunge and am posting. My father found out 10 days ago that he has a large mass in his left kidney, a large mass in one lung, and a 7mm mass in the other lung. We are now in…
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Tiny, tiny nodules lower lobe
Hi everyone, I have been through kidney cancer with my mom. She had a radical nephrectomy 2 years this past September. When she went for her yearly ct scan last month they found tiny, tiny nodules on the lower lobe of her right lung. The doctor said they will do another ct scan in 6 months but nothing until then. Since her…
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wow twice in a life time
Hello-5 years ago my husband by chance discovered he had Kidney cancer-It began a long road-kidney removed-all scans from the neck down perfect-2.5 years ago he felt funny-many doctors and finally the last er-They scanned his brain thinking he had a stroke.he came home october 26th and left me November 6th 2009. So…
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When will the bloating go away and when will I feel better
I am only 12 days out of having a laprascopic nephrectomy. I no longer have pain where the incisions are, but my digestive system seems to be the problem. The bloating is what is causing the pain. My doctor seems to think, I should not take any more pain medication. However, I'm very uncomfortable and becoming depressed.…
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Stomach bloating
Hi I just have one small concern.had my right kidney removed on 10/11/11,now since the first week of November I have been walking an average of six miles a day,also have spent some time on the elliptical.my question is even though I have been active since surgery I'm having a hard time losing any weight,also my stomach…
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I'm off the high ferris wheel basket
Good news, finally, yesterday. Over 2 months ago, the regular CT found nodes in an enlarged thyroid. Pretty unlikely that it was metastacized kidney cancer, but could have been a new thyroid cancer, or not. An ultrasound really didn't show too much different. Wait 2 months for an iodine tracer scan and yes there were nodes…
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Removal of Lymph Nodes?
I am scheduled for surgery to remove a small (CT showed it to be about 1.5cm)kidney mass on December 7th. I'm having a laparascopic partial nephrectomy. I asked my surgeon if he will be removing any local lymph nodes for testing (the CT did not show any lymph node involvement)and he said that he does not remove any lymph…
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help - really nervous - seems like a long wait for surgery
My kidney cancer was found do to CT at the ER for unrelated problem, MRI confirmed the same. My PCP sent me for a second opinion (didn't like the second opinion) cancer less than 2 cm on the outside of the kidney not in (which I hear is better). The are doing partial in two weeks just seems like its taking forever…
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is it related?????
Early in the day its not too bad, but by the end of the day it takes all I can to keep my pants on. Everything I own feels tight and constricting, is this the kidney tumor, I've read some thing and seen that it can be, mine is very small surgery on Friday but I'm just curious if alot of the abdominal bloated feeling will…
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New to all of this-
I am a new caregiver and we are so new to this we don't even have all the lingo yet. My husband had very high calcium and is now being told he has kidney cancer that has spread to the bone. I'm scared and so is he. I know I have to be strong and am trying my best. 4 months ago he was in complete kidney failure and was told…
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Less than 24 hours away from surgery
Hope all goes well, finally get the little bugger out and move on with life. I'm staying positive with some reservation obviously until I hear from the doctor after the procedure.
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Waiting for surgery and terrified
Hi, This is my first time posting here. I'm a stay at home mom, in my thirties with 2 little kids and always thought I was pretty healthy. I'm slim, don't drink or smoke and eat really healthy. I'd had an abnormal result of a routing urine test - showing some protien in the urine and was concerned, so I followed up with my…
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private messages
Does this board allow private messages to other members? How?
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reluctant new member
Well, I guess it is better to see the group get bigger than to get smaller. Add me to the list. First of all, this is an excellent and supportive site. Glad I found all of you. Thanks...I thought I had a kidney stone in march. Tremendous pain and hematuria both in one night. But no. Cat scan showed stage 3 tumor. Had an…
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Newbie - here for my 80 year old Dad
I am so glad this network is available. I am looking for support and the right questions to ask. My Dad has a "left renal mass" that doctor says is 80% likely kidney cancer.He has had PET scan, CT scans without and with contrast, xray. He was in significant pain and the pain was alleviated by a stent. His ureter looks like…