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Fluids intake with one kidney
After kidney removal, the surgeon recommended to me the following dietary changes: 1. Moderate sodium/salt intake 2. Moderate protein intake 3. Drink 3 liters of water per day I've easily adjusted to the sodium and protein moderation, but it's the 3 liters of water that's the challenge. In the past I didn't come close to…
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Scan Day - Nervous
As the rest of you can appreciate I had my scan day yesteray and I am about to leave to get the results. I am obviously very nervous and fearful of what I might be told. I assume this is common. I am an eternally optimistic person by nature and see the bright side of every situation, but my nerves are not the best at the…
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Drug Holiday
Well thats what my oncologist called it. I immediately thought of Aldous Huxley and his Soma holidays, but no such luck. Stage 4, grade 4 RCC with mets in lung, I had my kidney out in 2013. Taking sutent. I itch all over, I have an all body rash, trouser-destroying diahrea (sp), loss of appetite, dry mouth and throat. The…
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Chest pain, need info
Does anyone know if chest pain has anything to do with lung met? I've had shoulder pain for few days then the pain into my chest,right side and now i have pain in shoulder and chest, both right side, it's worsening, the breathing. Is OK and no coughing, but the right chest hurts so much since last night. It's our national…
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AMAZING news....!
Guys, THE WIFE IS PREGNANT WITH OUR FIRST!!!!!!!!!!!!!!!! About 8 weeks; we've known for a while. Just wanted to make sure everything was going smoothly before we told anyone! But, boy did we need some good vibes! - Jay
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Two year anniversary essay
This month is the two-year anniversary of my life with kidney cancer. A lot has gone on during that time. We all share these: the numbing appointment when the doc first reports that “it’s cancer”, the day of the surgery, the long recovery, the endless series of follow-up appointments at the oncologist’s office and, of…
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Waiting, waiting
Had my 18 month scans on Wednesday (ct of chest pelvis and abdomen)....get results on Monday morning....cautiously optimistic.....hoping for a good weekend for all....xoxo
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New to the cancer world.
Hi gang, my name is Jo. A few months back I had a kidney stone and went to the er. They found a 3.5 cm tumor on top of my left kidney. On the 24th of march the Dr went in and removed the tumor and some of my kidney. It was done laposcopically with the robotics. Since surgery I have had a tough time. I was suppose to be in…
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Post Torisel - Chromophobe RCC
I was treated with torisel over a year ago and got some radiation on a bone met in my pubic amus in February. It seems as though things are a bit "active" again based on a CT yesterday. Doc says things are progressing slightly - but slowly (like chromphobe does). I have two questions - does any one have any advice on bone…
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Everest Trial Drug
I've only seen one post here on the Everest Trial. My husband found out that because of the size of his tumor he is able to take this. Does anyone have any information about it and do they think the benefits are worth it. Know it's a crap shoot because you are either taking it or a placebo but just looking for some…
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Creatinine and CT Contrast?
My current oncologist won't give me the constrast with my CTs. My creatinine is 1.6 to 1.7. He wants to see it below 1.5 or he won't risk it. I recently visited another oncologist with many years experience treating kidney cancer patients, and he said he'd give me the contrast but he'd just hydrate me really well before I…
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The respected journal Science
Has a special on CANCER IMMUNOLOGY AND IMMUNOTHERAPY in this weeks edition. a bit heavy going but it seems to have the scientific comunity pretty excited
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How do you do it
Hey folks new to contribution, not to reading the posts. I'm really a bit of an introvert but I'm starting to feel a bit cornered by this crap(ccrcc). I had a radical rt nephrectomy August 1 2012 and chased it with a pazopanib test trial. I got the drug or one heck of a placebo given the white hair and 70lbs of weight…
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Cancer: The emperor of Maladies
Anyone else watching this? Hopeful and inspiring on the scientific effort and progress on dealing with this curse.
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Still plugging away
What a tough recovery. But I am making progress. There is so much more to control and stabilze. To everyone, Thank You for your support. Remember, stay positive. Even if that is all you've got. FLY. Fox.
