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update from all my tests
First time I have posted in awhile as I have been waiting and doing all my scans. On kidney they done Ultrasound only as I had already had abd ct 2 months earlier and everything looked ok. Had EGD scope of stomach and on biopsies came back on path report that there was cell changes from last year. Doc only said will have…
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google-developing-pill-detect-cancer
http://www.wired.com/2014/10/google-developing-pill-detect-cancer-diseases/
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Are metastasis and recurrence different?
I was diagnosed with RCC (T2B) with no metastasis and had a radical nephrectomy two months ago, now my questions are: 1) Is there a difference between metastasis and recurrence or are they the same? 2) With your own experience in my case (10 cm, confined to the kidney, cystic Eosinophilic rcc, grade II, no metastasis) how…
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CT Scan Results - What do you think?
I know every three months I bother you all with my scan results and what you think my doc will say. The reason is because you all have been right every time! I would like to know your opinion to see what I am up against. For the few remaining spots, everything was the same as last month - unchanged - no growth except in…
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Radical Nephrectomy October 2,2014
I had a radical nephrectomy on October 2, 2014. Now i know its only been a week, and yes ive asked my doctor these questions. But i would like to know from others who have actually experienced this. Is the swelling and pressure around incision normal and how long does it last? I do feel numbness as well. Just dont know…
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Weight loss and improved creatinine level
Up until recently, my husband's levels were 1.5 which was exacty what they were post neprectomy. Kept measuring that way. Today, after 30 pounds of weight loss (due to intense cardio and some moderate weight lifting, and eating appropriately) the decreased to 1.3. I'm not sure if the weight loss is related, but if you are…
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Any suggestions on how to drink more water when you are tired of it?
I am about 3 1/2 weeks post operative where I had my left kidney removed. Before I found out about my kidney cancer I drank ice tea and coke's. Now of course those are a huge no-no and I have been drinking water and juice. I am at a point where I really do not want water even though I know that is best. Any suggestions on…
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Recent CT scan shows 5.2 cm mass on right kidney
Hello everyone. I have an appointment with the Urologist next Tuesday to begin the work up process, diagnosis process on a 5.2 cm mass. Some background: Had a disc fusion about 5 weeks ago, recovered and went back to work part time. Boss was sick when I went back so when I developed body aches, chills, and a fever of 101…
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Bloating/gas pain 5 weeks post open nephrectomy
I was able to manage the constipation and had a good bowel movements the last 2 days.......but this morning after a good poop my stomach hurts similar to having a gas pain or being bloated.........Constipation and bloating are 2 different thing right? The problem is after this morning I couldn't drink or eat again anymore…
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CT Scan results
Hello all, I just want to report that I got an "all clear" result from my scan. Very happy news. The lesion on my liver was stable. I was stage 3 grade 2 when I had my 13 cm tumor removed via nephrectomy last December. The doctor said he wants to start monitoring me by ultrasound now. I argued a bit with him (I know that…
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It's Official
It was clear cell. Stage T1a. Furman grade 2. Margins are clear. I'm 2 weeks post a radical nephrectomy and feeling great. Back to work light duty on Monday. I'm one lucky gal. Scans in a year. One more post op appointment in 6 weeks. This whole thing has been crazy. Time to move forward.
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University of Michigan or west Michigan area
Does anyone see a RCC oncologist at University of Michigan or somewhere in west Michigan? Thanks Cindy
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CT results now what?
I have been a snowbird for the last 3 years and found out I had cancer while in Florida. I had a partial robotic nephrectomy in March while still in Florida. We aren't going to Florida this winter so I had my 6 month scan done here in Michigan and got the written results today. The results show 6 less then 5mm nonspecific…
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Sutent to Afinitor?
diagnosed with stage 4 RCC. Started with sutent and after 2 rounds ct was done and kidney tumor stayed the same and mets in t11 and t12 remained the same but tumor in t4 grew slightly. Doc now starting afinitor? Any thoughts???
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Trial Update
Well had my 12 week scan and got bad news. New site is present which puts me out of the trial. It is a node in the chest and is about 2 cm in size. The other 2 nodes that had shrunk have grown back to their original size. The thyroid is still smaller then when I started as are whatwas found on my right lung. Someo fthe…
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Scan done, news not good.
