-
New Here
Hi. I introduced myself in a reply to another post last week. I decided to post again here at the top. I'm 51 years old. A week before Thanksgiving I was on a business trip and started having blood in my urine and pain in my side. I thought I was having a kidney stone, which I've had before. However, the pain started…
-
Pathology Report - Lymph Node Involvement
The doctor called with my path report today. I guess my doctor had tried to call a few days back and my voice mail was full. I did notice that, come to think of it. I'm a T3A N0 M0 and my grade was 3. They were calling me a T1 going into the surgery, so I'm a little shocked. Not very good news, and not what I had hoped…
-
The first year of my new life begins.
As I sit here enjoying my family today, I think forward a bit to my new life and what it will bring. Was dx'ed with Clear Cell Renal Cell Carcinoma on 11-27-12, surgery 12-4-12 to remove the betrayed organ...it seems like it was yesterday I was sitting in the ER thinking I had kidney stones before the bad news was told to…
-
50/50
My wife choose this movie rental for Christmas Night. In a nutshell it is about Cancer and true friendships. As a survivor I am sure I appreciated it more. Icemantoo
-
Something I wrote on my caring bridge journal. It seemed worth reposting here. Merry christmas
[RANT] Based on reading research papers on the internet, the mass on my lung is likely a metatseses of my Kidney tumor. If that is the case, then my cancer is stage IV, not stage I. The 5 year survival rate is pretty low....I can find numbers of 8%...or I can find numbers (for single lung mass) of 60%). Then there is the…
-
Merry Christmas
Merry Christmas to all my friends on this CSN! And to those who do not celebrate Christmas, I hope this end of the year and next year are our most promising. FLY, Fox loves you!
-
18 month CT and not feeling lucky...
It has been just less than a year since I have posted last. At that time I met NED for my 6 month scan and felt great. In the last few months, I'm starting to feel like I did when I went to the ER over a year and a half ago for nearly the same symptoms. Today is my 40th Birthday and it is 1AM and I'm sitting here wide…
-
CSN forum updates
What am I missing? Emails are lost, friend listing is gone, posts aren't in order. And it is as s l o w as ever. Or is it just me?
-
I'm dreaming of a healthy xmas
I'm dreaming of a NED christmas, lust like the ones from before, ...(still working on these words). and may all our masses be benign.
-
RCC return after 5+ years
My husband had his kidney removed 15 years ago. Than this August was diagnosed with Stage IV in bone and lung. Has anyone experienced the reoccurance of RCC?
-
Help for treatment at distant locations
I've been struck by how little what's on offer here seems to be known to members. The ACS does all sorts of things for you folks (Americans) in particular. From the blue side-bar at left, the 2 items "Lodging" and "Rides to Treatment" are worth looking at, particularly if you don't know about the ACS Hope Lodges. I'm just…
-
Funnies for Christmas
I thought there might be one or two qualifiers here, as recipients of this message, lately received from a golfing pal:- "Do you know what would have happened if it had been 3 wise women instead of 3 wise men? They would have asked directions.....arrived on time....helped deliver the baby.....cleaned the stable......made a…
-
New version of CSN
Well, alas, it looks as though the re-vamp is an unqualified disaster. It seems as though someone doesn't know what he's doing. I just pray that it's still possible to re-instate the previous version!!!!!
-
Familial Kidney Cancer
I learned a lot this week, and though I would share it. For me, kidney cancer is a family affair: My grandpa died of it at 82. My dad at a partial nepherectomy 9 years ago (63) for a 2.4 cm tumor, and now he has nine new nodules. I had a 5.5-6.0 cm tumor removed six months ago at the age of 48. What I learned is that 4-5 %…
-
i am new to this site and not sure how to post
Found out tumor is larger then original told and report has other stuff in it i want it investigate after the go to bed. I want to wait till after Christmas and my daughters birthday. I want to have all the information first do i can answer their questions. And i just don't know how to throw one more thing at them. My ex…
-
Can't Reply
I'm not able to reply to any posts. Anybody else having issues? Type my reply, and press submit, and it takes me back to the preview box with the info I typed and my reply never shows up. Todd
-
THE MAYAN CALENDER STRIKES CSN
Well i hope they did not pay the person who did this mess,oh well maybe if thay tweak it it might work if not hit the restore button please
-
reply to todd
Same problem here. Like tex said.... Unqualified disaster :(
-
When is it stubborness? and when is it stupidity?
