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Still not eating enough 6 months post last treatment
My husband had last radiation/chemo in April and an adjuvant chemo in July for nasopharyngeal cancer. He still is struggling eating. Eats very small amounts maybe twice a day and relying on shakes made of protein, Boost Plus and ice cream twice a day and plain Boost Plus once a day. He still has peg in but not using as…
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Going down that road again
Just got my stitches out after a second neck dissection nearly 2 weeks ago. Cancer was contained to the one lymph node that lit up the PET scan. Doc says radiation, this time with chemo, may be recommended by the board. I know how tough rads are. But how much more difficult are they with chemo? I will most likely have…
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What did you use for the skin and neck burn during radiation?
Any suggestions of what did and did not work? Thanks, Margi Greene St. Charles, MO
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Fluoride trays & gel
Hi all. I was using colgate gel Kam but it stained my teeth very badly, so now I need some ideas for a non staining gel. Has anyone tried the Ionite gel? my dentist said it's non staining.
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Transfer of care to MDA
Hi, has anyone who is in remission (surveillance) time and tried to transfer care to MDA? I also had a few second opinions I wanted to get on the imaging and surveillance. So far I have been so far, unsuccessful. i'm not sure why. Have done a number of phone calls, many emails, etc - they don't seem to want to accept me.…
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First scan on clinical trial
I had HPV+ SCC in my left tonsil and soft palate in 2012 and got the all clear after chemo-radiation. In 2015, they found a mass in my right lung. I went through chemo-radiation again. They weren't sure if it was a new primary lung cancer or a metastasis of the head and neck cancer--especially since it was HPV+ SCC again.…
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I am so meesed up. need help
I have H&N cancer stage 4b, primary BOT. my treatment is Erbitux & Radiation. Things were going OK, that is I only had some side effects of Erbitux all of which were contolled by a Onco-Derm, giving me 2 types of cream. I got thae rash & itching no other symptom from erbitux. However strarting with my 7th radaion I started…
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Post Treatment Mouth Swish/Gargle
Good afternoon, husband is 4 weeks post treatment. All mouth sores are gone. Taste buds are slowly waking up. How long should he continue the salt/baking soda/water rinse? He's also still taking Glutamine to finish out this bottle of powder. Thanks as always.
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Diagnosis was 1 year ago today
1 year ago today, we heard the word cancer, and our lives changed forever. We totally did not expect it at all. One little spot on my husband's tongue changed everything. But one year later and here we are. Today, my husband went to "Donuts with Dad" at our daughter's elementary school where he will happily have a donut…
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Work during and after treatment
Worked thru treatment, but cut hours down 3 to start. I'm now 4 months post treatment and up to 5 hours a day. I'm still having problems with mucus and sore throat and a mouth sore returned. Started back with the salt and baking soda rinse.
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Mary's Magic Mouthwash
My radiation doctor wrote a prescription for me for Mary's Magic Mouthwash. When I went to the pharmacy to pick it up, I was informed that it was not covered under my health insurance plan. I have Blue Cross Blue Shield health insurance. We have a great plan. Has anyone else ran into this problem? One would think that as…
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Opinions about weekly chemo. Yikes!
Does adding weekly 40 mg. Cisplatin to rads just enhance the radiation side effects, or does it add some side effects of its own? I'm post-surgery (June 30) and waiting to start rads in the beginning of September. Here's the thing. The major cancer center in Baltimore where I had my surgery allegedly presented my case to…
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Don't care for my doctor
I had a malignant tumor removed from my tongue March of this year. I had the surgery done at Yale and I really liked the surgeon. At my three month visit with him, I complained about my tongue being misformed and he said that it would be simple to fix in a one day surgery. I decline at that point because I really wasn't up…
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US/MRI findings - thyroid cancer?
Hey everyone.. I noticed a palpable lump on my neck about a month ago and decided to get it looked at. The first doctor I went to said that I was probably gettign sick and to wait it out. I did that for a couple weeks but then went to another doctor who referred me to an ENT. The ENT ordered an ultrasound which the results…
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Help for burning tongue, thoat ache and stuck thoat
I have all the above. In cancer.net they say an injection of amifostine (Ethyol) before radiation helps a lot. I want to ask my doc. to order that injection before my radiation tomorrow vand going forward. Anyone knows anything about its side effects? Thanks for all the help Mehrdad
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Cigarrte Smoking question
Hello, This question is intended for people who are currently smoking or were smoking until they were diagnosed with H&N Cancer. I am a smoker who used to smoke 10 cigarretes per day until mid August when my diagnosis of H&N cancer. Since then I have cut 1 cigarrete every week, now I am down to 5 cigarretes per day and I…
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I'm so tired...
