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How long have you ..........
I started this post "how long have you survived" Sept 2010 for some personal hope and didn't expect the amazing responses that have been posted. It is now six months later and I am in a totally different mind set since then. I have so much hope and excitement in me. I'm no longer scared or worried about the future at all…
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Extreme fatigue
Over the last week I am so tired all the time, if I do something small it takes me a day to recover. I went through chemo for the second time finishing last month. It has been about 8 months since I finished radiation. I was looking on line and the one thing that sticks in my head is my thyroid. Has anyone experianced…
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Alternative therapy and delayed surgery
Hello all. My father with ahistory of scc of the left cheek has failed chemoradiation. The pet scan revealed the cancer in upper and lower jaw. There wwas A spot on the pet scan that showed some activity behind the nose however he is not sure and scheduled a biopsy. Father is worried his surgery is getting delayed now and…
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Finished up Brechytherpy radiation
So I finished up my brechytherpy with hypothermic treatment this week and the side effects or pain is much greater than I had hoped for. I had two hypothermic treatments then directly to the brechytherpy machine for treatments there. A total of 6 brechytherpy treatments with the two heat treatments. My poor tongue is in so…
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Superthread Idea. Post Any Commentary For Superthread Here.
Okay. So I have had this idea for a while and I finally finished all the work on it. I had an idea for a superthread filled with tips in the form of links about the FAQ we always get, as well as things that we have found useful during treatment. Something all in one spot so to speak that we could give to newbies to have…
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The Roller Coaster Ride - Biopsy after Biopsy
Any suggestions on dealing with the roller coaster ride of waiting out biopsies. I had tongue cancer about 7 seven years ago. In the past few years I have had spots come and go. Some on there own and others surgicaly removed. I have been pretty lucky the worst they have come back was inflamation. The last time back in June…
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Cancer Treatment Centers of America?
I have been diagnosed with neck cancer recently. I have a large cancerous tumor behind and below my right ear. A biopsy confirmed the tumor is cancerous but neither CAT, MRI nor PET scan can locate the cancer origin. I will be seeing a ENT this Monday (02-21-11) for additional scoping. I live in Central Arizona and there…
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Ulcer from radiation treatment
Anybody get an ulcer in the throat from the radiation treatment?
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Its Back!
Well I got the call today..... Surgery again. I'm a little upset but nothing like before. I'm just thankful I was able to postpone for a few weeks. Doc not happy but I need a few weeks to prepare. Mostly tell the kids again.... thats the hardest part. Watching their faces go from carefree to instant worry.
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Live Again
Feeling nothing Lonely empty You try to walk away but you fall You cannot understand what's this for In this world I see it more The pain you feel that I have known You see my face and then you see nothin' Confused. you turn and live on I turn my face You're staring back and then Look at yourself and live again Can't see…
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Introducting myself
. Hello to all. I would like to introduce myself and tell a brief story of my experience. Jan. 2010 I was diagnosed with tongue cancer. I had a tumor there and Every it was also in my lymph nodes. They where the size of golf balls in my neck. Pet scans, MRI, CT scans showed that it was confined to my neck. My ENT wanted me…
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Another Milestone
Another milestone soon to be accomplished.... Spoke to my Chemo MD and ENT scoped me today also... I got the official word; port is coming out in a week or two. I’m moving to four months between ENT visits, still six months between for my Chemo MD. All blood-work is in normal ranges, TSH is still in the 5.6 range, but my…
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tattoo
i posted awhile ago about a survivor tattoo. i had my tattoo guy draw something up and i got it yesterday, let me know what you think. i posted it in my expression page
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Seriously? More surgery?
They can't find it. Two weeks ago they knocked my husband out and still couldn't find anything in the neck after biopsies. Now they want to take out 20-30 nodes next week. Yesterday the Ono. said "you want to survive this don't you?" when we choked. NO, you can't be serious I wanted to say! The cyst had squamous cell…
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tonsil cancer
I was just told by ENT that I have SCC of my right tonsil and I need a PET scan but it wiil take 1 week to get in. Is that unusual?
