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New clear cell with Ulcerative colitis
Hello I am new to this web site and was hoping that someone could help me out. I am a stage 4 grade 3 clear cell cancer patient that has had a radical right nephrectomy and adrenalectomy. Also 1 of 2 lymph nodes was positive. My question is if there is anyone else out there with kidney cancer as well as ulcerative colitis?…
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Wensday I hope to find out about my lung mass.
I am posting here, because you all will understand. On Dec 19, six months out of surgery to remove a 5.5-6 cm clear cell (Stage 1b, grade 4 from 15% sarcomoid features), I had my first followup scan. The scan was a full torso scan, including the lungs. I expected NED, instead, I have mass was found on the upper left lung (…
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Cyst or Cancer
Dad dying of Stage IV Renal Cancer. During MY vist to ER today for Kidney Stone they told me a cyst I had 5 years earlier doubled in size from 0.6 cm to 1.3 cm. Not sure if this is a simple cyst or the complex type the report did not say. Anyone else see this before?
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Husband Diagnosed with Kidney Cancer, Stage 4
Hello everyone. I've been a lurker on your discussions for the past couple of weeks and was a little intimidated to submit as everyone here seems very knowledgeable about options, tests, labs, etc. and I'm pretty much clueless. But I do believe sharing information and getting it out there is part of the key to some day…
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IMA901/Sunitinib vaccine trial update
I haven't posted in a while and it's time to share how things are going for my husband. He entered the IMA901/Sunitinib vaccine trial in October - sadly got in the control group and didn't receive the vaccine. He's been only on Sutent for the last 4 months. After the first CT - 3 months after starting Sutent the results…
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Is there a reward for pain?
My mom has been in alot of pain due to a tumor on her spine. She received 5 treatments of radiation. She is in more pain now then before. She haS been on morphine liquit (7.5 ml) and morphine pill (45 mg) for 4 weeks. Yesterday, we had a follow up with Oncologist we explained that the morphine is not helping the pain.…
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MPDL 3280A - Back from Nashville #4
I hope it's okay I started a new thread. The old one was two pages long and quite honestly, I didn't know where to reply..the top or the bottom! Anyway, a short update (that's good!) Everything if fine. My RBC needs some tweaking...9.5, might need some more blood out there in the future. My weight is a bit of a problem.…
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spreading fast
RCC STAGE 4 I am back, i took some time away from this forum, since I posted last I had the lower loab of my rt lung removed with a 10mm nod-still have a 4mm one in the upper loab,after 4wks of sutant, I went for scan and it grew to 6.5mm and also a new 6.5mm has appeared in the rt upper loab,onc says we are going to do…
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malignant plural effusion
My husband was admitted to Duke Thursday am for shortness kfbreath they said he has a malignant plural effusiin in the right lung and put a pleurx in for drsinage at home. has anyone else had that and if so can you share anything with me about it? He is stage 4 RCC that has spread to his lungs. Thanks for any advice and if…
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ACOR - how to join lists, such as KIDNEY-ONC, RARE CANCERS, CHROMOPHOBE-RCC, CANCER-DEPRESSION, C
1) FIND YOUR LIST: If you know the name of the mailing list you want to join, go to its webpage: listserv.acor.org/archives/LISTNAME.html FOR EXAMPLE -- listserv.acor.org/archives/kidney-onc.html When you get to the archives page, click the box on the right that says "Subscribe / Unsub / Options." (If you are unsure of the…
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Nephrologist Yes or No?
