Radiation Fibrosis Syndrome (RFS)

Nous Defions
Nous Defions Member Posts: 33 Member


Hey guy’s I am curious if anyone has experienced Radiation Fibrosis Syndrome following RAD treatment.  I am five years’ post treatment and everything as far as NED is great.  However, I was having a lot of pain right below my clavicle on the right side for about two months. I finally saw my GP and he ordered x-rays and CT scan. The results seem to indicate that I may have RFS. My two upper ribs at the sternum look like a piece of wood that has been destroyed by termites or at least that’s what it looks like to me.  I am awaiting further diagnosis from my doctor.  I did have some issues with osteoradionecrosis six months post treatment and they had to remove a significant amount of bone from my right lower jaw but other than that complication its been the status quo "New Normal".  Any input, suggestions and advice will be greatly apreciated.