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5years, 1 month
saw my dear oncologist/surgeon today, tomorrow will be exactly 5 years, 1 month since my di vinci robotic surgery that removed my cancerous epiglottis. NED and congratulations were repeated to me many times as I left his office at The James in Columbus, Ohio. If I can fight this battle , you can ,too. Have faith, be…
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Ding Ding - Ringing the Bell - NED
4 Nov - PET scan six months post treatment. My first scan. Prior to this my radiation oncologist and ENT limited the follow-ups to scoping. The tumor had responded well to treatment (32 hyperfractionated doses plus 3 Cisplatin). My original diagnosis was Stage 4A T2N1-2aM0 Moderately invasive squamous cell carinoma of the…
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Weird bump and growths that are new
HI everyone, I'm amazed at all the new posts since I first started coming here! It's been a long time. Short intro....my hubby just over a year out from treatment for stage 4 tonsil cancer HPV+. He had chemoradiation with cisplatin. Up to now things have been going great. He's maintained his weight, and although he's still…
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When did your tongue stop burning?
After nearly 5 months post rad, I'm still dealing with a burning tongue. Is there an end in sight and what can I do to improve it? It's really affecting my appetite. Since my last surgery October 7th, I'm down nearly 20 lbs pre cancer. I can't seem to eat enough these days.
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Speech impairment
I am 14 years out from NPC treatments. Over the last 2 years my speech as progressively worsened to the point that it is almost impossible to speak on the phone. Background: 18 months after I finished radiation (MD Anderson) I woke up hoarse - it turned out to be a paralyzed left vocal cord attributed to the late effects…
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18 month scope
Had my 18 month Scope today and was told everything looks great,Seams like you always worrie a little before you have these appts,
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Peg-tube nutrition and Medicare
During recent hospital stay, nutritionist recommended Two-Cal canned nutrition product for my husband. They referred us to home health care management which husband does not qualify for at this time. Long story short, after finding out this is an 'institution only' product used by hospital and nursing homes, I contacted…
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Checking in after 4 months.
Hi everyone. Had my 3 month check up last month. They didn't give me a pet scan which I would of preferred but I had an MRI. They said it looked " good" and to not be scared that the report said" can't rule out residual tumor" . Oh okay. They will scan me again in 6 months. So I'm like soooo am I NED ? They said until…
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Tongue biopsy...
I had a tongue biopsy on October 26, 2016. It's now Nov 27, 2016 and my tongue still burns and hurts. The biopsy was a fairly large excision of a "lesion" and hurt like hades! It apparently let thrush loose in my mouth and OMG! Felt like my mouth was filled with embers! Biopsy came back moderate dyspepsia something or…
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3 month check up/1st pet scan results
I saw my Radiation Oncologist today. He said I am 100% cancer free, no residual, nothing, no evidence cancer was ever there....it is as good as it gets...you can't get a better report!! I don't have to see the Radiation Oncologist for 6 months!!! He also said there is no need for me to have any more pet scans! I see the…
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Please advise: mouth cancer
Hi there, A few days back I met with an accident and suffered few injuries and lost 4 teeth. After a few days, I called in a doctor to fix my teeth. I decided to try partial denture or dental implant to fix it. While he checked my teeth he discovered some discolor in my mouth and he recommended to take Oral brush biopsy to…
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Neupogen to treat low white blood cell count
Has any one had Neutropena/LOW blood cell count late in treatment...Have 6 rads to go...1 chemo and hubby is in hospital with extremely low white cell count! They're not giving him anything except IV Antibiotice. I want them to use Nupogen or something else to rebuild the white cell count, but the hospital staff quite…
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Neck dissection discomfort - Found some help
I am only a couple of weeks out from a Supgraomohyoid Neck Dissection. I have numbness, weird twinges, nerves jumping around, and a sensation that I have a tight noose around my neck. I read the comments regarding massage being helpful. So I had an idea given that I didn't have a masseuse handy. I took a vibrator, and I…
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Olfactory NB - No Taste/Smell
Hi - just found this blog. I was diagnosed last December after a routine polyp surgery. Have gone through 5 weeks of radiation and now have monthly endoscopies with either my oncologist or ENT. Have lost sense of smell/taste and wondering if anyone has experienced the same and regained the senses. If so, how long did it…
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neutrophils
