-
Surgery went well
Hello kidney Angels i had my laparoscopic partial surgery Monday morning. According to doctor all went well. He removed all the tumor and is very confident it has not spread to any other areas. I will get full pathology report Monday. I got home yesterday and have been pretty much sleeping the whole time. I have had quite…
-
Thyroid Issues
I have been on Votrient 800mg for the past three months and recently my bloodwork has come back showing that my thyroid is not performing the way it should. My oncologist has put me on a thyroid medicine. Has anyone else had this problem and if so did it go away after you were taken off Votrient? Thanks.
-
Pathology review - can it change?
Hi sorry for being MIA. After I finally got my good report I gave myself a break from all things RCC related to focus strictly on my kids. I hope everyone is doing well. I got a call today from Dr. Molina's office that she would like a copy of my pathology slides so they can run their own report. Has anyone had their…
-
Stage 3 Clear Cell but No Mets - Any clinical trials around?
All I can find are Everolimus and Axitinib. Anyone else doing something different? Thanks, Ken
-
Kidney Mass discovered
I'm 38 y/o female. Was in the hospital for a complex UTI that ran up into my kidney and they did a CT Scan w/ contrast on me. I was told that I have a cyst (1.2 cm) and that I should have a follow up done. Before being discharged from the hospital the Dr wanted me to get a ultrasound to get a closer look at the cyst. The…
-
Getting ready for surgery
Okay kidney Angels, I'm going in for surgery on Monday morning. I was wondering if there are questions that my husband should ask doctor before and after surgery. I know I'll be out of it but I want to be sure and cover all the facts. I'm not scheduled for follow up until August 11(doc summer vacation I'm sure) my deepest…
-
Surgery booked, now what?
Hello All, Just got my surgery date for the partial nephrectomy.Monday June 8. I am happy that I'm going to get this thing out of me. I am confident with the surgeon from what I have been researching he is quite good. I have read some of my medical records from my biospy and it says I have RCC. It's kind of hard to…
-
Do most recurrences happen in the first 2 or 3 years?
I was told by my doctor that 70% of recurrences happen by year 2 and upto 90% by year 3? Does anyone know if the majority of recurrences happen by year 2 or 3?
-
Survivors Victory Lap
Tomorrow night I will be walking the Relay for Life Cancer Survivors Victory Lap. I will be holding you all close in my heart as I walk that lap...and especially for Djinnie, Foxy and Neil. Love you guys!! Hugs Jojo
-
Update: All clear!! Well, now I get my very own scanxiety. Sigh :(
Well, I've got to go for a second mammogram. Nice. Just needed to vent where I knew I could get support. You guys get it and know how it feels. I guess they want better angles due to some assymetry. Evidently I'm very "dense" which happens in younger women. Yep, lol! I'm not going to freak out yet. Quite frankly, kidney…
-
Residual tumor left in vena cava
I had surgery for Stage 3 RCC to remove my right kidney and tumor extending into my vena cava about 8 months ago. Post surgery they immediately did a CT scan and then another in January. In April I had an MRI and it showed something that is 2cm still in my vena cava. It appears that it is residual that was left behind. I'm…
-
1 year post surgery
It's been almost a year since my left kidney was removed due to RCC stage 3. Is it normal to still have a significantly decreased energy level?
-
Big NEDs
This has been the month for Dr. appointments and tests. #1-last Oct. I had a questionable mammogram and had to return in Nov. for a mammo and US. They think it was a cyst, but had to go back early this month. No change, so return for a bi-lateral test in the fall. Breathe a sigh of relief, as I've had 2 biopsies in…
-
Benefits of being followed by a nephrologist vs. a urologist?
Hello everyone. This is my first day on the Forum and it has already helped me enormously. I learned about my 3.4' ish cm mass about two weeks ago, urologist pronounced it 99% likely to be cancer last week. I am now scheduled for surgery on June 25 (had to to get my life in order first). My urologist says he'll follow me…
-
Inlyta
Doesnt seem to agree with me over much. From what I've read some people have a bit of diahrrea that gets better. Ive been taking it for about a month and Ive got diahrrea that seems br getting worse. I've been taking immodium and Lomotil with no noticeable effect. Any advice? Is there anything else I could take? Ladies and…
-
More news from Djinnie! Good news!
