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Head and Neck Cancer

Cigarrte Smoking question
Hello, This question is intended for people who are currently smoking or were smoking until they were diagnosed with H&N Cancer. I am a smoker who used to smoke 10 cigarretes per day until mid August when my diagnosis of H&N cancer. Since then I have cut 1 cigarrete every week, now I am down to 5 cigarretes per day and I…
I'm so tired...
I was diagnosed with stage 4 head & throat cancer about 20 months ago & have been through chemo and radiation treatments and many surgeries... I've started seriously dropping weight & today I have almost lost 20 lbs in the past 2 weeks... I also started having dizzy spells again which I had gotten over... I have decided…
FYI, Cartoid Stenosis treatment study
I know some forumn members have had cartoid cancer. If you suffer from narrowing of the cartoid arteries this may help you. Listed in the Fall issue of Rush Medical Center, www.rush.educlinicaltrials. Contact person Sherry Nelson 312-942-8144 Criteria: 18--80 y/o Have artherosclertic extracranial internal cartoid stenosis…
Bone mets
Hi, for those of you who had/have bone mets, where were they located and what were the symptoms?
Body Temp Post Radiation
My husband is 2 weeks post treatment. He is cold all the time. It's 80+ degrees and he has on long sleeves, flannel pj bottoms, wool socks and under a blanket. This has been going on for awhile but not to this degree. He does not have a temperature. Does anyone know what causes this? He is down about 15 lbs. Could he be…
Radiation starts Oct 17
Hi Everyone, First, I want to thank all the people on this site for sharing experiences and for giving tips and encouragement. I read many of them and tuck the ideas away. My husband is half way through his treatment as of this past Monday for Squamous cell carcinoma, P16, base of tongue and tonsil plus 4 lymph nodes. He…
CT Scan of lungs
As the long timers here know, I was diagnosed with larynx cancer in 2009, doctors consider that cured now, I was then diagnosed with a very small lung nodule that was removed and turned out to be cancerous, that was in Summer 2012, yesterday had CT scan and all is still clear, it's great to get scanned at 8am and meet with…
My follow-up today
I guess everything is ok so far. There is some kind on white patch on the roof of my mouth that he wants to look at in a month. He said I will always be at risk for oral and throat cancer because of smoking. I felt a little scared after I left there and a little depressed. He pretty much said that this is the price I pay…
Post Rads Lymph Nodes/Back Pain
Ok, so completed rads and since my immediate Onc follow up, where i complained about feeling like my lymph nodes were going crazy (groin, arm pit, back, the Onc pretty much blew it off) and Im left wondering if this is normal. Anyone else? Also, spent practically 2 months in bed during rads. I developed some pain between…
HBOT and claustrophobic
Hello, I am 3years post treatment for stage 4 throat cancer and now I have a bad tooth they want to pull but the oral surgeons are insiting on HBOT. The problem is after the radiation treatments I will not get in a confined space. Is it mandatory to have this therapy?
Throat sores post treatment
I'm almost seven weeks post treatment, but I'm still occasionally getting sores in the back of my throat. It seems to be related to maybe something I eat? Is this normal? Any advice? Thanks! Kari
Late Onset Cervicoscapular Muscular Atrophy--Anyone heard of it?
About two years ago, my left shoulder (the side that got radiated) started to get noticeably weaker and is now sagging about 3 inches lower than my right shoulder. I have limited range of motion when the trapezius muscle needs to be involved--pulling a t-shirt or polo shirt over my head hurts like hell. I did some…
SCC lession on nasal septum
Sep 22, 2016 - 5:21 am Squamous cell carcinoma lession on nasal septum Hello, I am new to this site and would like any input on my case. In April my PCP referred me to an ENT dr for a lession that I found in my nose. I went to the ENT and was told I needed to have it taken out and biopsied and he was almost positive that…
The Return of Dry Mouth!
Hi All, I am 2 1/2 months post- treatment for surgical removal of sc tumor near the parotid duct followed by 6 weeks of cetuxima and 30 days of radiation. After three weeks, I had some taste, and my mouth was slowly recovering. i have one parotid gland, salivaary glands., and I had adequate moisture in my mouth Things…
Did anyone not have a neck dissection and just have neck rads instead?
Hi, everyone. I was wondering if anyone had surgery to remove their tumor, had no suspected lymph node involvement, and was not given a neck dissection? At my second opinion post-surgery, they were careful not to criticize the first surgeon for not doing a neck dissection. They said it wasn't necessary in every case.…
New caregiver whos overwhelmed
