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Another Milestone
Another milestone soon to be accomplished.... Spoke to my Chemo MD and ENT scoped me today also... I got the official word; port is coming out in a week or two. I’m moving to four months between ENT visits, still six months between for my Chemo MD. All blood-work is in normal ranges, TSH is still in the 5.6 range, but my…
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tattoo
i posted awhile ago about a survivor tattoo. i had my tattoo guy draw something up and i got it yesterday, let me know what you think. i posted it in my expression page
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Seriously? More surgery?
They can't find it. Two weeks ago they knocked my husband out and still couldn't find anything in the neck after biopsies. Now they want to take out 20-30 nodes next week. Yesterday the Ono. said "you want to survive this don't you?" when we choked. NO, you can't be serious I wanted to say! The cyst had squamous cell…
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tonsil cancer
I was just told by ENT that I have SCC of my right tonsil and I need a PET scan but it wiil take 1 week to get in. Is that unusual?
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Introducting myself
. Hello to all. I would like to introduce myself and tell a brief story of my experience. Jan. 2010 I was diagnosed with tongue cancer. I had a tumor there and Every it was also in my lymph nodes. They where the size of golf balls in my neck. Pet scans, MRI, CT scans showed that it was confined to my neck. My ENT wanted me…
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Marley Dog Finally Laid to Rest
Hi all: Basketcase here! I know you all have been waiting with baited breath to finally hear that Marley Dog (nephew who came home to Chatt. from Ohio to bury his dog and remember this dog passed on on Christmas Day and has been in the freezer till yesterday!) Well, my nephew finally picked him up and laid him to rest.…
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Tomorrow I go for the PET scan
What is bugging me is that the nutritionist called. I gave all the bags back after my last NED in January and I think she wanted to know if she needed to order me new bags. I am sure she is a very nice person, but I have never liked her. Probably because what she represented (that **** feeding tube). I know the doctors are…
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Trouble Swallowing after surgery
I want to start out by saying I am new to this community and want to thank all of you for sharing your experiences. I had stage 4 tonsil cancer on the left side. I had spread to three lymph nodes on the left side. On Jan 21, I had radical neck dissection followed by robotic throat surgery on Jan 31. They removed the…
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Radiation time frame -effect on tumor reduction
Anyone know if there a time frame in which radiation is supposed to result in tumor reduction? Clear
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Invited Michael Douglas
to join us here on CSN, hoping we can get advise and info as to how he has recovered so quickly: Maybe better Dr's for the rich and famous. That is my hope anyway. Let us all pray that he will join us here and can give advise we may not know about. Probably not but we can hope. Hope all are well. I have been away for a…
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Stinging tongue
My hubby, Buzz, is plagued with stinging of his tongue. It seems to be set off by some foods but sometimes happens on its own. He finished radiation/chemo 4 weeks ago and still has sores on both sides of his tongue as well as the stinging. He is feeling pretty discouraged about this symptom as well as his tongue feeling…
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more teeth/jaw bone and saliva questions
I posted this on a different thread with no responses so I thought I would start a new thread with my questions. Thanks if anyone has advice, two cents or otherwise! Help with protecting Teeth: Has anyone tried Trident Extra Care with Recaldent? Does anyone know of any known issues/toxicity of chewing gum with Recaldent…
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I hate the look on the doctor's face
When they are looking at something that isn't good. I have bronchitis. My daughter had it before I did. I have been coughing and hacking for three weeks thinking I could beat it and pretty much avoided the GP. This morning I decided that I have had enough I ran to urgent aid to get some antibotics. Because I told him I had…
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Swollen Lymph Node
I'm approaching a year since I was diagnosed with SCC unknown primary and had left neck dissection. Since then I have had checkups every six weeks where I get scoped and the awesome hand down my throat manuever. A few days back I noticed a swollen lymph node in the back of my neck. It's the kind of thing I get from time to…
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Gobbler Neck Revisited
There was an excellent thread on this topic a few months ago. So far, I've seen that it goes away within a year for some, doesn't go away for others. While we're waiting to find out which group we are in, I'm thinking of trying some of the devices mentioned - NeckCaddy was one and the Universal Plastic Surgery Facial Band…
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Happy Valentine's Day!
