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Kidney Cancer

Anyone tried inhaled IL-2
Have anyone tried/heard of inhaled IL-2? It is much better tolerated and I read two articals as below. Has anyone's oncologist recommended this treatment? I think it seems better for elder people who cannot tolerate systemic IL-2.. http://www.medscape.com/viewarticle/505610…
Disagreement with Dr over staging
When I had my tumor out, the Path report said T1b, grade four (Sarcomitoid). I saw the Dr westerday for followup. He Still refers to is as stage 1, even tough there was a distant metastisis (to the lung). This does not need right to me. I asked, and he said, that even though the met may have been present at the surgery,…
Update after Chucks 4 week scans(HD IL2 treatment)
Recap... Chuck has Stage 4 Renal Cell Carcinoma with Rhabdoid features(They removed his right Kidney in July).. that matastisized to his Liver and Lungs.. the lungs were just assumed to be cancer no Biopsy was done on them...In November they scanned him and found the Liver Tumor and did a biopsy... In Jan he started HD IL2…
CT vs MRI
I'm a little concerned about the radiation dosage of frequent CT scans. Does anyone use MRI instead of CT scans for followup? Why would a CT scan be preferred? Is it better at seeing mets?
RCC STAGE 4 UPDATE
RCC STAGE 4, Sorry I have not posted for awhile, I and my wife have been enjoying every day together,I just finished my second round of sutant and pet scan showed hot spots on my #2 rib and my two spots in my rt upper loab of my lung have grown 3.5more mm's to 10 mm's each,it has also for some strange reason moved into the…
Radical nephrectomy
Hello, everyone. This is my first post here. I am from the UK. I had a radical right nephrectomy over a week ago to remove a Kidney carcinoma. It was a large tumour, but the surgeon got it all out laproscopically. Waiting for the histology results to know how malignant it was and what might happen next. Surgeon said there…
New to Forum
Hello, I am new to this forum. I am 71 years old and was just diagnosed with cancer on both kidneys and on my pancreas. I had my dye scan on 1/31/13 and that confirmed the areas that are affected with cancer. On 2/7/13 I had a biopsy to confirm the type of cancer that I had. After seeing a urologist on 2/20/13 he referred…
OK, this is why we do this.
This post is primarily for newer members and lurkers. Those in despair and scared to death. Desparate for hope. I'll humor veteran members and will even use "L,s". I had been running, weight training, golfing and motorcycle riding for years. My joke was that I was going to be in the best shape of my life when I died. I was…
New member -1 year scan approaches
This is my first posting on any message board for RCC. I've read discussions on this board off and on since my radical nephrectomy last Feb. but finally just got the courage to signup and join in the discussion. My tumor (5.5 cm, clear cell, grade2) was also found incidentally during an ultrasound ordered by my doc after a…
Hurry up and wait
I know that RCC is supposed to be slow growing and that the one that I have is very small at 1.2cm. Still, the doctor is considering the biopsy as nondiagnostic since it came back as normal kidney cells and the biopsy team was having such a hard time getting to it. So, now I get to wait another 2.5 weeks before I can get…
Shaving My Head Today for St. Baldricks
Hello, friends. After a lot of thought and flip flopping, I've decided to shave my head in support of the St. Baldrick's Foundation, a charity dedicated to funding childhood cancer research. I'll be geting shaved tonight! This was a difficult decision. As many of you know, I was diagnosed in April 2012 with S4/G4 mRCC. I…
Pathology report
Final pathologic report says clear cell RCC, TNM Stage pT2a, Nx Mx, Furman Grade 3, surgical margins negative, sarcomatoid features absent, no lymphovascular invasion and no renal capsular invasion. Size: 7.6 x 6.8 x 4.9 cm, weight: 196 grams. They did not remove any lymph nodes for study in pathology - I guess because it…
All clear?
New to kidney cancer, 3 months ago had surgery and at follow up appointment given the all clear. My family doctor was updating my records and sent me all the info from my surgery. The pathology report was one of them. In it I found that Tumor extention into pelvicaliceal system was suspected and lymphovasular invasion was…
Robotic partial nephrectomy, I'm new
Hi everyone, I am 50 and I was just diagnosed Friday and told I have a 1.8cm mass on the lower pole of my left kidney. They are scheduling me for a partial nephrectomy by the robotic procedure. I have all kinds of emotions happening right now, I do feel lucky they found it early from a CT scan I had for another reason. Has…
First Urologist Visit
Okay, thanks to all of you here, I was prepared for the news. I have my surgery on May 14. The mass is very irregular and, according to my urologist caused kidney function to cease in that kidney a long time ago. Her opinion, at this point of course, is the surgery is likely the only treatment I'll need, with of course the…
