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Kidney Cancer

Headaches on Votrient
Just wondering, has anyone had really bad headaches while on Votrient? I just started my third month on Votrient and I have had bad headaches for like a day and a half. I take tylenol but that does not seem to do much. I am just curious if someone else has had them and has come up with anything good to combat them. Thanks.
Carcinoma in kidney to pancreas
I was wonder if ccrc can go to your pancreas . I had my left kidney removed 7mos ago.Had set of scans done the end of March . Having pain on rightside , went to GI doctor had scan and they found a cyst in my pancreas . Have to go for an endo/eus now . They are still watching a nodule on my lung . But can carcinoma go to…
Pass the Laudanum my dear!
Grade 4 Stage 4. Had IL2, Sutent and now Inylta. Lost a kidney 2 years ago. My big problem, as I may have mentioned, is diarrhea. Immodium doesn't stop it. Immodium and Lomotil don't stop it. My onc prescribed Tincture of Opium (or Laudanum as the Romantics called it) 10%, 0.6 up to 4x daily. I can't take that much it…
the last 4 months....
As regulars here know, I've had my share of issues. I may never win the war but I win alot of battles. Delaying the inevitable is not a bad game plan. We can only benefit from the latest treatments if we are still alive as they become available. Since my diagnosis, I've had my nephrectomy, nivolumab trial, Il-2, radiation,…
Extra stressful time, anxious
I had an open radical nephrectomy in May of 2013 and have a routine check up next month. Ultrasound and chest xray. However other problems have been cropping up which have put me into a bit of a panic mode. I have been having issues with an ear infection that seemed to clear up after a course of antibiotics but since this…
Please wish us some luck
Today my partner has started Hepatitis C treatment. As I've mentioned, hep C investigations led to kidney cancer discovery, so to certain extent we are thankful to this virus. As my partner jokes, it feels like a divorce. Many years lived together with virus, some good memories (life-saving cancer discovery), but it is…
2 years ago
two years ago today, my husband came home from a visit with his GP; after a year of complaining of pain in his hip, he had finally demanded an MRI for what he thought might be a hip replacement. he simply said "so, it seems I have a mass on my right kidney and tumors in my spine"; to say the world flipped is an…
Still kind of tired
Hi guys, i had my partial nephrectomy surgery June 8 and I still am feeling tired a lot. I've been anemic years ago and so it kind of feels like that. I also am still have some pain when taking deep breaths. My acupuncturits thinks it my diaphram. Im feeling a bit discouraged because I was hoping to feel a lot better at…
The Path Report is in
Thank goodness for electronic medical records. I got the path report today - both intraoperative and post operative. Drum roll, please. 3 CM CLEAR CELL RENAL CELL CARCINOMA, FUHRMAN NUCLEAR GRADE 1, FOCALLY PRESENT AT PARENCHYMAL RESECTION MARGIN (pT1aNxMx). Based on what I have read on on the ACS website and learned from…
Lung Biopsy A Typical
So I have 2 x nodules grown to 7mm and 8mm in the last 3 months on my right lung (from 5mm), watching them carefully. However the scan showed that my Hilar lymph node in my lung was enlarged and v suspicious as in reasonable proximity to the nodules. Biopsy bronchostomy a week ago of the Hilar shows A typical…
Renal cell turned out to be inflammation (Possible?)
I went in on monday for a partical nephrectomy lower lobe. Surgery was about 3-4 hours. When I woke, I was told that they couldn't identifiy the actual mass (which was on the ultrasound, CT & MRI). They took 2 biopsy's and the pathologist advised it was not cancer, it was inflammation. I then asked about the 2-3 cysts in…
is a fever side effect contagious ?
My husband had his first Zometa iv Friday. He had fever till Saturday midnight. If you have a fever side effect from Zometa do the same rules apply about being contagious for 24 hours after a fever? 1. Can I get sick from caring for him? 2. Can a teenager get sick from being around him? 3. Can a baby or infant get sick…
Afinitor holiday
I have been on Afinitor for two months now and up until recently I was doing pretty well with side effects. But the last week or so the fatigue had been debilitating. Just a flight of steps was making me out of breath. I have a CT scan in three weeks and first visit with my new oncologist Robert Dreicer. Called his office…
All Done - Thanks for the Support the last 78 Days
Hi Everyone, I wanted to reach out and say thank you for the support that I received on this site as I turned here when I was diagnosed 78 days ago. What a LONG 78 days!!!! I had my surgery last Wednesday, the 24th and came home on Friday. I had a robotic partial (only removed 3% of kidney) and other than some tenderness I…
Medical oncologist questions
