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Has anyone had Interlukin 2 (IL-2) treatment at Vanderbilt Cancer Center ?
Hello everyone, Has anyone had Interlukin 2 (IL-2) treatment at Vanderbilt Cancer Center in the last few years? If so would you please share your experience and outcome following treatment? I am currently Stage IV RCC with mets to lungs. Some background info: 10/12 - Left Kidney, adrenal gland removed. 1/14 - Thymus gland…
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After targeted therapy?
Greetings all - My Mom was diagnosed witih clear cell RCC in 2010, with lung mets appearing in 2011. She's taken Afinitor, Votrient, and now Inlyta. Each has resulted in stable disease for a little over a year with generally tolerable side effects. I would love to hear anyone's thoughts on treatment they've received after…
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Can I get a hug????
I’m not a very good CSN friend. I read but mostly don’t reply cause I don’t have much too say. I’m still learning. Sorry! I do a search for Fox cause he is my hero J But I love you all! I over analyze and I’m a control freak. There is not much within my control for this cancer journey. I remember not too long ago, probably…
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Going in for partial Neph next month - scared as heck
Hello all, I just turned 43 yrs old, male, been healthy my entire life, very fit, workout regularly, eat well, never smoked, etc. I was having some on/off acid reflux issues as I started getting anxiety issues about two yrs ago shortly before my father passed away as my life was stressful. I was also having insomnia issues…
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New and need help.
Hi, I'm new. I have been debating on posting because I have not yet been diagnosed. I didn't want to step on any toes by posting. I would really appreciate any help from anyone. I am really scared so your help would be greatly appreciated. Here's my story. On June 26th I went to the ER because of a terrible abdominal pain…
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Major Scanxiety Y'all
Hi, Everyone Starting to have major scanxiety y'all !! I go to MD Anderson for my checkup on July 8th. I had my nephrectomy for Stage 1 Grade 2 6cm tumor on May 2014. Having just a chest x-ray this time. Had an abdominal ct scan done in January 2015. It was normal. My tumor had not spread locally (no renal vein, renal fat…
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IL2 did not work ... onto Votrient
IL2 did not work ... onto Votrient. Anyone with experience with Votrient? Did it work? How long were you on it? How did your body respond? As with everyone else, staying positive, yet scared at the same time
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Another UPDATE on DJinnie
JoJo and I have been concerned about hearing from DJinnie. I finally got ahold of her. Sadly, she's not doing well and going into the hospital tomorrow. Seems she her muscle tone is "wasting away", cannot walk without assistance, and now cannot stop vomiting. Says she cannot even get her meds down. DANG! She also is having…
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Votrient side effects how lng do they last?
It has been awhile since I've visited this site. Cancer now in both lungs and possible liver. Did HD IL2 April 2014. Had 12 round out of scheduled 15 but pulled from it due to blood pressure and vision issues. Can't go back on it. Still have vision issues. Nodulars did stop growing but have started growing again now. Have…
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Headaches on Votrient
Just wondering, has anyone had really bad headaches while on Votrient? I just started my third month on Votrient and I have had bad headaches for like a day and a half. I take tylenol but that does not seem to do much. I am just curious if someone else has had them and has come up with anything good to combat them. Thanks.
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Carcinoma in kidney to pancreas
I was wonder if ccrc can go to your pancreas . I had my left kidney removed 7mos ago.Had set of scans done the end of March . Having pain on rightside , went to GI doctor had scan and they found a cyst in my pancreas . Have to go for an endo/eus now . They are still watching a nodule on my lung . But can carcinoma go to…
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Pass the Laudanum my dear!
Grade 4 Stage 4. Had IL2, Sutent and now Inylta. Lost a kidney 2 years ago. My big problem, as I may have mentioned, is diarrhea. Immodium doesn't stop it. Immodium and Lomotil don't stop it. My onc prescribed Tincture of Opium (or Laudanum as the Romantics called it) 10%, 0.6 up to 4x daily. I can't take that much it…
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the last 4 months....
