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re: info for erbitox
I had 5 weeks of erbitox (mine was called cetuximab)because of the danger of losing my hearing with the regular chemo. I feel grateful to have been given this instead of cistoplatin or anything else because the side effects were relatively few. You definitely get an acne like rash, although I would just call it bad acne.…
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Lump in tongue
I developed a large sublingual lump in the middle of my tongue and I am quite worried about it. It has been there for two months after suddenly appearing in a rather painful and inflammed way. (A similar lump appeared under my chin at exactly the same time but subsequently disappeared although the tongue lump has…
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Pop goes the jaw bone
A funny thing happened to me on the way to the shower. Anyway, as I was preparing to do this yesterday I turned my head way to one direction and felt a POP in my jaw near the joint. It hurt some but not too bad. Today when I saw the rad onc he said that it is possible that it is an old adhesion or scar tissue from the neck…
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Where in the World Are You ~ Double Bumped
Thought I'd double bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
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Collapsed voice box
So has anyone experianced this after treatment, half of mine is colapsed she said. I would like my voice back, being able to speak is a good thing. I have a very quite raspy voice now. Brad
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"Four Cups a Joe" per day, drink up!
A little food for thought, pun intended. In this months SPOHNC newsletter, Vol. 20 No. 5, pg.5 "Oral, head. And Neck Cancer News" Coffee may protect against head and neck cancer. "Results of a recent study add to the brewing evidence that drinking coffee protects against cancer, this time against head and neck cancer. Full…
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Smart Bomb
I visited my chemo Oncologist yesterday and he says the cancer in my cheek, lungs, back is very rare since it started out as salivary gland cancer. So, he says he does not have a good idea on what chemo cocktail to start me on. He is going to get me a biopsy and then a local (very highly rated) cancer research facility is…
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This just seems so trivial..However......
I was at Mayo yesterday for my second opinion. The difference between Mayo and my Onc Surgeon are night and day...The doctors at Mayo were thorough and very informative…They didn’t sugar coat any of the struggles which I am about to undergo, or tell me “don’t worry”. I have chosen them as my partners in helping me defeat…
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Chemo Drugs are on the short list.
Hey Guys I just wanted to pass long I am currently watching cbs evening news and now they are saying that chemo drugs like Carboplatin,Cisplatin are on very short supply list which can be scary for us cancer patents.
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neck pain, headaches?
Anyone else here ever experience neck and head pain following treatment? I'm about ten weeks out of radiation and chemo. In the past week, I've been having neck and head pain mainly in the posterior neck (occipital neuralgia) and up the back of my head. My head and hair are super sensitive to touch. It is painful to…
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Chemo Blues
Hello all, I hope this Thursday is treating you well! I reported awhile ago that my Dad handled his most recent chemo session (now two weeks ago) quite well. He was symptom free for a week and then all the side effects started coming around: Completely exhausted, sleeping for days, feeling weak, nauseated. My mom brought…
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Today is my Father's 65th Birthday! and guess what he has to look forwared to????
Today is my Father's 65th birthday! In addition, he does not have to go to the hospital for Radiation or Chemo today. He is done with that. i don't know of a better birthday present he could ever want. We are going to spend the day together at a tractor show. Just me, my Son, and my Father. Its amazing how priorities chang…
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Post Surgery
I wanted to update you on my recovery. Left side neck dissection July 22. Really happy with the doctor. I pretended that I was at the spa at Stanford (I have a very good imagination!). Got the pathology report today. C was only in the one lymph node but it is a recurrance. My case will go to the tumor board tomorrow and I…
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Ginger & Nausea
My daughter went to a natural helath food store and apparently bought everything and anything that had ginger in it. She read some where that ginger helps with nausea, she also bought some kind of bracelet that has pressure points. Has anyone here tried ginger for nausea? Gotta love my structural engineer daughter, she is…
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Throat infection during radiation
Helllo everyone, The last three days I had a sore throat etc and put it down to normal side effect of radiation....when I turned up at radiation this morning they told me I had a mild fever. But retook it 20 min later and it was fine. I stopped by my oncologists office this afternoon bc I needed to pick up my iron tablets…
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I read something interesting
Yesterday in the paper there was a story on the guy who developed the hpv injection. It seems that in 12 months he will have a vaccine for skin cancer. His studies have shown that cancer is caused by a virus and he believes all cancer is caused by hpv. Really interesting that maybe one day it will be a common vaccine to…
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PEG question
This may sound dumb but do you keep a dressing on your PEG? The Jevity people always send tape and gauze pads with the jevity supply but it is aggrevating to deal with the tape on a hairy chest.
