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Is anyone in the LY2875358 trial?
Hey team, So my scans from almost two weeks ago show mixed results. Some nodules on my lungs grew just slightly, some did not change at all, and the enlarged hilar lymph node is the same. My oncologist thinks it is time to move on, and wants me to consider the LY2875358/anti- c-met antibody trial. I think this is the…
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Stage 4 Chromophobe RCC
My Dad was recently diagnosed with stage 4 chromophobe rcc that has spread to all of his lymph nodes, lungs athe other areas near the kidney. The dr is not telling us much about what to expect. we have been told surgery is not an option because he would need to go 6 weeks after surgery before being able to do any kind of…
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Complicated Cryoablation
Diagnosed with RCC for third time in 4 years. First time was nephrectomy, second time cryoablation with bleeding complications. If the doctor does a cryoablation this time in order to avoid losing my only kidney he says it is so close to my liver he will have to "puncture" my liver with the probe to get to the tumor. he…
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complex renal cyst awaiting full diagnosis
I am a 27 year old female college student and mother of one. In may of this year, I became suddenly ill and it lasted for a week straight. When arriving to the er, I was completely dehydrated. They told me I tested positive for h.pylori and said I needed to see my regular doctor. I was then referred to gastro and they ran…
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What is the wait time to receive treatment with IL-2 ?
From making the initial appointment, to first dose, how long did the process take for those of you in the USA? My mother progressed on nivolumab and I am advocating she try IL-2 while still relatively healthy. This is probably her last chance to try it. She is either performance status 0 or 1, definitely not 2. I am…
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Nervous, 1-year follow up approaching
I was diagnosed with Stage I RCC and had a full nephrectomy in March, 2006. I have my 1-year follow up in 2 weeks and am getting nervous. I came here to read postings but the 1st one I read was another stage I survivoring talking about a recurrence. YIKES! Anyway, I am hoping for good results. I have some pain where my…
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Thought for the day
"Life is like a roll of toilet paper. The closer to the end, the faster it goes."
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Metastisized RCC
My finace' was diagnosed with metatisized rcc in September. This was discovered when he broke his right femur in a fall. In addition to the kidney tumor,tumors found in his right and left femur and a small one in his arm. The tumors in both legs were removed and the bones repaired and rods put in. He had embolizations to…
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Still Kickin
Hey to all my peeps i just thought i would to extend a big hello,oh yhea before i get started please excuse my crappy grammer as the ones who know me will understand,hey Fox i did go ahead and get that Street Glide damm i love that bike hell even my wife rides with me now.So as some of you know i have 2 cancers one being…
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Shrinkage!!! on clinical trial
My dad's latest scan yesterday showed shrinkage in all lung and lymph node mets! Seems that the smaller ones decreased more dramatically than the larger mets, but we are hoping for continued shrinkage during the next scan in October! My dad is on Roche/Genentech's MPDL3280a infusions every 3 weeks at Yale-New Haven with…
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Morcellation
Howdy, folks. I've been kind of disappeared for a while. I was terribly depressed for a while, but seem to be coming out of it. Made it through my one year scans--no evidence of recurrence or metastases. Yay! Anyhow, I've been reading with interest the news about the recommendations not to use morcellation for…
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Has anyone here ever been close to the brink...
and still managed to make it back and get stronger? I'm just curious if there are any stories of those who may have been at deaths door, but managed to fight back. Sorry for the long post, but I guess I'm worried and want to paint a full picture to get any insight. A little back story first. I've written on here a few…
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Back for more IL-2
Back at UVa hospital for another week of IL-2. The two weeks in March have given me 4 months of stable disease. Yesterday's scan showed a few mm growth. I got one dose last night and another one this morning and so far not too many bad SEs. I had a small case of the rigors this morming a full four hours after my dose.…
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Checking In
Hi All, Back in June, I posted that I was going in for surgery for a colon resection, due to diverticulitis and a malignant polyp. Well I had the surgery June 19. And to make an incredibly long story short, I just got home July 24th. Took doc five hours to do the simple lap surgery due to all th adhesions/scar tissue from…
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Partial Robotic-An unusual experience.
I suppose I grew up thinking cancer meant death and if anyone ever told me I had cancer, that I would freak out, act differently, change something and be terribly emotional. My experience seems somewhat surreal, even now 4 months after surgery. In February, I had blood in my urine and did my doctors visits and CAT scan,…
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Very nervous!
