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Does the nonchronological order of the posts bother anyone besides me?
I wonder if I am alone in finding it annoying that the most recent post is not always at the end of the thread. Is there something I am not aware of? Is there a setting for the format? If others feel the same way I do, does this site take suggestions for improvement? Have a great day. Annie
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What to look for
In Feb 2013, I had my right kidney and a large tumor removed. For the first year thereafter, I participated in a clinical trial which required follow up exams with my oncologist every 6 weeks and a CT scan every 4 months. With the conclusion of the test trial, I am on a cycle of 3-month visits to the oncologist and CT…
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I am cancer free
I am cancer free since 2013 and want to know if i can drink red wine?? let me know..
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Scared & Worried! :(
Hello everyone. Hope all is doing well. I'm going to try and keep my story short. It all started June 16, 2014 when my husband started having pains that folded him over! I brought him to our local ER they did a CT, & bloodwork and saw a kidney stone (2mm) in the right kidney gave him IV fluids pain meds & told us he should…
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Possible new treatment....
FYI. http://www.businessinsider.com/scientists-cancer-spread-health-research-2014-9
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Axitinib / Inlyta
Hi All.. OK, so I am creating a new topic for just those that have any info on Inlyta - Axitinib. I began Votrient in March, 2013, and stopped it due to Liver issues in July, 2013. I started the Inlyta on 9-5-13. Here it is less than two days later and my B.P. this morning was 162 / 100. I should say that I anticpated the…
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New here/ My story.
Hello everyone, in the last four weeks, i've been reading a lot of your stories on this site and it helped me lot. I feel like i know a lot of you personnaly even if we have'nt met. I'm gonna tell you a bit about me and the cancer i am now fighting. My name is Dave, 37, from a small town 45 minutes south of Quebec city,…
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Low Sodium ideas
Ever since my kidney removal on 8/11/14, my doctor has told me that I need to be on a low sodium diet. I am a salt girl and always have been. Does anyone have any ideas of how to stop these salt cravings. I am about ready to lick the salt shaker. Thank you
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ONE MORE DAY
Surgery on Thursday, Prep tomorrow oh joy.. looking forward to spending the entire day in the bathroom lol.... Getting a little nervous eveyone in my house is sick. im getting a runny nose.. been taking musinex so hopeful. it will bypass me.. argh.. anything going to go wrong Enjoy your day all.. God Bless. Madzoon
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New
Hi everyone. I'm new here. I'm a 40 year old female who just found out that I have a 3.7cm tumor in my right kidney. I have an appointment next week with a Urologic Oncologist and I will have to have either a parial or complete nephrectomy. I just wanted to know if anyone has any information about whether or not they will…
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Von Hippel Lindau
Back in October I underwent testing for VHL as recommended by a genetics counselor since both my father and I had RCC in our 40's. It took me longer than imagined to fill the little vial up with saliva as bubbles do not count. Anyway, I am happy to report that I tested negative for the disease. I have taken the time to…
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6 month scan and appt. tomorrow
Both "excited" and terrified. But, from reading others posts on theirs, I guess it's normal. Anything I should ask? Looking forward to breakfast at one of my favorite places afterward with hubby. Then the day off to do ...nothing (and I'll get a lot of that done). Have a wonderful day everyone! Wish me luck
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Stage 2a - Clear cell - Grade 3 - advice appreciated
Hi guys, John from Australia here. Long time reader first time poster. Let me first say the support and advice you guys provide to members of this forum is amazing and inspiring. At the age of 34 in 2012 I was diagnosed with RCC - clear cell in my right kidney. I had a radical nephrectomy 15th October 2012 and recovered…
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Complex Kidney Cyst
Hi I am new to this so please forgive me if I ask something crazy. I had an ultrasound done 3 months ago on my kidneys due to a 4.0 cm x 2.3 cm complext cyst being found. I was told to wait 3 months and have a repeat ultra sound and I did just in late August. The report shows the cyst is now 4.7 cm x 2.6 cm. I finally…
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Scanxiety
Hi everyone I have been lurking around this site since my diagnose september 2013. 35 yrs old male. radical nephrectomy in October 2013 pathology chromophobe rcc stage 2. 9 cm tumour I've had 2 scans all clear am due for scan in 2 weeks and scanxiety all over again just like the first time. jaay
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Kidney Masses
Last year after watching my kidney mass change shape and then suddenly grow at a rapid pace I elected to have the mass removed. It was taken from the top of my left kidney and came back as not cancerous. They told me that I shouldn't have any more masses on my left kidney. One year later I had a ct for abdomen pain and…
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Renal cell carcinoma(RCC)./Agent Orange
Lost both kidneys to RCC Right in 1998, left in 2008. still trying to get disability from the VA. Anyone know a good lawer I can call? left Vietnam in 1970. been denied three times already but I read that some of the vets are getting the diability please tell me are there special circumstances.
