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Kidney Cancer

Good news to share, nine months passed, I'm NED
I'm nine months post surgery and just received my last CT report which I had yesterday. I'm NED. That's a relief. May all who have CT in the coming days\weeks have the same NED report too. The pain in my chest isn't going away, actually it got worse and made me go to ER in the morning. I'm going to talk with a Cardiologist…
Kidney scans
Had ct scans done last week and it was NED NED YAY!!!!!!!!!!!
Complex Cysts in Remaining kidney
I am a 7 year kidney cancer survivor, I had a 3.2 cm mass discovered during a kidney stone attack in my right kidney. I went to 3 different surgeons to get opinions before surgery and decided to go with a surgeon that favored DaVinci Robot. My surgery went downhill afer the robot cut the artery instead of secururing it and…
Chest pain leading to CT, Need Prayers
Hi everyone, My last Chest, Abdomen, Pelvis CT was six months ago and had Abdomen, Pelvis Ultrasound last month. I'm Stage two, Grade two and had 10cm CCRCC. The pain I'm feeling in chest since March isn't getting any better. I had chest pain for almost two weeks, right side and sometimes it grew to my back around my…
Some positive news
hi, as I've already mentioned here, my boyfriend and I were expecting our first baby during the whole cancer ordeal. well, yesterday on 13MAY our little daughter Alice has arrived! She is fabulous, so little and so beautiful, and we are so happy ! It is the best way to celebrate life's victory over cancer! Jason, how's…
Tons of questions; first my story
I'm 54 years old, mother of 3 adult children and Nana to 3 amazing little grandsons. Last October I felt like I was having an appenticitis so went to ER. Had CT. CT scan showed 5cm lesion on right kidney. Doctor noticed that 8 years earlier on a CT scan from an emergency gallbladder removal situation There was a 4 cm…
beginning of journey with loved one, need some support
Hi all. My partner (healthy 36 y/o white male) was having gross hematuria (large amount of blood in urine) one week ago with no pain or any other symptoms. I took him to the ER where a CT showed a mass on his kidney. His blood work/ labs were normal. He saw a urologist this past Tuesday and the urologist said he was…
Received news last month. Looking for input...
Hi to everyone!! I am 49 years old. I was sent for an ultrasound nov. 2013 to rule out gallbladder attack. It was ruled out. A spot was found on lower lobe right kidney but nothing of concern at that time. In March, I woke very sick one day (thought food poisoning) with some abdominal pain. Sent for another ultrasound…
Thank You for All the Support
Hi Everyone, Thank you for all the support you showed me the day I wrote in stating they had found a mass on my kidney. As Footstomper said, once you start dealing with your doctors it will be less scary. For a bit, I could not read this site as I was so overwhelmed. Last week, I finally met with my…
Texas Wedge and GSR Ron
I've been thinking of our dear, departed Texas and GSR Ron all morning. I wonder how many post a few times and slip off and we don't even know they've left us? I sure do miss posts from those guys. Todd
Bone mets in knees or feet?
When they do our scans, they stop mid thigh. Does anybody know if it's possible to get mets in your feet or knees? I've had worsening pain in the large joint in my right foot for over a year. Starting yesterday, I started getting terrible pain in my right knee also. The pain was bad enough to keep me awake. I didn't injure…
anti inflammatories
Hi all - First, I send postive vibes and thoughts to all who are out here...if you are here, you got "some stuff" going on"! I am almost a year out from full nephrectomy of my right kidney and adrenal gland. My first CT Scan was negative - though I had a small cyst on my pancreas - apparently it was there all along so…
anti inflammatories
Hi all - First, I send postive vibes and thoughts to all who are out here...if you are here, you got "some stuff" going on"! I am almost a year out from full nephrectomy of my right kidney and adrenal gland. My first CT Scan was negative - though I had a small cyst on my pancreas - apparently it was there all along so…
Sutent and Clinical Trial Update
It has been a long time since I last posted. I had decided that after all of the issues I had with my clinical trial:7 hospital stays, loss of my thyroid, rod in arm due to bone cancer, and the loss of my adrenal glands that I would hold off with the bad news and wait till I had something positive to write about. Well that…
Afinitor rash