So I just had a ct scan and ili just found out that I have bilateral renal cysts. I have a 17mm wall calcification on my left kidney. I also have scoliosis so I always thought that i have lower back pain due to the scoliosis and now to find this out, im really nervous and not sure what to expext.I go to my urologist…
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Here we go again!
The waiting begins again. Had CT scan today to check status of current mets. I am hoping for at least stable with nothing new in the mix. I will know results Tuesday. Just hoping this once that I get a good report. If the report is not good not sure what happens next as far as treatment options go. my best wishes to…
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docs that specialize in Renal Cell Carcinoma Sarcomatoid.
I am trying to find surgeons who are on the cutting edge dealing with Renal Cell Carcinoma Sarcomatoid. I am also looking for hospitals that specialize in Renal Cancer. Any and all help is greatly appreciated. Thank you . ,
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GaryM
Am I the only one wondering why GaryM is so quiet? Time for Funny Bonz 2014.
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Cancer Rally
Hi All... FYI. In case any of you can attend.. Ron Dear Members of the “AACR SSP Family,” As a valued participant in the American Association for Cancer Research (AACR) Scientist-Survivor Program (SSP), I am writing to make you aware of the Rally for Medical Research Hill Day, which is scheduled for September 17-18, 2014…
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Scared.....
A year or so ago I had a huge amount of blood in my urine on several occasions. It appeared to me to be UTI'S. I went to my PCP and they tested my urine and after giving me antiiotics, they later told me i never had a UTI. They referred me to a urologist and by the time I saw her the bleeding had stopped. I had a procedure…
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ipilimumab and nivolumab Updates
Been a while since I last posted but the bottom line is last CT Scan (About 3 weeks ago) showed some shrinkage, a little growth but that was on a site that had shrunk prior, elimination of a small nodule on lung, nothing has grown larger then when I first started program in Feb of 2014, and no new sites. Overall about a…
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So, I'm going in.......
.... To hospital tomorrow for my partial nephrectomy. I will be a fully paid up member of the board and I feel strangely calm. Spent a few hours at the hospital today to discuss op and all I can remember is all the things that could go wrong! All being good I shall be home on the weekend. It's lovely to catch up on…
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Getting Older-Reflections
I turned 71 today. Next week will be 12 years from ny NEPH and 12 years and 2 months from its discovery. I have not had a CT in about 7 years, just Utrasounds although I am scheduled for a CT (hopefully the last one) tomorrow. In the last year other issues have replaced any concern about RCC. Ihave Stage 3 Chronic Kidney…
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Open Partial Nephrectomy--A Message of Inspiration
Hi All, I wanted to post my extremely positive experience I had with my open partial nephrectomy, which was performed on July 10. Prior to my surgery, I made the mistake of reading messages here, and I was pretty despondent. Keep in mind that everyone has a different situation and experience, and you cannot draw anything…
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Kidney Mass
Hello, I am new to this group and this is my first post. I wanted to get some advice. I went to the VA for my anual exam and they saw blood in my urine. They sent me to get a sonogram and it came back with a mass in each of my kidneys. one was 9.4cm and the other was 10cm. They told me not to worry BUT if there was blood…
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Sending special thoughts and prayers to Neil F. / Nanosecond
Neil, i know you have been having it rough for the past few months and I want to send a special message out to you, to let you know I am thinking about you! I hope your scan goes well today and the Affinitor does the trick for you. In the meantime, I am praying for you. Keep up that positive attitude that you so generously…
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Partial Nephrectomy / Small RCC - Clear Cell
A week ago I had a partial nephrectomy and will be meeting with my Urologist tomorrow. Pathology confirmed the following to me: Clear Cell RCC (1.7cm) Rated a 2 for aggressiveness. Pathology confirmed negative margins. I have a perceived hermangioma in my liver and spleen. The spleen is somewhat abnormal according to the…
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day to day normal stress of what people deal with
On 6/11/14 we met with an oncologist and she "said" my husband has stage 1 recurring kidney cancer that has metastasized (he has 2 tumors in the lungs and several in the abdomen). On 6/17/2014 we went to MD Anderson to get a second opinion because what I have learned online is that you can't be both "Stage 1" and…
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elevated heart rate
I am 3+ weeks out from a full kidney removal. Tumor was stage 1; grade 2 and i walk about 5 - 7, 000 steps a day but sometimes, my heart rate is hyper elevated - > 120 (normal resting for me is ~60). Anyone else experience this? I am meeting with my surgeon tomorrow and will bring it up. If it wasn't accompanied by chest…