Hi Everyone, I am sure there is a ton of info on this topic on the site but since it is extremely slow loading, I will ask. Should I see a nephrologist? My remaining kidney is functioning fine, just think maybe establishing myself with a nephrologist might be a good idea. Thoughts? Thanks and God Bless, Wayne
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Low Hemoglobin
My husband is 10 months out from surgery and the highest hemoglobin level he has had since that time was last May when it was 13.4. Slowly it has dropped and in December it was 10.4. His doctor told him that if it got in the 9 range and he had symptoms like last year then they would transfuse. Well the last week he has…
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Round 1 - First Oncologist
I had my first post-op with the surgeon today. I think he's a great surgeon, but he makes me nervous. He just seems so anxious to get out of the room he's practically shaking. I suppose he's like one of those high strung race horses...sorry. That's a bit off subject. However, I always end up asking half of my questions…
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Rest is not Best: Cancer survival through Active Living
was the title of an hour's lecture given by Dr. Anna Campbell in Dundee, Scotland in January. She's the leading expert (certainly in the UK, at least) on the important role of exercise in the lives of cancer patients, having spent about the last twelve years teaching and researching on that subject. She has a Master's…
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Question about blood pressure
Happy New Year to all! I have a question about high blood pressure. I was a little hesitant to post my question, because it seems trivial when placed along side some of the struggles I read about on this site. But this site has been so helpful to me and I was hoping to ease my concerns. My radical nephrectomy was done in…
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Evero;imus clinical trial
Hi Everyone. I had my left kidney removed. I was told it was RCC clear stage 2 grade 1. I am a month out of surgery and finally feeling like maybe I may beat this awful disease. THEN I had my first visit with my oncologist and I am back to doing nothing but worry.. Not so much for the cancer that I am assuming I will beat…
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Adjusting
I told my oldest son the results of my pathology report last night (Stage 3 Grade 3 N0 M0). Not something I wanted to do, but it had to be done. I've been considering why I didn't want to share it with him. Being a source of sadness to my children is one of the most difficult things for me to do. Also, I realize I have…
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Testosterone Levels
My urologist recently diagnosed me with 'Low T' and is suggesting I take Testosterone supplements. Does anyone have any experience or information on the pros and cons of this, and specifically, from the perspective of having cancer and kidney cancer. Risks? etc? Thanks. M
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Back after surgery...
All, Happy new year to all. I finally had a simple radical nephrectomy procedure on my right kidney on Dec 6. Three weeks later, I am generally feeling good except for a sore feeling in the upper right thigh joint area. This soreness is somewhat bothersome since I did not have the pain before surgery, but I want to give it…
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Pathology Report - Lymph Node Involvement
The doctor called with my path report today. I guess my doctor had tried to call a few days back and my voice mail was full. I did notice that, come to think of it. I'm a T3A N0 M0 and my grade was 3. They were calling me a T1 going into the surgery, so I'm a little shocked. Not very good news, and not what I had hoped…
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MDX-1106, part three
OK. Here we go. First of all, excuse me as I am getting a bit emotional. I do know that I am going to cry tonite. Second of all, if I begin to slur my words it's because some one told me to have a couple beers to celebrate. So, I took my own advice! Went for 7th infusion today of 10 mg/per kilogram of body weight of…
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Nivolumab ( new official generic name for BMS936558 - MDX-1106 )
Just was told by John's Research Nurse that that BMS936558 or MDX-1106 finally has a name Nivolumab (generic). News on investment prospects: Bristol-Myers Squibb/Ono Pharmaceuticals’ Novel Immunotherapy Nivolumab Will Earn Sales of Nearly $400 Million in 2021, According to Findings from Decision Resources…
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Happy New Year
Wishing all my CSN friends a Happy New Year. May you live each day like it is your last and plan your life as if you will live forever. Live well, Laugh often and Love always. Bring on 2013.
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19th infusion
No, not my 19th nervous breakdown. That's for rookies. Although I am beginning to think that my tenure in the MDX-1106 study is waning. I think it is safe to say that essentially ALL soft tissue mets are GONE! And there was a **** load of them. Maybe 1 or 2 small hyperdensities which could be anything or nothing. ( I…
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simple nephrectomy not so simple
You may remeber me from posts over the year over my problems after surgery; maybe not, but the update on me is that my problems are most likely due to the metal left inside me during surgery. My advice: if you think something is wrong do not stop until someone finds it. I have been in a special kind of hell for a year and…
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Scan reports 18 months
I feel so very blessed. I got the results of my scans that were done this month and here continues to be no evidence if disease. This is the 3rd set of scans that have been negative. I will continue with the 400mg of votrient. I am still very lucky to have manageable side effects and will see the oncologist next month.
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Am I paranoid
Let me preface with some basic information. I am 52 years old, male, former long time smoker. I have in the past year been placed under initial treatement for tachycardia (unknown origin), mild HBP and have experienced two instances of TIA (mini strokes). While hospitalized in April a small renal mass was discovered by CT…
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nephrectomy & recurrence
Last week (March 21st) I was admitted to the hospital for what my primary physician thought was appendicitis; testing showed I had a tumor in my kidney about the size of a grown man's fist. I had a nephrectomy -- my right kidney was removed, along with, presumably, all of the tumor. My urologist who performed the surgery…
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Hello I am a new member
I just had robotic surgery for a T1A N0M0 clear cell last week and they tell me I'm cured. I just can't seem to wrap my head around that all my life I cancer was the one thing I feared most. Now I have it. Well my surgeon says I had it but no more. I am 65 years old and would like to think I could get another 10 or 15…
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Is the Cure for Cancer Inside You?
http://www.nytimes.com/2012/12/23/magazine/is-the-cure-for-cancer-inside-you.html?ref=health