News about our Djinnie

Jojo61
Jojo61 Member Posts: 1,309 Member
in Kidney Cancer #1

Hello dear friends,

I have been communicating with Djinnie since she "signed off". Unfortunately, she is going downhill very fast. My heart is breaking for all that she has endured. She is in a lot of pain, the morphine isn't doing much at all. I am hoping they advocated for different meds for her. She has asked me to let you know....the following is a quote from Djinnie:

"Sadly I have taken several turns for the worst, in fact I am struggling to write. I am very likely to end up in hospital because the pain is excruciating, I find it difficult,  I can't eat any more and bodily functions are shutting down. I would appreciate you telling the others as I don't have the energy.  I will try and stay in touch with you,you are a good friend."

I know that everyone here has a special place in their heart for that special lady. Our thoughts and prayers will all be going out to her and her family. I hope she doesn't have to endure much more pain. This is a horrific disease.

If I hear any more, I will definitely let you know.

Much love and hugs,

Jojo

 

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Comments

  • Allochka
    Allochka Member Posts: 1,072 Member
    #2
    I'm at loss of words...
    thank

    I'm at loss of words...

    thank you for letting us know

  • APny
    APny Member Posts: 1,995 Member
    #3
    Allochka said:

    I'm at loss of words...
    thank

    I'm at loss of words...

    thank you for letting us know

    My heart is breaking as well.

    My heart is breaking as well. This is just awful. She's a very special lady and I can't stand the thought of her suffering like this. I hate this %$#@ disease!

  • RMolinaro414
    RMolinaro414 Member Posts: 43
    #4
    Thanks for the update

    This is heartbreaking. I haven't been heavily involved with her story, but I read a ton of her post. I am praying they can find some relief for her pain. My heart goes out to her

  • Srashedb
    Srashedb Member Posts: 482 Member
    #5
    Thank you

    JoJo:

    thank you for posting this; I too had been communicating privately with her but had not for a couple of weeks and was concerned about bothering her.

    She is a very special lady and it hurts to learn that she is having so much pain.

    if you hear anything more, please let her know that she is in my thoughts.

    i dread signing on and seeing a post with her name just as much as I had been delighted to hear from her before this latest turn.

    Thank you, JoJo 

    Sarah

  • a_oaklee
    a_oaklee Member Posts: 566 Member
    #6
    prayers

    Thankyou jojo.  Please tell djinnie we are with her in spirit.  My heart aches.

    Annie

  • angelsnls
    angelsnls Member Posts: 67
    #7
    SO SAD

    So sad reading this she is a very special lady, please send her all my love, this is a horrible desease,

    Sending prayers, love, hugs and kisses.

    Angela xx

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #8
    Srashedb said:

    Thank you

    JoJo:

    thank you for posting this; I too had been communicating privately with her but had not for a couple of weeks and was concerned about bothering her.

    She is a very special lady and it hurts to learn that she is having so much pain.

    if you hear anything more, please let her know that she is in my thoughts.

    i dread signing on and seeing a post with her name just as much as I had been delighted to hear from her before this latest turn.

    Thank you, JoJo 

    Sarah

    OH dear, how sweet of HER to

    OH dear, how sweet of HER to think of US! Thank you so much, JoJo, for relaying her message to us.

    I wonder if she is truly in hospice care. Hospice RNs are trained in knowing how to administer pain meds, in levels most MDs RNs cannot for home and hospital care. Hospice even knows how to read a patient's level of comfort when they can no longer tell you. Even I learned how to tell our RNs a patient was in distress when the Hospital medical team thought they were "fine."

    A good hospice  eventually provides IV Pain med PUMP that computerizes the amount used and times patient or family pushes the boulus (button) for extra relief. That way you get continuous pan adminitstered and doses/amounts adjusted continually when needed. Morhine helps also to keep the airways open at that latter stage of dying. Weird because opiates suppress respiration when not dying.

    Some  hospices do not provide this IV pump inside the home, but the one I worked for did. So, if you are in more pain, inspite of the pump, the Hospice RNs would come out to re-calulate on a DAILY basis,  if not hourly, so you'd never have to suffer. Of course if you are lucky enough to get into a residential hospice, they staff is right there.

    Again, you need an MD to order Hospice care for a patient, even if in a hospital or residential setting.

    The Hospice I worked for required daily RN home visits, once a IV pump was placed. The RNs were available 24/7 even during the night just to make sure the patient is not suffering. They also offer emotional support for the family with help and instructions and assisitance.

