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6 weeks post op (open partial nephrectomy) and still not feeling normal!
I was told by my urologist that by the 6th week after surgery I should be feeling pretty close to normal. Well I'm 6 weeks, 2 days after surgery and the pain I feel at the kidney site is still quite uncomfortable!
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Guys please help, persistent constant pain after surgery 4 months
I hope someone here can advise me on next step to take as every doctor I have seen brushed me away. First I want to say my surgery was not for cancer but I had a ureteral blockage(narrowing) where it meets kidney, which was causing kidney to swell with urine and be painful. Before surgery my pain was on/off only after I…
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sad and depressed.
Today is five days since I had my seven holes in my abdomen , large lymph node and kidney taken out. They only gave me pain meds for two days, so I'm really feeling the pain now. Thought I was doing well,woke up feeling depressed and anxious this morning. Last night I woke up having a full blown anxiety attack I'm usually…
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Anxiety and Upcoming Scan
Two weeks from Wednesday I will have my 6 month chest/abdomen/pelvic CT and blood work. It's been 20 months since my nephrectomy. Was diagnosed as Stage 3 Grade 3. I entered into an adjuvant therapy trial for one year, which I completed in February. It was a 50/50 everolimus/placebo double-blind study. No treatement since…
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HD IL2 Treatmeant Question
Can anyone tell me if waiting two weeks between HD IL2 treatments will have any negative effects on the treatment outcome? Everything I have read seems to state waiting only one week between every 5 days of treatment. Thanks
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kidney nerve blocks
Has anybody had a kidney block for persistent kidney pain? I am considering some procedure which will eliminate constant kidney pain I am experiencing after surgery. i have heard renal denervation but I am not sure how practical these things are and risks. If anybody had these or any alternate treatment for pain please…
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National or International Kidney Cancer Charitable Organization?
Hi everyone, All these people doing the ALS ice bucket challengs got me thinking about maybe trying to help a medical research organization that I can actually relate to. I am already somewhat active in helping out the arts and a local humane society, but since I have recently been forced to care about kidney cancer, I…
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RPLND - Retropertineal Lymph Node Dissection Surgery
I have been advised by my Dr that I need an RPLND and suggesting to have this within a month, by the end of July. I have not received the exact date, but advised within one month. I am having this done at UNC Lineberger Cancer Institute and my Dr advises he does approximately 30 of these a year and he will be utilizing…
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Unexpected Just found out is RCC
On June 24, 2014 I went to ER to be treated for vertigo, naucea and headache. Just that. After a; negative result head scan, they did an abdominal scan... later, another with contrast.... they found a mass in my left kidney and a cyst on my right... I was admitted for more tests and labs for 5 days... They want to remove…
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Happy Sunday
How is everyone doing today?
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Article from NCI on chromophobe RCC:
It would seem this is very positive progress into understanding chromophobe RCC. http://www.cancer.gov/newscenter/newsfromnci/2014/TCGAkidneyChromophobe?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+ncinewsreleases+(NCI+News+Releases)
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Chemo/radiation ?
I have a question? Do you know if you have kidney cancer and they remove all of or partial kidney and lymp nodes. is chemo /radiation involved? or is it they just remove them and call it a day?
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Renal Mass
I had my 2nd CT scan of my Kidney I have a 1 cm renal lesion with enhnancing walls and internal septations suspicious for neoplasm. i have prominent left Para-aortic lymph node. i also have a 3.5 cm simple cyst. I have an appointment follow up with my urologist. next tuesday. I am exstremely nervous. I dont know what to…
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Scans and visit to oncologist
my husband had his meeting with the oncologist; all scans "unchanged" and "unremarkable". as his onc put it "boring". Now, it will be 4-month follow-up and a bone density test has been scheduled to determine if he has osteoparosis or arthritis as the cause of degeneration. No signs of any progression and the oncologist is…
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Original CT scan shows mass, US shows mass, CT scan with and without contrast does not show mass...
