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Renal cancer and osteoparosis
I have posted this to Smart Patients last week and my question may have gotten lost since no one responded. my husband was dx in July, 2013 with stage 4, clear cell carcinoma, grade 2. It is stage 4 because he had 2 spinal mets, one which was treated with laminectomy and the other with cyberknife. His last scans have been…
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New cancer classification system shows promise as life-saver
http://www.sfgate.com/health/article/New-cancer-classification-system-shows-promise-as-5675296.php
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Well...I'm back again.
Well, here I am again I haven't posted in over a year...I've done everything I could to push the anxiety out of my mind since my doctor gave me the "all clear" after my scan last July. The original mass was found in July of 2012 and was only 2.5 x 3-ish. The post surgical biopsy showed stage 1, grade 1 renal cell…
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Update of mom's surgery
The doctor said it was routine however she did not react well to the anesthesia, that was expected. She is 72 and had issues with it before. She had an open partial, today she had a slight fever with a flush face however her hands were ice. She has been taking the nausea medicine along with something for heartburn which…
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Pneumonitis/Afinitor
My last CT 2 weeks ago showed that it is probable that I have early pneumonitis which unfortunately is a side effect of Afinitor. Saw a respiratory specialist on Wednesday and have started a short course of prednisone. Naturally Afinitor has been stopped and not sure it is still on the table as it appears that I also have…
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Testical
Have any of the males had any issues with their testicals post right partial nephrectomy. My right testical is drooping much lower than normal. It is not sore anymore. But was for a period post surgery. I have trouble drawing it up like my left one now. My urologist seemed to dismiss this as nothing a week after my…
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Estimated GFR
I learned something new today. I went to get a consultation at a Nephrologist and I learned some interesting things that I thought I would pass on. I had some varying results in my blood creatine and GFR thorugh my Oncologist and my Urologist. They were using different labs and the results varied between 1.48 and 1.79 with…
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Question
I have been on 800 mg Votrient for the past 18 months and so far it’s working great. The only bothersome side effect is the diarrhea. I am taking Lomotil to help. And it has been working for the most part. I have noticed that when I eat beef the diarrhea is dramatically worse and more often. Chicken and pork I don’t have…
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RCC with mets to lungs
Well, I have officially joined!! Mass R Nephrectomy in August 2011. It had punctured vena cava and i started to bleed out slowly, emergency surgery to remome R kidney with 7cm tumor. Tumor was not attached to vena cava but had punctured it, vascular sugeon (and Kidney cancer surgeon) removed kidney and stitched vena cava…
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Post op recovery
Hi all, i am today 6 days post op partial neprectomy and its kicking my butt. Low level nausea and sickness are the ones doing the kicking and it's making me feel so low. On a brighter note ok have had no pain at all from the insision site or kidney. Did anyone else have this nausea and how long does it last? It also could…
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"Oh Lord Now She has Cancer"
I'm 41 and I've been sick a good part of my life. My family is sick of me being sick so I can't be while around them. I've had 12 surgeries now (only 2 related to cancer) and am an 8 year renal cell carcinoma survivor with recurrence. I'm all out of supporters and it's been this way for a very long time. I have my 6mos…
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3 Year Ultrasound Clear, Chromophobe
Hello Everyone, It has been some time since I've posted. I had a Partial nephrectomy (laproscopic Davinci robotic) 20July11, to remove a 3.9 cm Chromophsobe tumor, grade 2. I had a six month, 1 year, and 3 year CT followup. Last month I had a 3 year ultrasound and all is clear. I am on the fence as to whether to go for a…
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Adrenal gland...I should know this but...
...is the adrenal gland always removed when the whole kidney is removed?
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rcc trails
Hi all here is a link about rcc ive been following for the last few years http://www.kidneycancerkonnection.com/main/news.htm i hope its helpfull for everyone . by the way i am from the netherlands. peter.
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Open partial nephrectomy
Hi everyone! It's been inspiring and encouraging to read all your posts, and to know that there is a life after cancer! I had an open partial nephrectomy on Sept 20th, where they removed a 4cm tumour, part of my left kidney, and the adrenal gland. My surgeon has taken off for a month so I have no info re follow-up or path…
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I am off to see the Wizard of Baltimore.....