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Newly Diagnosed, Scheduled for surgery at USC Keck Medical Center and scared as heck
Im 44 was diagnosed with RCC in left kidney which they are having to do a Radical Nephrectomy since it is close to 7cm in size and in the center confined to the kidney inner walls. They said a partial wasn't avaiable because it was to close to the renal artery. I just want to know what to expect other than the phamplet…
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Nivolumab-Sutent Scan Update
I know I haven't posted in quite a while, but I did want to share some good news. I had a scan today and a spot that showed up in April (and triggered a Sutent re-start) is now gone. Scan showed no evidence of disease. hope it is Approved soon for all.
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Scan time again on Thursday
Hopefully, they will show the lung nodules are still stable. Have been having fairly significant coughing spells with a funny honking sound that I've never had before...hurts, too. Hopefully they can tell me why my back and left hip are so sore, along with my right collar bone and shoulder blade. Then will have U/S on…
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just had my Pre op appointment
Talked with the nurse educator she asked me what the dr said about staying out of work, i told her he said about 3 weeks. She told me that wasnt long enough, I am having a Robotic partial Nephrectomy of left Kidney, Does any one else know if I should be out of work longer than that> she said about 6 8 weeks i will start to…
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Latest scan results
So I had two weeks of IL-2 in March and stability for several months. Finished another week of IL-2 on 8/3/2014 but the scan upon entering the hospital did show progression. Only got three doses during that week with creatinine of 5 and even 6. Yesterday (9/3/2014) I had another CT scan and another appt with the doc. My…
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Feeling Good
Back from three plus months on the Oregon Coast. It must have been really good for me, as I feel good. Had good results for the MRI brain scan... nothing bad there .... and a Pet/CT scheduled for Sept 9th.... and I have no fear there either.... check out my new picture First ever Harley ride with my youngest son. Ron...…
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swallen stomach
I had another question sorry things just keep popping in my head. trying to get a sense of it all.. My stomach feels and looks swallen.. every time i eat or drink something my stomach expands. and then hurts soon after i eat or drink. Does anyone know if this is also related to the kidney cancer? Thank you
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Just checking in
Well Monday was three weeks post op. This healing up is for the birds still in quiet a bit of pain which isn't fun. The past couple of days I am not sure what's wrong with me but I have been wearing my heart on my sleeve. You would think I had a hysterectomy and was hormonal all over again. Not quiet sure what's going on…
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Goes in for emergency gall bladder surgery. And oh by the way you have cancer in your kidney
So I just join the network and decided to post my story. I am currently 41 years of age and was recently told I have kidney cancer (by the ER doctor). Now before I get to that story I should back up a bit and start at teh beginning when this all started. At the age of 28 I was told I am a diabetic and was told I should…
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Papillary kidney cancer metastasis to lungs and abdomen
Hello. Had right nephrectomy last January 2013 with an 11cm papillary tumor. Now after my ct scan they have found 3 nodules in my lungs and several in abdomen. I will a biopsy next week and my onco told me I might start with voltrient. May ya I ask if anyone has been in voltrient and if I can still manage to work while…
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Lung scars vs nodules
What's the difference between them? Had my ct OF the lungs with color contrast a week ago, A month ago had a. X Ray, different doctor said lung scar. now, different Radiologist and doctor said it looks like a scar 2cm in size & now call it a suspicious nodule. But being I had kidney cancer I now have to have a lung biopsy…
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2 weeks ... feeling dizzy
Just curious, been two weeks as of today since my surgery and I've been feeling extremely dizzy at times when I stand up.wonder if this is normal.other than that I'm feeling good. Have my follow up tomorrow I can ask the doc but has any one else felt this way after there surgery?
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Chest/Indigestion/Heartburn Pain/Discomfort
Just wondering if anyone has had any of the above since surgery? I am a year and a half out and I am starting to have discomfort after I eat like an indigestion pain. Also certain foods are making me sweat a little especially hard cheeses!!! Anyone else experiencing anything like this? Eims x