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Feeling Anxious tonight as the Surgery date gets closer
Really glad I found this site..starting to look forward to checking in. I wish they had more info to input like at least the state or country we are from etc. I am feeling a little out of sorts tonight. The past two years have been really hard on me..On Jan 5, 2011 my brother Sam, 56, died of sudden cardiac arrest. Then…
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Wow,What a Week but Things are good!!
My internet has been up and down so I haven't been able to get online..arrgghh...Had my partial nephrectomy on my right kidney last Friday..Surgery went well...Amazingly I started producing "perfectly beautiful" Urine immediately...I did so well that I was released on Saturday afternoon..can you believe it!! Of course I am…
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Kidney Cancer Chronicles - Chris Battle
http://kidneycancerchronicles.com/cachexia/ Not sure how many--if any--follow Chris and Dena Battle in Kidney Cancer Chronicles, but their diary type articles on the various treatments Chris has undergone are a must read for me and John. The link above is his most recent post on cachexia, the wasting of body and muscle…
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New to Group
Just found this site and list. I was diagnosed with RCC on 12/24/2012 though I felt I knew what all the tests were for a couple week before that. I had NO symptoms except for being cronicly dead tired. My pulmonologist asked for a chest XRay along with other work on my sleep apnea when they spotted a something on my left…
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Solitary Lung Met
First a quick recap: May 1 2012, mass found on kidney via CT Scan. June 19, 2012 Radical Nephrectomay; tumer rated T1B, Furman grade 4 (15% Saratomoid diiferentiation). Dec 19, 2012 While at NIH for Familial RCC study, 1.5 cm mass on my lung ID's. Pet Scan and biopsy showed it to be cancerous. Feb 5, 2012 Lung Mass…
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One last thing...
This will be as good for some of you as it is for me to express. Take what you want, disgard what you don't want. It's my take on what is happening to those of us that are bonded by a common experience. You are going through a lot of emotions. Let it out. It's ok to cry. I thought I was the most manly 45 year old guy I've…
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and so it returns...
Seen the doc friday. It has returned to my liver. Scheduling lobectomy. :( wzith possible liver pump.t
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Hospice in or life
Mom has been having this horrible pain (grade 10) since 1/29/13 on her right lower back. On Friday 2/1/13 we took her to the ER. Morphine no longer cntrolled the pain. She was admitted for a really bad kidney infection. X-rays were done. Others tests were done , conclusion, Cancer spreading. Thursday 2/7/13 we were told by…
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The waiting is the hardest part
Finally went to see anaethetist on 13/09/2012, thought that the operation would be imminent, only to be told that I was on the wait list for NOVEMBER. I can live with the fact that I have RCC (I think) but the wait for the operation is the hardest part. Quite frankly I am terrified of the whole procedure. It is only the…
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Funny Bonz II...
There was a newly wed couple who were getting their first look at each other's attributes on their first night together. (Science fiction, I know) Any way, she undressed quickly and jumped into bed, he was somewhat embarresed and moved quite slowly. First he removed his shoes and socks revealing toes that were twisted and…
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Quick Update - Progress Continues
Hi, all. Again, sorry for my absence. Quick recap: 43yo male, father of 2, diagnosed stage 4 grade 4 rcc back in April 2012. Removed left kidney, adrenal, and some more parts and slices in May 2012. Started Sutent June 2012 or so and have been using Gerald White's MAARS program since then. Had good results. On to the…
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I'm back, but I have to clear up a few other health issues
Those of you familiar with my story know that following surgery my wife scheduled a Southern Caribbean Survivor Cruise. I just came back from number 11. Anyway the last 4 dats I have been pertty sick with upper resperatory ailments. Possibly pnemonea but the fever is either low or not there. Ships Dr. gave me some…
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My Husband has stage 4 M RCC, about to start Sutent
My husband has not been on this site yet, I have searched for information and came across your support group which has been the first positive place I have found we are just new on this journey and as yet have sitill to complete his right kidney surgery. most of the medical terms I am not familiar with but will in time I…
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22 months cancer free
Hi all good to be back on the board. I've missed posting and reading all the post of the bueatiful people on this site. For all who don't know me I had a readical nephrectomy in April 2011 . Shortly after my other kidney failed and i was placed on dialysis. So life has been a roller coaster ride for the last two years Wow.…
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CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
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DaVinci Robotic Partial Nephrectomy