    This is why we need to advocate for Death with Dignity laws here in USA (DJinnie is in France). That way she could decide when she feels enough is enough, and wishes to go peacefully without suffering. Again, this would be HER decision.

    My heart is so heavy, no one should suffer like she has..is..

    I continue to send my spirit of love, forgiveness,

    and hope that she will have the peace she so well deserves..

    Soon.. DJinnie soon..

    Even though many miles separate us..

    we are connected..

    Heart to heart...

    Spirit.. to spirit..

    Love with lovely love...

    May you know how much I love you!!

    Thanks again, JoJo..

    Hugs to us all!!!

    Jan

     

  • Dave418
    Dave418 Member Posts: 95 Member
    #9
    Sad news...Hope they can keep

    Sad news...Hope they can keep her painfree, at least...

  • DSFrey
    DSFrey Member Posts: 69
    #10
    Thank you JoJo. Wish I could

    Thank you JoJo. Wish I could return the comforting words and advice she shared with me when I needed it. Thank you Djinnie!!

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #11
    Oh Djinnie

    We are all thinking of you and wishing you the best in our own ways. Should you look in know that we hold you in our hearts. 

    Thank you Jojo, for keeping us informed

  • foxhd
    foxhd Member Posts: 3,181 Member
    #12
    Footstomper said:

    Oh Djinnie

    We are all thinking of you and wishing you the best in our own ways. Should you look in know that we hold you in our hearts. 

    Thank you Jojo, for keeping us informed

    DJ

    Thanks Jojo. DJ, I am pulling real hard for you. We will see you again.

  • Positive_Mental_Attitude
    Positive_Mental_Attitude Member Posts: 454
    #13
    Djinnie, I am hoping for the

    Djinnie, I am hoping for the best for you.  Keep fighting, and don't give up. 

  • Phredswife
    Phredswife Member Posts: 162
    #14
    Thankyou Jojo. It is good to

    Thankyou Jojo. It is good to know how she is doing even though it is not good news. She is a dear, sweet lady and I will be praying for her and her family.

    Hugs to you too! Melissa xox

  • Billy's Wife
    Billy's Wife Member Posts: 52
    #15
    Djinnie,
    You are so very

    Djinnie,

    You are so very loved and appreciated for how you give of yourself, always.

    I'm sending prayers, hugs and wishes for peace of mind, body and soul to you.

    Arleen

    Jojo - You're a pretty special lady too!

  • BDS
    BDS Member Posts: 172
    #16
    our Djinnie

     

    So, so sad but thank you or for keeping us posted. I hope she doesn't have to endure much more. Sometimes life is just not SO good- BDS

     

  • myoung790
    myoung790 Member Posts: 75
    #17
    Thank you for the update.  I

    Thank you for the update.  I too hope she can find some comfort.

  • todd121
    todd121 Member Posts: 1,448 Member
    #18
    Thanks

    Appreciate your post. I'm really sad to hear she's struggling with so much pain. I hope they can get it under control.

    Djinnie, we're pulling for you.

    Wishing you the best.

    Hugs,

    Todd

  • Suekub
    Suekub Member Posts: 137
    #19
    todd121 said:

    Thanks

    Appreciate your post. I'm really sad to hear she's struggling with so much pain. I hope they can get it under control.

    Djinnie, we're pulling for you.

    Wishing you the best.

    Hugs,

    Todd

    Djinnie

    I, too, have been in contact with Djinnie and last heard from her a few days ago. It appears her health has certainly regressed since her last message to me. As always she was wishing me the best and being the wonderful person she is. It is at times like this I find it very difficult to know what to say. 

    Sue

     

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #20
    Suekub said:

    Djinnie

    I, too, have been in contact with Djinnie and last heard from her a few days ago. It appears her health has certainly regressed since her last message to me. As always she was wishing me the best and being the wonderful person she is. It is at times like this I find it very difficult to know what to say. 

    Sue

     

    Sue!
     
    We haven't seen you

    Sue!

     

    We haven't seen you much around here these days. How are you doing?

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #21
    Jojo61 said:

    Sue!
     
    We haven't seen you

    Sue!

     

    We haven't seen you much around here these days. How are you doing?

    Jojo

    Thank you for updating us.  I know you will make her aware of how much everyone cares.  I am so angry they aren't managing her pain.

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