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Head and Neck Cancer

New member - late stage - starting Keytruda
Hello all. Look forward to sharing. As my login indicates, I am the caregiver of this family. Husband diagnosed advanced throat tumor about 5 years ago. Maxed out Erbitux and radiation, finally going into remission. He has been on peg-tube since about half way through the radiation. Diagnosed late stage 4 with return of…
Vitamix
Maybe I am the only person who did not know this but just in case there is some other uninformed caregiver or patient out there, I wanted to be sure everyone knows that Vitamix offers a medical discount for famiies who need to blend food for medical reasons. There are some hoops to jump through and your options are limited…
About how long till taste buds return?
I cannot tell you how much I miss eating. Been feeding with peg tube since week 3 of rad. Fortunately my last rad is tomorrow! It's been super hard watching tv seeing all these food commercials or driving by my favorite restaurants, I crave so much. I completely lost my sense of taste from rad and chemo (cisplatin) I know…
NED
During our road trip back from our 12 week post treatment PET, we got a call. The scan shows no CANCER. There is something new in the lung that needs to be followed up on but they repeated several times that it was not cancer. Plus, we ate out after the scan and he ordered food and actually ate it. If you have had a…
Oral Symptoms; Looking for Insight
Hello all, I've got a series of oral symptoms that I'm concerned about, but feeling super confused. I've tunneled my way through the Dr. Google archives and decided to post here in the hope that this community can help me gain some insight. I'm experiencing a variety of oral symptoms that, if they were isolated, I wouldn't…
Severe Leg Pain After Tongue Biposy
Anyone else experience severe leg pain after being put under for a tongue biopsy? I had my biopsy on Friday around 10:30am. As of right now (Sun at 11:20am) both of my legs, from the knee down, are extremely fatigued when I get up and walk. When I sit still they feel normal. When I try to walk it feels like I did after my…
Dental problems long term
Good Morning, Newbie here to this site. Lol! Haven't said that for awhile since I'm 58. Anyway, I was diagnosed with base of tongue cancer in 2011. Went through 44 treatments of radiation to the head and neck. Now going on 5 years since, my teeth and gum problems are still a very important part of my day. The pain is at…
ELEVENTH TREATMENT TODAY
Worst day yet. Nausea so bad all I could get down was a bowl of chicken noodle soup. My family doctor's office called today to see how I was doing. I told the nurse that I had horrible nausea and could not eat. She offered to call in a script for nausea but I told her I had an appointment with the Oncologist today and that…
Ground Glass Opacities
Has anyone had a new finding of ground glass opacities in the lung on the post-treatment PET scan?
Dry mouth?
Though I am still dealing with mucositis and thick mucus in my throat I've noticed that my dry mouth has gotten worse. My tongue is so dry and my mouth will stick because of the dryness. I tried biotene but that only helps a tiny bit for less than an hour. I try to sip water but with my excess mucus still causes me to gag.…
Getting first biopsy for septum nasal symptoms. need advise?
I am scheduled for my first nasal biopsy on my spptum inside my nose. Very scared. What to expect afterward. My lesion is very small with dryness and crusting around since February. i am worried the doc will miss it and I will have to have more than one. Did anyone have a first biopsy that came back negative? How long did…
Gross Tongue
So I'm three months out from rads and chemo, and noticed that my tongue is still coated with a whitish/tan film. I've been brushing my tongue, but hasn't really helped. It kinds reminds me of algae, looks like I could pull it right off, but it is attached. Anyone else have a similar experience, and if so, any tips for…
Squamous cell cancer of the nasel septum
Preparing for Radiation Treatment - What worked for you?
I get my treatment plan next week, based off my recent CAT and PET Scans and HPV testing of needle biopsied material (SCC Base of the tongue with swollen nodes - no surgery at this point) I assume my treatment will start about two to three weeks from today. I've already been told it will be a combination of radiation and…
Organic Diet Benefits
Today I had my weekly visit with my Rad Oncologist and always enjoy our talks. He is very smart and is extremely well read. IMO anyway. I asked him about Zinc to help with my taste buds after treatment. (only 3 left out of 30) He said he really didn't know about it and doesn't hold vitamins in high regard as there isn't…