Happy Valentines Day to everyone here on these message boards! I'm holding you all in my heart today. I could not have survived this without you. Sending healing and positive thoughts to you all. Have a wonderful day! Deb
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Scared to look for work
I've been out of work for a long time now and I'm sick of blaming the economy. The problem for me is I'm absolutely petrified to meet prospective employers with a face like mine -- paralyzed on one side, can't smile, and can't really blink my eye. I've always felt that first impressions on interviews are so very important.…
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LET THE FIREWORKS BEGIN!!!!!!!!!!!!!!!!!!!!!!!!!!!
I would like to ask who is doing the flouride trays? How often, and for how long do you leave them in. I have been doing them since radiation was over, about 10 weeks, every day , leaving them in about 30 min. My concern is the cancer that fluroide can cause. This is an old topic of conversation, but I recently read an…
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CT Anxiety ****UPDATE****
The anxiety begins.... I had my routine CT this morning...especially stressful on this one as I just had knee surgery. In doing that, they of course knocked me out, and shoved the breathing tube down my throat. This was a week or so ago. Well every since, my throat on that side has been soar and swollen. Glands are swollwn…
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Radiation for six weeks
My surgeon said he did get all the cancer out of my mouth, but I need to have six weeks of radiation. After reading the posts about the toxicity of flouride, and dry mouth and breaking teeth, I am very worried about this. I am trying to find a great radiologist that cares about people in Southern California or the San…
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Xanax before the Pet Scan
Some time ago there was a thread on this subject, and how the Xanax did more than just calm the nerves- it also did something to fat(?) which helped in reducing false positives. I recently had a check-in with my regular Dr. and threw that past him, and he didn't buy it. All I wanted was one measely Xanax tab! No dice. So,…
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Treatment Options - Recurring HNC / Unknown primary
Round two? Looking for anyone with information regarding treatment options for a recurrence of Metastatic HNC unknown primary (2 lymph nodes). My husband was originally diagnosed 2/18/10 biopsies of lymph nodes came back SCC, had tonsil removed and tissue biopsy's all negative. Treatment at major cancer center 10 weeks…
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Big News: Neck Dissection "Not Fun”
Last week I got my first post-treatment PET back and was clean. Yeah! So this week we did the long-anticipated cleanup of the battlefield. The surgeon went into the neck to clean out the lymph node which had been cancerous and which is now shriveled up and dead from the rads as well as its downstream neighbors. As such…
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Advice for a newbee caregiver......
I have appreciated reading all of your posts since Oct. I've started a new thread because I've asked some of you questions before and then I can go back and find the original post (I'll get the hang of this). I have a question that hopefully someone can answer. My husband had a branchial cleft cyst removed in neck that was…
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The Food Network Conundrum or..eating versus watching or..what WAS all that about?
It is so interesting that many of us watched the food network during some of the worst times during treatment, when we had not watched prior or have not watched it much after treatment ended?? Thinking fond thoughts of you all, Stacey
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dental prosthetic or dentures and seasonal colds
I have a dental prosthetic in the roof of my mouth called an obturator. it fills in a good sized hole and helps prevent fluids and food from going up into my sinuses. I have been dealing with a cold this past week where I have been having to do a lot of vomiting. I was just wondering, if you have something similar (or even…
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A Prayer for the Dying
Father God, Give me the strength to help my husband face death with serenity and grace. Give us the peace we need to make the most of our time together. And give us Your love in abundance. Remind him I am with him to the end. Amen.
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FIRST DENTAL VISIT SINCE COMPLETING TREATMENT
I had my first dental exam since completing treatment on Oct. 20. All seems to look real good. I have 1-2 sensitive spots on my gums, but teeth look good and strong. Curious to know if you have had dental issues, how far out past your treatment date did they occur. My dentist says from his experience he sees damage pretty…
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Tonsil cancer-Mucoepidermold carcinoma
I was recently diagnosed with mucoepidermold carcinoma of the left tonsil. This is a bit unusual, in that most cancer in tonsils is classified as squamous cell carcinoma. The path to diagnosis started with the appearance of a small lump in the area of my neck under the left jaw. A CTscan revealed a mass 3.4cm by 1.5cm. A…
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NPC with HPV positive?
Anybody here know about the link between NPC and HPV. We went to the doctors today and was told that his tonsils are too large and they want to test to see if he is HPV possitive? And it he is positve for HPV, the doctor will remove his tonsils. He as diagnosted with NPC, but I did not know about the tonsils and HPV?…