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Lynch Syndrome
Hi all, Has anyone here had genetic testing for Lynch Syndrome? Its basically a test for colon cancer, but it can predispose you to other cancers also, so sometimes the genetic counselors recommend it to other cancer dx as well. I had breast cancer and kidney cancer and so was advised to get this test, but don't know how I…
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FB Communication?
Was wondering what the thought was out there of starting a FB page for our group? I find that I do not log in here as much as I would like as it is a bit cumbersome and I get lost following the threads sometimes. I think a good percentage of people are on FB every day. Your feedback is appreciated!
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WOW Did Not Expect This! :(
Hi Everyone, I went back yesterday for my two week post-op check. I have to say this round has been a little easier recovery as far as the incision is concerned. My gfr improved a tiny bit up from 39 to 43. I was then told that the tumor was not able to be classified! They are getting my slides from three years ago at…
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Great day!
Scans today. 3 thrombus smaller. Thanks coumadin. 4 nodes smaller. Thanks votrient. Still working on correct thyroid dose but I am walking a couple miles with hills several times a week. I need an MRI in a couple weeks to check spinal canal tumor(s) but they must be improved also because so is my motor function. I don't…
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Off for a scan in Baltimore
Wish me luck people
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Back home from a partial nephrectomy
Just need a place to vent...I'm a lucky one, because they took out the kidney cancer yesterday through a partial nephrectomy, and I don't need chemo. I look at my 15 month old daughter so happy and playing in the hospital room, making us laugh, and it's all so surreal. 7 weeks ago I was a typical guy with a typical…
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Ok input please
So exerpt of CT scan report is shared below. The Cleveland Clinic doctor said it's too small to warrant "surgical intervention" but that's all I was told. He said if I wanted more information or was concerned to come in for an appointment - no suggestion for a follow up appointment or MRI or anything. Geez. Maybe someone…
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How you feel after?
Kidney Angels, Im just wondering, did anyone feel better after cancer removed? I Know I am extra sensitive to what's happening in my body. But part of me haas been feeling really off for about 6 months before RCC diagnosis. It's hard to put into exact symptoms but just off and something not right. So I was wondering if…
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New to Forum
I have been looking at these forums for a while now and finally decided to join. A little background on how I got here. Back in June of 2014 while at work I started to feel pain in my right flank area like I was having a kidney stone. I have had kidney stones in the past so I did not think much about it until I started…
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Inlyta
It's been 2 weeks now since I was switch to Inlyta from Sutent. I was given a single fraction of radiation for my bone mets and they increase my morphine from 15mg SR to 60mg SR twice a day....It feels great. The difference is like night and day....Before I was feeling a lot of pain but now all the pain is gone, no…
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Is it common to have kidney stones
Is it common to have kidney stones once you have had a nephrectomy? I have been having a lot of flank pain today and sharp pain either in the centre of my tummy and also towards the groin area. I tried to call the doctor today, but it was a futile attempt. It has worsened, and then it subsides. I really don't want to spend…
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husband now has possible malignant node in thyroid
Hi I've been on the kidney board since Feb when my husband had a complete kidney removed. shortly after he complained of severe neck pain. A CT Was done followed by a needle biopsy. Results were given to us yesterday. Seems there is a "Follicular Neoplsm" this means tat it may be benign but that surgical excision is…
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Had my 2nd opinion about my liver lesions and learned I'm pRCC
I met the AMAZING Dr. Molina yesterday. I LOVE her. Sorry for all the caps, but I loved her. I learned I have papillary RCC which I did not know before. She said it makes up around 10% of all RCC cases. She immediately ordered all new scans, bloodwork etc. She promised to get to the bottom of the lesion and go from there.…
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Report from my last scan MPDL3280a + Avastin trial
I was scanned Wednesday and had a meeting with the trial doctor on Thursday. Scan showed some minor shrinkage and mostly stability. There was no progression or new mets observed. I am experiencing some pretty bad pain in my left shoulder that I am scheduling for an MRI. Whatever is going on in my shoulder has caused…
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Inlyta/Axinitib
My oncologist confirmed rhat Sutent has stop working for me.....he is prescribing Inlyta/Axinitib......Anybody here on Inlyta and for how long have you been.....thanks...
