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CBS News: Study: HPV linked to head, neck cancers in men
More regarding HPV and Head and Neck... http://www.cbsnews.com/video/watch/?id=7358037n
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Melatonin
I noted some reports on Melatonin over the last year but as with many things, took a long while to get back and find out more. I used to take it for Jet Lag and just now, have commenced reading a rather long but fascinating series of reports published in Life Extension.org magazine. The reports are well worth a look at as…
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Just discovered tumor, should I go to a major medical center for surgery?
Had a sore throat for a few months and then difficulty swallowing for a couple of weeks. Went to my primary who thought I might have silent GERD due to a medication I was taking. They sent to an ENT (took 2 weeks to get in). PA thought it was GERD but with scoping saw a swollen area on the right side of my larynx…
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A WT? moment
Yes, I am living the nightmare. A distant met that is acting very quickly. My head and neck are clear. I can't breath because I have a tumor in my right airway blocking the fuction of my right lung. On Tuesday the Doc will remove the tumor (a temp fix) the chemo will start next week. Last Thursday they put in a port I woke…
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Have A Drink On Me
Gotta love AC/DC Everyone on this board has been AWESOME. And I will continue to lurk and offer support and advice where and when I can. It won't be much as my expertise is limited, but I will try. I do have a small request. Around 11 am EST (or your time where ever you may be located) have a drink for me. Irish tradition…
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I MET NED THIS MORNING
Hello all, I had my first PET Scan yesterday and received this morning, "NO EVIDENCE OF NEW DISEASE." I see my ENT tomorrow morning for a physical checkup. I do not think the good news has sunk in yet. I thought I would have jumped out of my shoes. It has been a long 7 months to get to this point. BEST!! Mike
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Chemotherapy for Neck Cancer Treatment
On Tuesday, 02-22-2011, I met with a Otorhinolaryngology (head & neck Surgeon) at the Mayo Clinic in Phoenix, Arizona. Besides being scheduled for surgery, I was told by him that I also would be doing radiation as part of the treatment. I was relieved when he told me that I would not be undergoing any chemotherapy. The doc…
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I just wanted to say "thanks a million"
To ALL the great people on this site I just wanted to thank you for all the advice, comfort, wisdom and hope that you have given Connie & I. I remember my first post back in Oct. 2010 when I was really worried because I did not have insurance and I felt I had let Connie down by my ignorance. I was surprised the next day…
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Taheebo
Just diagnosed. I read about Taheebo Tea and ordered it, Has anybody out there tried it? Not as an alternative but hopefully an added benefit.
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HPV positives may be being over treated
Went for a check up at Johns Hopkins with my Radiation and Chemo doctors yesterday and everything checked out great. They both say that im doing extremely well. My oncologist was telling me that they discovering lots of new things about HPV+ cancers. She said that there are two clinical trials going on right now and that…
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Peg Tube: Should I or shouldn't I
I am in the 4th week of my 6 1/2 week radiation. My throat is pretty sore but my DR said that I also thrush which may be contributing to the pain. I can get Ensures down with psyllium and L-Glutimine down. My question is how much worst will my throat get and should I schedule the Peg. I would love to think I could rough it…
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Plain and Simple : I need you folk.
Hello to my old friends and new warriors on this site. As you might have read from previous posts, my wife who is Fancini Aneamic and after 4 surgeries the last year and another 3 in previous years , has finally had to succumb to the "no choice" of radiation, which is considered life threatening. This is because Fanconi…
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The Doctor didn't say it was going to hurt this bad!
Loal had all of his lymph nodes removed on right side yesterday. The 1-2 hour procedure was 4.5 hours. Nodes wrapped around scar tissue from the cyst removal in Oct. Had to take some of his muscle out. He can't feel his ear. Doctor said it'll always be numb. He is having trouble with his tongue and talking. Well, last…
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Lymphedema?
My husband finished chem/rads for IVa BOT at the end of December (surgery not possible). The last 2 days his neck has been swelling, his upper shoulders hurt and he feels like there is fluid in his neck where the tumor was. He hasn't had his follow-up CT yet so we don't know whether or not he's NED. It sounds to my perhaps…
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New Here, Father diagnosed with hypopharyngeal cancer...
