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Lymphadema
Where can I buy a compression garment for under the chin and neck? David started therapy and they are recommending a garment to sleep in. Wanting to check around for different prices as insurance doesn't cover it. Any suggestions or sites to check out? Thanks in advance for your time and trouble. Love to all and have a…
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Dr. Steven Sobol in Decatur, IL
Does anyone know of a Dr. Steven Sobol in Decatur, IL? He is an otolaryngologist. This is the Dr. who my Dad is going to for Base of Tongue Cancer. Just wondered if anyone knows of him, if so opinions? Thanks!
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Who's had a good (better?) experience with Radiation/Chemo?
Talked to the oncologist last week about the possible treatment after surgery (weekly chemo (cisplatin) and daily radiation for 6 to 7 weeks)for my supraglottic tumor. I have 2 lymph hot spots seen on my pre-op PET/CT so I need to prepare myself for this scenario). He told me about side effects both short term and long…
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thank you ALL.. 1st doctor appt tomorrow
Monday morning, this is the beginning of the reality. Mom has 1st appointment with radiation/oncologist tomorrow.. I just wanted to say THANK YOU ALLL so much for all the information, advice, kind words, support and stregnth. I feel so prepared for the appointment tomorrow and it makes me feel so much better that i can ask…
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Tongue Cancer just Diagnosed
Hi there I came across this site as i was just recently (feb 14, 2011) diagnosed with cancer at the back of my tongue. I had developed an off and on ear ache a few months ago, but i thought it was related to an small explosion working in our shop, as thats when it started. ever since then my ear ache has been off and on,…
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So affraid
So as I am sitting here waiting to have a partial neck dissection Done I am so scared, I don't know why I have had so much done but this is really bothering me. Brad
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taste
I have had 9 chemo and 35 radiation treatments I have been finished with my last treatment for 2 1/2 months but i still cain't eat or swallow food has no taste and it's hard to swallow hurts very bad my throat seen's swollen I am still useing a feeding tube but the ensure i use makes me sick and gives me heartburns I dont…
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Newly dianogsted with NPC stage3
Hi all, My husband 47 years old Vietnamese was dianogsted with NPC undifferenciated stage 3 on Monday this week. We are still in shock and shaking as I am typing this. We would like to learn all about this rare cancer and seeking support to fight this battle. We have 3 small children and so there is no other option but…
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Chewing Tobacco
Hello head and neck discussion board, I am usually on the EC discussion board, my dad passed away a year ago from EC. I have been meeting some new patients there, who have been dx with ec, who have been tobacco chewers. I just wanted to let you know that there is a company in Oregon who makes non tobacco snuff. The company…
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Needing advice prayers HEEEEEEElP
Hi everybody...I sure need you now. Brief recap of "C" history. The cancer du'jour squamous cell. Jan 2010 found in tumor on side of tongue and swollen lymph nodes. Radical radiation and chemo in March. Sept...found again in Paroid gland left side. Surgery to remove that..no lymph node activity. Healing for month.…
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NEW YORK - new Dx, please help
I've been scrolling through some posts, what a great website. My mother was just diagnosed with Metastatic Squamous Cell from a cancerous lymph node which was just resected.. we thought was a branchial cleft cyst. Similiar stories have been comforting. Anyone with a specific doctor in NY to recommend? This is so confusing.…
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A part of my soul
This is something I wrote a long time ago in my expression area here. In fact, I wrote it while still in the hospital and still high on some powerful drugs but, of course, didn't post it until a little bit later. My wife, in fact, and this is true, is a nurse and so was able to sleep on a cot next to my bed and actually…
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Can doctors do anything for neck and shoulder problems after post cancer treatments?
