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best foods to begin "eating" again
My husband had neck dissection in April, sort of got some ability to taste things again before radiation began. Then he went from being able to sort of taste to saying that everything tasted HORRIBLE - just a horrible taste. He's now finished radiation at the end of July. He's now able to drink Ensure, says vanilla…
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Leaving Las Vegas
No, I don't live anywhere near there. As I am sitting here today, enjoying a beer while the wizards are trying to figure out what type of chemo may kill the little beasties invading my body, I can't help thinking of the movie with Nicolas Cage. Have any of you been tempted to just say 'screw it' and head off somewhere and…
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Backpacking
Hey guys, Just got back from my first backpacking trip since treatment ended about 7 months ago. Spent about a week in the Southern Sierras almost all above 10,000 feet. Put in a little over 30 miles. Had to cross a couple glaciers and go over a few 12,000 foot passes. This was probably the most difficult trip I've ever…
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Do mouth sores return ?
Do mouth sores return (post radiation) after they had dissapeared? or could it be a mouth reacting to food again thing? Thought we were done with them! sorry in and out quick question. Clear B.
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Severe bleeding from the tongue.
Yesterday I started to cough and then sprayed some blood out my mouth, then I got up and went to the bathroom and the blood flow increased. Bright red blood and it flowed like a river out of my mouth, had my wife take me to the ER and the bleeding stopped about the time we got to the hospital, so about 25 minutes in all,…
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Necrosis - what fresh hell is this?
I have been reading these boards for months and found so much useful information and at times my only source of inspiration. My husband was SCC stg 4 and he is 4 months post treatment and dealing well with the usual nasty side effects of RAD+chemo. We were so hopeful that each month would be an improvement over the last.…
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Chefdaddy Update
My dear friends, Thank you all for your kind words and prayers. A few days ago my sons team of doctors came into his room in the morning after another repeated night of severe pain. They asked me how the night went though the night nurse had already had told them that he maybe had two hours of sleep due to the pain. This…
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MRI came out great!
MRI came out great! I guess it's called NED! Yes I did the happy dance at work. Haven't checked in for a while, felt I was too negative to contribute anything positive. So better to not say anything at all! Feeling better now that it came back with good results. I check in with my doctor every two months for the first…
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advice on tonsil cancer
hi im new to this and not sure if im even posting in the right place, my father has been diagnosed with cancer in his left tonsil, he is due to start treatment of radio and chemo in the next couple of weeks. we are aware this is gonna be a very unpleasant time and he hes not going to feel well at all, im just wondering if…
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Cousin just passed away
We all know how cancer sucks but it is really hard when someone young dies of this crap and leave behind a Husband and two small children and one with a handicap. My Cousin has been fighting a rare form of stomach cancer for the past 3 years, this morning she lost her battle at the MD Anderson hospital in Houston. Please…
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neck, lung + post rad vent & question
Hello, i havent been around for ages so im going to check in with a vent , gripe and question. We were just into our 3 month post neck rads. Wifeys neck burns healed really well. Though food tasted like garbage, the mouth sores seemed to be clearing and were almost gone as an issue, believe it or not. But then, swallowing…
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visiting those radition people again
The cancer has spread to 2 spots on the top of the hip bone. They say the pain will go away with radiation. However they kicked me out out of the clinical trail because it spread. Let's see what the future brings. - Judy
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Today is Mark's Birthday!!!
I came on the boards today after the longest break I have ever taken. Today is Mark's birthday, and neither of us could remember what we were doing on August 3rd 2010 because Mark was in the initial weeks following treatment. I thought some old posts would refresh my memory of what was happening at this time last…
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PET Scan - Updated Official Results
Not a clear cut clean PET....need to see what my ENT has to say. Actually got the unofficial results yesterday…, but I don’t think anything to worry about as of yet. They used a new machine and picked up a slight change from the past PET. Mildly increased radiotracer uptake in the region of the left palatine tonsil and…
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cyberknife
Anybody on here ever had cyberknife radiation to treat your cancer? if so, please tell me about your experience.
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First CT scan results tomorrow...
