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rcc trails
Hi all here is a link about rcc ive been following for the last few years http://www.kidneycancerkonnection.com/main/news.htm i hope its helpfull for everyone . by the way i am from the netherlands. peter.
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Open partial nephrectomy
Hi everyone! It's been inspiring and encouraging to read all your posts, and to know that there is a life after cancer! I had an open partial nephrectomy on Sept 20th, where they removed a 4cm tumour, part of my left kidney, and the adrenal gland. My surgeon has taken off for a month so I have no info re follow-up or path…
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I am off to see the Wizard of Baltimore.....
Time to find out the result of my scans. Hopefully Dr Hammers will say move along, nothing to see here....
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Let's talk Ureter!
Hi all - My pathology report states the ureter is 4.5 cm long but i see in general literature that it is 8 - 10 inches long. So is my remaining ureter still in me and just floating in space? Anyone else have this situation and do you know what happens to a now useless ureter left inside? Thanks
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Post stent removal hernia?
The only hernia the scans indicted prior to surgery was a small hiatial hernia. When the surgeon went to take out the stent bypass put in after surgery, the experience was 5X worse than being catheterized. I really tensed up and nearly passed out. Returnning to work and walking 3-5 miles a day we thought the original…
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Bloating/gas pain at right partial nephrectomy site
Hi, I am new to this forum and am looking for advice. I had a partial nephrectomy performed on July 8th. I am having lots of pain (likely gas) at the surgical site and was wondering if others have had this problem as well? I have been walking as much as I can manage as the pain is worse when walking. Well, I must've done…
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Bye bye Inlyta
Time for a change. Afinitor, Cybetknife, Xgeva and a Phlebotomy. Are we having fun yet?? Ron
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KCA Conference Northern California
Hi All..! I thought I had posted this here.. but could not find it... there is still time to register, it is FREE..!! Spend the day at Stanford with a bunch of like minded people... and then there is me.. OK, so I just read the agenda and my Surgeon and my Oncologist are two of the speakers, plus one of the researchers I…
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Is anyone in the LY2875358 trial?
Hey team, So my scans from almost two weeks ago show mixed results. Some nodules on my lungs grew just slightly, some did not change at all, and the enlarged hilar lymph node is the same. My oncologist thinks it is time to move on, and wants me to consider the LY2875358/anti- c-met antibody trial. I think this is the…
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Stage 4 Chromophobe RCC
My Dad was recently diagnosed with stage 4 chromophobe rcc that has spread to all of his lymph nodes, lungs athe other areas near the kidney. The dr is not telling us much about what to expect. we have been told surgery is not an option because he would need to go 6 weeks after surgery before being able to do any kind of…
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Complicated Cryoablation
Diagnosed with RCC for third time in 4 years. First time was nephrectomy, second time cryoablation with bleeding complications. If the doctor does a cryoablation this time in order to avoid losing my only kidney he says it is so close to my liver he will have to "puncture" my liver with the probe to get to the tumor. he…
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complex renal cyst awaiting full diagnosis
I am a 27 year old female college student and mother of one. In may of this year, I became suddenly ill and it lasted for a week straight. When arriving to the er, I was completely dehydrated. They told me I tested positive for h.pylori and said I needed to see my regular doctor. I was then referred to gastro and they ran…
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What is the wait time to receive treatment with IL-2 ?
From making the initial appointment, to first dose, how long did the process take for those of you in the USA? My mother progressed on nivolumab and I am advocating she try IL-2 while still relatively healthy. This is probably her last chance to try it. She is either performance status 0 or 1, definitely not 2. I am…
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Nervous, 1-year follow up approaching
I was diagnosed with Stage I RCC and had a full nephrectomy in March, 2006. I have my 1-year follow up in 2 weeks and am getting nervous. I came here to read postings but the 1st one I read was another stage I survivoring talking about a recurrence. YIKES! Anyway, I am hoping for good results. I have some pain where my…
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Thought for the day
"Life is like a roll of toilet paper. The closer to the end, the faster it goes."