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SIZE AND STAGE
Does anyone know is there a relationshp bertween size and stages? Can a 3cm be a stage 3 or 4? In a prior post I was told 3cm is very curable, but doesnt it matter what stage it is?
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What's next after Inlyta fails
I stop responding to Sutent now my oncologist is prescribing Inlyta. So what's next after Inlyta fails or stop working or If I didn't respond to it? Thanks....
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Bosniak 3 cyst
5 yrs ago a CT scan showed a Bosniak 3 cyst , an undertimined cyst with enhancement. The Urolgist after doing an MRI decided that it was a simple cyst. Last month a CT scan was done for a stomach problem and of that cyst showed again as complex cyst. Pretty much the same except it grew from 2.2 cm to 3 cm still enhancing…
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So Sorry It took to long to post! I am great!
Hi Everyone, I am so sorry it took so long to post. Surgery went well, but was quite different from last brain surgery. This one was more painful and the seizure meds were the absolute worst! It seems after brain surgery seizure meds are a must, but I can assure you those meds are worse than the surgery! It made me…
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Alternative treatments? Pain?
Has anyone ever done any alternative medicine treatments before or after surgery? I have a primary care doctor who practices both western and alternative medicine. I also have an acupuncturist that I have seen for other issues as well. I'd like to hear other peoples thoughts on this. Also I keep having this left side pain…
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renal scan to check kidney function.
Has anyone ever had a renal scan to check kidney function status? I have to have one about 2 weeks before my procedure. What should I expect? Thank you ps....does anyone ever part pics of their ct or mri scans? I can't find anything on wen that is simular. In worried about spreading. Shows it might be.
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Chromophobe and others: Study clarifies best treatments for uncommon kidney cancers
A head-to-head comparison of two biologic therapies used to treat a subset of patients with advanced kidney cancers provides much-needed clarity on the preferred treatment for the first line of attack. "We have had very little evidence to guide clinical decision-making and drug choice for patients with non-clear cell renal…
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Good news to share, nine months passed, I'm NED
I'm nine months post surgery and just received my last CT report which I had yesterday. I'm NED. That's a relief. May all who have CT in the coming days\weeks have the same NED report too. The pain in my chest isn't going away, actually it got worse and made me go to ER in the morning. I'm going to talk with a Cardiologist…
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Kidney scans
Had ct scans done last week and it was NED NED YAY!!!!!!!!!!!
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Complex Cysts in Remaining kidney
I am a 7 year kidney cancer survivor, I had a 3.2 cm mass discovered during a kidney stone attack in my right kidney. I went to 3 different surgeons to get opinions before surgery and decided to go with a surgeon that favored DaVinci Robot. My surgery went downhill afer the robot cut the artery instead of secururing it and…
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Chest pain leading to CT, Need Prayers
Hi everyone, My last Chest, Abdomen, Pelvis CT was six months ago and had Abdomen, Pelvis Ultrasound last month. I'm Stage two, Grade two and had 10cm CCRCC. The pain I'm feeling in chest since March isn't getting any better. I had chest pain for almost two weeks, right side and sometimes it grew to my back around my…
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Some positive news
hi, as I've already mentioned here, my boyfriend and I were expecting our first baby during the whole cancer ordeal. well, yesterday on 13MAY our little daughter Alice has arrived! She is fabulous, so little and so beautiful, and we are so happy ! It is the best way to celebrate life's victory over cancer! Jason, how's…
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Tons of questions; first my story
I'm 54 years old, mother of 3 adult children and Nana to 3 amazing little grandsons. Last October I felt like I was having an appenticitis so went to ER. Had CT. CT scan showed 5cm lesion on right kidney. Doctor noticed that 8 years earlier on a CT scan from an emergency gallbladder removal situation There was a 4 cm…
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beginning of journey with loved one, need some support
Hi all. My partner (healthy 36 y/o white male) was having gross hematuria (large amount of blood in urine) one week ago with no pain or any other symptoms. I took him to the ER where a CT showed a mass on his kidney. His blood work/ labs were normal. He saw a urologist this past Tuesday and the urologist said he was…
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Received news last month. Looking for input...
Hi to everyone!! I am 49 years old. I was sent for an ultrasound nov. 2013 to rule out gallbladder attack. It was ruled out. A spot was found on lower lobe right kidney but nothing of concern at that time. In March, I woke very sick one day (thought food poisoning) with some abdominal pain. Sent for another ultrasound…