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10 months out
Hi, I am 10 months post radiation treatments after having a hemiglossectomy with tongue reconstruction from my wrist along with node dissection bilaterally. This was my second surgery for tongue cancer. The first one did not require any treatments after surgery. I'm no longer on pain meds. My problem is with eating. I had…
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Recovery regarding TPN and feeding tube
My husband is one week out from treatment for tonsilar cancer. He had 3 treatments of Cisplatin and 7 weeks of radiation. He has both TPN and a feeding tube. I am wondering if anyone else has had these as well and what to expect long range. He presently cannot swallow.
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Long-term impacts of head and neck radiation
In January 2013, I was diagnosed with Stage 4b base tongue cancer. I had an inoperable tumor and involvement of lymph nodes on both sides of my neck. Tests proved my cancer was not HPV related. So I underwent 7 weeks of Cisplatin along with 35 radiation treatments. In July of that year I was declared cancer-free and just…
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mm
I had PET/CT 2 weeks ago,all clear .I now have growth on tongue 2 weeks later .Is this possibly cancer?
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Struggling to Adjust to Life After Treatment
I'm a 43 year old male who was diagnosed with stage 3 squamous cell carcinoma 11 months ago. Non-smoker, not a user of smokeless tobacco, negative for HPV, only a social drinker - came out of nowhere. Had a hemi-glossectomy (removed 2/3 of tongue) and removed 5 lymph nodes along with free flap replacement from left arm to…
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Support needed!
Hi all, I'm about to start week five of seven of radiation for SCC HPV+ to the left tonsil which spread to a couple of lymph nodes. Ive had a radical tonsillectomy prior to treatment starting. I've had one round of cisplatin but was taken off that due to hearing loss in the high frequencies. My chemo doc put me on Erbitux…
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4 weeks post treatment today
4 weeks post treatment all signed back to my ENT consultant who will see me on 7th September for a follow up appointment. Energy levels returning well running every day, off to arrange a back to work medical with the company doctor back to work on Monday hopefully. Everything appears to be almost back to normal for me…
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Popping in to say hello
One of the reasons I haven't been by because I forgot my password, and sometimes have problems logging in. Then I get distracted and go on to something else. Maybe some of you will remember me. A year ago I was in Houston around this time undergoing radiation. I finished on July 12th. Had 35 rads plus 6 boosters. On the…
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Tingling and numbness months after Cisplatin?
Has anyone developed tingling and numbness in their feet and hands months after their last Cisplatin treatment? Hubby did not experience any neuropathy during chemo but has started to have these symptoms in the last week or so.
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Truebeam
anyone know anything about this form of radiation?
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newbie questions
I've been recently diagnosed with HPV SCC. I first noticed the lump in May and after tests and specialists I recieved the diagnosis about 3 weeks ago. I'm starting to get over the overwhelming hump with good info and great forums like this. One question I had is my mass has gone up and down twice. Right now it is the…
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Scared and appreciative and just plain emotional
Hello all, I came across this site a few days ago and I must say it has been a positive light I've been searching for. I really have been comforted by the many stories I've read through and the supportive comments I've read others post. It truly seems like a community on here and that is what I've been looking for. My…
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sinus issues
im about 1.5 yrs out of treatment for stage 4 tonsil cancer. i have continues post nasal drip, congestion and now sinus headaches. anyone have similar experience post treatment?
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Fatigue/weakness
Is it normal to feel super weak all the time? I am so fatigued all I want to do and been doing is lay in bed all day. It is tiring for me just to do something simple as showering. I am so weak feeling when I get up and moving around doesn't make it better. It is hard to go up 2 flights of stairs my legs are so weak, also…
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Deemed medically unnecessary by Insurance
One year and one month ago I had nasopharyngeal tonsil cancer removed along with 39 lymph nodes and two glof ball sized neck masses. I chose unconventional treatments against Dr's orders. At my 3 month PET scan all looked great, surprised the doctor with energy and activity. All following visual inspections at the…
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Can't breathe, just cry
VCU Massey has a patient portal, where appts, and results are posted. I had a CT scan last friday, and I was waiting for the results to post. It says that - FINDINGS: The left tongue base enhancing mass has decreased in size and now measures about 8 x 13 mm. Enlarged metastatic nodes in levels 2 and 3 on the left have also…
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NED doing the dance
NED////// Had pet monday and results yesterday///all was clear in my neck.wow what a relief.I have a few things they want to check out but told me they thought all was still going to be okay.Thanks to everyone on this site as you all gave me hope and help guilde me through the tough times Dennis
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NED! Happy dance!
