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Looking for physician in Northern California
I'm from the breast and uterine cancer boards. One of my bffs was dxd with kidney cancer 5 1/4 years ago. Now there is a mass in her left lung that cannot be accessed by biopsy (thoracic surgeon tried, he could not get to it). He feels the mass is renal cancer mets, not a primary lung cancer. We will visit her local…
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Amazing comaraderie
I just want to take a moment and comment how impressive everyone is. Despite everyone experiencing life changing circumstances, the unselfish support of each other is mind blowing. At a time when being a bit ego-centric would be understandable, I have seen very few people be so. The character everyone demonstrates is…
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2 months between diagnosis and surgery...too long?
Hi all - My back doctor found a 3.9cm mass on my right kidney and the CT Scan suggested it was something to look into. Received 2 very different opinions from the urologists - one said laparoscopic and the other said it could only be done open. So I got a 3rd opinion and am going with the laparoscopic approach but now the…
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Does anyone know how to look up clinical trial results of targeted therapy drugs?
I am wondering if someone can tell me where you get this type of information for drugs that are already FDA approved and for drugs that are in trial. I'm also a bit curious (as a side note), does anyone taking these drugs have any interest in knowing this type of data? I'm on the fence about whether or not I want to know.…
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HELP I am surrounded by abbreviations!
A little poem... if it makes sense welcome to the club... not that anyone wants to join! Got RCC told by an ONC at U&E Spent some time in ER with a MD Had a MRI and a CT. No PET for me today. (Thats OK, my dog might of got jealous!) Had a RN not a PRN Told its TNM is T3B N0M0 CC RCC thats in the IVC (Try saying that fast…
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Rhabdoid RCC
Hello, April 7th my father was diagnosed with kidney cancer. Our first opinion felt surgery was out of the question, so we got a second opinion. Our second opinion was optimistic, and he was scheduled for a radical nephrectomy. The recovery after surgery was rough and he was back in and out of the hospital. Finally after…
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Stage 1 recurrence?
Just was curious if anyone on this boat had ever been diagnosed with stage 1 RCC and ever had any recurrence. I know statistics say it's very unlikely but numbers don't always tell the truth. If anyone would like to share their story I would appreciate it.
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Scan Results - Not as good as I hoped for
I know I posted last week about scan results and I didn't want to leave everyone hanging. Just got back from spending 4 days in Tampa (I am from NY) so I wanted to share the news of the scans that I received on Friday. My last scan in late February showed a stable disease, no growth, no spread. 98% of the cancer was gone…
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Scan
Scan tomorrow with dye. its been 6 months since last......Damn I hate scanaxiety ;) Hope all you motherfluffers are doing well. I took a little break from the site as we PCS'd to Alaska caught my first King fish too. Again i hope all of you are doimg well.
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WISHING YOU A HAPPY BIRTHDAY! on Sunday SINDY!
PARTY TIME !!!!!!!!!!<<blow Have a fabulicious birthday tomorrow Twinnie. Mind you don't go twisting yourself any further out of shape with any outrageous dance moves! Love and hugs:) Djinnie xx
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Another surgery on Friday
My SIXTH in less than 2 years. :( . I had a bad MRI in late April, then a benign biopsy, but my surgeon wants to remove a suspicious tumor in my chest wall. It's grown 1cm since the May 20th bio. I was shocked when on this past Wed she scheduled me 9 days hence. That is not the usual pattern of waiting forever! Backstory…
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Mixed test results
I had an CT scan (without contrast) on 5/17/14 which showed a mass on my right kidney. My doctor sent me to get a renal US. The US came back with a solid appearing object on my right kidney. Another CT scan was done, with and without contrast. The results from the radiologist said the area was too small to determine…
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A bit a bragging and proof we can come back and survive
I am 4.5 months out from an open partial. This Sunday I did my first sprint triathlon of the year and although a bit slower than last year (water choppy and it was blowing) I got 2nd in my age group. 8-). Yes there were more than 2 in my group (first question my husband asked). Thank you to all of you who gave me advice…
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Nivolumab approved in Japan
Just wanted to keep others up to date.. This has to be good news! http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/anti-pd1-opdivo-nivo-approved
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Cancer Hospital Ratings
I brought this over from another forum, but thought you may wish to see the ratings of where you are going... Ron http://health.usnews.com/best-hospitals/rankings/cancer
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Inlyta working!
