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Blood Work
Hi there My wife is 15 days in RT & weekly Erbitux. Her mouth is "on the burner" and she was given oxcycot today. 1.What are the issues here i should keep tabs on? 2.What should i be keeping my eyes on - re blood work etc. My knowledge on this matter leaves little to be desired. Clear
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No NED this time
Just finish my PET and MRI at MD Anderson yesterday the MRI came back OK but PET lit up an area of suspect again, o-well back to the old normal. Also on my Vision problem I had to see the Ophthalmologist there at MD Anderson and she found that I have a lot of pressure on my brain, not sure why. The PET and MRI does not…
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How Long have you had your feeding tube for?
My father is going through surgery in a couple of weeks. His lips are going to be partially sealed on one side. As it is he cant open the mouth much, and after the surgery he will not be able to open much either. Also his left upper and lower gums will be removed with the jaw. I know he is worried about his appearance post…
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feeding tube
Should there be an strong odor from the tube? had it for about 6 months now, and just noticed a foul odor around my husband?
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neck is swollen
My husband has had throat cancer and we noticed that his neck started swelling up since yesterday after his rad treatment has anybody had this happen to them?
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Scared as heck
I was recently diagnosed with head and neck cancer. I had a fairly large tumor, doctors words,in my limpnoid and just two weeks ago went thru a right-side disection. Thankfully, the cancer had not spread so can do just raidiation and not Chemo. Doctor suggest feeding tube! I am really scared at this time as my wife, of 16…
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Good and Bad News
Hi, The good news is that the insurance company approved the transoral robotic surgery for my supraglottic tumor to take place a week from today March 18th. The case manager said the package of information (journal articles, Utube video citations, etc.) I put together and sent them was the deciding factor more so than the…
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So tired
So tire but cannot sleep. Surgery in the morning and im letting my mind wonder...All the what if's are sneaking up and I cannot shake them.
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TAKE GOOD WOUND CARE STEPS WITH YOUR PEG
I was supposed to have my PEG removed on the 21st of this month. I ended up having it removed this past Tuesday morning. Monday night I was made a direct admit into the hospital for a very serious and aggressive staph infection. I had always changed the dressing daily and thought I took good care of it. The docs say staph…
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Lymphadema
Where can I buy a compression garment for under the chin and neck? David started therapy and they are recommending a garment to sleep in. Wanting to check around for different prices as insurance doesn't cover it. Any suggestions or sites to check out? Thanks in advance for your time and trouble. Love to all and have a…
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Dr. Steven Sobol in Decatur, IL
Does anyone know of a Dr. Steven Sobol in Decatur, IL? He is an otolaryngologist. This is the Dr. who my Dad is going to for Base of Tongue Cancer. Just wondered if anyone knows of him, if so opinions? Thanks!
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Who's had a good (better?) experience with Radiation/Chemo?
Talked to the oncologist last week about the possible treatment after surgery (weekly chemo (cisplatin) and daily radiation for 6 to 7 weeks)for my supraglottic tumor. I have 2 lymph hot spots seen on my pre-op PET/CT so I need to prepare myself for this scenario). He told me about side effects both short term and long…
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thank you ALL.. 1st doctor appt tomorrow
Monday morning, this is the beginning of the reality. Mom has 1st appointment with radiation/oncologist tomorrow.. I just wanted to say THANK YOU ALLL so much for all the information, advice, kind words, support and stregnth. I feel so prepared for the appointment tomorrow and it makes me feel so much better that i can ask…
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Tongue Cancer just Diagnosed
Hi there I came across this site as i was just recently (feb 14, 2011) diagnosed with cancer at the back of my tongue. I had developed an off and on ear ache a few months ago, but i thought it was related to an small explosion working in our shop, as thats when it started. ever since then my ear ache has been off and on,…
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So affraid
So as I am sitting here waiting to have a partial neck dissection Done I am so scared, I don't know why I have had so much done but this is really bothering me. Brad
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taste
I have had 9 chemo and 35 radiation treatments I have been finished with my last treatment for 2 1/2 months but i still cain't eat or swallow food has no taste and it's hard to swallow hurts very bad my throat seen's swollen I am still useing a feeding tube but the ensure i use makes me sick and gives me heartburns I dont…
