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New to this forum
I was diagnosed with prostate cancer July 2009, had a robotic radical prostatectomy Oct 2009 and spent several years on that forum. I will ill try to make a long story short. I got a campylobacter infection in mid-August that ended up leaving me severely dehydrated and in acute renal failure. 4 days in ICU and I went home.…
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Allergic Reaction to CT Scan w/ Contrast
I realize that I am not alone in feeling anxiety the closer my CT scans approach. I think it is called scanxiety! I have had several CT scans with and without contrast of the chest/abdomen/pelvic since November 2011. I am now on the 6 months apart with the last one being in September 2012. After the scan in September…
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Back and looking for advice
Well, Unfortunately I am back to ask for some advice. Last Friday after lots of tests and not feeling well my oncologist discovered a 5x3 cm mass on my hip bone that a biopsy revealed to be clear cell renal carcinoma. My nephrectomy for my stage 3 tumor was almost two years ago. I had a PET CT scan and they said it was the…
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Back to Surgeon!
Hi Everyone, Found out last week that there is a small spot on my left kidney (1.5 to 2 cm), so back to the surgeon I must go. I was kinda hoping I was all done with surgeries, and I am really hoping that this one will be ok, as I do not have anymore spare kidneys, this is my one and only. I do have some good news, I will…
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Home from hospital
Hi all. Well I'm finally home from hospital today 6 days in the hospital not what we accepted, well had the duplex done on my legs no blood clots thank god. Had the CT Scan of Kidney no nerve damage or blockage so dr.s not sure why I still can't lift my leg. But I will do PT at home see if it helps if not then will do MRI.…
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Nausea 3 weeks post surgery
Hi all, I have been reading posts for about a week but have not seen anyone say anything about nausea. I had a radical nephrectomy to remove kidney, lymph nodes, adrenal gland and 9 cm tumor. 6 days in Hospital was easy thanks to epidural; no pain until they removed it day 4 and then 1 night of bad pain. Used pain meds at…
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Starting on votrient treatment
Hi there. Tomorrow I will be starting my votrient treatment After more than a year of NED. my oncologist told me since I am at high risk of metastasis due to my tumor size of 11cm. right now, i have tumors in the lungs, nephrectomy bed and abdomen peritoneal. My dose will be 800mg daily. For those who are on votrient also,…
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1 year scans...scared
i had my one year CT scans (chest. pelvis and abdomen) on Thursday and see the doctor tomorrow morning for my results...it's going to be a long night...
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IL2 for chromophobe?
Has anyone been diagnosed with chromophobe RCC and had success with IL2? My pathology is not very clear--I've had three different pathologist look at my primary tumor and recieved three different conclusions (unidentified, clear cell, and now chromophobe). I was planning on doing IL2, but if the chromophobe diagnosis is…
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Does the nonchronological order of the posts bother anyone besides me?
I wonder if I am alone in finding it annoying that the most recent post is not always at the end of the thread. Is there something I am not aware of? Is there a setting for the format? If others feel the same way I do, does this site take suggestions for improvement? Have a great day. Annie
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What to look for
In Feb 2013, I had my right kidney and a large tumor removed. For the first year thereafter, I participated in a clinical trial which required follow up exams with my oncologist every 6 weeks and a CT scan every 4 months. With the conclusion of the test trial, I am on a cycle of 3-month visits to the oncologist and CT…
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I am cancer free
I am cancer free since 2013 and want to know if i can drink red wine?? let me know..
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Scared & Worried! :(
Hello everyone. Hope all is doing well. I'm going to try and keep my story short. It all started June 16, 2014 when my husband started having pains that folded him over! I brought him to our local ER they did a CT, & bloodwork and saw a kidney stone (2mm) in the right kidney gave him IV fluids pain meds & told us he should…
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Possible new treatment....
FYI. http://www.businessinsider.com/scientists-cancer-spread-health-research-2014-9
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Axitinib / Inlyta
Hi All.. OK, so I am creating a new topic for just those that have any info on Inlyta - Axitinib. I began Votrient in March, 2013, and stopped it due to Liver issues in July, 2013. I started the Inlyta on 9-5-13. Here it is less than two days later and my B.P. this morning was 162 / 100. I should say that I anticpated the…
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New here/ My story.