It's been 7 months since 10X6 stage 2 grade 4 rcc was removed from left kidney. First scans in June were clean so i was shifted to 6 month scans at MD Anderson for balance of 5 years. Initial recovery was fine and after a month or so i was back at the office. Over time (june, july, August) i built up my endurance, gained…
-
A double crappy day
I went in to participate (with my father) in a familial renal cell carcinoma study. My Dad had a partial nephrectomy 9 years ago, and I was six months ago. This was my first post surgical scan, and there is a 2 cm mass on my left lung. Crap. Now, the double crap is my dad has 9 new modules across his two kidneys. They are…
-
Friends
Hello all, My prognosis is very good, and I'm 4 weeks out from surgery today. I'm on the mend. I'm feeling good this week but last week I had some emotional upsets and some depression. My best friend and I clashed earlier this week and are not speaking to one another now, which is very upsetting. I wonder if this is…
-
planned CSN outage tomorrow night
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
-
Mom has RCC 4
My Mother was diagnosed with RCC stage 4 on 12/23/11. She had her left kidney removed 4/2012. Her recovery was fast she was very positive and strong. Had some pain but was given medication to help her. She started sutent end of May, did 2 rounds but it didnot help her at all. She did have side effects like mouth, hand and…
-
Funny bonz...
As I was lying in bed pondering the problems of the world, I rapidly realized that I don't really give a rat's hiney. It's the tortoise life for me! 1.. If walking is good for your health, the postman would be immortal. 2.. A whale swims all day, only eats fish, drinks water, and is fat. 3.. A rabbit runs and hops and only…
-
Musings from my little corner of life
Being fairly new to this club, I am finding a part of myself re-awakening with all of my new emotions and experiences. I feel the need to put some things into words. I was originally a journalism major but never finished, instead falling into the world of mechanics and parts, ended up being a dealership parts…
-
Early Christmas Here Too
I don't want to brag, because I know that others have a much harder road ahead than me. But I did get good news at my first 6 month CT this week. Doctor says he thinks I am cured after a partial nephrectomy in May 2012. I only mention it because I know I felt better when reading the good news of others. Some of those old…
-
The current treatment options, from diagnosis onwards
The article below contains nothing revelatory to anyone who already knows a bit about this area but it is a very good conspectus of the current state of play. It's potentially valuable for those just diagnosed and a useful re-cap for the rest of us.…
-
Christmas come early
Hello and Merry Christmas to everyone. My Christmas gift for this year has arrived already. It was a big NED on December the 6th. After a removal of left kidney in 2011 and two Cryoablation treatments on three small masses in my right kidney this year,after a complete CT scan, Dr Henry Krebs at St. Josephs in Atlanta told…
-
New to site - Questions re high dose steroids
Hi all After 2 1/2 years navigating the turbulent waters of mRCC I found my way to CSN. I hear you all are a great group and might be able to offer some suggestions for me. Hubby is currently on BMS936558 + Votriet trial. Responding well to the meds but hit a snag in Oct when he developed pnuemonitis. Took a while, and…
-
Kidney Cancer Association Patient and Survivor Conference
I got this email from the Kidney Cancer Association today. If any of you are in the North Carolina area and are interested here's the info. I pasted in the url for the PDF of the agenda. It looks interesting. --David ========================================== SAVE THE DATE Kidney Cancer Association Patient and Survivor…