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Rest is not Best: Cancer survival through Active Living
was the title of an hour's lecture given by Dr. Anna Campbell in Dundee, Scotland in January. She's the leading expert (certainly in the UK, at least) on the important role of exercise in the lives of cancer patients, having spent about the last twelve years teaching and researching on that subject. She has a Master's…
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Question about blood pressure
Happy New Year to all! I have a question about high blood pressure. I was a little hesitant to post my question, because it seems trivial when placed along side some of the struggles I read about on this site. But this site has been so helpful to me and I was hoping to ease my concerns. My radical nephrectomy was done in…
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Evero;imus clinical trial
Hi Everyone. I had my left kidney removed. I was told it was RCC clear stage 2 grade 1. I am a month out of surgery and finally feeling like maybe I may beat this awful disease. THEN I had my first visit with my oncologist and I am back to doing nothing but worry.. Not so much for the cancer that I am assuming I will beat…
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Adjusting
I told my oldest son the results of my pathology report last night (Stage 3 Grade 3 N0 M0). Not something I wanted to do, but it had to be done. I've been considering why I didn't want to share it with him. Being a source of sadness to my children is one of the most difficult things for me to do. Also, I realize I have…
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Testosterone Levels
My urologist recently diagnosed me with 'Low T' and is suggesting I take Testosterone supplements. Does anyone have any experience or information on the pros and cons of this, and specifically, from the perspective of having cancer and kidney cancer. Risks? etc? Thanks. M
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Back after surgery...
All, Happy new year to all. I finally had a simple radical nephrectomy procedure on my right kidney on Dec 6. Three weeks later, I am generally feeling good except for a sore feeling in the upper right thigh joint area. This soreness is somewhat bothersome since I did not have the pain before surgery, but I want to give it…
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Pathology Report - Lymph Node Involvement
The doctor called with my path report today. I guess my doctor had tried to call a few days back and my voice mail was full. I did notice that, come to think of it. I'm a T3A N0 M0 and my grade was 3. They were calling me a T1 going into the surgery, so I'm a little shocked. Not very good news, and not what I had hoped…
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MDX-1106, part three
OK. Here we go. First of all, excuse me as I am getting a bit emotional. I do know that I am going to cry tonite. Second of all, if I begin to slur my words it's because some one told me to have a couple beers to celebrate. So, I took my own advice! Went for 7th infusion today of 10 mg/per kilogram of body weight of…
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Nivolumab ( new official generic name for BMS936558 - MDX-1106 )
Just was told by John's Research Nurse that that BMS936558 or MDX-1106 finally has a name Nivolumab (generic). News on investment prospects: Bristol-Myers Squibb/Ono Pharmaceuticals’ Novel Immunotherapy Nivolumab Will Earn Sales of Nearly $400 Million in 2021, According to Findings from Decision Resources…
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Happy New Year
Wishing all my CSN friends a Happy New Year. May you live each day like it is your last and plan your life as if you will live forever. Live well, Laugh often and Love always. Bring on 2013.
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19th infusion
No, not my 19th nervous breakdown. That's for rookies. Although I am beginning to think that my tenure in the MDX-1106 study is waning. I think it is safe to say that essentially ALL soft tissue mets are GONE! And there was a **** load of them. Maybe 1 or 2 small hyperdensities which could be anything or nothing. ( I…
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simple nephrectomy not so simple
You may remeber me from posts over the year over my problems after surgery; maybe not, but the update on me is that my problems are most likely due to the metal left inside me during surgery. My advice: if you think something is wrong do not stop until someone finds it. I have been in a special kind of hell for a year and…
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Scan reports 18 months
I feel so very blessed. I got the results of my scans that were done this month and here continues to be no evidence if disease. This is the 3rd set of scans that have been negative. I will continue with the 400mg of votrient. I am still very lucky to have manageable side effects and will see the oncologist next month.
