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Chefdaddy Update
My dear friends, Thank you all for your kind words and prayers. A few days ago my sons team of doctors came into his room in the morning after another repeated night of severe pain. They asked me how the night went though the night nurse had already had told them that he maybe had two hours of sleep due to the pain. This…
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MRI came out great!
MRI came out great! I guess it's called NED! Yes I did the happy dance at work. Haven't checked in for a while, felt I was too negative to contribute anything positive. So better to not say anything at all! Feeling better now that it came back with good results. I check in with my doctor every two months for the first…
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advice on tonsil cancer
hi im new to this and not sure if im even posting in the right place, my father has been diagnosed with cancer in his left tonsil, he is due to start treatment of radio and chemo in the next couple of weeks. we are aware this is gonna be a very unpleasant time and he hes not going to feel well at all, im just wondering if…
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Cousin just passed away
We all know how cancer sucks but it is really hard when someone young dies of this crap and leave behind a Husband and two small children and one with a handicap. My Cousin has been fighting a rare form of stomach cancer for the past 3 years, this morning she lost her battle at the MD Anderson hospital in Houston. Please…
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neck, lung + post rad vent & question
Hello, i havent been around for ages so im going to check in with a vent , gripe and question. We were just into our 3 month post neck rads. Wifeys neck burns healed really well. Though food tasted like garbage, the mouth sores seemed to be clearing and were almost gone as an issue, believe it or not. But then, swallowing…
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visiting those radition people again
The cancer has spread to 2 spots on the top of the hip bone. They say the pain will go away with radiation. However they kicked me out out of the clinical trail because it spread. Let's see what the future brings. - Judy
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Today is Mark's Birthday!!!
I came on the boards today after the longest break I have ever taken. Today is Mark's birthday, and neither of us could remember what we were doing on August 3rd 2010 because Mark was in the initial weeks following treatment. I thought some old posts would refresh my memory of what was happening at this time last…
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PET Scan - Updated Official Results
Not a clear cut clean PET....need to see what my ENT has to say. Actually got the unofficial results yesterday…, but I don’t think anything to worry about as of yet. They used a new machine and picked up a slight change from the past PET. Mildly increased radiotracer uptake in the region of the left palatine tonsil and…
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cyberknife
Anybody on here ever had cyberknife radiation to treat your cancer? if so, please tell me about your experience.
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First CT scan results tomorrow...
My husband had his first scheduled CT (not PET for some reason) scan yesterday post chemo/rads. They could not do the dye because his "number" was too high. We meet with the docs tomorrow afternoon. Of course, we are nervous. Anyway, here we go...reading hawk711's post with great news certainly gives us encouragement,…
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Texture of foods
Greetings and good wishes to all, I just love all the support and kindness on this site! It is very ressuring to know so many people have gone through this and are here to help! I am 13 weeks post treatment now and am looking for a little advice. I really want to get back to eating real food again but am having a problem…
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re: info for erbitox
I had 5 weeks of erbitox (mine was called cetuximab)because of the danger of losing my hearing with the regular chemo. I feel grateful to have been given this instead of cistoplatin or anything else because the side effects were relatively few. You definitely get an acne like rash, although I would just call it bad acne.…
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Lump in tongue
I developed a large sublingual lump in the middle of my tongue and I am quite worried about it. It has been there for two months after suddenly appearing in a rather painful and inflammed way. (A similar lump appeared under my chin at exactly the same time but subsequently disappeared although the tongue lump has…
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Pop goes the jaw bone
A funny thing happened to me on the way to the shower. Anyway, as I was preparing to do this yesterday I turned my head way to one direction and felt a POP in my jaw near the joint. It hurt some but not too bad. Today when I saw the rad onc he said that it is possible that it is an old adhesion or scar tissue from the neck…
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Where in the World Are You ~ Double Bumped
Thought I'd double bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
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Collapsed voice box
So has anyone experianced this after treatment, half of mine is colapsed she said. I would like my voice back, being able to speak is a good thing. I have a very quite raspy voice now. Brad
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"Four Cups a Joe" per day, drink up!