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Introducting myself
. Hello to all. I would like to introduce myself and tell a brief story of my experience. Jan. 2010 I was diagnosed with tongue cancer. I had a tumor there and Every it was also in my lymph nodes. They where the size of golf balls in my neck. Pet scans, MRI, CT scans showed that it was confined to my neck. My ENT wanted me…
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Marley Dog Finally Laid to Rest
Hi all: Basketcase here! I know you all have been waiting with baited breath to finally hear that Marley Dog (nephew who came home to Chatt. from Ohio to bury his dog and remember this dog passed on on Christmas Day and has been in the freezer till yesterday!) Well, my nephew finally picked him up and laid him to rest.…
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Tomorrow I go for the PET scan
What is bugging me is that the nutritionist called. I gave all the bags back after my last NED in January and I think she wanted to know if she needed to order me new bags. I am sure she is a very nice person, but I have never liked her. Probably because what she represented (that **** feeding tube). I know the doctors are…
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Trouble Swallowing after surgery
I want to start out by saying I am new to this community and want to thank all of you for sharing your experiences. I had stage 4 tonsil cancer on the left side. I had spread to three lymph nodes on the left side. On Jan 21, I had radical neck dissection followed by robotic throat surgery on Jan 31. They removed the…
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Radiation time frame -effect on tumor reduction
Anyone know if there a time frame in which radiation is supposed to result in tumor reduction? Clear
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Invited Michael Douglas
to join us here on CSN, hoping we can get advise and info as to how he has recovered so quickly: Maybe better Dr's for the rich and famous. That is my hope anyway. Let us all pray that he will join us here and can give advise we may not know about. Probably not but we can hope. Hope all are well. I have been away for a…
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Stinging tongue
My hubby, Buzz, is plagued with stinging of his tongue. It seems to be set off by some foods but sometimes happens on its own. He finished radiation/chemo 4 weeks ago and still has sores on both sides of his tongue as well as the stinging. He is feeling pretty discouraged about this symptom as well as his tongue feeling…
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more teeth/jaw bone and saliva questions
I posted this on a different thread with no responses so I thought I would start a new thread with my questions. Thanks if anyone has advice, two cents or otherwise! Help with protecting Teeth: Has anyone tried Trident Extra Care with Recaldent? Does anyone know of any known issues/toxicity of chewing gum with Recaldent…
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I hate the look on the doctor's face
When they are looking at something that isn't good. I have bronchitis. My daughter had it before I did. I have been coughing and hacking for three weeks thinking I could beat it and pretty much avoided the GP. This morning I decided that I have had enough I ran to urgent aid to get some antibotics. Because I told him I had…
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Swollen Lymph Node
I'm approaching a year since I was diagnosed with SCC unknown primary and had left neck dissection. Since then I have had checkups every six weeks where I get scoped and the awesome hand down my throat manuever. A few days back I noticed a swollen lymph node in the back of my neck. It's the kind of thing I get from time to…
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Gobbler Neck Revisited
There was an excellent thread on this topic a few months ago. So far, I've seen that it goes away within a year for some, doesn't go away for others. While we're waiting to find out which group we are in, I'm thinking of trying some of the devices mentioned - NeckCaddy was one and the Universal Plastic Surgery Facial Band…
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Happy Valentine's Day!
Happy Valentines Day to everyone here on these message boards! I'm holding you all in my heart today. I could not have survived this without you. Sending healing and positive thoughts to you all. Have a wonderful day! Deb
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Scared to look for work
I've been out of work for a long time now and I'm sick of blaming the economy. The problem for me is I'm absolutely petrified to meet prospective employers with a face like mine -- paralyzed on one side, can't smile, and can't really blink my eye. I've always felt that first impressions on interviews are so very important.…
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LET THE FIREWORKS BEGIN!!!!!!!!!!!!!!!!!!!!!!!!!!!
I would like to ask who is doing the flouride trays? How often, and for how long do you leave them in. I have been doing them since radiation was over, about 10 weeks, every day , leaving them in about 30 min. My concern is the cancer that fluroide can cause. This is an old topic of conversation, but I recently read an…
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CT Anxiety ****UPDATE****
The anxiety begins.... I had my routine CT this morning...especially stressful on this one as I just had knee surgery. In doing that, they of course knocked me out, and shoved the breathing tube down my throat. This was a week or so ago. Well every since, my throat on that side has been soar and swollen. Glands are swollwn…