New Around Here
Hi - I came across this forum while google searching for information on 'suspicious' nodules.
But let me back up a bit. July 17, 2013 I had a radical right nephrecomy in which a HUGE Renal Cell Carcinoma, Clear Cell was removed along with my kidney. I have a copy of the pathology report - it had over 30% central necrosis (my immune system was already working to kick its butt for years). The tumor itself was 14cmx22cm. The sample size they removed was 22cmx17x12 - something vagely huge sweet potato shaped and weighed in at over 3lbs. It was one of the largest tumors my doctor had ever seen or removed - and he's the best in this area.
No positive margins. No sign of cancer in the veins or surrounding tissue. Tumor completely encapuslated. For those who understand the pathology code: pT2b NX MX.
Strictly speaking - if it only grew the 3mm 'average' yearly, I'd had it my whole life - 40 years. My doc thinks minimum 20 maybe even 30 years. There's some comfort in that.
I've had chest xray and blood work in Feb. All Clear.
On Friday morning I just had my 1 year xray and ct scan combo with barium smoothie and intravenus contrast. My kidney doc - who's a busy busy guy - called me at 530pm on Friday. It is never a good thing when they call you same day.
Apparently I have two 'suspicious' nodules where my kidney and tumor used to live.
I feel like I've been kicked in the gut. My doc has to talk to the radiologist this week and then he'll call me about getting an MRI - perhaps in 3 months if not sooner. We're going to 'track' it. *ugh*
I've decided to name the nodules "self doubt" and "death wish" so I could work on banishing them through living extremely well and continuing to take care of myself emotionally and physically. I have an interview for graduate school on Thursday, I'm moving on with my life. This cancer thing - surgery and recovery- took months. Nearly 6 hours of anestheisa for my surgery left me feeling depressed and 'dumb' for 7 months - I couldn't even read a book because I'd forget what I read. I don't want to go through even a fraction of that again. I feel BETTER today than I've felt since I was 20! I've taken up running for the first time in my adult life. I can't imagine going back. I won't go back.
Has anyone had suspicious nodules post surgery that turned out to be nothing? That cleared up on their own? Has anyone used alternative treatments (such as juicing cannabis, just plain vegetable jucing, or acupuncture)? I live in Oregon where medicinal cannibis is legal - so I'm considering jucing (as I don't like being "high" - I don't even drink alcohol). Some people I know have talked about the Rick Simpson oil - but again - I don't like feeling 'high' and I need to function!
I already am into vegetable juicing as I need to take off some extra pounds. I read a recent study that basically says the surivial rate for people who are overweight with my type of cancer is 64% after 5 years. I think I'd rather be in the 87-97% category, so off the weight comes. They guessed it was the hormonal action of the fat that was causing the metastisis. So far I'm down 50lbs since January and have maintained the weightloss between juice fasting by eating a 95% vegan diet. I read a lot of peer-reviewed literature and studies - not popular articles but the actual science articles.
Anyway - I'd love to hear the input from anyone who's had suspicious nodes despite a 'good' prognosis and what/if anything they turned out to be and how you dealt with them. I'd also love to hear from anyone using alternative treatments to bolster their immune system/ loose weight.
Thanks so much! Happy healing to all - Aleeka
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