I was diagnosed with stage 4 head & throat cancer about 20 months ago & have been through chemo and radiation treatments and many surgeries... I've started seriously dropping weight & today I have almost lost 20 lbs in the past 2 weeks... I also started having dizzy spells again which I had gotten over... I have decided…
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FYI, Cartoid Stenosis treatment study
I know some forumn members have had cartoid cancer. If you suffer from narrowing of the cartoid arteries this may help you. Listed in the Fall issue of Rush Medical Center, www.rush.educlinicaltrials. Contact person Sherry Nelson 312-942-8144 Criteria: 18--80 y/o Have artherosclertic extracranial internal cartoid stenosis…
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Bone mets
Hi, for those of you who had/have bone mets, where were they located and what were the symptoms?
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Body Temp Post Radiation
My husband is 2 weeks post treatment. He is cold all the time. It's 80+ degrees and he has on long sleeves, flannel pj bottoms, wool socks and under a blanket. This has been going on for awhile but not to this degree. He does not have a temperature. Does anyone know what causes this? He is down about 15 lbs. Could he be…
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Radiation starts Oct 17
Hi Everyone, First, I want to thank all the people on this site for sharing experiences and for giving tips and encouragement. I read many of them and tuck the ideas away. My husband is half way through his treatment as of this past Monday for Squamous cell carcinoma, P16, base of tongue and tonsil plus 4 lymph nodes. He…
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CT Scan of lungs
As the long timers here know, I was diagnosed with larynx cancer in 2009, doctors consider that cured now, I was then diagnosed with a very small lung nodule that was removed and turned out to be cancerous, that was in Summer 2012, yesterday had CT scan and all is still clear, it's great to get scanned at 8am and meet with…
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My follow-up today
I guess everything is ok so far. There is some kind on white patch on the roof of my mouth that he wants to look at in a month. He said I will always be at risk for oral and throat cancer because of smoking. I felt a little scared after I left there and a little depressed. He pretty much said that this is the price I pay…
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Post Rads Lymph Nodes/Back Pain
Ok, so completed rads and since my immediate Onc follow up, where i complained about feeling like my lymph nodes were going crazy (groin, arm pit, back, the Onc pretty much blew it off) and Im left wondering if this is normal. Anyone else? Also, spent practically 2 months in bed during rads. I developed some pain between…
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HBOT and claustrophobic
Hello, I am 3years post treatment for stage 4 throat cancer and now I have a bad tooth they want to pull but the oral surgeons are insiting on HBOT. The problem is after the radiation treatments I will not get in a confined space. Is it mandatory to have this therapy?
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Throat sores post treatment
I'm almost seven weeks post treatment, but I'm still occasionally getting sores in the back of my throat. It seems to be related to maybe something I eat? Is this normal? Any advice? Thanks! Kari
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Late Onset Cervicoscapular Muscular Atrophy--Anyone heard of it?
About two years ago, my left shoulder (the side that got radiated) started to get noticeably weaker and is now sagging about 3 inches lower than my right shoulder. I have limited range of motion when the trapezius muscle needs to be involved--pulling a t-shirt or polo shirt over my head hurts like hell. I did some…
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SCC lession on nasal septum
Sep 22, 2016 - 5:21 am Squamous cell carcinoma lession on nasal septum Hello, I am new to this site and would like any input on my case. In April my PCP referred me to an ENT dr for a lession that I found in my nose. I went to the ENT and was told I needed to have it taken out and biopsied and he was almost positive that…
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The Return of Dry Mouth!
Hi All, I am 2 1/2 months post- treatment for surgical removal of sc tumor near the parotid duct followed by 6 weeks of cetuxima and 30 days of radiation. After three weeks, I had some taste, and my mouth was slowly recovering. i have one parotid gland, salivaary glands., and I had adequate moisture in my mouth Things…
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Did anyone not have a neck dissection and just have neck rads instead?
Hi, everyone. I was wondering if anyone had surgery to remove their tumor, had no suspected lymph node involvement, and was not given a neck dissection? At my second opinion post-surgery, they were careful not to criticize the first surgeon for not doing a neck dissection. They said it wasn't necessary in every case.…