My husband has Squamous cell carcinoma, base of tongue, 4 lymph nodes, right tonsil, he has gone through 9 weeks of Two types chemo (Abraxine and Cisplatin) and then he has completed 29 of 35 radiation treatments and 2 of three more planned cisplatins. On Thanksgiving Day he was to go to the Cancer Care Clinic for fluids.…
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Another Newbie to group
Just diagnosed with SCC in a lymph node on the left side of the neck about two weeks ago. PET scan confirmed mass but found nothing else anywhere. ENT surgeon has removed tonsils (not so fun for a 63 yr old but am recovering ok). He also biopsied a couple of other places at the base of tounge and in the throat. No results…
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Been a while.............Happy Thanksgiving
Hi Friends Fighters and Survivors It has been a while since I visited and I could sit here and make excuses but they are a dime a dozen and I have 20 cents worth. It has been 8 years since I was diagnosed with throat cancer and it pissed me off that I had to deal with the nightmare during my favorite holiday. (Turkey…
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Optivo
I'm sure some, if not all of you know that the FDA approved Optivo for H&N. I didn't see an article on the board so i thought I'd post. They are in the process of commercializing it (pricing it out) and should be available in early December. Here's one article on it.…
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Double tonsillectomy for single enlarged tonsil waiting for results! Help please!
Hi all, not been diagnosed with anything. Waiting on biopsy results post tonsillectomy a week ago today. Presented at my gp in early October with flu like symptoms and severe sore throat which i thought was something I picked up from my wife who has the same and lost her voice for a week. i was sent away with cold…
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I'm new here
I'm new here. Was diagnosed with SCC in March of this year. Tumor was on the right side of my tongue. In May I went through a partial glossectomy (partial tongue replacement), right neck disection, tracheostomy, feeding tube placement and a skin graft of my right forearm with removal of the radial artery for the tongue…
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Hang in there
A year ago today I got a call from my Dr. w/ the biopsy results telling me I had stage 4 tonsil cancer at age 44. I have a family which included three children ages 13, 6 & 4 (at the time). It ruined our Thanksgiving to say the least. As all of you know, many horrible thoughts and concerns consumed our live when you were…
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obturator
Hello everyone! I am brand new to this site and this is my first post so bear with me. I was diagnosed in June/2015 with cancerr of the soft palate and also had a tumor on my luymph node. After weighing the pros and cons of surgery versus radiation and chemo, I decided on the latter. 60 radiation treatments, and 8 chemo…
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New primary or ulcer after radiation?
I finished radiation early June and things were healing quite smoothly. A little over week ago I noticed something new and it wasn't like the blistery ulcers from food that I had been getting several weeks ago. This only slightly hurts if I push on it with my finger. I called my surgeon immediately and she recommended that…
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ROLLCALL 2016- UPDATED OCTOBER 25, 2016"CLOSED"
ROLL CALL 2016 Updated October 25, 2016 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll…
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New to the group!
Nov 18, 2016 - 4:16 pm Orburator during chemo and radiation hi everyone, I'm new here but have been trying to do research about how likely it will be that I can wear my orburator during the time frame I'm having the dual chemo and radiation over the next few months. I had my surgery about a month ago and obviously like…
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Great news today!
My husband has his 4th set of scans on Monday (his 42nd birthday!) since finishing treatment for stage 1 tongue cancer back in January. We got the results today, and NED again! His ENT wants to see him back in February, but we aren't going to scan again until next summer! He said the risk of more radiation from more scans…
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Warm place to spend winter
G’day too all of you, well it looks like old man Winter is on his way to Louisiana early as Monday will be around 49 degrees here in Lafayette. Is there anyone here who lives down in Miami Florida or Brownsville Texas that has an extra room in their home. I am not sure what I will do this winter as I cannot stand the cold…
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3 month check up - good news - I think??
Went in for my three month PET today and all my docs were thrilled. The tumor at the back of my throat is gone and two of the lymph nodes aren't showing any evidence of disease, either. There is one node (that I didn't know was affected) that has shrunk quite a bit, but only showing a partial treatment response. There was…
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Interesting Article in Washington Post
Interesting information for new comers https://www.washingtonpost.com/national/health-science/shavi
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Chefdaddy ?
Hondo Have you heard from or talked to Mike lately. Just wondering Dave