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Legal recourse
John, iceman, others of my legal brethren on your side of the Pond:- What recourse could there be in your jurisdiction against the kind of louse who has made almost 600 postings since arriving on CSN this morning for the first time under the moniker "shanghai" ? I've already flagged numerous of these posts, but obviously…
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Something I have been wondering...Why so many fictitious/anonymous names used?
This is something that has been very puzzeling to me. Most all discussion on Facebook groups and other sites people always use their real names. WHY does everyone in the CANCER SURVIVOR NETWORK USE fictitious/anonymous Names. I created my account with my real name and will stand behind anything I post, I am not ashamed for…
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Lung nodules found
Well, I hate to break the streak of NEDs we've been getting lately, but my CT scan from yesterday was not good. I have 2 nodules in my right lung. I had the scans yesterday but the computer system wasn't working properly and my doctor did not get the radiology reports. He did have the scans and thought they looked good…
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Something new
Okay so my mom started chemotherapy TORISEL* tuesday 1/15/13. She has to get infused every week. She started having nose bleeds. any advice?
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Are vitamin supplements beneficial
My husband is about to start Sutent -- would it be beneficial to be on vitamins or a supplement.
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Newbie question
Hi, I just discovered this board and it seems like you have a supportive and knowlegable group here. A 2cm mass was discovered on my right kidney incidentally during a CT of my abdomen for appendicitis in December of 2012. I had another ct with and without contrast in January to get a better idea of what this mass was. The…
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New Member - 7 weeks Post Radical Nephrectomy
7 weeks Post Radical Nephrectomy. Trifecta mets. Moving through the process. WOW. Glad to find this forum. Radiation and IL-2 ahead.
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Inlyta Information
Okay so after being back at the doctor this week my husband is now going to try Inlyta. He isn't to happy about it and said if the side effects were like Afinitor he wouldn't stay on it. His latest scan showed his cancer that had spread to his lungs has grown quite a bit since October. Everyone please keep him in your…
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Bacon Cures Cancer
My Mantra. Today is my last day at work (and only day this week). I am getting ready for round II surgery for a possible/probable solitarty lung met. The biopsy on the met (spherical, 1.5 cm) is somewhat inconclusive: it may be a primary lung cancer, but my money is on a met. It is cancerous. It feels wierd to be rooting…
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Afinitor as Second Line Drug - Why is that?
Can anyone explain to me why afinitor is used only after the VEGF drugs have failed? I understand the FDA has approved it only this way, but why? Is it just a newer drug that came late to the party? I've seen charts showing it less effective, but I think those charts were all in a setting of being the second thing tried.…
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10 weeks out of RCC and a radical
So they found it incidentally, had the operation October 23rd in Col. Pres in NYC. I have pain in the lower abdomen feels like my back not sure if its a sympathy pain on the left and the right one working harder. Major surgery is no fun and you're never the same. Started excercising on the tread, bike some light wieghts.…
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This site's technology is really bad...
Sorry about the complaint. I've lived with this site's very poor technology for well over 6 months with the hopes it would get better. The speed, crashes, etc are terrible. I'm very apprecitive for the people and the site for being here to support me and all of us, it's a great community of people helping and caring for…
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Memorial Sloan-Kettering Cancer Center Nomogram - Calculating Recurrence Probabilities
At my my most recent visit to the oncologist, he used a prediction tool on Sloan-Kettering's website called a Renal Cell Carcinoma Nomogram. You enter your histology, symptoms, pathology and tumor size (this is for post-surgical, single tumor calculating recurrence probabilities) and it outputs a number. There are links on…
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New here
Hi everyone, I, like many others, have also looked at these discussion boards before finally becoming a part of this exclusive club as some of you say.. lol. My dad is having a laparoscopic radical nephrectomy. They diagnosed him in September 2011, with RCC Stage 4 with nodules/mets? to his lungs. He started on Votrient…
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Bone Scan versus PET Scan
So I saw oncologist #2 yesterday. My CT scan prior to my nephrectomy had a questionable 1cm spot on my right femur. I had assumed it was nothing because my urologist/surgeon didn't menion it and hadn't planned to do anything special except, I suppose, have another look in 6 months. Oncologist #1 last week thought we should…
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Afinitor 10mg and 7.5mg Blister Packs Available