Need nausea med that does not cause constipation
Looking for a recommendation for a nausea med that would not cause constipation. Just finished my first week of radiation and have had nausea since day one but it is getting worse and lasts all the time. I see doctor Monday but don't think he will be helpful. He says it is not from the radiation. Trust me, it is.
Time from Diagnosis to Treatment
Wondering what timeline most people experienced from the point they knew they had cancer until treatment started. My ENT did a needle biopsy of my enlarged neck node on June 19, 2017. The biopsy came back postiive for SCC at the base of my tongue the next day. He referred me to the Stephenson Cancer Center the next morning…
Taste - Post Treatment
So, I am now 13 days post treatment. Everything seems to be healing well. I think I may be one of the lucky ones, as I have been seeing signs of improvement for about a week now. my concern is with taste. I've had no changes regarding my taste... still taste nothing! I was reading some posts and have become confused as to…
Cancer of the nasel septum inside the nose
Is there anyone who has had this very rare cancer? I have many of the presenting symptoms but also symptoms can vary between people. What were your early symptoms? How long did it take to get a diagnosis? What was your experience with this cancer or other cancers of the nasel septum or nasel cavity? Did you get a biopsy?…
PET post treatment
We got the info today that my husband's 12 week PET will be Thursday. Send positive thoughts our way. He still has a clearly visible residual node. Hoping we get clear results.
Need help
so 10 days ago I was told I have vertigo when I went to my GP. from all thats written, I do have it, BUT, thats not whats making the world go black whenever I stand up for more than a few minutes, or raise my arms above my shoulders. I cant take much more, I really need this under control. Im almost out of PTO/Vac/Sick…
PET scan tomorrow, results on Tuesday
And I am as nervous as a long tailed cat in a room full of rocking chairs.
Cancer free
but PET scan for NED is not going to happen anytime soon. On Monday I visited my oncologist who after physical and observation said that she could not detect any evidence of the tumour in my throat or in my lymph nodes. This is of course great news but I felt a little dejected that the PET scan has been put off until later…
Nasopharyngeal squamous cell carcinoma metastatic recurrent with mets on bone and liver
I have so many thoughts and feelings at this point. My husband was diagnosed in 2015 and completed the chemo and radiation with great results and was in remission for about a year and a half. In December he had a PET and they found mets on his hip. He did the chemo with marginal success and had a reaction to one of the…
First time posting
I have been following this forum for over a month as I was diagnosed with oral cancer of the tongue in January of this year. I had surgery in March of this year which included a neck dissection and a portion of my tongue rebuilt. The pathology report two weeks later showed the margins clear and as the cancer was caught…
First new topic post - awaiting official diagnosis.
I had a biopsy last week and an MRI yesterday but I already know what they will reveal because I can feel it. Tongue, throat, voice box, neck nodes both sides. it is affecting my eating, speech and breathing with rapid progression. Whatever that blood test is that shows cancer level in your body - mine is totally sky high.…
Tinnitus
I have tinnitus pretty bad, usually I don't hear it as I have got used to it but now I am also getting swishing sounds in my head or ears, it happens when I move my head, does anyone else get this, this is 8 years out from treatment.
Half Way There
Good morning fellow warriors. I woke-up today starting the second half of my treatment plan. I am on radiation treatment 16 of 30 and Cisplatin infusion 4 of 6. Before I get into my current side-effects, allow me to give you a little back ground sense I don't post on here often. My name is Chris. I am a 36 y/o Master…
No Surgery - Chemo and Radiation
The ENT met with us today and said that surgery is not an option because they would have to open his jaw and remove part of his voice box. Instead he is recommending chemo and radiation - no surgery. Was this the case for anyone?
New diagnosed
Hello everyone, I am new here. I was diagnosed with squamous cell carcinoma of throat and tonsil officially june 29th 2017. I am 48 years old,pretty healthy and had a sore throat for 2 months, ENT said was tumor right away. Had CT scan then sx june 28th 2017 to remove tonsil....lets just say dr was surprised with what he…

Head and Neck Cancer

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