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is a fever side effect contagious ?
My husband had his first Zometa iv Friday. He had fever till Saturday midnight. If you have a fever side effect from Zometa do the same rules apply about being contagious for 24 hours after a fever? 1. Can I get sick from caring for him? 2. Can a teenager get sick from being around him? 3. Can a baby or infant get sick…
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Afinitor holiday
I have been on Afinitor for two months now and up until recently I was doing pretty well with side effects. But the last week or so the fatigue had been debilitating. Just a flight of steps was making me out of breath. I have a CT scan in three weeks and first visit with my new oncologist Robert Dreicer. Called his office…
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All Done - Thanks for the Support the last 78 Days
Hi Everyone, I wanted to reach out and say thank you for the support that I received on this site as I turned here when I was diagnosed 78 days ago. What a LONG 78 days!!!! I had my surgery last Wednesday, the 24th and came home on Friday. I had a robotic partial (only removed 3% of kidney) and other than some tenderness I…
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Medical oncologist questions
Hello kidney Angels, next week I am going to see a medical oncologist who specializes in kidney cancers. He is completely outside of my surgeon and hospital. I wanted to get another view on my situation. I am stage 3 chromophobe renal cell carcinoma. I would love to have an idea of the questions and information I should be…
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Collecting Duct Carcinoma
My dear friend was recently diagnosed with Collecting Duct Carcinoma it has taken over most of one kidney can anyone advise on doctors in the Michigan Ohio area that have treated this condition? I do not know information as to what stage and specific information yet. I do realize that it is rare and aggressive any input on…
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Surgeon Recommendations Please
Hello everyone, I'm relatively new here, I posted once quite some time ago and would like to thank everyone who took the time to view and/or respond to my inquiry, this has all been so confusing and depressing to me so I sort of disappeared from life for a while. A short background: A year and a half ago I suddenly…
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Wish me luck - my procedure is tomorrow
Good evening. The day of reckoning is almost here. Wish me luck - I don't know exactly what will happen - maybe a partial, maybe total, maybe open - it really is a leap of faith to get from where I am now to moving forward and healthy. Thanks again for all of the posts - they have made a huge difference. It may be a few…
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More Frequent Scanxiety
Now that I have Stage IV, even though NED at this point, I'm now on a 3-month scan schedule. I have scans a week from Monday. No symptoms to speak of, but starting to feel the anxiety of upcoming scans to start. I think I'm starting to get addicted to anxiety. Even when I hear I'm clear, it doesn't bring much relief. I…
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post RCC surgery recovery assessment
This is going to sound stupid - but can someone tell me how they can assess if the partial nephrectomy site inside is healing? Is there any imaging that can show the healing? 1 1/2 month post surgery - and the follow up appointment is only in 6 months for a repeat CT after a post partial nephrectomy for a stage 3 contained…
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My report
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No success at getting an appointment at Sloan Kettering
I faxed my path report to the Oncologists office. I emailed my path report as well. They said he is "reviewing" it for the last 2 weeks. Secretary said he is very selective in who he will see. I have insurance. I thought it would be good to make contact in case I need surgery it is local to family. Seems to be odd an…
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Thank you all
i just wanted to thank everyone for their kind words, prayers, and support. My surgery went very well and thanks to the advice I received here I was able to handle the aftermath a little easier. I returned home yesterday and my pain is managed other than a nagging cramps feeling. This place has helped me many times in the…
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Sudden drop in blood pressure
Hi everyone I just wondered if anyone here has had sudden drop in blood pressure. I am on 800mg pazopanib which I started on 6th September 2014 my BP went sky high after a couple of months and I was put on two BP meds.. The last couple of months I have not needed two of the meds as BP went to low so have only taken one of…
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Here I go again
i have been coming here for a long long time. I have met some really great people and I just want to thank everyone for always being here because no matter how dark it may look the CSN family has always been there for me. This time tomorrow I will be wheeled into the OR for what will be my third different typefaces since…
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new
I have read this discussion board for along time and you all have been very helpful and a blessing.I had my left kidney removed Feb 2012 . 7cm tumor FG2 3/4 Rcc. 6mo.scan showed mast. both lungs. scans every 3 mo.Every scan some growth and more tumors. April 2013 IL-2 tuff treatment but very doable. No responce. I have…
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Awesome fist Votrient scan
Again, what an awesome fist Votrient scan Way back in 2011 I had an enlarged mediastinum lymph node located in the subcarinal region, EBUS biopsy was negative for malignancy. It did not change for about 3 years. After catching a cold or for some other reason it went haywire, coughing was my symptom. My cough was so bad or…
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Do you buy a "Cancer Conspiracy?"
