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docs that specialize in Renal Cell Carcinoma Sarcomatoid.
I am trying to find surgeons who are on the cutting edge dealing with Renal Cell Carcinoma Sarcomatoid. I am also looking for hospitals that specialize in Renal Cancer. Any and all help is greatly appreciated. Thank you . ,
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GaryM
Am I the only one wondering why GaryM is so quiet? Time for Funny Bonz 2014.
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Cancer Rally
Hi All... FYI. In case any of you can attend.. Ron Dear Members of the “AACR SSP Family,” As a valued participant in the American Association for Cancer Research (AACR) Scientist-Survivor Program (SSP), I am writing to make you aware of the Rally for Medical Research Hill Day, which is scheduled for September 17-18, 2014…
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Scared.....
A year or so ago I had a huge amount of blood in my urine on several occasions. It appeared to me to be UTI'S. I went to my PCP and they tested my urine and after giving me antiiotics, they later told me i never had a UTI. They referred me to a urologist and by the time I saw her the bleeding had stopped. I had a procedure…
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ipilimumab and nivolumab Updates
Been a while since I last posted but the bottom line is last CT Scan (About 3 weeks ago) showed some shrinkage, a little growth but that was on a site that had shrunk prior, elimination of a small nodule on lung, nothing has grown larger then when I first started program in Feb of 2014, and no new sites. Overall about a…
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So, I'm going in.......
.... To hospital tomorrow for my partial nephrectomy. I will be a fully paid up member of the board and I feel strangely calm. Spent a few hours at the hospital today to discuss op and all I can remember is all the things that could go wrong! All being good I shall be home on the weekend. It's lovely to catch up on…
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Getting Older-Reflections
I turned 71 today. Next week will be 12 years from ny NEPH and 12 years and 2 months from its discovery. I have not had a CT in about 7 years, just Utrasounds although I am scheduled for a CT (hopefully the last one) tomorrow. In the last year other issues have replaced any concern about RCC. Ihave Stage 3 Chronic Kidney…
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Open Partial Nephrectomy--A Message of Inspiration
Hi All, I wanted to post my extremely positive experience I had with my open partial nephrectomy, which was performed on July 10. Prior to my surgery, I made the mistake of reading messages here, and I was pretty despondent. Keep in mind that everyone has a different situation and experience, and you cannot draw anything…
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Kidney Mass
Hello, I am new to this group and this is my first post. I wanted to get some advice. I went to the VA for my anual exam and they saw blood in my urine. They sent me to get a sonogram and it came back with a mass in each of my kidneys. one was 9.4cm and the other was 10cm. They told me not to worry BUT if there was blood…
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Sending special thoughts and prayers to Neil F. / Nanosecond
Neil, i know you have been having it rough for the past few months and I want to send a special message out to you, to let you know I am thinking about you! I hope your scan goes well today and the Affinitor does the trick for you. In the meantime, I am praying for you. Keep up that positive attitude that you so generously…
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Partial Nephrectomy / Small RCC - Clear Cell
A week ago I had a partial nephrectomy and will be meeting with my Urologist tomorrow. Pathology confirmed the following to me: Clear Cell RCC (1.7cm) Rated a 2 for aggressiveness. Pathology confirmed negative margins. I have a perceived hermangioma in my liver and spleen. The spleen is somewhat abnormal according to the…
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day to day normal stress of what people deal with
On 6/11/14 we met with an oncologist and she "said" my husband has stage 1 recurring kidney cancer that has metastasized (he has 2 tumors in the lungs and several in the abdomen). On 6/17/2014 we went to MD Anderson to get a second opinion because what I have learned online is that you can't be both "Stage 1" and…
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elevated heart rate
I am 3+ weeks out from a full kidney removal. Tumor was stage 1; grade 2 and i walk about 5 - 7, 000 steps a day but sometimes, my heart rate is hyper elevated - > 120 (normal resting for me is ~60). Anyone else experience this? I am meeting with my surgeon tomorrow and will bring it up. If it wasn't accompanied by chest…
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Looking for physician in Northern California
I'm from the breast and uterine cancer boards. One of my bffs was dxd with kidney cancer 5 1/4 years ago. Now there is a mass in her left lung that cannot be accessed by biopsy (thoracic surgeon tried, he could not get to it). He feels the mass is renal cancer mets, not a primary lung cancer. We will visit her local…
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Amazing comaraderie
I just want to take a moment and comment how impressive everyone is. Despite everyone experiencing life changing circumstances, the unselfish support of each other is mind blowing. At a time when being a bit ego-centric would be understandable, I have seen very few people be so. The character everyone demonstrates is…
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2 months between diagnosis and surgery...too long?