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Metastisized RCC
My finace' was diagnosed with metatisized rcc in September. This was discovered when he broke his right femur in a fall. In addition to the kidney tumor,tumors found in his right and left femur and a small one in his arm. The tumors in both legs were removed and the bones repaired and rods put in. He had embolizations to…
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Still Kickin
Hey to all my peeps i just thought i would to extend a big hello,oh yhea before i get started please excuse my crappy grammer as the ones who know me will understand,hey Fox i did go ahead and get that Street Glide damm i love that bike hell even my wife rides with me now.So as some of you know i have 2 cancers one being…
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Shrinkage!!! on clinical trial
My dad's latest scan yesterday showed shrinkage in all lung and lymph node mets! Seems that the smaller ones decreased more dramatically than the larger mets, but we are hoping for continued shrinkage during the next scan in October! My dad is on Roche/Genentech's MPDL3280a infusions every 3 weeks at Yale-New Haven with…
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Morcellation
Howdy, folks. I've been kind of disappeared for a while. I was terribly depressed for a while, but seem to be coming out of it. Made it through my one year scans--no evidence of recurrence or metastases. Yay! Anyhow, I've been reading with interest the news about the recommendations not to use morcellation for…
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Has anyone here ever been close to the brink...
and still managed to make it back and get stronger? I'm just curious if there are any stories of those who may have been at deaths door, but managed to fight back. Sorry for the long post, but I guess I'm worried and want to paint a full picture to get any insight. A little back story first. I've written on here a few…
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Back for more IL-2
Back at UVa hospital for another week of IL-2. The two weeks in March have given me 4 months of stable disease. Yesterday's scan showed a few mm growth. I got one dose last night and another one this morning and so far not too many bad SEs. I had a small case of the rigors this morming a full four hours after my dose.…
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Checking In
Hi All, Back in June, I posted that I was going in for surgery for a colon resection, due to diverticulitis and a malignant polyp. Well I had the surgery June 19. And to make an incredibly long story short, I just got home July 24th. Took doc five hours to do the simple lap surgery due to all th adhesions/scar tissue from…
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Partial Robotic-An unusual experience.
I suppose I grew up thinking cancer meant death and if anyone ever told me I had cancer, that I would freak out, act differently, change something and be terribly emotional. My experience seems somewhat surreal, even now 4 months after surgery. In February, I had blood in my urine and did my doctors visits and CAT scan,…
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Very nervous!
So I just had a ct scan and ili just found out that I have bilateral renal cysts. I have a 17mm wall calcification on my left kidney. I also have scoliosis so I always thought that i have lower back pain due to the scoliosis and now to find this out, im really nervous and not sure what to expext.I go to my urologist…
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Here we go again!
The waiting begins again. Had CT scan today to check status of current mets. I am hoping for at least stable with nothing new in the mix. I will know results Tuesday. Just hoping this once that I get a good report. If the report is not good not sure what happens next as far as treatment options go. my best wishes to…
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docs that specialize in Renal Cell Carcinoma Sarcomatoid.
I am trying to find surgeons who are on the cutting edge dealing with Renal Cell Carcinoma Sarcomatoid. I am also looking for hospitals that specialize in Renal Cancer. Any and all help is greatly appreciated. Thank you . ,
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GaryM
Am I the only one wondering why GaryM is so quiet? Time for Funny Bonz 2014.
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Cancer Rally
Hi All... FYI. In case any of you can attend.. Ron Dear Members of the “AACR SSP Family,” As a valued participant in the American Association for Cancer Research (AACR) Scientist-Survivor Program (SSP), I am writing to make you aware of the Rally for Medical Research Hill Day, which is scheduled for September 17-18, 2014…
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Scared.....
A year or so ago I had a huge amount of blood in my urine on several occasions. It appeared to me to be UTI'S. I went to my PCP and they tested my urine and after giving me antiiotics, they later told me i never had a UTI. They referred me to a urologist and by the time I saw her the bleeding had stopped. I had a procedure…
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ipilimumab and nivolumab Updates
Been a while since I last posted but the bottom line is last CT Scan (About 3 weeks ago) showed some shrinkage, a little growth but that was on a site that had shrunk prior, elimination of a small nodule on lung, nothing has grown larger then when I first started program in Feb of 2014, and no new sites. Overall about a…