We feel like we're dancing on air. Of course, hubby will have to continue with follow ups and repeat scans but right now there is a lightness in our home that has been missing. Hugs to all!!
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New member - late stage - starting Keytruda
Hello all. Look forward to sharing. As my login indicates, I am the caregiver of this family. Husband diagnosed advanced throat tumor about 5 years ago. Maxed out Erbitux and radiation, finally going into remission. He has been on peg-tube since about half way through the radiation. Diagnosed late stage 4 with return of…
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Vitamix
Maybe I am the only person who did not know this but just in case there is some other uninformed caregiver or patient out there, I wanted to be sure everyone knows that Vitamix offers a medical discount for famiies who need to blend food for medical reasons. There are some hoops to jump through and your options are limited…
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About how long till taste buds return?
I cannot tell you how much I miss eating. Been feeding with peg tube since week 3 of rad. Fortunately my last rad is tomorrow! It's been super hard watching tv seeing all these food commercials or driving by my favorite restaurants, I crave so much. I completely lost my sense of taste from rad and chemo (cisplatin) I know…
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NED
During our road trip back from our 12 week post treatment PET, we got a call. The scan shows no CANCER. There is something new in the lung that needs to be followed up on but they repeated several times that it was not cancer. Plus, we ate out after the scan and he ordered food and actually ate it. If you have had a…
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Oral Symptoms; Looking for Insight
Hello all, I've got a series of oral symptoms that I'm concerned about, but feeling super confused. I've tunneled my way through the Dr. Google archives and decided to post here in the hope that this community can help me gain some insight. I'm experiencing a variety of oral symptoms that, if they were isolated, I wouldn't…
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Severe Leg Pain After Tongue Biposy
Anyone else experience severe leg pain after being put under for a tongue biopsy? I had my biopsy on Friday around 10:30am. As of right now (Sun at 11:20am) both of my legs, from the knee down, are extremely fatigued when I get up and walk. When I sit still they feel normal. When I try to walk it feels like I did after my…
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Dental problems long term
Good Morning, Newbie here to this site. Lol! Haven't said that for awhile since I'm 58. Anyway, I was diagnosed with base of tongue cancer in 2011. Went through 44 treatments of radiation to the head and neck. Now going on 5 years since, my teeth and gum problems are still a very important part of my day. The pain is at…
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ELEVENTH TREATMENT TODAY
Worst day yet. Nausea so bad all I could get down was a bowl of chicken noodle soup. My family doctor's office called today to see how I was doing. I told the nurse that I had horrible nausea and could not eat. She offered to call in a script for nausea but I told her I had an appointment with the Oncologist today and that…
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Ground Glass Opacities
Has anyone had a new finding of ground glass opacities in the lung on the post-treatment PET scan?
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Dry mouth?
Though I am still dealing with mucositis and thick mucus in my throat I've noticed that my dry mouth has gotten worse. My tongue is so dry and my mouth will stick because of the dryness. I tried biotene but that only helps a tiny bit for less than an hour. I try to sip water but with my excess mucus still causes me to gag.…
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Getting first biopsy for septum nasal symptoms. need advise?
I am scheduled for my first nasal biopsy on my spptum inside my nose. Very scared. What to expect afterward. My lesion is very small with dryness and crusting around since February. i am worried the doc will miss it and I will have to have more than one. Did anyone have a first biopsy that came back negative? How long did…
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Gross Tongue
So I'm three months out from rads and chemo, and noticed that my tongue is still coated with a whitish/tan film. I've been brushing my tongue, but hasn't really helped. It kinds reminds me of algae, looks like I could pull it right off, but it is attached. Anyone else have a similar experience, and if so, any tips for…