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Kidney Cancer Patient Conference - NC
Hi, I'm new to this forum but not new to kidney cancer. Had nephrectomy (15cm tumor) in 2008 and mets to lung with thoracotomy in 2010. I'm treated at Mayo Jacksonville, FL. Is anyone attending the Kidney Cancer Association Patient Conference in Chapel Hill, NC February 23rd? I'm going and would love to meet other kc…
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Options Post Surgery
Hi Everyone I am 57 years old and had been diagnosed with a herniated disk many years ago. This past summer it really started to hurt and the orthopedist sent me for an MRI. Several days later he called at 8.00PM on my cell and told me I had a large mass on my left kidney. I had surgery three weeks later. The tumor was…
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Aging
This is not about cancer as such, but I found this article about aging really interesting and entertaining: http://www.commentarymagazine.com/article/old-age-and-other-laughs/
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When to Remove Tumor/Mass?
This is going to sound like a strange question. I have been putting off going in for a follow up US on the complex mass on my right kidney. I postponed US because of the Holidays. Anyway, the complex mass was both solid and fluid. I don't know what that matters if any. Here are the questions: Under what circumstances…
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New here, seeking help
Hi, I am hoping I can get some advices from your guys regarding my kidney problem. I am a 30-year old female. ustrasound and CT were done two weeks ago and a 3 cm solid mass found on my right kidney upper pole. Radiologist thinks RCC is unusual of my age but he could not be sure what it is. Then my specialist referred me…
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Pain in my scar!
So it's been a long time since I've posted. For any who do not remember me, I had a 22 cm tumor on my Right Kidney. It's been almost a year since my surgery and for the past couple days, the top end of my scar (part that starts on my right Latissimus Dorsi) has been burning. Today, it freaking hurts bad...I can barely move…
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One Year Cancer Free
Got my CT Scan report on Thursday last week. I am officially one year cancer free. Thank you God!!
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Creatinine Levels
Okay... here is another question... When it comes to labwork, what should I watch for with the creatinine levels. I had blood work done in December and my creatinine level was 1.06. A few days ago I had more labwork done and the creatinine level was 1.11. The labwork inidicated that this was high, but I don't know if its…
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Where does it come from?
My husband's Dad died of colon cancer and two of his brothers have battled prostate cancer with one of them still doing so. Could his RCC come from them having cancer or could it come from years of working around asbestos in the 70's or could it be in the water? We live in a small town of about 2,500, so many people in the…
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bilateral RCC
My husband has been diagnosed with a 4 inch tumor on his left kidney and a 2 inch on the right. The surgeon is going to remove the left kidney and then try to remove the tumor and hopefully leave 2/3 of the right kidney. Has anyone out there had tumor on both kidneys. We would appreciate any info on this.
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Clinical Trials Selection for Adjuvant Therapy
Since my tumor was discovered I haven't seen a medical oncologist. I went straight to our university urology department and saw the surgeon and he advised a radical nephrectomy. From my reading, and talking to my uncle, who is a medical oncologist, although retired about 7 years, it looked clear that it had to come out. I…
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Glad I found this forum. Radical nephrectomy in 1 week - eek!
Wow, stumbled across this forum just in the nick of time. Was searching for other peoples experiences from radical laproscopic nephrectomies and found this site. Hooray! My RCC was found 12/7 and my surgery is 1/23. A little nervous right now. Anxiety goes back and forth between nervous about the pathology results and the…
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Update on John's (one putt) Nivolumab / Votrient Trial
John had his 36 week scan on Wednesday, January 16. Scan basically showed stability since last scan. But the report came with an initial gasp as his nurse noted what she considered good news: “John’s liver tumor had decreased in size.” That wasn’t particularly well received as John didn’t know he had a liver tumor. After…
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Serious injuries from the Da Vinci Surgical System(ROBOTIC)
Serious injuries from the Da Vinci Surgical System(ROBOTIC) Posted January 29, 2013 by Georjean Parrish -Mayo Arizona SEPTIC SHOCK SURVIVOR in Uncategorized. Leave a Comment | Edit Serious patient injuries follow the use of a robotic assistant, called the Da Vinci Surgical System, for hysterectomy and prostate removal.…
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Everolimus (afinitor) Adjuvant Therapy Trial
So I'm leaning towards doing this study. I've signed the paperwork and have appointments next week to do all the preliminary labs and another CT scan of my chest, abdomen and pelvis. They are also doing a bone scan because I have one spot on my right femur that they aren't sure what it is. I feel better after the most…
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"Votrient people"- How long will we take Votrient?