Hi Im new to this site just wondering if anyone else as a caregiver feels like overwhelmed in so many different ways?
Post radiation swish
Hi everyone, My husband is 2 weeks post radiation tomorrow. He hasn't needed the magic mouthwash in a couple days and had his 1st non liquid food in over a month yeaterday (scrambled eggs). He gets extremely tired and sleepy after eating and needs a nap. Is this normal? He doesn't have a tube so he's ready to eat! Also how…
Six Weeks post treatment update
I've been pretty absent from the forums during my recovery, but I'm trying to catch up with everyone now. Looks like some new folks have joined the club since I last logged on. I'm a little over six weeks past my last radiation. The first few weeks of recovery were the roughest in terms of mucus, nausea, and finding it…
PET SCAN AND CT
My husband has H & N cancer, right base of tongue, right tonsil, 4 lymph nodes on right, and hyoidal bone (right side)...He is in a trial . He is only 6 weeks into the 16 weeks of treatment and the study calls for a PET and CT after the 6th week of chemo. I do not know what to expect. I'm so nervous. His tumor has clearly…
Infusion port clot
When I was in treatment I had an infusion port (Port Cath) that, once rads were complete, caused a clot in my right jugular. I spent two weeks on self injecting Lovenox, and then 3 more months on Warfrin to resolve the clot which was successful - though my medical oncologist had originally said that I might need to be on…
Ending week #2 of rads & chemo. Already have grade 2 sores.
Week #2 ends tomorrow. Tomorrow I will be able to say "10 treatments down, 22 to go." It could be the addition of once-weekly chemo, which I am told magnifies the radiation side effects, but I have already developed grade 2 mouth sores on the target site (upper gums, left side, back). Today my rad. onc. confirmed it when…
Lymph nodes in my neck are painfull
went to my ent on Monday to get the results of my pet scan . Results where negative for the primary , only showed the secondary in the lymph nodes I'm the left side of my neck. So exploratory operation to have a closer look at the base of my tongue and other areas was put on the waiting list. Tuesday a got a call that I…
scans
Just wondering what everyone has had for scans since thier treatments .My ongoligist does not seem to be to worried about them .I had a CT scan 3 months after my treatments and one again at two years only because i insisted with my family doc that i wanted one .Just had my 3 year check up says everything looks and feels…
13 month post treatment CT, two small pulmonary nodules
I'm 53 non smoker. March, 2015, I was diagnosed with Stage IV HPV 16+ squamous cell tumor on left tonsil and one lymph node under left jawbone. I had TORS to remove tumor, tonsil and clear margins, then a neck dissection to remove 40 lymph nodes that were all cancer free. I then had 28 tomotherapy radition treatments.…
My 1st Erbitux went well, but I am not well.
I had my first Erbitux treatment forf 2 hours on Thursday 9/22 late PM. I have only a few minor side effetcs, but they are making making life miserable to me. On thursday night woke up several times due to a horriblle headache & queasy stomach. Finally around 4 AM, I took 1000 mg of tylenol & it reduced the horriblle…
Last Rad Tomorrow
My husbands last radiation treatment is tomorrow. He's managed but it sure hasn't been easy. His cancer was in his upper left cheek and jaw area. This past week his tongue is causing major pain. It does t look to be thrush as its only his tongue. Question is: normal pain or sores from radiation? Anything help besides pain…
radiation induced brachial plexopathy
I am now 63 years old. I had oral cancer, and was treated with Cisplatin and radiation. They beat me up pretty good, and I have several residual issues but the cancer is gone. About three months after my last treatment, I started getting numbness and tingling in my finger tips. It spread within a month or so all the way up…
Cutting through the Mucus/Flem
In my last post I was explaining that we have completed tx and our instructions were to start swallowing food and drink without the use of the PEG. Because the mouth seems so sore, it's been rather difficult to start this transformation. As I'm trying to help encourage my loved one that he must do this, I've been watching…
Why not Immunotherapy for stage 4 b cancer of base the tongue
Hello, I was recently diagnosed with stag 4b cancer in the base of the tongue. I will see my oncologist for the second time on Mon. 9/12. he called me Friday morning and told me he'll be using erbitux and 30 sessions of radation therapy. I asked him about phase 3 clincal trials of immunoTherapy, but he told me…
Help with mucous patch
My husband is really struggling with the mucous. Making him throw up, nauseous, spitting up blood. He is considering the patch to dry him up. Any advice on the patch?

Head and Neck Cancer

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