I was taken to the ER with upper neck and arm pain. While in the ER, a CT scan was done on my abdomen to check my lungs and heart. The scan came back with a mass on my kidney. I've been diagnosed with a Bosniak II cyst and a simple cyst previously so my GP and I both assumed it was one of them that showed up again. Since…
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Upcoming surgery
I wanted to say that I have been reading the boards for a few weeks now in order to prepare me for my mothers surgery. Well the week is now upon me. I want to Thank everyone. Mom had been treated for NHL 4 years ago and the spot on her kidney had grown so here we go. She will be having an open partial, well if all goes…
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Surgery 8-25-14
I'm scheduled for surgery Monday to remove my left kidney. I have two lesions and one "mass" that us growing into the kidney tissue. I'm still shell shocked I suppose. Didn't know anything was wrong - was in ICU in February for ischemic cholitis. The CT scans on my bowels showed a "mass" on my kidney so they ordered an…
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Having beer or a drink now and then.
Hi Everyone: I am sure you all think I am crazy to even ask this question, but I did find on this forum that having a beer or drink does not hurt the one kidney as long as you still drink lots of water. Is this malarky?
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Fox...the Poster Child
When entering this website, Fox is in the banner line of photos. Congrats, fella. You deserve it for all the crud you've been thru. And if it was just a randon draw for good looking guys, you still fit the bill. I'm thinking I've reached the 8 years since first Dx, and 5 since last occurrence. Saw the PC today. Most…
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Scanxiety
my husband is having his 3 month scans tomorrow; full body bone and chest scan with and without contrast. The contrast part is conditioned on his creatinine level so I have been pushing the drinking water. Todd, I know you are scheduled for Wednesday and I am hoping that both of you will have clean scans and that by the…
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Whoa
Remember when I was all freaked out because I thought two months was to long to wait for surgery. I just looked at the calender and realized now it is only two weeks out. Haven't heard a peep out of the doctors office. They said the hospital would call to schedule pre-op I am waiting to hear from them.
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Renal cancer and osteoparosis
I have posted this to Smart Patients last week and my question may have gotten lost since no one responded. my husband was dx in July, 2013 with stage 4, clear cell carcinoma, grade 2. It is stage 4 because he had 2 spinal mets, one which was treated with laminectomy and the other with cyberknife. His last scans have been…
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New cancer classification system shows promise as life-saver
http://www.sfgate.com/health/article/New-cancer-classification-system-shows-promise-as-5675296.php
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Well...I'm back again.
Well, here I am again I haven't posted in over a year...I've done everything I could to push the anxiety out of my mind since my doctor gave me the "all clear" after my scan last July. The original mass was found in July of 2012 and was only 2.5 x 3-ish. The post surgical biopsy showed stage 1, grade 1 renal cell…
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Update of mom's surgery
The doctor said it was routine however she did not react well to the anesthesia, that was expected. She is 72 and had issues with it before. She had an open partial, today she had a slight fever with a flush face however her hands were ice. She has been taking the nausea medicine along with something for heartburn which…
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Pneumonitis/Afinitor
My last CT 2 weeks ago showed that it is probable that I have early pneumonitis which unfortunately is a side effect of Afinitor. Saw a respiratory specialist on Wednesday and have started a short course of prednisone. Naturally Afinitor has been stopped and not sure it is still on the table as it appears that I also have…
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Testical
Have any of the males had any issues with their testicals post right partial nephrectomy. My right testical is drooping much lower than normal. It is not sore anymore. But was for a period post surgery. I have trouble drawing it up like my left one now. My urologist seemed to dismiss this as nothing a week after my…
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Estimated GFR
I learned something new today. I went to get a consultation at a Nephrologist and I learned some interesting things that I thought I would pass on. I had some varying results in my blood creatine and GFR thorugh my Oncologist and my Urologist. They were using different labs and the results varied between 1.48 and 1.79 with…
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Question
I have been on 800 mg Votrient for the past 18 months and so far it’s working great. The only bothersome side effect is the diarrhea. I am taking Lomotil to help. And it has been working for the most part. I have noticed that when I eat beef the diarrhea is dramatically worse and more often. Chicken and pork I don’t have…