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110.7 Yippee skippy. :)
Well I had my check up with my RO. I was shocked when I stepped on the scale. I definitely did not have to wear 6 layers of clothing, boots, and have a pocket full of pennies this time when I stepped on the scale. Dress and heels. 110.7 Much better than 87 pounds. :D He gave me the old scope-a-rooni. Looked and felt around…
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No go for removal of tumor, Rads next
Well I had my surgery yesterday which was suppose to take out my supralaryngeal tumor with the transoral robotic surgery at Mt. Sinai with a neck resection for the two suspected nodes. They had to put the breathing tube in while I was still awake, real scary but the anesthesiologist was very good, used a ton of local and…
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Surgery....Postponed!!!
A very brief summary of the past 2 weeks: 7 month post rad/chemo PET/CT scan shows a hot spot at original cancer site on BOT. Surgery recommended. I continually inquire about the possibility of 'false positives'. 2nd and 3rd opinions: Scope looks normal, physical exam looks normal, PET/CT looks not good. MRI recommended to…
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Saliva Glands
Some of the post here are about people having saliva gland problems after radiation, I am starting this thread so we who have been through radiation can all give advice on what we are doing to help our saliva glands to work. Here are some of the tricks I am using: 1. Chewing sugarless gum, 2. Using Sea mineral Boost,…
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How many radiologists does it take to screw in a light bulb?
Just one but the light bulb needs to be brought in every day M-F for 7 weeks and at the end of the 7 weeks the bulb won't work for a few more weeks.
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eating
I know a lot of us have experienced mouth sores. For me round 2 is worse. I do not have a feeding tube, they haven’t mentioned putting it back in. My nutritionist suggested feeding myself orally with the syringe to avoid the mouth sores. It seems to work. Don't have to use sore tongue.
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New York Times Interview
I joined the group right after my ENT told me I may have cancer. I wanted to let you all know about the interview I had yesterday with a New York Times reporter doing a story on the surgeon, Dr. Eric Genden at Mt. Sinai, who will be doing my biopsy and surgery (transoral robotic and neck resection) this Friday. Dr.…
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eye side effects
I was just wondering if anyone else has had problems with their eyes after undergoing radiation to the face and surgery. My mother's left eye (which is the side where the cancer was) still waters quite a bit, and itches some 7 months after radiation and 9 months after surgery to sinuses. It doesn't hurt at all, just…
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On the way back to MD Anderson up-date 3-16
OK now that I am feeling great again we go back to MD Anderson tomorrow for some more testing. I will say one good thing about it; I am no longer having Vision problems, so the medication they are giving me is working. But the side affects of the medication are really bad. I will give you all an up-date when we get back…
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natural/alternative treatments?
Where can i find real information on natural/alternative treatments or supplements? Has anyone opted to not do chemo/radation and try alternative therapy? What are your experiences? What about vitamins/supplements/alternative treatments to combat side effects of radiation?
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Scan results for Dad
Dad got the results from his scan on Friday and it was NED!!!!! We were so happy and I think I was a little in shock when I heard it. Thank you for everything and all of the prayers. When I joined this wonderful family a year ago I never thought I would get to post this wonderful news. My family sends prayers, hugs and…
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hair loss & radiation Does it grow back?-
Anyone lose hair owing to radiation only? and does it grow back ? Clear.
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Woooppie
Hi all, Just woke up. And back yo sleep real soon. Biopsy today. I don't know what they used but higher then a kite, sleepy and lots nausea. GEEEEZZZ Anyway, Gotta love those pain pills. LOL. My ENT used me as a pin cushion. I don't think he missed a spot. Soooooo, pill time and back to lala land in 10 mins. but I missed…
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Stoppers4-save some money
I get my Stoppers4 at Cosmetic Mall.com The four ounce bottles are $5 each. They award "points" for every purchase, (that equal 5% of the purchase amount). Today I ordered four jugs and paid $11.95 including shipping...thanks to the points I have accumulated. Beats the heck out of biotene 1.5 oz. for $7 bucks at Kroger.…
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bilateral carotid body tumors
Hello! Please if anyone had bilateral carotid body tumors resection which were the complications after, if any. My husband (34 years old) did a surgery 3 years ago for resection of a carotid body tumor on the right side and about a week ago a new carotid body tumor on the left side was discovered. We have read some studies…
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recunent squamous cell carcinoma to the tongue
We recently found out that my husband's tonsil cancer of 4 years ago has recurred at the base of his tongue. We are not being given many choices. They are saying that as he had chemo and radiation the first time, he cannot have radiation again. his option is to have his entire tongue taken out. He would not be able to eat,…
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Dad 4 months out of treatment for Stage 4 tongue cancer-still in pain?