On Dec 18, 2002 I had a left nephrectomy..tumor was almost 8cm..totally encapsulated..I actually had the first laproscopic nephrectomy ever done at Washington Hospital Center in DC..Pain was bad for a few days but I recovered very quickly. I have been followed once a year now by my Oncologist since. I am a retired…
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Payment for clinical trials
OK, here is one for those in trials, and for our beloved lawyers. Remember that I've made lots of jokes but none about lawyers. Last year when I went to Yale, I was pleading to be treated with IL-2 as I thought that was my only chance for survival. As you all know, I was offered a placement in the MDX-1106 trial if I…
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Diet - Foods
HI All..! I may of missed it.. but I did not see any discussion on Cancer diets... So, we all learned eons ago to reduce red meat to reduce Cancer risk.. I have reduced my red meat by about 99%..! But what about other foods... anyone hear of the Essiac Report and the tea it suggests..?? And we all know that a salt…
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Questions for oncologist renal clear cell cancer 2.4 cm Fuhrman 2
I had a partial nephrectomy for renal clear cell carcinoma, 2.4cm fuhrmann grade 2, 2/15/11. I am seeing oncologist Monday and am developing a list of questions for the appointment. I had uterine cancer surgery 10 weeks prior to kidney surgery. My health is compromised by chronic fatique and stress. My brother just died…
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Anyone heard of this at Mayo Clinic? Two Drugs Help Fight Kidney, Breast Cancer
http://www.mayoclinic.org/news2012-jax/7014.html It said "romidepsin and decitabine, work cooperatively to activate a potent tumor suppressor gene that is silenced in these cancers. Once the gene, secreted frizzled related protein one or sFRP1, went to work after the drugs were used, the laboratory tumor cells stopped…
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One Kidney Over-the-counter Drugs?
Since I had my kidney removed, I've been concerned about not only what to eat, but what's safe for me to take. My doc said avoid aspirin/ibuprofen, for example, and take tylenol instead. I'm getting a cold or some kind of sinus condition (which I often do). I've been wondering if my frequent usages of antihistamines and…
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Kidney Cancer Patient Conference - NC
Hi, I'm new to this forum but not new to kidney cancer. Had nephrectomy (15cm tumor) in 2008 and mets to lung with thoracotomy in 2010. I'm treated at Mayo Jacksonville, FL. Is anyone attending the Kidney Cancer Association Patient Conference in Chapel Hill, NC February 23rd? I'm going and would love to meet other kc…
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Options Post Surgery
Hi Everyone I am 57 years old and had been diagnosed with a herniated disk many years ago. This past summer it really started to hurt and the orthopedist sent me for an MRI. Several days later he called at 8.00PM on my cell and told me I had a large mass on my left kidney. I had surgery three weeks later. The tumor was…
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Aging
This is not about cancer as such, but I found this article about aging really interesting and entertaining: http://www.commentarymagazine.com/article/old-age-and-other-laughs/
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When to Remove Tumor/Mass?
This is going to sound like a strange question. I have been putting off going in for a follow up US on the complex mass on my right kidney. I postponed US because of the Holidays. Anyway, the complex mass was both solid and fluid. I don't know what that matters if any. Here are the questions: Under what circumstances…
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New here, seeking help
Hi, I am hoping I can get some advices from your guys regarding my kidney problem. I am a 30-year old female. ustrasound and CT were done two weeks ago and a 3 cm solid mass found on my right kidney upper pole. Radiologist thinks RCC is unusual of my age but he could not be sure what it is. Then my specialist referred me…
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Pain in my scar!
So it's been a long time since I've posted. For any who do not remember me, I had a 22 cm tumor on my Right Kidney. It's been almost a year since my surgery and for the past couple days, the top end of my scar (part that starts on my right Latissimus Dorsi) has been burning. Today, it freaking hurts bad...I can barely move…
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One Year Cancer Free
Got my CT Scan report on Thursday last week. I am officially one year cancer free. Thank you God!!
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Creatinine Levels
Okay... here is another question... When it comes to labwork, what should I watch for with the creatinine levels. I had blood work done in December and my creatinine level was 1.06. A few days ago I had more labwork done and the creatinine level was 1.11. The labwork inidicated that this was high, but I don't know if its…
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Where does it come from?
My husband's Dad died of colon cancer and two of his brothers have battled prostate cancer with one of them still doing so. Could his RCC come from them having cancer or could it come from years of working around asbestos in the 70's or could it be in the water? We live in a small town of about 2,500, so many people in the…