Time to find out the result of my scans. Hopefully Dr Hammers will say move along, nothing to see here....
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Let's talk Ureter!
Hi all - My pathology report states the ureter is 4.5 cm long but i see in general literature that it is 8 - 10 inches long. So is my remaining ureter still in me and just floating in space? Anyone else have this situation and do you know what happens to a now useless ureter left inside? Thanks
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Post stent removal hernia?
The only hernia the scans indicted prior to surgery was a small hiatial hernia. When the surgeon went to take out the stent bypass put in after surgery, the experience was 5X worse than being catheterized. I really tensed up and nearly passed out. Returnning to work and walking 3-5 miles a day we thought the original…
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Bloating/gas pain at right partial nephrectomy site
Hi, I am new to this forum and am looking for advice. I had a partial nephrectomy performed on July 8th. I am having lots of pain (likely gas) at the surgical site and was wondering if others have had this problem as well? I have been walking as much as I can manage as the pain is worse when walking. Well, I must've done…
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Bye bye Inlyta
Time for a change. Afinitor, Cybetknife, Xgeva and a Phlebotomy. Are we having fun yet?? Ron
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KCA Conference Northern California
Hi All..! I thought I had posted this here.. but could not find it... there is still time to register, it is FREE..!! Spend the day at Stanford with a bunch of like minded people... and then there is me.. OK, so I just read the agenda and my Surgeon and my Oncologist are two of the speakers, plus one of the researchers I…
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Is anyone in the LY2875358 trial?
Hey team, So my scans from almost two weeks ago show mixed results. Some nodules on my lungs grew just slightly, some did not change at all, and the enlarged hilar lymph node is the same. My oncologist thinks it is time to move on, and wants me to consider the LY2875358/anti- c-met antibody trial. I think this is the…
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Stage 4 Chromophobe RCC
My Dad was recently diagnosed with stage 4 chromophobe rcc that has spread to all of his lymph nodes, lungs athe other areas near the kidney. The dr is not telling us much about what to expect. we have been told surgery is not an option because he would need to go 6 weeks after surgery before being able to do any kind of…
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Complicated Cryoablation
Diagnosed with RCC for third time in 4 years. First time was nephrectomy, second time cryoablation with bleeding complications. If the doctor does a cryoablation this time in order to avoid losing my only kidney he says it is so close to my liver he will have to "puncture" my liver with the probe to get to the tumor. he…
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complex renal cyst awaiting full diagnosis
I am a 27 year old female college student and mother of one. In may of this year, I became suddenly ill and it lasted for a week straight. When arriving to the er, I was completely dehydrated. They told me I tested positive for h.pylori and said I needed to see my regular doctor. I was then referred to gastro and they ran…
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What is the wait time to receive treatment with IL-2 ?
From making the initial appointment, to first dose, how long did the process take for those of you in the USA? My mother progressed on nivolumab and I am advocating she try IL-2 while still relatively healthy. This is probably her last chance to try it. She is either performance status 0 or 1, definitely not 2. I am…
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Nervous, 1-year follow up approaching
I was diagnosed with Stage I RCC and had a full nephrectomy in March, 2006. I have my 1-year follow up in 2 weeks and am getting nervous. I came here to read postings but the 1st one I read was another stage I survivoring talking about a recurrence. YIKES! Anyway, I am hoping for good results. I have some pain where my…
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Thought for the day
"Life is like a roll of toilet paper. The closer to the end, the faster it goes."
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Metastisized RCC
My finace' was diagnosed with metatisized rcc in September. This was discovered when he broke his right femur in a fall. In addition to the kidney tumor,tumors found in his right and left femur and a small one in his arm. The tumors in both legs were removed and the bones repaired and rods put in. He had embolizations to…
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Still Kickin
Hey to all my peeps i just thought i would to extend a big hello,oh yhea before i get started please excuse my crappy grammer as the ones who know me will understand,hey Fox i did go ahead and get that Street Glide damm i love that bike hell even my wife rides with me now.So as some of you know i have 2 cancers one being…