Hello kidney Angels, next week I am going to see a medical oncologist who specializes in kidney cancers. He is completely outside of my surgeon and hospital. I wanted to get another view on my situation. I am stage 3 chromophobe renal cell carcinoma. I would love to have an idea of the questions and information I should be…
Collecting Duct Carcinoma
My dear friend was recently diagnosed with Collecting Duct Carcinoma it has taken over most of one kidney can anyone advise on doctors in the Michigan Ohio area that have treated this condition? I do not know information as to what stage and specific information yet. I do realize that it is rare and aggressive any input on…
Surgeon Recommendations Please
Hello everyone, I'm relatively new here, I posted once quite some time ago and would like to thank everyone who took the time to view and/or respond to my inquiry, this has all been so confusing and depressing to me so I sort of disappeared from life for a while. A short background: A year and a half ago I suddenly…
Wish me luck - my procedure is tomorrow
Good evening. The day of reckoning is almost here. Wish me luck - I don't know exactly what will happen - maybe a partial, maybe total, maybe open - it really is a leap of faith to get from where I am now to moving forward and healthy. Thanks again for all of the posts - they have made a huge difference. It may be a few…
More Frequent Scanxiety
Now that I have Stage IV, even though NED at this point, I'm now on a 3-month scan schedule. I have scans a week from Monday. No symptoms to speak of, but starting to feel the anxiety of upcoming scans to start. I think I'm starting to get addicted to anxiety. Even when I hear I'm clear, it doesn't bring much relief. I…
post RCC surgery recovery assessment
This is going to sound stupid - but can someone tell me how they can assess if the partial nephrectomy site inside is healing? Is there any imaging that can show the healing? 1 1/2 month post surgery - and the follow up appointment is only in 6 months for a repeat CT after a post partial nephrectomy for a stage 3 contained…
My report
No success at getting an appointment at Sloan Kettering
I faxed my path report to the Oncologists office. I emailed my path report as well. They said he is "reviewing" it for the last 2 weeks. Secretary said he is very selective in who he will see. I have insurance. I thought it would be good to make contact in case I need surgery it is local to family. Seems to be odd an…
Thank you all
i just wanted to thank everyone for their kind words, prayers, and support. My surgery went very well and thanks to the advice I received here I was able to handle the aftermath a little easier. I returned home yesterday and my pain is managed other than a nagging cramps feeling. This place has helped me many times in the…
Sudden drop in blood pressure
Hi everyone I just wondered if anyone here has had sudden drop in blood pressure. I am on 800mg pazopanib which I started on 6th September 2014 my BP went sky high after a couple of months and I was put on two BP meds.. The last couple of months I have not needed two of the meds as BP went to low so have only taken one of…
Here I go again
i have been coming here for a long long time. I have met some really great people and I just want to thank everyone for always being here because no matter how dark it may look the CSN family has always been there for me. This time tomorrow I will be wheeled into the OR for what will be my third different typefaces since…
new
I have read this discussion board for along time and you all have been very helpful and a blessing.I had my left kidney removed Feb 2012 . 7cm tumor FG2 3/4 Rcc. 6mo.scan showed mast. both lungs. scans every 3 mo.Every scan some growth and more tumors. April 2013 IL-2 tuff treatment but very doable. No responce. I have…
Awesome fist Votrient scan
Again, what an awesome fist Votrient scan Way back in 2011 I had an enlarged mediastinum lymph node located in the subcarinal region, EBUS biopsy was negative for malignancy. It did not change for about 3 years. After catching a cold or for some other reason it went haywire, coughing was my symptom. My cough was so bad or…
Do you buy a "Cancer Conspiracy?"
Hey, all, Sorry for the long post, but I think it'll be worth reading and discussing: I had some thoughts that I'd like to share with you all. Some of you who belong to some of the Facebook forums may have already seen a video of a woman with metastatic breast cancer holding up cards. At the end, she proclaims that Big…
Dealing with Dr.s
For those that don’t know my story. My husband was diagnosed with Stage 4 Kidney Cancer Advanced and Aggressive. Today he is taking 1 chemo pill for the rest of his life. He is considered stable and there are similar cases like his that have done this for 10 years and are still fine. This is just a few examples of 1 day at…
More Lung surgeries
I have had RCC since December 2013. I have had my left kidney removed and one lung surgery. They are wanting to do two more to remove more growths. I feel that I have no guarantees that the surgeries will take it away forever and I'm not sure what to do. Is there anyone here that has had multiple surgeries?

Kidney Cancer

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