I received the results of my bone scan yesterday and the news wasn't good. Along with the hip bone met that I was aware of they also found two ribs and the femur invloved also. It sounds like this will preclude any surgery to the tumor in my kidney or the removal of the hip met. The doctor I spoke to at UCLA where I am…
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3weeks post surgery
hi all its been a few weeks since I posted. Feeling good although my incision areas are very painful is that normal have others experienceEd this as well.? I have lost 11 lbs since my surgery. Not complaining was trying to lose some weight
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New here and worrying. pls help
Hi everybody, I'm leah, female and I'm 29.years old. I've been having flank pain and under the ribs pain, tiredness and monthly pain by my pelvic not like cramp pain but more of like when sitting down pressure goes up on the lower abdomen to the top abdomen under my rib. My creatinine is 0.5 and my urine is clear. It was…
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mass on kidney and lesion on spleen
My husband was just told he had a small mass on his left kidney. 2.5 cm in size. The urologist says it has all indications of being cancer and that a partial robotic nephrectomy is best option. After the urologist saw the MRI he told us that there is a small lesion on my husband's spleen. The dr now wants him to see a…
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Very confused! Went in to ER today for unrelated pain had CT shows possible mass.
I went to ER today for ovarian pain. They did contrast CT and just happened to find possible mass on left lower kidney. I am very confused by the possible mass part. They did urine test it was fine but they said this texture on my kidney may be mass or could be infection. They put me on antibiotics and wants to rescan in 3…
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New here but concerned
I had a radical Nephrectomy a year ago. I always had discomfort on my left side and a bump just under my rib cage. Anyone have any comment on this?
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Update GSR
Hi All..! Yes I have been a tad quiet here.. sorry. Things are mostly OK.. no complaints. Had a Cyberknife procedure early August for Met on Spine. The Cyberknife in turn caused major pain for about 6 weeks and it did get better. Still some pain, but I can deal with it. Next about 2 weeks ago had pain in right foot, I…
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renal cell cancer
I found out I had kidney cancer on a ct that was done for something else.they say it was caught early.since my left kidney was removed in feb. 2003.I am still in pain i am also numb in the area can anyone post info about the recovery?
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To those Newly Diagnosed - Pay Attention
Hello - I have posted here before, but I am hoping that those newly diagnosed will learn from my experience. I have learned that I did not handle things well. Live and learn. I found out a year ago that I had RCC. My tumor was small and my doctor assured me it was no big deal at all. Almost like it was not even a real…
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Relevance of negative margins in a full nephrectomy
Hi everyone, I was just wondering something: When a full nephrectomy occurs, what determines "positive" or "negative" margins? Perhaps I just don't understand the concept, but how is this determined if the entire kidney is removed? And, what, if any, is the benefit of "negative margins" on a radical neprectoamy if the…
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NCCN Guidelines for Follow Ups after a Partial/Radical Nephrectomy for Stage 1-3
We've had a number of posts/questions about what is appropriate followup after a partial/radical nephrectomy for Stage 1-3 RCC. You may access the National Comprehensive Cancer Guidelines yourself as a patient/survivor. If you go to the website, it will appear as if the site is for physicians only. However, if you go…
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stage 4 mestatic renal cell cancer
i was diagonose with stage 4 renal cell dec 2011 had kidney removed jan 2012 started chemo with sutent 1 week ago i have it in both lungs they are sayin numerous nimerous numerous cells have it in the lymp nodes live and small cell tissue they say i have around 1 year or so but has anyone beat this cancer at this stage of…
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Up coming CT SCan concerns
I'm going in for my one year check-up and CT-Scan. Someone told me the contrasting agent is not good if you only have one kidney. Anyone lnow if that's correct??
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RE: New to group
Hi! I'm new to the group - 63yr old female who had a left nephrectomy on July 26, 2014. My cancer was found through a chest ct scan. Had a chest xray and saw some nodules in right lung. I had some left back pain which I later learned was muscle pain - so really no symptoms to confirm kidney caner. After ct of chest , they…
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Crazy Question
I have an open radical on 8-11 and I still have a lot of numbness in my stomach which I understand is normal. But is it normal to always feel hungry and never full even after eating a full meal?