hello again, my poor father is still experiencing horrible pain.. he finished treatment chemo and radiation on june 17 and 18th.. he had 8 biopsies done about 3 months ago and they came backed no cancer, ENT was shocked because he said my father had a very advanced cancer... he was doing well this past month and gets the…
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Facial Swelling
Hello, Everyone, Almost 2 weeks now post treatment. Doctors say things are healing well. Able to get some water down; but still not taking shakes or anything. I have question about facial swelling and dry skin. Throughout treatment my right side of made face got swollen and my face got really dry. The swelling has gone…
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Biopsy schduled for St Patricks Day
No green beer for me..My Pet scan came back and my mouth was lite up like a xmas tree. No where else. Not in lymph nodes or throat or rest of body..all clear there. 8 weeks out of radiation for surgury on parotid gland (Sept 2010) but lite up. Voice box and surrounding tissue swollen. He says from radiation. and he found…
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Good News!
My mother's biopsy showed no evidence of cancer! The ENT said they want her to come back in 6 weeks for an MRI to see if there are any changes. if there are, they'll do another biopsy. I'm not even thinking that. For now, I'm sooooo happy and so is Mom! Thank you all for the prayers. This site has been my lifesaver in a…
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Carotid body tumors and follow-up
I have had surgery for bilateral carotid body tumors or paragangliomas. I was wondering if anyone has any advice on what I should be watching for in terms of this showing up anywhere else. After researching on my own, I am now finding that I should be doing follow-up care. Anyone with any advice, please let me know. I am a…
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I HAVE PED FORMULA FOR SOMEONE TO USE
All, I have several cases of "2 Cal" nutrition and another simillar product, just not as many calories per serving, if someone can use it. unopened cans so it is safe and still good. PM me with a ship to address and I will send it. Mike
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Question on Nasopharygenal cancer patient follow-up checkup
My husband finished Chemo/radiation treatment for nasopharygeal cancer on last June. I have a question on what is the standard follow-up check up. Generally we see ENT and Oncologist every 3 months. But should I do CT or Petscan or both? how often? Thank you
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An Update
After joining and posting a few questions several months ago, I strangely stopped visiting the site - avoidance? I don't know. I've been in good spirits with some ups and downs. This condition and the effects of treatment are frustrating though. My third and last chemo was January 25, and the final radiation treatment was…
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Chemo Pump Question
A friend of the family started chemo this week for tongue cancer that has spread to her lymph nodes. She had mentioned that she was going to be on a pump for 96 hours. I know some of you werre on 5FU for that 96 hours. My friend was on cisplatin for those 96 hours. Has anyone here heard of that? She is going to a local…
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How many oncologists does it take to screw in a light bulb?
Just one but get a second and third opinion because the light might not even be burned out and oncologists don't know how to flip light switches.
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NED vs. Remission......
.....doc today told hubby that his scans looked good, bloodwork is good, and that he is "in remission". Of course we are thrilled and happy dancing, and thanking everyone for their support on this site! I was surprised that doc used the term "remission" though.....I thought that was more reserved for a Hodgkins-type…
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Scope today
Hubby had scope today - first since ending chemoreirradition for epiglottic cancer 18 months ago. ENT said he saw two areas of "irregularity" on epiglottis. Suggested scoping again in two months. All PETs - last one in November, came out clean in this area. Has anyone else had areas of "irregularity" that turned out ok?…
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LARYNX CANCER
I am on Radiation Treatment for my Larynex Cancer .I took 11 treament and 22 more to go. I have great pain for swolling which was not before. Pain is unbarble.Doctor says you have to bare it.No medicaton prescribed. Is anybody have remady to deal with this throt pain .Even I feel difficulty in swolling water too!
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stupid relatives
So I really need to vent. Went to visit the in laws. My father in law started talking about his friend who has stage IV cancer so me trying to show him that people could make it through that said that my cancer was stage IV (He lives far away so he did not see me during my treatments). Then he proceeds to tell me that my…