My husband had his first scheduled CT (not PET for some reason) scan yesterday post chemo/rads. They could not do the dye because his "number" was too high. We meet with the docs tomorrow afternoon. Of course, we are nervous. Anyway, here we go...reading hawk711's post with great news certainly gives us encouragement,…
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Texture of foods
Greetings and good wishes to all, I just love all the support and kindness on this site! It is very ressuring to know so many people have gone through this and are here to help! I am 13 weeks post treatment now and am looking for a little advice. I really want to get back to eating real food again but am having a problem…
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re: info for erbitox
I had 5 weeks of erbitox (mine was called cetuximab)because of the danger of losing my hearing with the regular chemo. I feel grateful to have been given this instead of cistoplatin or anything else because the side effects were relatively few. You definitely get an acne like rash, although I would just call it bad acne.…
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Lump in tongue
I developed a large sublingual lump in the middle of my tongue and I am quite worried about it. It has been there for two months after suddenly appearing in a rather painful and inflammed way. (A similar lump appeared under my chin at exactly the same time but subsequently disappeared although the tongue lump has…
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Pop goes the jaw bone
A funny thing happened to me on the way to the shower. Anyway, as I was preparing to do this yesterday I turned my head way to one direction and felt a POP in my jaw near the joint. It hurt some but not too bad. Today when I saw the rad onc he said that it is possible that it is an old adhesion or scar tissue from the neck…
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Where in the World Are You ~ Double Bumped
Thought I'd double bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
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Collapsed voice box
So has anyone experianced this after treatment, half of mine is colapsed she said. I would like my voice back, being able to speak is a good thing. I have a very quite raspy voice now. Brad
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"Four Cups a Joe" per day, drink up!
A little food for thought, pun intended. In this months SPOHNC newsletter, Vol. 20 No. 5, pg.5 "Oral, head. And Neck Cancer News" Coffee may protect against head and neck cancer. "Results of a recent study add to the brewing evidence that drinking coffee protects against cancer, this time against head and neck cancer. Full…
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Smart Bomb
I visited my chemo Oncologist yesterday and he says the cancer in my cheek, lungs, back is very rare since it started out as salivary gland cancer. So, he says he does not have a good idea on what chemo cocktail to start me on. He is going to get me a biopsy and then a local (very highly rated) cancer research facility is…
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This just seems so trivial..However......
I was at Mayo yesterday for my second opinion. The difference between Mayo and my Onc Surgeon are night and day...The doctors at Mayo were thorough and very informative…They didn’t sugar coat any of the struggles which I am about to undergo, or tell me “don’t worry”. I have chosen them as my partners in helping me defeat…
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Chemo Drugs are on the short list.
Hey Guys I just wanted to pass long I am currently watching cbs evening news and now they are saying that chemo drugs like Carboplatin,Cisplatin are on very short supply list which can be scary for us cancer patents.
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neck pain, headaches?
Anyone else here ever experience neck and head pain following treatment? I'm about ten weeks out of radiation and chemo. In the past week, I've been having neck and head pain mainly in the posterior neck (occipital neuralgia) and up the back of my head. My head and hair are super sensitive to touch. It is painful to…
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Chemo Blues
Hello all, I hope this Thursday is treating you well! I reported awhile ago that my Dad handled his most recent chemo session (now two weeks ago) quite well. He was symptom free for a week and then all the side effects started coming around: Completely exhausted, sleeping for days, feeling weak, nauseated. My mom brought…
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Today is my Father's 65th Birthday! and guess what he has to look forwared to????
Today is my Father's 65th birthday! In addition, he does not have to go to the hospital for Radiation or Chemo today. He is done with that. i don't know of a better birthday present he could ever want. We are going to spend the day together at a tractor show. Just me, my Son, and my Father. Its amazing how priorities chang…
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Post Surgery
I wanted to update you on my recovery. Left side neck dissection July 22. Really happy with the doctor. I pretended that I was at the spa at Stanford (I have a very good imagination!). Got the pathology report today. C was only in the one lymph node but it is a recurrance. My case will go to the tumor board tomorrow and I…