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3 years NED
Got my MRI results today and they were good as I expected. Three years cancer free
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I'm fine
I was diagnosed with Renal Cell Carcinoma in 1999. I was so scared. I spent so much time on line, there was so much doom and gloom it actually messed with my mind more than the cancer itself. I had my left kidney removed. Stage 2 grade 3. Fast forward 15 years. I am healthy and sometimes think about how I wish I could have…
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New to CSN. First Post. L nephrectomy 5 months ago. Now 2 x5mm Nodules on lungs. concerning for Mets
Hi Survivors, This is my brief story, I'm searching for similarities in your experiences to compare with mine to give me an insight into what may happen to me now. Diagnosed with 12cm 11cm 9cm clear RCC (very aggresssive) T111N0 in Oct 2014. L nephrectomy on 24/10/14 no mets at that time,micro invasion of sinus fatty…
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Scans
my husband's scans were finalized at 5 pm; the radiologist faxed them to us. Since I got rid of my Fax, they were faxed to Kinko's (now FedEx) and this crazed wife drove to get them. there is a definite met on the left 8th rib; this showed up on his bone scans in August and December but only began to hurt two weeks ago. It…
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Need advice... Go back to work?
Hey, all, So the doctor was pretty weird regarding my return to work. Generally, with gallbladder surgery, they only tell you to take half a week to a week off of recovery. However, my surgery was open and I have a 7.5 inch incision across my right upper abdomen. Now, I DO feel better. The last couple days I've been able…
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Metastasis to bone- sutent, nexavar?
My friend’s dad was diagnosed with renal cell carcinoma in 2006 (Fuhrman NG1) - he had a nephrectomy then and the disease retracted. In 2011 he was diagnosed with metastases to spine (with pathological fracture of the spine). He was operated in Dec 2011 (stabilization of thoracic spine and cementing) and in Feb 2012 he…
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nausea
Hi All ... I'm just 5 weeks out of full kidney removal and gallbladder surgery. I'm feeling very queasy and nauseas. I was going to go to my primary doctor today but felt what would she do?? Is this a side effect or should I go see ger? Thanks
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18 yr old son... softball sized cyst has a blood supply
Hello again. I posted a few weeks ago about my 18 yr old son. He went snow skiing and thought maybe he injured something when he fell so took him to the ER. MRI showed what looked to be a cyst with some calcification and filled with blood. Because it was filled with blood the MRI image couldn't reveal what exactly it was.…
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My first 3 month scan results
Good morning everyone. Sorry I have been MIA - dealing with some seasonal allergies and feeling under the weather. The good news is that my first 3 month scan was excellent - no signs of metastasis or recurrence. I have lost apprx. 25 lbs since my surgery in December and the scan said I no longer exhibit "diffuse fatty…
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Husband's surgery yesterday
My husband's surgery went well - longer than expected due to scar tissue, but successful. I'm not sure if I've mentioned before that my cancer surgery was the same date as his 6 years ago (colorectal cancer). What an anniversay to have to share , but I'm doing fine now and praying that he does well after this also. They…
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One Year Check Up Looming!
My one year check-up is coming up on Tuesday. Chest x-ray and kidney scan. I’m getting nervous so please wish me luck. Worst part is, usually I see my oncologist afterwards so we can discuss the results but this time I won’t see him until April 2. And MSK posts the results of the tests online so I can look forward to…
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An Update Following My Adrenalectomy
Hi. Sorry I've been away without stopping by for a few weeks. I started back to work yesterday after 7 weeks of disability after my adrenalectomy. I can't recall if I checked in to say my adrenal tumor tested positive as RCC, but it did. I've just been trying not to make cancer the center of my life. I had a hard time…
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Scan Time, Deep Joy!
I'm off for my three monthly scan this morning. I hate the early morning appointments it's over a two hour drive and the weather is wretched. I have to drink water on the way for the prep, hot coffee would be far more welcome in this weather. Brrrrr! Things have not been going so well for me lately so I am much more…
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Disappointed in my doc
I'm 3 years post nephrectomy (stageT1b, grade 2) and all has been very well. That being said, my urologist (same doc that performed by radical nephrectomy in Feb 2012) told me back in the beginning of this that my follow up would be CT scans in years 1, 3 and 5 and chest x-ray and labs only in years 2 & 4 I thought that…
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Bone Scan Question
I had a nuclear bone scan the other day, and thankfully the scan did not indicate any mets in my bones at all. One concern that was brought to my attention was the fact that my "good" kidney and my bladder were both lit up like a Christmas tree on the scan, as the radioactive material was being filtered out of my…