Hi all - My back doctor found a 3.9cm mass on my right kidney and the CT Scan suggested it was something to look into. Received 2 very different opinions from the urologists - one said laparoscopic and the other said it could only be done open. So I got a 3rd opinion and am going with the laparoscopic approach but now the…
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Does anyone know how to look up clinical trial results of targeted therapy drugs?
I am wondering if someone can tell me where you get this type of information for drugs that are already FDA approved and for drugs that are in trial. I'm also a bit curious (as a side note), does anyone taking these drugs have any interest in knowing this type of data? I'm on the fence about whether or not I want to know.…
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HELP I am surrounded by abbreviations!
A little poem... if it makes sense welcome to the club... not that anyone wants to join! Got RCC told by an ONC at U&E Spent some time in ER with a MD Had a MRI and a CT. No PET for me today. (Thats OK, my dog might of got jealous!) Had a RN not a PRN Told its TNM is T3B N0M0 CC RCC thats in the IVC (Try saying that fast…
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Rhabdoid RCC
Hello, April 7th my father was diagnosed with kidney cancer. Our first opinion felt surgery was out of the question, so we got a second opinion. Our second opinion was optimistic, and he was scheduled for a radical nephrectomy. The recovery after surgery was rough and he was back in and out of the hospital. Finally after…
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Stage 1 recurrence?
Just was curious if anyone on this boat had ever been diagnosed with stage 1 RCC and ever had any recurrence. I know statistics say it's very unlikely but numbers don't always tell the truth. If anyone would like to share their story I would appreciate it.
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Scan Results - Not as good as I hoped for
I know I posted last week about scan results and I didn't want to leave everyone hanging. Just got back from spending 4 days in Tampa (I am from NY) so I wanted to share the news of the scans that I received on Friday. My last scan in late February showed a stable disease, no growth, no spread. 98% of the cancer was gone…
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Scan
Scan tomorrow with dye. its been 6 months since last......Damn I hate scanaxiety ;) Hope all you motherfluffers are doing well. I took a little break from the site as we PCS'd to Alaska caught my first King fish too. Again i hope all of you are doimg well.
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WISHING YOU A HAPPY BIRTHDAY! on Sunday SINDY!
PARTY TIME !!!!!!!!!!<<blow Have a fabulicious birthday tomorrow Twinnie. Mind you don't go twisting yourself any further out of shape with any outrageous dance moves! Love and hugs:) Djinnie xx
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Another surgery on Friday
My SIXTH in less than 2 years. :( . I had a bad MRI in late April, then a benign biopsy, but my surgeon wants to remove a suspicious tumor in my chest wall. It's grown 1cm since the May 20th bio. I was shocked when on this past Wed she scheduled me 9 days hence. That is not the usual pattern of waiting forever! Backstory…
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Mixed test results
I had an CT scan (without contrast) on 5/17/14 which showed a mass on my right kidney. My doctor sent me to get a renal US. The US came back with a solid appearing object on my right kidney. Another CT scan was done, with and without contrast. The results from the radiologist said the area was too small to determine…
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A bit a bragging and proof we can come back and survive
I am 4.5 months out from an open partial. This Sunday I did my first sprint triathlon of the year and although a bit slower than last year (water choppy and it was blowing) I got 2nd in my age group. 8-). Yes there were more than 2 in my group (first question my husband asked). Thank you to all of you who gave me advice…
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Nivolumab approved in Japan
Just wanted to keep others up to date.. This has to be good news! http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/anti-pd1-opdivo-nivo-approved
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Cancer Hospital Ratings
I brought this over from another forum, but thought you may wish to see the ratings of where you are going... Ron http://health.usnews.com/best-hospitals/rankings/cancer
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Inlyta working!
I got the news from my scans today. Shrinkage is some mets and stability in others. This is especially great since I left MDA feeling hopeless 5 months ago because I was told that the FDA approved drugs don't usually work on unclassified RCC. Well take that statistics. I guess I showed you! Off to party! Kathy
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Exercise post op
I'm 55 yrs old and had a robotic partial nephrectomy on May 8, 2014. I found out that I had a mass in my left Kidney as I was training for my first triathlon. It's in late June. I was in fairly good shape going into the operation but I'm concerned that I'm not going to be able to resume training for a while. At one week…