Hey, all, Sorry for the long post, but I think it'll be worth reading and discussing: I had some thoughts that I'd like to share with you all. Some of you who belong to some of the Facebook forums may have already seen a video of a woman with metastatic breast cancer holding up cards. At the end, she proclaims that Big…
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Dealing with Dr.s
For those that don’t know my story. My husband was diagnosed with Stage 4 Kidney Cancer Advanced and Aggressive. Today he is taking 1 chemo pill for the rest of his life. He is considered stable and there are similar cases like his that have done this for 10 years and are still fine. This is just a few examples of 1 day at…
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More Lung surgeries
I have had RCC since December 2013. I have had my left kidney removed and one lung surgery. They are wanting to do two more to remove more growths. I feel that I have no guarantees that the surgeries will take it away forever and I'm not sure what to do. Is there anyone here that has had multiple surgeries?
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A Very Nasty Cancer
Hi Survivors, I had a 12cm 11cm 9cm Clear Cell RCC taken out of me with my left kidney 5 and half months ago. My staging was T3NO. Now I have some spots on my lungs 5mm (2) which are too small to call but they are new. My Specialist Urologist described my cancer as 'Very Nasty'...aggressive type....and I wander what that…
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Sharp pains one week after surgery
kidney angels, I have been experiencing some very sharp and intense flank pain. It has been a week since my partial nep. It is very uncomfortable I was just taking Tylenol for pain but had to go with the prescription. I have a call into to nurse. Anybody experience this so long after surgery? Feeling very worried and a bit…
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Big Decision Looming after scans
Yesterday Had CT of chest to monitor 2 small 5mm nodules suspicious for met. RCC after L nephrectomy 7 months ago. This time my kidney function was good so they did a contrast scan. Nods have increased by about 1.5 to 2mm in approx. 3 months. OK fair enough these nods are close together in the right lower lobe of the…
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Surgery went well
Hello kidney Angels i had my laparoscopic partial surgery Monday morning. According to doctor all went well. He removed all the tumor and is very confident it has not spread to any other areas. I will get full pathology report Monday. I got home yesterday and have been pretty much sleeping the whole time. I have had quite…
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Thyroid Issues
I have been on Votrient 800mg for the past three months and recently my bloodwork has come back showing that my thyroid is not performing the way it should. My oncologist has put me on a thyroid medicine. Has anyone else had this problem and if so did it go away after you were taken off Votrient? Thanks.
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Pathology review - can it change?
Hi sorry for being MIA. After I finally got my good report I gave myself a break from all things RCC related to focus strictly on my kids. I hope everyone is doing well. I got a call today from Dr. Molina's office that she would like a copy of my pathology slides so they can run their own report. Has anyone had their…
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Stage 3 Clear Cell but No Mets - Any clinical trials around?
All I can find are Everolimus and Axitinib. Anyone else doing something different? Thanks, Ken
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Kidney Mass discovered
I'm 38 y/o female. Was in the hospital for a complex UTI that ran up into my kidney and they did a CT Scan w/ contrast on me. I was told that I have a cyst (1.2 cm) and that I should have a follow up done. Before being discharged from the hospital the Dr wanted me to get a ultrasound to get a closer look at the cyst. The…
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Getting ready for surgery
Okay kidney Angels, I'm going in for surgery on Monday morning. I was wondering if there are questions that my husband should ask doctor before and after surgery. I know I'll be out of it but I want to be sure and cover all the facts. I'm not scheduled for follow up until August 11(doc summer vacation I'm sure) my deepest…
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Surgery booked, now what?
Hello All, Just got my surgery date for the partial nephrectomy.Monday June 8. I am happy that I'm going to get this thing out of me. I am confident with the surgeon from what I have been researching he is quite good. I have read some of my medical records from my biospy and it says I have RCC. It's kind of hard to…
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Do most recurrences happen in the first 2 or 3 years?
I was told by my doctor that 70% of recurrences happen by year 2 and upto 90% by year 3? Does anyone know if the majority of recurrences happen by year 2 or 3?