I have asked my husband's oncologist what to do with the Afinitor they took him off of. They said destroy it, I just hate to destroy about $8,000-$10,000 worth of medicine. Does anyone on on here take the Afinitor 10mg or 7.5mg. They are individual blister pack wrapped so noone has touched the pills. Please comment here if…
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The Cancer Survival Toolbox
Someone on KIDNEY_ONC has just drawn attention to The Cancer Survival Toolbox which is available free in both audio and script form on the Web, at this link: https://secure2.convio.net/nccs/site/Ecommerce/815932401?store_id=1301 It has been put together under the auspices of the National Coalition For Cancer Survivorship…
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New to Kidney Cancer - dealing with new emotions
Good day, I thought I understood the emotion of cancer, having lost my paternal grandfather to lung cancer, my father to multiple mylenoma and my mother to lung cancer. However, after 6 months of investigation for hypertension, an abdominal CT with and without contrast showed liver cysts and 2 solid mass tumours on the…
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Sad Christmas
This Christmas was sad. How to think of life when the only thing in my mind in death. My mother was in pain all day Christmas Eve. She takes morphine every 3 hours. Christmas day same thing in pain and in tears. Mom was diagnosed 1 year ago. But the last 4 months have been horrible. Its hard to celebrate, to be happy when…
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How Kidney Cancer Spreads to Distant Organs
This is an interesting article: http://www.mskcc.org/blog/new-findings-clarify-how-kidney-spreads-distant-organs Looks like we'll eventually be able to insert an active link however the button is "grayed-out"/inactive for now. --David
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Recovery seems stuck in time
On Friday I was six weeks out from my partial nephrectomy, done laparscopically. I did very well just post-op but I'm feeling frustrated as I seem to be pretty much the same every day. I seem to be ok if I don't do anything, but if I go out food shopping or just try and do a little housework my stomach swells up and I get…
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On the lighter side - Dr. House and RCC
Sorry to deflect onto something lighter, but was watching an old "House" rerun last night. In the story, a patient who has a history of RCC and its recurrance is being treated for smallpox symptoms by the great House. He proposes giving interferon for the RCC recurrance. Not Sutent and not other similar meds. Why? Well, my…
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open partial nephrectomy
Hi, I'm new to this site and have been looking for some advice. I am 48 and I was diagnosed with RCC ( 2.5cm tumor, left lower kidney) mid-December 2012 and I am due for a open partial nephrectomy on 1/17/2013. Can anyone give me some sound advice on what to expect for the surgery and what to expect when I come home. Also,…
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New clear cell with Ulcerative colitis
Hello I am new to this web site and was hoping that someone could help me out. I am a stage 4 grade 3 clear cell cancer patient that has had a radical right nephrectomy and adrenalectomy. Also 1 of 2 lymph nodes was positive. My question is if there is anyone else out there with kidney cancer as well as ulcerative colitis?…
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Wensday I hope to find out about my lung mass.
I am posting here, because you all will understand. On Dec 19, six months out of surgery to remove a 5.5-6 cm clear cell (Stage 1b, grade 4 from 15% sarcomoid features), I had my first followup scan. The scan was a full torso scan, including the lungs. I expected NED, instead, I have mass was found on the upper left lung (…
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Cyst or Cancer
Dad dying of Stage IV Renal Cancer. During MY vist to ER today for Kidney Stone they told me a cyst I had 5 years earlier doubled in size from 0.6 cm to 1.3 cm. Not sure if this is a simple cyst or the complex type the report did not say. Anyone else see this before?
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Husband Diagnosed with Kidney Cancer, Stage 4
Hello everyone. I've been a lurker on your discussions for the past couple of weeks and was a little intimidated to submit as everyone here seems very knowledgeable about options, tests, labs, etc. and I'm pretty much clueless. But I do believe sharing information and getting it out there is part of the key to some day…
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IMA901/Sunitinib vaccine trial update
I haven't posted in a while and it's time to share how things are going for my husband. He entered the IMA901/Sunitinib vaccine trial in October - sadly got in the control group and didn't receive the vaccine. He's been only on Sutent for the last 4 months. After the first CT - 3 months after starting Sutent the results…
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Is there a reward for pain?
My mom has been in alot of pain due to a tumor on her spine. She received 5 treatments of radiation. She is in more pain now then before. She haS been on morphine liquit (7.5 ml) and morphine pill (45 mg) for 4 weeks. Yesterday, we had a follow up with Oncologist we explained that the morphine is not helping the pain.…
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MPDL 3280A - Back from Nashville #4
I hope it's okay I started a new thread. The old one was two pages long and quite honestly, I didn't know where to reply..the top or the bottom! Anyway, a short update (that's good!) Everything if fine. My RBC needs some tweaking...9.5, might need some more blood out there in the future. My weight is a bit of a problem.…