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Radiation Fibrosis Syndrome (RFS)

Nous Defions
Nous Defions CSN Member Posts: 33 Member
in Head and Neck Cancer #1

 

Hey guy’s I am curious if anyone has experienced Radiation Fibrosis Syndrome following RAD treatment.  I am five years’ post treatment and everything as far as NED is great.  However, I was having a lot of pain right below my clavicle on the right side for about two months. I finally saw my GP and he ordered x-rays and CT scan. The results seem to indicate that I may have RFS. My two upper ribs at the sternum look like a piece of wood that has been destroyed by termites or at least that’s what it looks like to me.  I am awaiting further diagnosis from my doctor.  I did have some issues with osteoradionecrosis six months post treatment and they had to remove a significant amount of bone from my right lower jaw but other than that complication its been the status quo "New Normal".  Any input, suggestions and advice will be greatly apreciated.

 

Will

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