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Once more unto the breach, dear friends, once more
7 months out and had a PET/CT scan this week which shows a hot spot at the site of the original tumor at the BOT. Not exactly the results I was looking for. After consultation with the ENT, he is recommending surgery to remove the 'Primary site residual tumor'. He doesn't see anything to lead him to believe the hot spot is…
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lost of taste cain't swallow
I have had 9 chemo and 35 radiation treatments I have been finished with my last treatment for 2 1/2 months but i still cain't eat or swallow food has no taste and it's hard to swallow hurts very bad my throat seen's swollen I am still useing a feeding tube but the ensure i use makes me sick and gives me heartburns I dont…
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Not what I wanted to hear but better than I expected...
As some of you know I had a CT scan in February and they saw "subtle changes" in my left lung so the scan was being sent to the Cancer Review Board. I finally heard from my rad onc yesterday and he said there was a lesion in my lung but the nodule didn't look the same as the one I had which was NSCLC adenocarcinoma. I went…
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Back from trip
Hi all: Basketcase checking in here! I returned home yesterday from 10 days gone! I went to NC on the 22nd for my brother-in-law to do my taxes and came out pretty darn good. Will not have pay as much as we thought! Praise the Lord! I was there for my father-in-law's 87th birthday on Thursday the 24th and I left on the…
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Removal of Peg
Hi Folks, Well, I did have my Peg removed and I was really nervous as I didn't know what to expect. Well, it wasn't that bad at all. It felt like a rubber band snapped for a few secinds and it was all over. I had soon drainage but it feels GREAT to have that tube out. I feel like I hit the mega million lottery!!!!! I went…
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Don't tell my husband, but I went dancing with NED yesterday... eeeeeeeeeeeee!
I had my 9-month post treatment checkup at Stanford yesterday, and there was no evidence of disease. Yay! Granted, all they did was scope ('gack'), palpate the base of my tongue ('gag gag gag gag gag') and squeeze my throat till I got a little blue in the face ('wheeze') but it was still happy news. I finished cisplatin…
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10 years post-radiation Pain??
Hi everyone. My 78 year old father is a 10+ year survivor of throat cancer with treatment consisting of chemo and 33+ radiation treatments. Within the past year or so he began complaining of pain in his throat, difficulty swallowing and episodes of coughing. No tumors were found during diagnostic tests although he has a…
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Return of taste Buds
I am trying to get off this feeding tube and on to real food. But everytime I put anything in my mouth, it has a horrible taste and I end up not eating. Then the depression sets in and real plays a number on my mind. Is there anyone out there that can give any helpful info? Can you eventully return to normal eating or is…
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Prayers are working so Far
Thank you everyone for the prayers. Today my dad saw the rad oncologist and he was very happy with everything. He checked his weight and did a pretty close exam of his neck, mouth, tongue and eveywhere elese. He sadi everything looks great. Now keep praying for us as we go through the CT and getting the results next week.…
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I have an appointment to remove my port!
Just got back from the Med. Onc. My scans from last week were clean. I am about 14 months from diagnosis (NPC) and 10 months from the end of radiation. During the first Chemo treatments (about a year ago), I developed bilateral pulmanary embolisms and after a brief hospital stay I have since been on Coumadin. The doc told…
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"The Emperor of All Maladies - A Biography of Cancer"
I just finished reading "The Emperor of All Maladies - A Biography of Cancer" by Siddhartha Mukherjee. I highly recommend it. You can read the reviews on-line; it's sold on Amazon or at any book store.
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PET scan yesterday.........
Keeping my fingers crossed that it will come back clean......... On another note..........Had my swallowing test last week and that did not go well at all...Thin liquids are it right now.......I couldn't even get a small barium tablet to go down......The muscle in that area is Radiation affected along with the nerves and…
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I survived my 1st chemo sessions
Hi everybody, i have survived my 1st chemo sessions. . . . I went into hospital on the 22nd Feb 2011 and got out this morning the 1st Mar 2011. Thank you for all the encouragement i have reived from you and wish everybody a speedy recovery! God bless us all
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Keep us in your thoughts and prayers
Hi everyone, My dad goes for his 6 month check up starting Thursday. He has an appointment with his Rad oncologist Thursday, a CT scan Monday and will get the results next Friday. His scan at 2 1/2 months still showed some activity on the tongue. His oncologist thought it was just activity from the rads but the ENT was…
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canker sores
i started to develop I think are large canker sores on my tongue,there good size, how strange?, I have reflux at night and only have half a larynx to shut off anything coming up, I take reflux medicine, but the cankers appeared on the fron side of my tongue, I started salt water to rinse as well..Anyone else ? Thanks Dennis
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social situations and travel
I was wondering what to do in social situations involving eating. Do you stay away from restaurants? We were able to attend a large social gathering at a pizza place recently without anyone even noticing Buzz nursing a bottle of gatorade which he brought along. In a small group I think it would be noticed. The guy across…
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blood transfusion
Has anybody had to have a blood transfusion after cemo treatments? my husband's cemo docter wants him to try a new drug Aranesp because his blood level is 9.7 But there is alot of risk to this drug. He has had a liver transplant 10 years ago, now throat cancer. Has a feeding tube and had to have a track because he stopped…
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If they can't find the primary do we radiate?
