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I Flashed My Neurologist Today!!!
He the Dr. that has been by my side these past few years trying to get someone to do surgery on my spine and he was the one who ordered the new Myleogram/CTScan that the tumors showed up in. I saw him right before my surgery and I told him if I didn't make it for some reason that "he was the best and I loved him for…
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Question of the Day!!
Evening all, I am just sitting here thinking and I was wondering what changes you made to your diets after surgery/treatment? I know salt is now my enemy so there goes my lovely big buckets of mega salted popcorn!! I used to drink litres of sparkling water but not that is limited because of the sodium content. Do some of…
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New here, stage 3 RCC
Hi. I am 37 and just got my right kidney removed along with the 10cm tumor. my doctor said they have removed everything but i am still scheduled to do ct scan 2 months after my surgery to check if there will be any growth in my body, from lungs down. i have seen in the net that this type of cancer spreads to lungs,…
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Pain in my scar!
So it's been a long time since I've posted. For any who do not remember me, I had a 22 cm tumor on my Right Kidney. It's been almost a year since my surgery and for the past couple days, the top end of my scar (part that starts on my right Latissimus Dorsi) has been burning. Today, it freaking hurts bad...I can barely move…
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What a WONDERFUL day
As I sit waiting for my infusion to begin, I am presenting a glow and sense of well being. For the past week I've been virtuay painless in my ribs and spine. Groovey! My blood work has just returned and is perfect! Let's see, what else could be important........ummm.......Oh yeah, For the past week or so, my energy is…
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One year anniversary
It's been one year since having my cancer removed from my kindney. It has been a rough year but I know things will get better. Saw my doctor today to go over MRI results which were NED. Today is a good day.
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First Blood Tests Post Everolimus Good News
I had my first blood tests after being on everolimus (or placebo) since starting the drug trial 6 weeks ago. Everything was normal. Before the blood tests I was pretty sure I was on the real drug and not placebo. All the tests were so normal, that I'm less certain now. My creatinine had dropped down to 1.53. It was 1.9…
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Am I Crazy?
Hi everyone, I am looking for some advice. A new job opportunity hopefully is coming my way. Its to go back as cabin crew for a national airline. It would be full time whereas now I only work part-time in a call centre. My dilemma is would my body be able for it?? I think I am trying in some kind of weird way get back to…
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Swollen Axillary Lymph Nodes
Has anybody heard of RCC spreading to axillary lymph nodes (underarm lymph nodes)? Would this show up on CT scans? I'm taking everolimus as an adjuvant therapy and have been NED since my kidney was removed in December. I've been having sinusitis/rhinitis and cold like symptoms which I attribute to the everolimus. Those…
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Just diagnosed and Operated on
Hi I was diagnosed 6 and half weeks ago with RCC, I had two tumors on my kidney. I had know idea I was sick, a month and a half before I wound up in the hospital I was urinating blood clots like crazy. A doctor told me it was probably kidney stones and that I should get a CT scan just to be sure. I did not have insurance…
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Question about timeline for nephrectomy
Hello, first-time poster here. My 66-year-old dad received CT scan results last Thursday: a 14 or 19 cm mass on his left kidney (my parents remember the information differently). His primary suggested waiting until this coming Thursday for his existing appointment with a visiting urologist (he lives in a small town outside…
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first 6 month scans
My first 6 months scans are coming up on Friday. Will be glad to get them done and hope all is ok. I am having a little anxiety about this but have a good feeling about it. I am concerned about a new problem I have with my foot. The top of my foot started hurting 3 weeks ago and i went to podiatrist and had it checked out…
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Results
Hi all i hope you are all keeping well. Well I got my pathology results a few weeks ago but I am not sure if i really understand it. Initially they said the tumor was about 4cm but then they said that the cancerous part was only 2.5cm. They said it was a T1 but grade 3. Does that make sense to anyone? Any thoughts would be…
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Odd Question, but . . .