Why is this site so slow?
Has anybody ever explained why this website is consistently so slow at loading pages? It's among the worst sites I have ever visited. I just don't believe that it's "poor code", as has been mentioned at other times when we've discussed it. The reason I don't think it is, is because the problem comes and goes. If it was…
Kidney removed after motorcycle accident
Greetings everyone, I need advice. Long story short. I have always been an active guy. Military, Spec Ops, Martial Arts, Weight Lifter. I'm a Defense Contractor in Hawaii. I had a motorcycle accident in Jan. I stood up, moved my bike out of the road then the pain hit and I laid in the road and woke up in hospital 3 days…
How to honor kidney cancer awareness month in March
I was pondering positive ways to recognize the upcoming awareness month and pulled out on old tablet to jot down some ideas. In that tablet I came across a page I had used 10 years ago when my husband was diagnosed with diffuse, systemic Scleroderma (a rare and often deadly auto-immune disease.) Then, too, I was struggling…
Bilateral Kidney Cancer
I'm hoping somone has information or insight to post nephrectomy pain. My dad had surgery Nov. 26 They removed spleen and tumor in superior vena cava, so it was a pretty big surgery 6 hours. He is still complaining of pain along incision line like a tight feeling that is driving him crazy. Does anyone know how long until…
Possible kidney cancer?
Hello, I'm looking for possible explanations and personal anecdotes since I'm freaking out My mom is 62 years old and on 2/20/13 she told me to take her to the doctor since she had visible blood in the urine for the third day in a row. For a few months she had lower back problems but the doctors ruled it as a simple sprain…
Starting Radiation tomorrow
History first, diagnosed whit RCC 21/24/12, Surgery to remove left kidney 1/10/13. Pathology 2 masses found, 1st 9x7.8x7.5cm and 1.3x1.3x1.0cm the second mass was in the fatty tissue under the kidney. The large mas shows focal sarcomatoid features, less than 1% of the mass. The smaller mass shows no sarcmatoid features.…
Informtion on kidney cancer spreading to the skin??
Well my hubs had an appointment at Duke yesterday. First he had an x-ray to see how the fluid looks with his malignant pleural effusion, well there was fluid still there so they could not take the pleurax out. He was so hoping they would take it out since he had no drainage for a week but that was a no go. He was very…
Scans and treatments
Hi All..! Me again... OK, I know we are not doctors, we are just the pin cushions... right... So, already I see a lot of different methods out there.. and I wonder why..?? This is basically for those of us with late stage RCC... Follow ups.. I WAS getting 90 day follow ups - which included CT Scan, MRI, and blood work.…
Follow Up Tomorrow!!
Hi all, I had a radical nephrectomy 6 weeks ago now and tomorrow is my follow up appointment. I know I need to know the staging of the tumor but I suppose I'm just a little frightened about what May hear. Initially they were only going to do a partial but the roots were longer than they thought so they took the whole…
New with RCC.
Hi all, I am new here as the post says. I am a 41 year old married male in otherwise decent health. Found the tumor (1.2 cm) due to a kidney stone. The stone was taken out on the 12th and a biopsy for confirmation was done on the 19th. I guess I got lucky that I had a kidney stone and found it so early. My doctor said that…
Bi-lateral kidney cancer
May 2, 2012 to be exact.... I was diagnosed with bi-lateral kidney cancer. It is very uncommon first because of my age(42 on August 23)and then both kidney's to have it. On June 4 I under went a partial nephrectomy on my right kidney, removing one tumor with two forms of cancer - the larger type called Papillary Type 2 and…
Adjuvant therapy or not?
When is it generally recommended to do an adjuvant therapy? I'm trying to prepare myself for my doctor leaving it up to me. If he recommends I do it, then I will, but I'm not sure what I should do if he says it's up to me. I'm still waiting for my biopsy results to come back, but from what I know: 8cm, clean removal from…
R.I.P Debi Austin
To one of the braveist cancer survivors who had the courage to stand in front of a camera even with her disfigurement and speak out about the dangers of smoking,you are a true heroe.
Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
My first post
I'm somewhat new here joined in December but this is my first post. My husband had a partial neph February 6, 2013 his tumor was at stage 1 size was 3.3. The mass was located on the upper part of his right kidney on the outer layer. They had to go behind his liver to remove it. My question is should we be worried because…

Kidney Cancer

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