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Am I paranoid
Let me preface with some basic information. I am 52 years old, male, former long time smoker. I have in the past year been placed under initial treatement for tachycardia (unknown origin), mild HBP and have experienced two instances of TIA (mini strokes). While hospitalized in April a small renal mass was discovered by CT…
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nephrectomy & recurrence
Last week (March 21st) I was admitted to the hospital for what my primary physician thought was appendicitis; testing showed I had a tumor in my kidney about the size of a grown man's fist. I had a nephrectomy -- my right kidney was removed, along with, presumably, all of the tumor. My urologist who performed the surgery…
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Hello I am a new member
I just had robotic surgery for a T1A N0M0 clear cell last week and they tell me I'm cured. I just can't seem to wrap my head around that all my life I cancer was the one thing I feared most. Now I have it. Well my surgeon says I had it but no more. I am 65 years old and would like to think I could get another 10 or 15…
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Is the Cure for Cancer Inside You?
http://www.nytimes.com/2012/12/23/magazine/is-the-cure-for-cancer-inside-you.html?ref=health
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New Here
Hi. I introduced myself in a reply to another post last week. I decided to post again here at the top. I'm 51 years old. A week before Thanksgiving I was on a business trip and started having blood in my urine and pain in my side. I thought I was having a kidney stone, which I've had before. However, the pain started…
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Pathology Report - Lymph Node Involvement
The doctor called with my path report today. I guess my doctor had tried to call a few days back and my voice mail was full. I did notice that, come to think of it. I'm a T3A N0 M0 and my grade was 3. They were calling me a T1 going into the surgery, so I'm a little shocked. Not very good news, and not what I had hoped…
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The first year of my new life begins.
As I sit here enjoying my family today, I think forward a bit to my new life and what it will bring. Was dx'ed with Clear Cell Renal Cell Carcinoma on 11-27-12, surgery 12-4-12 to remove the betrayed organ...it seems like it was yesterday I was sitting in the ER thinking I had kidney stones before the bad news was told to…
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50/50
My wife choose this movie rental for Christmas Night. In a nutshell it is about Cancer and true friendships. As a survivor I am sure I appreciated it more. Icemantoo
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Something I wrote on my caring bridge journal. It seemed worth reposting here. Merry christmas
[RANT] Based on reading research papers on the internet, the mass on my lung is likely a metatseses of my Kidney tumor. If that is the case, then my cancer is stage IV, not stage I. The 5 year survival rate is pretty low....I can find numbers of 8%...or I can find numbers (for single lung mass) of 60%). Then there is the…
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Merry Christmas
Merry Christmas to all my friends on this CSN! And to those who do not celebrate Christmas, I hope this end of the year and next year are our most promising. FLY, Fox loves you!
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18 month CT and not feeling lucky...
It has been just less than a year since I have posted last. At that time I met NED for my 6 month scan and felt great. In the last few months, I'm starting to feel like I did when I went to the ER over a year and a half ago for nearly the same symptoms. Today is my 40th Birthday and it is 1AM and I'm sitting here wide…
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CSN forum updates
What am I missing? Emails are lost, friend listing is gone, posts aren't in order. And it is as s l o w as ever. Or is it just me?
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I'm dreaming of a healthy xmas
I'm dreaming of a NED christmas, lust like the ones from before, ...(still working on these words). and may all our masses be benign.
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RCC return after 5+ years
My husband had his kidney removed 15 years ago. Than this August was diagnosed with Stage IV in bone and lung. Has anyone experienced the reoccurance of RCC?
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Help for treatment at distant locations
I've been struck by how little what's on offer here seems to be known to members. The ACS does all sorts of things for you folks (Americans) in particular. From the blue side-bar at left, the 2 items "Lodging" and "Rides to Treatment" are worth looking at, particularly if you don't know about the ACS Hope Lodges. I'm just…
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Funnies for Christmas
I thought there might be one or two qualifiers here, as recipients of this message, lately received from a golfing pal:- "Do you know what would have happened if it had been 3 wise women instead of 3 wise men? They would have asked directions.....arrived on time....helped deliver the baby.....cleaned the stable......made a…
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New version of CSN
Well, alas, it looks as though the re-vamp is an unqualified disaster. It seems as though someone doesn't know what he's doing. I just pray that it's still possible to re-instate the previous version!!!!!