As regulars here know, I've had my share of issues. I may never win the war but I win alot of battles. Delaying the inevitable is not a bad game plan. We can only benefit from the latest treatments if we are still alive as they become available. Since my diagnosis, I've had my nephrectomy, nivolumab trial, Il-2, radiation,…
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Extra stressful time, anxious
I had an open radical nephrectomy in May of 2013 and have a routine check up next month. Ultrasound and chest xray. However other problems have been cropping up which have put me into a bit of a panic mode. I have been having issues with an ear infection that seemed to clear up after a course of antibiotics but since this…
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Please wish us some luck
Today my partner has started Hepatitis C treatment. As I've mentioned, hep C investigations led to kidney cancer discovery, so to certain extent we are thankful to this virus. As my partner jokes, it feels like a divorce. Many years lived together with virus, some good memories (life-saving cancer discovery), but it is…
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2 years ago
two years ago today, my husband came home from a visit with his GP; after a year of complaining of pain in his hip, he had finally demanded an MRI for what he thought might be a hip replacement. he simply said "so, it seems I have a mass on my right kidney and tumors in my spine"; to say the world flipped is an…
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Still kind of tired
Hi guys, i had my partial nephrectomy surgery June 8 and I still am feeling tired a lot. I've been anemic years ago and so it kind of feels like that. I also am still have some pain when taking deep breaths. My acupuncturits thinks it my diaphram. Im feeling a bit discouraged because I was hoping to feel a lot better at…
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The Path Report is in
Thank goodness for electronic medical records. I got the path report today - both intraoperative and post operative. Drum roll, please. 3 CM CLEAR CELL RENAL CELL CARCINOMA, FUHRMAN NUCLEAR GRADE 1, FOCALLY PRESENT AT PARENCHYMAL RESECTION MARGIN (pT1aNxMx). Based on what I have read on on the ACS website and learned from…
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Lung Biopsy A Typical
So I have 2 x nodules grown to 7mm and 8mm in the last 3 months on my right lung (from 5mm), watching them carefully. However the scan showed that my Hilar lymph node in my lung was enlarged and v suspicious as in reasonable proximity to the nodules. Biopsy bronchostomy a week ago of the Hilar shows A typical…
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Renal cell turned out to be inflammation (Possible?)
I went in on monday for a partical nephrectomy lower lobe. Surgery was about 3-4 hours. When I woke, I was told that they couldn't identifiy the actual mass (which was on the ultrasound, CT & MRI). They took 2 biopsy's and the pathologist advised it was not cancer, it was inflammation. I then asked about the 2-3 cysts in…
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is a fever side effect contagious ?
My husband had his first Zometa iv Friday. He had fever till Saturday midnight. If you have a fever side effect from Zometa do the same rules apply about being contagious for 24 hours after a fever? 1. Can I get sick from caring for him? 2. Can a teenager get sick from being around him? 3. Can a baby or infant get sick…
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Afinitor holiday
I have been on Afinitor for two months now and up until recently I was doing pretty well with side effects. But the last week or so the fatigue had been debilitating. Just a flight of steps was making me out of breath. I have a CT scan in three weeks and first visit with my new oncologist Robert Dreicer. Called his office…
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All Done - Thanks for the Support the last 78 Days
Hi Everyone, I wanted to reach out and say thank you for the support that I received on this site as I turned here when I was diagnosed 78 days ago. What a LONG 78 days!!!! I had my surgery last Wednesday, the 24th and came home on Friday. I had a robotic partial (only removed 3% of kidney) and other than some tenderness I…
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Medical oncologist questions
Hello kidney Angels, next week I am going to see a medical oncologist who specializes in kidney cancers. He is completely outside of my surgeon and hospital. I wanted to get another view on my situation. I am stage 3 chromophobe renal cell carcinoma. I would love to have an idea of the questions and information I should be…
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Collecting Duct Carcinoma
My dear friend was recently diagnosed with Collecting Duct Carcinoma it has taken over most of one kidney can anyone advise on doctors in the Michigan Ohio area that have treated this condition? I do not know information as to what stage and specific information yet. I do realize that it is rare and aggressive any input on…
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Surgeon Recommendations Please
Hello everyone, I'm relatively new here, I posted once quite some time ago and would like to thank everyone who took the time to view and/or respond to my inquiry, this has all been so confusing and depressing to me so I sort of disappeared from life for a while. A short background: A year and a half ago I suddenly…
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Wish me luck - my procedure is tomorrow
Good evening. The day of reckoning is almost here. Wish me luck - I don't know exactly what will happen - maybe a partial, maybe total, maybe open - it really is a leap of faith to get from where I am now to moving forward and healthy. Thanks again for all of the posts - they have made a huge difference. It may be a few…
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More Frequent Scanxiety
Now that I have Stage IV, even though NED at this point, I'm now on a 3-month scan schedule. I have scans a week from Monday. No symptoms to speak of, but starting to feel the anxiety of upcoming scans to start. I think I'm starting to get addicted to anxiety. Even when I hear I'm clear, it doesn't bring much relief. I…
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post RCC surgery recovery assessment
This is going to sound stupid - but can someone tell me how they can assess if the partial nephrectomy site inside is healing? Is there any imaging that can show the healing? 1 1/2 month post surgery - and the follow up appointment is only in 6 months for a repeat CT after a post partial nephrectomy for a stage 3 contained…