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Question about Second Opinions and Insurance.
Hi Everyone So as I posted in another thread my right kidney has a complex cyst with septation measuring 3.2cm X 2.9cm and a second cyst measuring 3.5cm X 2.3cm, not sure if this second cyst is complex with septation. Also my left kidney has an inferior cyst measuring 2.9cm X 2.2cm. My initial urologist appt. is scheduled…
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For the first time... Scanxiety?
Hey, all, So I just set up all my appointments for my one-year scan coming up in September. Have to get a renal ultrasound, a chest x-ray and a basic metabolic panel... The x-ray is new; he didn't order one at the 6 month follow up. The last time I can't say that I had the dreaded "scanxiety," but something weird happened…
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Scan Frequency Post Partial Nephrectomy for Low Risk Patients?
I had a partial in July 2014. I was in the low risk group. I had scans at 6 months and 1 year, both clear. My next appointment is 1 year from now. I thought I would get scanned every 6 months for 3 years. But the guidelines from the American Urological Association say: "Abdominal imaging (US, CT, or MRI) may be performed…
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Metal taste in mouth
This is my 2 nd round with Kidney cancer. I found something that works with metal mouth & is even good for diabetics. Its a plant called Miracle Fruit ( a friend bought me a plant as a gift). It has little red berrys that you eat. It takes away metal mouth & makes every thing taste sweet. I pick the berrys when they are…
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29yo 3cm mass on left kidney
Hello all, I recently had a CT scan to rule out some other issues and they discovered a 3cm mass on my left kidney... I was promptly sent to a urologist who was talking with me about masses prior to looking at the ct basically there are basically 2 types cystic which are always benign and then those that are almost always…
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Got mri results back
I'm in the process of getting all my tests in order before surgry although I have yet to pick a surgeon it's such a big decision. My mass is a complex enhancing mass multicustic/multiseptated appreence thick peripheral wall and septa... My spleen in also enlarging. Is that common? Can anyone make since of this for me.…
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Fatigue
My husband has stage 4 kidney cancer and is on 800mg of votrient daily. It seems to be working as the last scan showed the tumors were breaking up. His problem is extreme fatigue. He's on oxygen daily which is a result of his lung biopsy and removal of 3 lesions in February, 2015 (right nephrectomy oct 2014) He just can't…
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Not eligible for trial - now starting Votrient
It's been a couple of months since I posted and the time has been spent having every imaginable test to see if I might be eligible for the Niviolumab/Ipilimumab versus Sutent trial starting here in Melbourne, It was only a 50/50 chance I would get the Niv/Ipi combination and in the end my kidney function was found to be…
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I'm new to this and have some ?
I was just diagnosed with stage 1 kidney cancer. I'm going through some test already had a cat scan and they found 1 1/2 inch mass on lower front Right kidney. I'm 32 yr d female and I have 2 young kids. I am scared and nervous beyond belief. Went to urologist today and they are sending me for Mir tomorrow and to check my…
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small tumor with sarcomatoid features
I was recently diagnosed with a localized 1.8 cm rcc and had a successful partial nephrectomy. The lab report indicated the tumor had clear margins and a prognostic biomarker, IMP3, was negative, indicating it was not likely to metastacize. Such factors are very encouraging, to say the least! However, it was also analyzed…
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Votrient working wonders in only 2 months
I had my 1st CT scan after being on Votrient for only 8 weeks. It was VERY good. On 400 mg a day. My nodules in kidney, liver and both lungs have either disappeared or shrunk. Some as much as 50%! No new spots. Side effects minimal. High blood pressure in first week but lowered dose from 800mg to 400 mg and now under…
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Hello
Found this forum a few days ago. Thanks for all the great information. Me, My name is Mark. 50 years old. The doctors found 11cm RCC tumor on My right Kidney in Jan 2015. Removed same month. Recovered great and feeling good. No meds, as of yet. Surrounding tissue and lymph nodes where clear but did have what they call…
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Questions, confused, and anxious...