Hi Guys I am just wondering if the doctors can do anything for my neck and shoulder problems after post cancer treatments? Because I been post since last august and I am dealing with major pain in the neck and shoulder everyday and it gets to a point that I cant take it anymore. I never had this problem intill I had…
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Hypopharyngeal changed to Base of Tongue
Hi all, I posted last week after finding out my Dad had hypopharyngeal cancer. You all were so kind to give me such great information, advice, etc., some even taking time to email me and give me such great information! Thank you all so very much for that! My Dad saw his cancer doctor (oncologist?) on Tuesday. The cancer is…
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Fentanyl lollypop
Some time ago someone on this site spoke about Fentanyl lolipop, used for breakthrough pain. I cant for the life of me remember who it was. Anyway id like to know if anyone has used this, but used this under conditions of mucositis (not just as a pain kiler) and if so did it burn. Clear
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Dry mouth sore throat
Any body got a remedy for dry mouth and sore throat
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Post treatment question
Hi everyone, I try to log on most days and read to keep up with everyones progress. I think quite a few of you are recently post treatment, just had a first scan or getting ready to have a first scan. I say Prayers for all of you going through this ordeal. My Dad finished his radiation and chemo on February 8, 2011. He met…
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Tung Cancer
Hi i'm Pieter, i was diagnosed with tung cancer 6 years ago. The dr removed the cancer on the tung with the biops. Another dr cut 30 x 20 x 20 mm of the tung in the area where the 1st dr did the biops, but found that all the cancer was cut out with the biops. No radiation or chemo was done afterwards. In April 2010 i went…
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Accepted for Tranoral Robotic Surgery
I saw Dr. Eric Genden at Mount Sinai last Thursday. I got escorted back to the ENT area and everyone I encountered was very nice. Dr. Genden showed me my tumor (ugly thing) hanging from the beginning of my larynx pretty far up from the vocal cords. He was very personable and explained the three different type of these…
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Doc says you're "cured" before scan or official "NED" finding?
Hey Kids. I'm all done my chemo and radiation, trying to get my throat all healed up, have a CT scan in a couple weeks in hopes of meeting good ol' NED. Here's the thing. Have had 2 follow-up, post-treatment doc meetings w/chemo doc, and BOTH times he has said that I'm "cured." He actually said the word "cured," both…
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I FINALLY met Mr. NED
I finally got a clean scan and got to do the NED dance. In my case I am doing the NED cha cha! I had some area of activity in one lymph node on my November PET-CT Scan (3 months post treatment) but this one is Clean, Clean, Clean! For those of you fighting the fight HANG IN THERE. You CAN DO IT. I give ALL the glory to God…
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Prayers for Judy today
Everyone Judy goes in today, let pray that everythings works out for her. Not only her but every one of us that have similar experiences. Dave
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Once more unto the breach, dear friends, once more
7 months out and had a PET/CT scan this week which shows a hot spot at the site of the original tumor at the BOT. Not exactly the results I was looking for. After consultation with the ENT, he is recommending surgery to remove the 'Primary site residual tumor'. He doesn't see anything to lead him to believe the hot spot is…
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lost of taste cain't swallow
I have had 9 chemo and 35 radiation treatments I have been finished with my last treatment for 2 1/2 months but i still cain't eat or swallow food has no taste and it's hard to swallow hurts very bad my throat seen's swollen I am still useing a feeding tube but the ensure i use makes me sick and gives me heartburns I dont…
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Not what I wanted to hear but better than I expected...
As some of you know I had a CT scan in February and they saw "subtle changes" in my left lung so the scan was being sent to the Cancer Review Board. I finally heard from my rad onc yesterday and he said there was a lesion in my lung but the nodule didn't look the same as the one I had which was NSCLC adenocarcinoma. I went…
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Back from trip
Hi all: Basketcase checking in here! I returned home yesterday from 10 days gone! I went to NC on the 22nd for my brother-in-law to do my taxes and came out pretty darn good. Will not have pay as much as we thought! Praise the Lord! I was there for my father-in-law's 87th birthday on Thursday the 24th and I left on the…
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Removal of Peg
Hi Folks, Well, I did have my Peg removed and I was really nervous as I didn't know what to expect. Well, it wasn't that bad at all. It felt like a rubber band snapped for a few secinds and it was all over. I had soon drainage but it feels GREAT to have that tube out. I feel like I hit the mega million lottery!!!!! I went…
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Don't tell my husband, but I went dancing with NED yesterday... eeeeeeeeeeeee!
I had my 9-month post treatment checkup at Stanford yesterday, and there was no evidence of disease. Yay! Granted, all they did was scope ('gack'), palpate the base of my tongue ('gag gag gag gag gag') and squeeze my throat till I got a little blue in the face ('wheeze') but it was still happy news. I finished cisplatin…
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10 years post-radiation Pain??
Hi everyone. My 78 year old father is a 10+ year survivor of throat cancer with treatment consisting of chemo and 33+ radiation treatments. Within the past year or so he began complaining of pain in his throat, difficulty swallowing and episodes of coughing. No tumors were found during diagnostic tests although he has a…
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Return of taste Buds
I am trying to get off this feeding tube and on to real food. But everytime I put anything in my mouth, it has a horrible taste and I end up not eating. Then the depression sets in and real plays a number on my mind. Is there anyone out there that can give any helpful info? Can you eventully return to normal eating or is…