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11 late stage clinical trials of Roche immunotherapy drug MPDL3280A
This is good news. More weapons in the immunotherapy arsenal against this horrible disease. http://finance.yahoo.com/news/roche-aims-11-immunotherapy-cancer-160639986.html
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Everolimus - Liver Lesions
Can anyone tell me if they have experience with Everolimus working on liver lesions? I have two sizable lesions on my liver, I was taking Inlyta and it shrank my cancer everywhere but my liver. The liver lesions grew by about 20%. So they pulled me from Inlyta and put me on Everolimus. I started the therapy this past…
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Liver cyst or metastasis?
Hello everyone, I recently have reported NED for my fiance. But yesterday's post by RMollinaro on liver lesion has scared me very-very much... :-( The matter is that follow up ultrasound showed small 5 mm liver cyst, which was not not detected on US and on CT with contrast 4 months ago prior to surgery. The doctor doing…
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3yr scan results= NED
Yeehaw is all I can say! I wish everyone here NED in their journey.....especially Fox and Djinnie! You're both (and everyone else here) always in my thoughts and prayers!!
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HELP please - diagnosis process; how do they know for sure???
Hi there. I’d really appreciate if anybody can share similar experience. My sister is my world. I have no desire to keep going if anything happens to her. What are the chances of this kidney mass being malignant? She’s 44 years old and had a CT scan. The Dr ordered MRI saying the CT scan cannot tell for sure: "Solid…
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Stage I - first 3mth scan showed liver lesion
A bit of my background - had baby in July '14 returned to the hospital 10 days later to have my appendix removed when they found the tumor on my kindney. Skip to September '14 had my right kidney fully removed. My patholgy report came back and I was staged T1b. At my follow-up my doctor said "Everything is great. We caught…
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Stage 4 Treatment Plan
I'm probably opening a can of worms asking this, but here goes... Just for some background, I'm currently Stage 4 but NED. My second tumor in my adrenal gland was just removed via surgery. I had clean scans last week. Looking forward, I'm trying to decide whether to stay where I am or move to another hospital. I'm not…
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Djinnie, how are you?
Djinnie, if you are checking out these boards, please let us know how are you doing? Thinking of you...
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Fluids intake with one kidney
After kidney removal, the surgeon recommended to me the following dietary changes: 1. Moderate sodium/salt intake 2. Moderate protein intake 3. Drink 3 liters of water per day I've easily adjusted to the sodium and protein moderation, but it's the 3 liters of water that's the challenge. In the past I didn't come close to…
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Scan Day - Nervous
As the rest of you can appreciate I had my scan day yesteray and I am about to leave to get the results. I am obviously very nervous and fearful of what I might be told. I assume this is common. I am an eternally optimistic person by nature and see the bright side of every situation, but my nerves are not the best at the…
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Drug Holiday
Well thats what my oncologist called it. I immediately thought of Aldous Huxley and his Soma holidays, but no such luck. Stage 4, grade 4 RCC with mets in lung, I had my kidney out in 2013. Taking sutent. I itch all over, I have an all body rash, trouser-destroying diahrea (sp), loss of appetite, dry mouth and throat. The…
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Chest pain, need info
Does anyone know if chest pain has anything to do with lung met? I've had shoulder pain for few days then the pain into my chest,right side and now i have pain in shoulder and chest, both right side, it's worsening, the breathing. Is OK and no coughing, but the right chest hurts so much since last night. It's our national…
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AMAZING news....!
Guys, THE WIFE IS PREGNANT WITH OUR FIRST!!!!!!!!!!!!!!!! About 8 weeks; we've known for a while. Just wanted to make sure everything was going smoothly before we told anyone! But, boy did we need some good vibes! - Jay
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Two year anniversary essay
This month is the two-year anniversary of my life with kidney cancer. A lot has gone on during that time. We all share these: the numbing appointment when the doc first reports that “it’s cancer”, the day of the surgery, the long recovery, the endless series of follow-up appointments at the oncologist’s office and, of…
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Waiting, waiting
Had my 18 month scans on Wednesday (ct of chest pelvis and abdomen)....get results on Monday morning....cautiously optimistic.....hoping for a good weekend for all....xoxo
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New to the cancer world.