Since my diagnosis with a mass in my right kidneyon February 27th, I have experienced no overt symptoms of any kind, until, about a week ago I started noting intermittent, very low grade, pain in my right kidney. It is only momentary accompanied by a very brief feeling of nausea. My question is, did/does anyone else, at…
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BP. Sitting verses Standing
This is something Texas-Wedge and I talked about a month ago. Why my Nephrologist had me taking my blood pressure setting and then standing. Your BP drops when you stand up because of the blood rushing to your feet when you stand. Your pulse will quicken at the same time to try to compensate for the BP dropping. What our…
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Horse Shoes and Hand Grenades N.E.D
Sorry T for starting a new thread but i waited a year and a half to say this.First a little background on myself,my name is Mike and i live in the Chicago area i am 51 years of age with an average level of intelect so my contributions to this board have not been to impressive but i love everyone here none the less.My…
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Question - Acetylcysteine
Fellow members, I have my 2nd CT w contrast next week at the 8 month point and the 1st scan they used Acetylcysteine (liquid - 1 gram every 8 hours ) to protect my remaining kidney. Worked great, no side effects. This time there is none available, anywhere, and the radiologist has prescribed an alternative [ Theophylline…
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Chuck's Appointment Today
We are waiting to see if a slot opens up in the Trial they are trying to get Chuck in.. they are pretty sure he qualifies at this point...We go back next Thursday for Labs and to go over any questions we have about the information they gave us today(A book) but if something happens and one does not or he does not qualify…
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I feel good today, I will feel good tomorrow...gonna have fun
I am 49 and have an agressive form of RCC: a Clear cell with sarcotimoid features; at my first post nephrectomy scan, they found a solitary met on my lung; same pathology. Next scans are in april. If I believe the statistics I am screwed. But I feel good today, I should feel good tomorrow. In six months, I do not know. So,…
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I have a big bulge on my side since my kidney removal
I had my right kidney removed in 2010. I have a softball sized bulge on my right side. The doctor said it's because he cut through nerves to remove my kidney. I feel like I look horrible. I can only wear clothes that are loose fitting because of it and we won't even talk about bathing suits. Has anyone else had this…
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RCC and now possible Breast Cancer
I am 3.5 years RCC- clear cell survivor. My mammogram screening was abnormal and I am undergoing further investigation for a possilbe breast cancer. Anyone have prior RCC with another form of cancer later?
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Follow up scan results- some questions and looking for input
I just had my 1 yr follow up CT. My path report 1 yr ago was: 5.5 cm T1b Clear cell carcinoma Grade 2 No nodes tested no mets determined at the time I was not referred to an oncologist and have not seen one to date. Prior to my nephrectomy last Feb., an abdominal/pelvic CT noted a cluster of mesenteric lymph nodes that…
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One year post surgery follow-up
Hi everyone, Well, this week is my one-year anniversary of beating the beast. My surgery was last March 16 where they removed a Stage 2, 7.5 x 6.5 x 4.5 tumor on my right kidney. It was completely encapsulated so in general I am a happy camper. Last week I registered for a 50 mile bicycle ride in May. A year ago, I'm not…
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Anyone familiar with the VA and RCC?
Hi all! I posted for the first time about a week ago. That was right after my Primary Care Physician told me about a mass 3.7 X 4.7 X 4.0 cm on my right kidney! He immediately requested a consult with Urology and I have been terrifically persistent pushing my own case for a rapid appointment. It is at 1:00 today. Thats all…
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Sutent & High Blood Pressure
My partner was diagnosed with RCC in November 2012. Unfortunately it had spread and there was a small nodule in the lung and a patch on the pelvic bone. Luckily though the main tumour was operable so on 7 December he had a radical nephrectomy and his left kidney was removed via keyhole. In January he was started on Sutent…
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Radiation Questions explained
A couple weeks ago I posted a question about why I was to receive so many doses of radiation in one treatment session when we had been told the surgery had gotten it all. Today my radiation oncologist gave me a good explanation. What she is doing is covering a large area, where my kidney used to be, but at the same time…
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Anyone had a kidney tumor biopsy?
3 cm mass on left kidney (See previous "freak out" post) - 1st opinion was open kidney surgery, identify the tumor, take 1/2 or all the kidney dependent on tumor type. 2nd opinion is drastically different, but from a highly regarded doctor that has a lot of experience with kidney tumors. He thinks it's benign, most similar…
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New here with so many unanswered questions
Hello- I am new to this sort of thing. My husband woke up on June 4 and had to be rushed to the ER. He was given an ultrasound that showed a mass on his right kidney. After more testing, it was determined he would need to have the kidney removed. On the day of the surgery I recieved a phone call from the rehab center my…
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Possible RCC with upcoming surgery
Hello, I am a 40 year old woman who is new to this site and I sincerely appreciate any feedback. In 2010 I had an abdominal ultrasound, as a requirement for the Lap Band procedure (later decided against the surgery). 3 months after the procedure, I received a letter stating that they found a suspicious mass on my left…
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Kidney, Thyroid, bone lesion...
Hi all - I'm 0 for three on CT scans! My first one found the large tumor in my left kidney which resulted in a removal of the kidney and a large 14.5cm tumor (RCC - Chromophobic). My first 6 month scan post surgery found nodules on my thyroid (unrelated) which resulted in the removal of my thyroid. My latest - one year…