Hi there. Just thought I'd join this group as I know the days ahead are going to be rough. My dear father was just diagnosed with hypopharyngeal cancer. In two days will have the scan to see if cancer has spread, then in a week sees a specialist who will give all the info such as what stage, if it has spread, etc. At this…
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"There must be some way out of here, said the Joker to the Thief"
(Bob Dylan reference) I visited ENT Man on Tuesday. As per the norm, I arrived early so that he could see me more than an hour later. Fortunately, CNN was on the television rather than Sesame Street so I was able to watch the Egyptian Riots Reality Show rather than Bert and Ernie. This assisted in my remaining for more…
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NCP
Have any of you gotten ct scans showing a mass 6 mos. after treatment which turn out to be nothing after biopsy
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NEC vs. NED
The result I was told of Mark's PET on Wednesday was NEC (No Evidence of Cancer). NEC or NED...Nice to Hear (NTH) regarding SCC, HPV+ Tonsil survivorship. Love you all here on CSN. Also surgeon's office gave the A-OK for Mark to have a massage. He has been wanting one...now I can get him one for Valentine's Day. It's a…
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Ability to smell / Nasal steroid rinse
Diagnosed with Stage II Esthesioneuroblastoma ("c" of the olfactory/smelling nerves) on January 29, 2009. Tumor removed endoscopically February 9, 2009. I never lost my sense of taste. However, until last week, my ability to smell has been sporadic at best...once or twice a month for a day at the most. This was until last…
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How long have you ..........
I started this post "how long have you survived" Sept 2010 for some personal hope and didn't expect the amazing responses that have been posted. It is now six months later and I am in a totally different mind set since then. I have so much hope and excitement in me. I'm no longer scared or worried about the future at all…
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Extreme fatigue
Over the last week I am so tired all the time, if I do something small it takes me a day to recover. I went through chemo for the second time finishing last month. It has been about 8 months since I finished radiation. I was looking on line and the one thing that sticks in my head is my thyroid. Has anyone experianced…
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Alternative therapy and delayed surgery
Hello all. My father with ahistory of scc of the left cheek has failed chemoradiation. The pet scan revealed the cancer in upper and lower jaw. There wwas A spot on the pet scan that showed some activity behind the nose however he is not sure and scheduled a biopsy. Father is worried his surgery is getting delayed now and…
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Finished up Brechytherpy radiation
So I finished up my brechytherpy with hypothermic treatment this week and the side effects or pain is much greater than I had hoped for. I had two hypothermic treatments then directly to the brechytherpy machine for treatments there. A total of 6 brechytherpy treatments with the two heat treatments. My poor tongue is in so…
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Superthread Idea. Post Any Commentary For Superthread Here.
Okay. So I have had this idea for a while and I finally finished all the work on it. I had an idea for a superthread filled with tips in the form of links about the FAQ we always get, as well as things that we have found useful during treatment. Something all in one spot so to speak that we could give to newbies to have…
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The Roller Coaster Ride - Biopsy after Biopsy
Any suggestions on dealing with the roller coaster ride of waiting out biopsies. I had tongue cancer about 7 seven years ago. In the past few years I have had spots come and go. Some on there own and others surgicaly removed. I have been pretty lucky the worst they have come back was inflamation. The last time back in June…
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Cancer Treatment Centers of America?
I have been diagnosed with neck cancer recently. I have a large cancerous tumor behind and below my right ear. A biopsy confirmed the tumor is cancerous but neither CAT, MRI nor PET scan can locate the cancer origin. I will be seeing a ENT this Monday (02-21-11) for additional scoping. I live in Central Arizona and there…
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Ulcer from radiation treatment
Anybody get an ulcer in the throat from the radiation treatment?
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Its Back!
Well I got the call today..... Surgery again. I'm a little upset but nothing like before. I'm just thankful I was able to postpone for a few weeks. Doc not happy but I need a few weeks to prepare. Mostly tell the kids again.... thats the hardest part. Watching their faces go from carefree to instant worry.
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Live Again
Feeling nothing Lonely empty You try to walk away but you fall You cannot understand what's this for In this world I see it more The pain you feel that I have known You see my face and then you see nothin' Confused. you turn and live on I turn my face You're staring back and then Look at yourself and live again Can't see…
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Introducting myself
. Hello to all. I would like to introduce myself and tell a brief story of my experience. Jan. 2010 I was diagnosed with tongue cancer. I had a tumor there and Every it was also in my lymph nodes. They where the size of golf balls in my neck. Pet scans, MRI, CT scans showed that it was confined to my neck. My ENT wanted me…