I was reading Joel4's comments and they didn't radiate him because they couldn't find a primary. Loal had his neck dissection done last week, because "we want to survive this" but all the samples came back clean. Now what? He has lost his teeth, his feeling in his ear, and he has slurred speech and keeps biting his tongue.…
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Hearing and vision issues
HAs anyone found that the chemo or radiation has effcted their sight or hearing. I am seeing zig zags. Not often but they feel weird. THey dont usually last long and go away leaving me a headache. I have never had headaches i might average one ever 3-4 years and latley I have been having about one a month. Not bad just…
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CBS News: Study: HPV linked to head, neck cancers in men
More regarding HPV and Head and Neck... http://www.cbsnews.com/video/watch/?id=7358037n
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Melatonin
I noted some reports on Melatonin over the last year but as with many things, took a long while to get back and find out more. I used to take it for Jet Lag and just now, have commenced reading a rather long but fascinating series of reports published in Life Extension.org magazine. The reports are well worth a look at as…
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Just discovered tumor, should I go to a major medical center for surgery?
Had a sore throat for a few months and then difficulty swallowing for a couple of weeks. Went to my primary who thought I might have silent GERD due to a medication I was taking. They sent to an ENT (took 2 weeks to get in). PA thought it was GERD but with scoping saw a swollen area on the right side of my larynx…
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A WT? moment
Yes, I am living the nightmare. A distant met that is acting very quickly. My head and neck are clear. I can't breath because I have a tumor in my right airway blocking the fuction of my right lung. On Tuesday the Doc will remove the tumor (a temp fix) the chemo will start next week. Last Thursday they put in a port I woke…
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Have A Drink On Me
Gotta love AC/DC Everyone on this board has been AWESOME. And I will continue to lurk and offer support and advice where and when I can. It won't be much as my expertise is limited, but I will try. I do have a small request. Around 11 am EST (or your time where ever you may be located) have a drink for me. Irish tradition…
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I MET NED THIS MORNING
Hello all, I had my first PET Scan yesterday and received this morning, "NO EVIDENCE OF NEW DISEASE." I see my ENT tomorrow morning for a physical checkup. I do not think the good news has sunk in yet. I thought I would have jumped out of my shoes. It has been a long 7 months to get to this point. BEST!! Mike
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Chemotherapy for Neck Cancer Treatment
On Tuesday, 02-22-2011, I met with a Otorhinolaryngology (head & neck Surgeon) at the Mayo Clinic in Phoenix, Arizona. Besides being scheduled for surgery, I was told by him that I also would be doing radiation as part of the treatment. I was relieved when he told me that I would not be undergoing any chemotherapy. The doc…
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I just wanted to say "thanks a million"
To ALL the great people on this site I just wanted to thank you for all the advice, comfort, wisdom and hope that you have given Connie & I. I remember my first post back in Oct. 2010 when I was really worried because I did not have insurance and I felt I had let Connie down by my ignorance. I was surprised the next day…
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Taheebo
Just diagnosed. I read about Taheebo Tea and ordered it, Has anybody out there tried it? Not as an alternative but hopefully an added benefit.
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HPV positives may be being over treated
Went for a check up at Johns Hopkins with my Radiation and Chemo doctors yesterday and everything checked out great. They both say that im doing extremely well. My oncologist was telling me that they discovering lots of new things about HPV+ cancers. She said that there are two clinical trials going on right now and that…
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Peg Tube: Should I or shouldn't I
I am in the 4th week of my 6 1/2 week radiation. My throat is pretty sore but my DR said that I also thrush which may be contributing to the pain. I can get Ensures down with psyllium and L-Glutimine down. My question is how much worst will my throat get and should I schedule the Peg. I would love to think I could rough it…