I guess Votrient is relatively new, but do we know these things yet?-- How long have you been taking Votrient? Have any of us achieved NED and stopped taking it? Is the intention to move us to NED? Is it supposed to make us stable and we can eventually stop? Is it just supposed to make us stable and we stay on it at a…
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Legal recourse
John, iceman, others of my legal brethren on your side of the Pond:- What recourse could there be in your jurisdiction against the kind of louse who has made almost 600 postings since arriving on CSN this morning for the first time under the moniker "shanghai" ? I've already flagged numerous of these posts, but obviously…
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Something I have been wondering...Why so many fictitious/anonymous names used?
This is something that has been very puzzeling to me. Most all discussion on Facebook groups and other sites people always use their real names. WHY does everyone in the CANCER SURVIVOR NETWORK USE fictitious/anonymous Names. I created my account with my real name and will stand behind anything I post, I am not ashamed for…
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Lung nodules found
Well, I hate to break the streak of NEDs we've been getting lately, but my CT scan from yesterday was not good. I have 2 nodules in my right lung. I had the scans yesterday but the computer system wasn't working properly and my doctor did not get the radiology reports. He did have the scans and thought they looked good…
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Something new
Okay so my mom started chemotherapy TORISEL* tuesday 1/15/13. She has to get infused every week. She started having nose bleeds. any advice?
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Are vitamin supplements beneficial
My husband is about to start Sutent -- would it be beneficial to be on vitamins or a supplement.
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Newbie question
Hi, I just discovered this board and it seems like you have a supportive and knowlegable group here. A 2cm mass was discovered on my right kidney incidentally during a CT of my abdomen for appendicitis in December of 2012. I had another ct with and without contrast in January to get a better idea of what this mass was. The…
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New Member - 7 weeks Post Radical Nephrectomy
7 weeks Post Radical Nephrectomy. Trifecta mets. Moving through the process. WOW. Glad to find this forum. Radiation and IL-2 ahead.
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Inlyta Information
Okay so after being back at the doctor this week my husband is now going to try Inlyta. He isn't to happy about it and said if the side effects were like Afinitor he wouldn't stay on it. His latest scan showed his cancer that had spread to his lungs has grown quite a bit since October. Everyone please keep him in your…
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Bacon Cures Cancer
My Mantra. Today is my last day at work (and only day this week). I am getting ready for round II surgery for a possible/probable solitarty lung met. The biopsy on the met (spherical, 1.5 cm) is somewhat inconclusive: it may be a primary lung cancer, but my money is on a met. It is cancerous. It feels wierd to be rooting…
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Afinitor as Second Line Drug - Why is that?
Can anyone explain to me why afinitor is used only after the VEGF drugs have failed? I understand the FDA has approved it only this way, but why? Is it just a newer drug that came late to the party? I've seen charts showing it less effective, but I think those charts were all in a setting of being the second thing tried.…
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10 weeks out of RCC and a radical
So they found it incidentally, had the operation October 23rd in Col. Pres in NYC. I have pain in the lower abdomen feels like my back not sure if its a sympathy pain on the left and the right one working harder. Major surgery is no fun and you're never the same. Started excercising on the tread, bike some light wieghts.…
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This site's technology is really bad...
Sorry about the complaint. I've lived with this site's very poor technology for well over 6 months with the hopes it would get better. The speed, crashes, etc are terrible. I'm very apprecitive for the people and the site for being here to support me and all of us, it's a great community of people helping and caring for…
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Memorial Sloan-Kettering Cancer Center Nomogram - Calculating Recurrence Probabilities
At my my most recent visit to the oncologist, he used a prediction tool on Sloan-Kettering's website called a Renal Cell Carcinoma Nomogram. You enter your histology, symptoms, pathology and tumor size (this is for post-surgical, single tumor calculating recurrence probabilities) and it outputs a number. There are links on…
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New here
Hi everyone, I, like many others, have also looked at these discussion boards before finally becoming a part of this exclusive club as some of you say.. lol. My dad is having a laparoscopic radical nephrectomy. They diagnosed him in September 2011, with RCC Stage 4 with nodules/mets? to his lungs. He started on Votrient…