Hi gang, my name is Jo. A few months back I had a kidney stone and went to the er. They found a 3.5 cm tumor on top of my left kidney. On the 24th of march the Dr went in and removed the tumor and some of my kidney. It was done laposcopically with the robotics. Since surgery I have had a tough time. I was suppose to be in…
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Post Torisel - Chromophobe RCC
I was treated with torisel over a year ago and got some radiation on a bone met in my pubic amus in February. It seems as though things are a bit "active" again based on a CT yesterday. Doc says things are progressing slightly - but slowly (like chromphobe does). I have two questions - does any one have any advice on bone…
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Everest Trial Drug
I've only seen one post here on the Everest Trial. My husband found out that because of the size of his tumor he is able to take this. Does anyone have any information about it and do they think the benefits are worth it. Know it's a crap shoot because you are either taking it or a placebo but just looking for some…
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Creatinine and CT Contrast?
My current oncologist won't give me the constrast with my CTs. My creatinine is 1.6 to 1.7. He wants to see it below 1.5 or he won't risk it. I recently visited another oncologist with many years experience treating kidney cancer patients, and he said he'd give me the contrast but he'd just hydrate me really well before I…
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The respected journal Science
Has a special on CANCER IMMUNOLOGY AND IMMUNOTHERAPY in this weeks edition. a bit heavy going but it seems to have the scientific comunity pretty excited
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How do you do it
Hey folks new to contribution, not to reading the posts. I'm really a bit of an introvert but I'm starting to feel a bit cornered by this crap(ccrcc). I had a radical rt nephrectomy August 1 2012 and chased it with a pazopanib test trial. I got the drug or one heck of a placebo given the white hair and 70lbs of weight…
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Cancer: The emperor of Maladies
Anyone else watching this? Hopeful and inspiring on the scientific effort and progress on dealing with this curse.
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Still plugging away
What a tough recovery. But I am making progress. There is so much more to control and stabilze. To everyone, Thank You for your support. Remember, stay positive. Even if that is all you've got. FLY. Fox.
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3 years NED
Got my MRI results today and they were good as I expected. Three years cancer free
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I'm fine
I was diagnosed with Renal Cell Carcinoma in 1999. I was so scared. I spent so much time on line, there was so much doom and gloom it actually messed with my mind more than the cancer itself. I had my left kidney removed. Stage 2 grade 3. Fast forward 15 years. I am healthy and sometimes think about how I wish I could have…
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New to CSN. First Post. L nephrectomy 5 months ago. Now 2 x5mm Nodules on lungs. concerning for Mets
Hi Survivors, This is my brief story, I'm searching for similarities in your experiences to compare with mine to give me an insight into what may happen to me now. Diagnosed with 12cm 11cm 9cm clear RCC (very aggresssive) T111N0 in Oct 2014. L nephrectomy on 24/10/14 no mets at that time,micro invasion of sinus fatty…
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Scans
my husband's scans were finalized at 5 pm; the radiologist faxed them to us. Since I got rid of my Fax, they were faxed to Kinko's (now FedEx) and this crazed wife drove to get them. there is a definite met on the left 8th rib; this showed up on his bone scans in August and December but only began to hurt two weeks ago. It…
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Need advice... Go back to work?
Hey, all, So the doctor was pretty weird regarding my return to work. Generally, with gallbladder surgery, they only tell you to take half a week to a week off of recovery. However, my surgery was open and I have a 7.5 inch incision across my right upper abdomen. Now, I DO feel better. The last couple days I've been able…
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Metastasis to bone- sutent, nexavar?
My friend’s dad was diagnosed with renal cell carcinoma in 2006 (Fuhrman NG1) - he had a nephrectomy then and the disease retracted. In 2011 he was diagnosed with metastases to spine (with pathological fracture of the spine). He was operated in Dec 2011 (stabilization of thoracic spine and cementing) and in Feb 2012 he…
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nausea
Hi All ... I'm just 5 weeks out of full kidney removal and gallbladder surgery. I'm feeling very queasy and nauseas. I was going to go to my primary doctor today but felt what would she do?? Is this a side effect or should I go see ger? Thanks