A little food for thought, pun intended. In this months SPOHNC newsletter, Vol. 20 No. 5, pg.5 "Oral, head. And Neck Cancer News" Coffee may protect against head and neck cancer. "Results of a recent study add to the brewing evidence that drinking coffee protects against cancer, this time against head and neck cancer. Full…
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Smart Bomb
I visited my chemo Oncologist yesterday and he says the cancer in my cheek, lungs, back is very rare since it started out as salivary gland cancer. So, he says he does not have a good idea on what chemo cocktail to start me on. He is going to get me a biopsy and then a local (very highly rated) cancer research facility is…
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This just seems so trivial..However......
I was at Mayo yesterday for my second opinion. The difference between Mayo and my Onc Surgeon are night and day...The doctors at Mayo were thorough and very informative…They didn’t sugar coat any of the struggles which I am about to undergo, or tell me “don’t worry”. I have chosen them as my partners in helping me defeat…
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Chemo Drugs are on the short list.
Hey Guys I just wanted to pass long I am currently watching cbs evening news and now they are saying that chemo drugs like Carboplatin,Cisplatin are on very short supply list which can be scary for us cancer patents.
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neck pain, headaches?
Anyone else here ever experience neck and head pain following treatment? I'm about ten weeks out of radiation and chemo. In the past week, I've been having neck and head pain mainly in the posterior neck (occipital neuralgia) and up the back of my head. My head and hair are super sensitive to touch. It is painful to…
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Chemo Blues
Hello all, I hope this Thursday is treating you well! I reported awhile ago that my Dad handled his most recent chemo session (now two weeks ago) quite well. He was symptom free for a week and then all the side effects started coming around: Completely exhausted, sleeping for days, feeling weak, nauseated. My mom brought…
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Today is my Father's 65th Birthday! and guess what he has to look forwared to????
Today is my Father's 65th birthday! In addition, he does not have to go to the hospital for Radiation or Chemo today. He is done with that. i don't know of a better birthday present he could ever want. We are going to spend the day together at a tractor show. Just me, my Son, and my Father. Its amazing how priorities chang…
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Post Surgery
I wanted to update you on my recovery. Left side neck dissection July 22. Really happy with the doctor. I pretended that I was at the spa at Stanford (I have a very good imagination!). Got the pathology report today. C was only in the one lymph node but it is a recurrance. My case will go to the tumor board tomorrow and I…
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Ginger & Nausea
My daughter went to a natural helath food store and apparently bought everything and anything that had ginger in it. She read some where that ginger helps with nausea, she also bought some kind of bracelet that has pressure points. Has anyone here tried ginger for nausea? Gotta love my structural engineer daughter, she is…
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Throat infection during radiation
Helllo everyone, The last three days I had a sore throat etc and put it down to normal side effect of radiation....when I turned up at radiation this morning they told me I had a mild fever. But retook it 20 min later and it was fine. I stopped by my oncologists office this afternoon bc I needed to pick up my iron tablets…
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I read something interesting
Yesterday in the paper there was a story on the guy who developed the hpv injection. It seems that in 12 months he will have a vaccine for skin cancer. His studies have shown that cancer is caused by a virus and he believes all cancer is caused by hpv. Really interesting that maybe one day it will be a common vaccine to…
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PEG question
This may sound dumb but do you keep a dressing on your PEG? The Jevity people always send tape and gauze pads with the jevity supply but it is aggrevating to deal with the tape on a hairy chest.
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Survived my first week back at work
Have not been here for a while. I've been busy solving people's health problems. It was really difficult the first week. I was experiencing a lot of fatigue by day's end. Also, had weird paresthesias down both arms and then weird headaches in the occipital region. Seems OK now, with only slight residual. My Accupuncturist…
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weight loss is it as bad as they are telling me
All my health pros are telling me to put weight on and are pleased at what i have put on but i had a band put in 18 months ago and lost about 50 kilo. I have had it emptied and put on 20 kilo and feel terrible my gut is interfering with my bike riding and everything. I want to pull back. Do you really loose a lot during…