I got the news from my scans today. Shrinkage is some mets and stability in others. This is especially great since I left MDA feeling hopeless 5 months ago because I was told that the FDA approved drugs don't usually work on unclassified RCC. Well take that statistics. I guess I showed you! Off to party! Kathy
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Exercise post op
I'm 55 yrs old and had a robotic partial nephrectomy on May 8, 2014. I found out that I had a mass in my left Kidney as I was training for my first triathlon. It's in late June. I was in fairly good shape going into the operation but I'm concerned that I'm not going to be able to resume training for a while. At one week…
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Nausea and Flu Like Symptoms Post Partial Nephrectomy?
I completed my scheduled surgery on Tuesday, 7/8: DaVinci Robotic Assisted Partial Left Nephrectomy for RCC. Surgery took 3 1/2 hours - as they had a hard time "turning the kidney" so that they could access the tumor. However, once that was completed the surgery was uneventful and no complications. I was discharged on Wed…
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Prayers
Dad has developed a Stage 4 pressure ulcer. He has not been able to walk since April due to sciatica from RCC. Broke both arms at hospital when he fell going to restroom.He has only took one round of Votrient. Hopefully he can start back this Wednesday when he goes back to the oncologist. Praying he will be walking soon.
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.5% chance prayers answered.
I had a followup with the urologist today. The two kidney tumors removed durging my partial nephrectomy turned out to be renal epithelial stromal tumor. Basically both were beneign as well as the two nodules removed from my left adrenal gland. I'm in the clear and will have the one year followup CT scan. The tumors were…
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Olde Timers
Just an observation.. lately I have been reading some older posts, there is a LOT of knowledge out here..! And in reading posts from up to 10 years ago.. I see some people that have not posted in a very long time. This is a concern... but then I click on their name and see that most are still here and have been on line in…
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handling post-surgery constipation
Hi all - First, thanks for your support going into my surgery. This past Monday I had a full nephrectomy - laparoscopic - and everything is great except this terrible constipation. Miralax isn't working on it and I am considering a Fleet suppository. Anyone have any advice / experience they can share? Thanks so much.
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Warm fuzzies that uplift and comfort versus knowledge that increases stress?
I've wanted to write about this topic for quite awhile. I pray that I am understood in what I am attempting to learn about myself and about others. I would appreciate some conversation regarding your personal opinion on warm fuzzies that uplift and comfort versus knowledge that may increase an individuals stress level.…
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Vacation Soon..
Hi All..! It is that time of year again.. well getting close.. Vacation time.. That is, unless my Dr visit next week turns bad.. not likely... So, I will be off to the Isle of Man.. my racer is on a ship headed that way... But, thought I would share a picture of my new rider at the TT Races from early June, 2014. Do ya…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Another scan.
Had a call from hospital last week to say Phred is having another mri this week. Don't know why. Thought it was a mistake but apparently not. Do know that for someone who is supposedly fine now he hasn't been feeling so good. Someone must have looked at his other scan and decided his pancreas is a knee or something. More…
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How long did you have blood in your urine after surgery
Hi. I figure I'd ask the compatriots here a question that has been bugging me. I'm still seeing blood in my urine and some clots 13 days after Da Vinci robotic surgery on my left kidney 70% of the kidney was left. I!m a rare case in that the 3mm kidney stone that brought this all on is still stuck in my ureter. The surgeon…
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One year check up.
X rays last week, CT-scan w/contrast this past Monday. Called the doctor's office today (Thu.) and was told that the findings were no evidence of recurring or new tumors. What good news it was. Mini celebration, went to local fireworks with brother, sister, niece and 7 month old gr.nephew. No better way to celebrate good…
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Sigh....two years post op, and swimming still hurts
I had my hand assisted laproscopic nephrectomy two years ago. Today, we were at a pool party. I went in the water to cool off...and tried a little swimming. Every movement resulted in pain where the main inscision went through the peritum. Sigh. Any excersize I try that places any stress on the abdomin results in pain. But…
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Low Vitamin D levels
I've been instructed to take a "D3" supplement of 5,000 IU/ Day - my levels are at 23 so they need to be raised. My question is - I was reading online at WebMD possible side effects and one of them has to do with the kidneys. Does anyone know anything about this or is this just an issue once levels are back up and normal…