Hello everyone, in the last four weeks, i've been reading a lot of your stories on this site and it helped me lot. I feel like i know a lot of you personnaly even if we have'nt met. I'm gonna tell you a bit about me and the cancer i am now fighting. My name is Dave, 37, from a small town 45 minutes south of Quebec city,…
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Low Sodium ideas
Ever since my kidney removal on 8/11/14, my doctor has told me that I need to be on a low sodium diet. I am a salt girl and always have been. Does anyone have any ideas of how to stop these salt cravings. I am about ready to lick the salt shaker. Thank you
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ONE MORE DAY
Surgery on Thursday, Prep tomorrow oh joy.. looking forward to spending the entire day in the bathroom lol.... Getting a little nervous eveyone in my house is sick. im getting a runny nose.. been taking musinex so hopeful. it will bypass me.. argh.. anything going to go wrong Enjoy your day all.. God Bless. Madzoon
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New
Hi everyone. I'm new here. I'm a 40 year old female who just found out that I have a 3.7cm tumor in my right kidney. I have an appointment next week with a Urologic Oncologist and I will have to have either a parial or complete nephrectomy. I just wanted to know if anyone has any information about whether or not they will…
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Von Hippel Lindau
Back in October I underwent testing for VHL as recommended by a genetics counselor since both my father and I had RCC in our 40's. It took me longer than imagined to fill the little vial up with saliva as bubbles do not count. Anyway, I am happy to report that I tested negative for the disease. I have taken the time to…
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6 month scan and appt. tomorrow
Both "excited" and terrified. But, from reading others posts on theirs, I guess it's normal. Anything I should ask? Looking forward to breakfast at one of my favorite places afterward with hubby. Then the day off to do ...nothing (and I'll get a lot of that done). Have a wonderful day everyone! Wish me luck
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Stage 2a - Clear cell - Grade 3 - advice appreciated
Hi guys, John from Australia here. Long time reader first time poster. Let me first say the support and advice you guys provide to members of this forum is amazing and inspiring. At the age of 34 in 2012 I was diagnosed with RCC - clear cell in my right kidney. I had a radical nephrectomy 15th October 2012 and recovered…
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Complex Kidney Cyst
Hi I am new to this so please forgive me if I ask something crazy. I had an ultrasound done 3 months ago on my kidneys due to a 4.0 cm x 2.3 cm complext cyst being found. I was told to wait 3 months and have a repeat ultra sound and I did just in late August. The report shows the cyst is now 4.7 cm x 2.6 cm. I finally…
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Scanxiety
Hi everyone I have been lurking around this site since my diagnose september 2013. 35 yrs old male. radical nephrectomy in October 2013 pathology chromophobe rcc stage 2. 9 cm tumour I've had 2 scans all clear am due for scan in 2 weeks and scanxiety all over again just like the first time. jaay
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Kidney Masses
Last year after watching my kidney mass change shape and then suddenly grow at a rapid pace I elected to have the mass removed. It was taken from the top of my left kidney and came back as not cancerous. They told me that I shouldn't have any more masses on my left kidney. One year later I had a ct for abdomen pain and…
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Renal cell carcinoma(RCC)./Agent Orange
Lost both kidneys to RCC Right in 1998, left in 2008. still trying to get disability from the VA. Anyone know a good lawer I can call? left Vietnam in 1970. been denied three times already but I read that some of the vets are getting the diability please tell me are there special circumstances.
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Newly Diagnosed, Scheduled for surgery at USC Keck Medical Center and scared as heck
Im 44 was diagnosed with RCC in left kidney which they are having to do a Radical Nephrectomy since it is close to 7cm in size and in the center confined to the kidney inner walls. They said a partial wasn't avaiable because it was to close to the renal artery. I just want to know what to expect other than the phamplet…
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Nivolumab-Sutent Scan Update
I know I haven't posted in quite a while, but I did want to share some good news. I had a scan today and a spot that showed up in April (and triggered a Sutent re-start) is now gone. Scan showed no evidence of disease. hope it is Approved soon for all.
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Scan time again on Thursday
Hopefully, they will show the lung nodules are still stable. Have been having fairly significant coughing spells with a funny honking sound that I've never had before...hurts, too. Hopefully they can tell me why my back and left hip are so sore, along with my right collar bone and shoulder blade. Then will have U/S on…
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just had my Pre op appointment
Talked with the nurse educator she asked me what the dr said about staying out of work, i told her he said about 3 weeks. She told me that wasnt long enough, I am having a Robotic partial Nephrectomy of left Kidney, Does any one else know if I should be out of work longer than that> she said about 6 8 weeks i will start to…