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Newly dianogsted with NPC stage3
Hi all, My husband 47 years old Vietnamese was dianogsted with NPC undifferenciated stage 3 on Monday this week. We are still in shock and shaking as I am typing this. We would like to learn all about this rare cancer and seeking support to fight this battle. We have 3 small children and so there is no other option but…
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Chewing Tobacco
Hello head and neck discussion board, I am usually on the EC discussion board, my dad passed away a year ago from EC. I have been meeting some new patients there, who have been dx with ec, who have been tobacco chewers. I just wanted to let you know that there is a company in Oregon who makes non tobacco snuff. The company…
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Needing advice prayers HEEEEEEElP
Hi everybody...I sure need you now. Brief recap of "C" history. The cancer du'jour squamous cell. Jan 2010 found in tumor on side of tongue and swollen lymph nodes. Radical radiation and chemo in March. Sept...found again in Paroid gland left side. Surgery to remove that..no lymph node activity. Healing for month.…
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NEW YORK - new Dx, please help
I've been scrolling through some posts, what a great website. My mother was just diagnosed with Metastatic Squamous Cell from a cancerous lymph node which was just resected.. we thought was a branchial cleft cyst. Similiar stories have been comforting. Anyone with a specific doctor in NY to recommend? This is so confusing.…
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A part of my soul
This is something I wrote a long time ago in my expression area here. In fact, I wrote it while still in the hospital and still high on some powerful drugs but, of course, didn't post it until a little bit later. My wife, in fact, and this is true, is a nurse and so was able to sleep on a cot next to my bed and actually…
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Can doctors do anything for neck and shoulder problems after post cancer treatments?
Hi Guys I am just wondering if the doctors can do anything for my neck and shoulder problems after post cancer treatments? Because I been post since last august and I am dealing with major pain in the neck and shoulder everyday and it gets to a point that I cant take it anymore. I never had this problem intill I had…
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Hypopharyngeal changed to Base of Tongue
Hi all, I posted last week after finding out my Dad had hypopharyngeal cancer. You all were so kind to give me such great information, advice, etc., some even taking time to email me and give me such great information! Thank you all so very much for that! My Dad saw his cancer doctor (oncologist?) on Tuesday. The cancer is…
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Fentanyl lollypop
Some time ago someone on this site spoke about Fentanyl lolipop, used for breakthrough pain. I cant for the life of me remember who it was. Anyway id like to know if anyone has used this, but used this under conditions of mucositis (not just as a pain kiler) and if so did it burn. Clear
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Dry mouth sore throat
Any body got a remedy for dry mouth and sore throat
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Post treatment question
Hi everyone, I try to log on most days and read to keep up with everyones progress. I think quite a few of you are recently post treatment, just had a first scan or getting ready to have a first scan. I say Prayers for all of you going through this ordeal. My Dad finished his radiation and chemo on February 8, 2011. He met…
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Tung Cancer
Hi i'm Pieter, i was diagnosed with tung cancer 6 years ago. The dr removed the cancer on the tung with the biops. Another dr cut 30 x 20 x 20 mm of the tung in the area where the 1st dr did the biops, but found that all the cancer was cut out with the biops. No radiation or chemo was done afterwards. In April 2010 i went…
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Accepted for Tranoral Robotic Surgery
I saw Dr. Eric Genden at Mount Sinai last Thursday. I got escorted back to the ENT area and everyone I encountered was very nice. Dr. Genden showed me my tumor (ugly thing) hanging from the beginning of my larynx pretty far up from the vocal cords. He was very personable and explained the three different type of these…
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Doc says you're "cured" before scan or official "NED" finding?
Hey Kids. I'm all done my chemo and radiation, trying to get my throat all healed up, have a CT scan in a couple weeks in hopes of meeting good ol' NED. Here's the thing. Have had 2 follow-up, post-treatment doc meetings w/chemo doc, and BOTH times he has said that I'm "cured." He actually said the word "cured," both…
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I FINALLY met Mr. NED
I finally got a clean scan and got to do the NED dance. In my case I am doing the NED cha cha! I had some area of activity in one lymph node on my November PET-CT Scan (3 months post treatment) but this one is Clean, Clean, Clean! For those of you fighting the fight HANG IN THERE. You CAN DO IT. I give ALL the glory to God…