I have been on Afinitor for three weeks now. Saw the doc last week to check blood, etc. and reported very mild SE's. But two days later both arms developed a rash. Anyone dealt with this before? Anything help? Cortisone cream, topical Benadryl, etc?
Anyone with a Kidney Transplant (other than me) here?
I have a 5 by 5.2 cm mass in the central part of my one and only kidney, am awaiting my second biopsy this month (first one inconclusive), and am terrified. Any tips?
Neil ? Whats up with that tongue Jason
Have not seen any posts or responses from Neil anyone know anything?
GOOD NEWS: NED
I remain NED, but this time with a caveat. I do have something growing -- a few items, but it might be an artifact of changing from MRI to CT, said the Dr. One lymph node has grown over a year from .8 to 1.1 cm; Dr says we won't worry about it until it is bigger, as there are many reasons why it can be 1.1 cm...at 1.5 cm,…
NED @ almost 3 years
Just had xray, bloodwork at 2.7 months, post full neph. eGRF 1.23 NED. God Bless!
Anesthesia
I met with my anesthesiologist today. He asked if I would I would like epidural or a spinal anesthesia to control pain along with general anesthesia or general anesthesia alone. I asked him what he thought was best. He said he had reviewed my recent CT scans and would go with a spinal over an epidural (with general…
IVC invasion
Hi everyone does anyone know anything about IVC invasion has this happened to you if so what treatments are available for this Many thanks for any advice Angela
New Kid in Town -First Post-
Hi everyone! I stumbled across this board on Google and decided to join. I underwent a right partial nephrectomy in July at Duke University, followed by a diagnosis of clear cell renal cell carcinoma. I'm my doctor's youngest patient to date at 30 years old. My mass was an incidental find on a CT, 3 weeks after having my…
How about a thread for people not recently diagnosed?
This forum has helped so many new people learn information, make decisions, and cope because of the support of others. Anyone who has been here has benefit from this network. Newer people have reached out to each other and found they aren't alone. But I was thinking, there are a ton of us at stage 3 or 4, who have been…
Renal Cell Cancer Survivor and Votrient Side Affects
I am an USAF retiree. I retired from active duty in 1990. During the Christmas Holidays of 2007, the onset of RCC or Kidney Cancer occurred out of the clear blue sky. My 'About Me" page has more information about this. Since the day of diagnosis, I have survived RCC three times. I am now on an 800mg Votrient regiment daily…
Burst blood vessel in the eye (subjunctival hemorrhage)
I've been getting these a lot since my kidney was removed. Even more in the past 6 months. May be random, and nothing to do with my lack of kidney and adrenal gland or cancer, but I was wondering if anybody else has experienced these? The most recent one has lasted almost 2 weeks and was really quite awful. It actually…
We have another NED!
I got the all clear! I cannot believe the relief I felt. The doctor told me we can move to scans once a year. I quietly said no. He said "no problem". I am not even 18 months out of surgery - and stage 3. He was great though. I had a few questions written out and I could barely stammer the words. I finally got one question…
Back to Surgery!
Hi Everyone, I had scans on March 27 and CT scan for neck, lungs, and pelvic came back with no change and everything was great. But MRI for the brain, not so good, I have another tumor, so back to surgery I go. I will let everyone know when I get my surgery date, should be within the next 2 weeks. Things are not to bad, I…
Metastatic renal cell carcinoma. Mets in lung
Hello friends- M 68 Years old and new to this forum, I was diagnosed with stage four disease in jan 2014, whic revealed mets rcc in left kidney and mets in lung. Undergone nephrectomy in feb 2014 was is hospital for week. In march i started 25 Mg sutent dose. Side effects were mild and bearable. Did my 1st pet scan post…
Scans Brought Forward/headaches
Was due to have scans in 2 months time for checks of 2 x 5mm nods on my right lung but met my Oncologist for the first time last week who has advised I have scans next week. Confirmation of growth and still 2 nods means possible resection and no meds at this time. If there are more nodes, depending how many still possible…
Boston Marathon
I just got back from running the Boston Marathon on Monday -- an amazing experience. It's been a little over 10 months from my partial neph that was done in May 2014. Although I fell short of my goal time I was only 3 minutes off qualifying to do it again next year. It was my 2nd marathon since the surgery and I finally…

Kidney Cancer

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