My kidneys have been checked via ultrasound every 6 months for the last 2 years (an emergency Appendectomy 2 summers ago revealed cysts.) I have bilateral complex cysts that are growing (but slowly). I just had another renal ultrasound and the report reads that I have a new "superior" cyst on my rt kidney and multiple new…
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Scan day-NED
my excitement about sharing my scan results took a slap in the face when I read about Neil. It is a harsh reminder that we are up against an ugly disease. I will always be grateful for his support and nutrition expertise. His knowledge is almost irreplaceable. Be well all, my prayers are with Neil's family tonight first,…
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New Member with Kidney Cyst's
Hello to everyone, I am 57 years old male. 14 days ago I started not feeling well and had a med amount of pain around my right back rib area along with low-grade fever. I went to the doctor and she ordered a battery of tests along with an abdominal ultrasound. I was called back into the office a couple of days ago so the…
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I have cancer and it sucks
Hello all, Just feeling a bit anxious and need to vent here a bit. Tomorrow I go into oncologist to find out the results of all my scans he wanted. As you know I am stage 3 chromophobe. I have so much anxiety thinking about tomorrow. Ive always though of myself as a optimistic person but since this cancer diagnosis I am…
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Switching from Votrient to Axtinib
I have been on Votrient since 3/1/2013 to treat RCC on right and left kidney plus lesions on my pancreas. The Votrient reduced the tumors on both kidneys and on my pancreas in the first two or three months of treatment and then I held steady until this Summer. After my last MRI the lesions on my pancreas increased enough…
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squamous cell carcinoma of the kidney
My family member has recently been diagnosed with squamous cell carcinoma of the kidney. His kidney was removed after a long standing history of kidney stones, and since, a large tumor grew in its place and has also been removed. He will be receiving chemotherapy. Does anyone know any other option for treatment ?
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Why me?
Why me? When I was diagnosed with Stage 4 last year I was also asking the same question to God. My kids are still young. My eldest is only 21 and my youngest is only 19. I am only 43 and my wife is only 41. They still need me. If not because of them I should be fine because after all the sufferings I will rest in peace.…
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Painful Ribs - Met to Ribs Question for those with experience
Hi everone. Sorry I've been AWOL. :) Work has been crazy and I've had very little me time. I just had a CT scan (no contrast) of chest/abdomen/pelvis about a month ago that was all clear. I've developed a very sore spot in the middle of my right rib cage. It feels like I bruised it. I mean it doesn't hurt unless I push on…
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Anybody hear anything about Djinnie?
The last time I heard from Djinnie was June 17th. She wrote me that they didn't find a brain tumor - they did several tests to make sure - and that she was returning home from hospital the next day. I have heard nothing more, and I have emailed her several times. If anyone has heard from her since June 17th, please post.…
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Has anyone had Stereotactic radiosurgery??
Going to have my left kidney removed Thursday. They found some spots on my lungs and said I might have to have Stereotactic radiosurgery. That is when they pin point the cancer in the lungs and treat it with high, exact does of radiation. Has anyone had this type of therapy before? Thanks kathyStereotactic radiosurgery???
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End of Days Decisions
I met with my doctor today and we had a talk about the end time. I am not nearly there yet, but after reading an article the other day that was posted earlier this week stating people with advanced RCC rarely make it to five years 12 percent I believe was the number. It got me to thinking since I am now one year with stage…
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"Summer of Fox"
I'm exhausted. I need time off. June was so much fun. I did everything on my list. Strength is still improving. Riding my Harley has returned to second nature. Golfing as well as I have in years. Most of my guitar playing has returned. Blood work is good. Mri's and scans will be in August. But I won't worry because if they…
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Alternative Medicine
Has anyone with advanced RCC that has spread to the lungs turned to alternative medicine? If so what, where and did it worK? THANK YOU IN ADVANCE!
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Scan effects?
Okay guys, has anyone ever experienced side effects from ct scans with contrast? I had a lung ct scan with contrast on Thursday and started getting headache, dizzy lightheaded and a bit nauseous. Immediatly my mind goes to brain mets etc. I'm going to have more scans in the coming weeks so I'm a bit anxious about side…
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Follow up MRI Report
So I initially posted that they found a kidney mass (small 1.1 x .5) which showed "probable enhancment". I was told to get a f/u MRI in three months to see if the mass grew at all, because the radiologist & urologist couldn't guarantee that it was maligant. Had my f/u MRI on 7/21 and I got a hold of the report. I don't…
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Thirteen Years NED
Reflections of my journey . Six days from today I will be 72 years young. Ten days later I will be a lucky 13 years NED. Back in 2002 I was a clueless newbie trying to learn my way around the bases. It started by doing some heavy yard work that spring and then peeing red. My GP thought I just broke a blood vessel, but sent…
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12 Years Behind icemantoo But I Will Take It
A man walks into a hospital, sits down in the examination room, and walks out with a new friend--NED! One year checkup today, and all clear. I feel a little silly posting because I had a small 2.9 cm tumor. But I want the newbies to see that things can turn out great. I was initially told I would need a radical nephrectomy…
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Confused about the staging & stress for the path results tomorrow.....
Hi there, As I told before, my partner had a radical nefrectomy (left) one month ago. One lymph node was clearly swollen on the scan, and also the blood vessels surrounding the kidney marked positive on the contrast. They removed the kidney, the adrenal gland, and the lymph nodes and blood vessels. They called that a stage…