Hello everyone! I was very excited to receive a really long and lovely email from Djinnie! She is now in a hospital on the coast of France. Djinnie spoke about it so eloquently, it would be silly for me to try and paraphrase it, so here is an exerpt from her email: "They are a unique hospital in every way, they work…
-
Chest X-Ray ?
Is it standard practice for surgeon to request for you to have chest X-rays before getting surgery? My husband seems to think its standard practice before any surgery as a way to check for pneumonia. I'm nervous that it's for Mets in lungs check. thanks
-
financial assistance for votrient?
It has been a long wait from my moms surgery for the report and now her 1st visit with her oncologist... Moms cancer has spread to more areas since her first diagnosis and the weeks leading up to and after her surgery. While she was in the hospital for her kidney surgery her cancer was never mentioned or aknowledged and…
-
Post nephrectomy blues
I've been thinking about this for quite awhile. I wonder if y'all can give some input. It seems that many people face their cancer diagnosis with fear, worry and then aggression. First, what a terrible diagnosis to be given. Then the worry and concern for their life and the impact on the family. Next is the I'll do…
-
Recovery time?
I was wondering what I should expect from recovery time for a laparoscopic partial renal nephrectomy? My husband will be with me the first day or two. Or should he plan on taking more time? I really want him to take more vacation time in summer when our whole family will be here for summer break. He has the time but he's…
-
Headache
okay ,have been having headaches .my question is what to take ! having one kidney ,I guess your not suppose to take certain ones .does anyone have any suggestion?
-
News about our Djinnie
Hello dear friends, I have been communicating with Djinnie since she "signed off". Unfortunately, she is going downhill very fast. My heart is breaking for all that she has endured. She is in a lot of pain, the morphine isn't doing much at all. I am hoping they advocated for different meds for her. She has asked me to let…
-
Checking in and update
Hello all. I am sorry I have not posted much, however, I am reading posts as much as possible out here. Work is hectic and I find myself exhausted by end of day with no reserves for catching up on social media. I am well, and, aside from work exhaustion, my strength is returning. I am now about 6 months out of surgery and…
-
flank pains
hi! First off I have not been diagnosed with kidney cancer, it does not run in my family and as far as I know it never has. I am a 24 year old male, healthy, eat healthy, workout regularly ECT and a week around Jan I had small amount of pain around my left rib, I wrote it off as I usually do because having sickle cell…
-
Bulge at incision
I have a bulge at incision 6 weeks after surgery. Has anyone experienced this and will it go away?
-
Lynch Syndrome
Hi all, Has anyone here had genetic testing for Lynch Syndrome? Its basically a test for colon cancer, but it can predispose you to other cancers also, so sometimes the genetic counselors recommend it to other cancer dx as well. I had breast cancer and kidney cancer and so was advised to get this test, but don't know how I…
-
FB Communication?
Was wondering what the thought was out there of starting a FB page for our group? I find that I do not log in here as much as I would like as it is a bit cumbersome and I get lost following the threads sometimes. I think a good percentage of people are on FB every day. Your feedback is appreciated!
-
WOW Did Not Expect This! :(
Hi Everyone, I went back yesterday for my two week post-op check. I have to say this round has been a little easier recovery as far as the incision is concerned. My gfr improved a tiny bit up from 39 to 43. I was then told that the tumor was not able to be classified! They are getting my slides from three years ago at…
-
Great day!
Scans today. 3 thrombus smaller. Thanks coumadin. 4 nodes smaller. Thanks votrient. Still working on correct thyroid dose but I am walking a couple miles with hills several times a week. I need an MRI in a couple weeks to check spinal canal tumor(s) but they must be improved also because so is my motor function. I don't…
-
Off for a scan in Baltimore
Wish me luck people