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Survived my first week back at work
Have not been here for a while. I've been busy solving people's health problems. It was really difficult the first week. I was experiencing a lot of fatigue by day's end. Also, had weird paresthesias down both arms and then weird headaches in the occipital region. Seems OK now, with only slight residual. My Accupuncturist…
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weight loss is it as bad as they are telling me
All my health pros are telling me to put weight on and are pleased at what i have put on but i had a band put in 18 months ago and lost about 50 kilo. I have had it emptied and put on 20 kilo and feel terrible my gut is interfering with my bike riding and everything. I want to pull back. Do you really loose a lot during…
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A very funny comic
that our kids turned us on to. Copy and paste into browser. http://xkcd.com/933/ http://xkcd.com/931/ btw, if you let your mouse stay on these for a few seconds there is additional commentary. I hope you enjoy, Doug
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An update on my Father
Well, The last 7 weeks have been rough to say the least. My Father, Steve, has completed all of his radiation and chemo treatments and is on his way to recovery. It has been a very emotial time, with the hope of relief in sight. For the last 3 weeks, he has not been able to swallow a thing, not even pudding, so if there…
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Pegs or Nasogastro
just being lazy mentioned a lot on here were tubed i seem to recall Naso Gastric but wife who is an RN (Reg Nurse)is saying they would be PEGS and i am too lazy to read all the reports also it takes a long time to move around on this site. Ray ( The underdog LOL) PS No I am not as everyone says , lucky to be married to a…
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My appointment today.
Well, I went to my doctor today. I was a little irritated because he does not, in fact, 'do ears' any more and he was told I requested HIM specifically to see me. I told him that was not the case. That I was adamant that SOMEONE from ENT see me, because the first time I called I was told to go back to my PCP, and then when…
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Guess I wasn't meant to have a big tube
I was bragging not long ago about being able to select my big (26mm) feeding tube to replace the original. Well at 2:00 this morning I felt a bit of pain at the tube entry point and lo and behold the damned thing just fell out. Made a trip to the hospital to get a new one and they gave me a very short and limp 24 mm tube.…
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afraid of being fired
Since the CT scan and first appointment with my ENT and getting the initial "I think its cancer" from him, I have been a mess at work. I have since had my biopsy and confirmed. I have been in constant communications with my boss, who was recently promoted to that position as the prior manager took another position in the…
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thank you all
I dont know if anyone remembers me from several months ago. I am about ten weeks out of rads and had my first pet scan show the cancer is gone. I just wanted you all to know that i have stalked this sight throughout my treatment and have come here time and time again to reread your posts for encouragment. I dont think i…
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Onco visit
I have an appointment today with my onco, to go over the PET scan results from last week, this visit will also be where she tells me what my course of treatment will be, my nerves are on edge and I have to remind myself to take deep breaths. I've got my "35 questions" printed to take with me. A good friend is going along,…
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Checking In
Hi all: Made it thru mine and Charlie's birthday which was the 27th (remember we had the same birthday) It was rough at times but all in all was a good day. Went to bible study and they sang to me; then went to Build-A-Bear at the mall and made a Sammy dog (dachshund) and the girl there was talking to me and I asked if…
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1 Year PET Next Week
Hi Folks, Have my 1 year PET/CT scan coming up next Monday on the 8th. Actually my 1 Year 'anniversary' was yesterday and really, it seems much longer than 1 year now. The scan was scheduled for this week, but we have our annual golf tournament this weekend which is one of those things I had to skip last year and don't…
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Just could not go to radation today
Hard to swallow,can'nt eat and ready to throw the towel in.For some reason I,m up&down all night urnating--nurse said that when I had chemo that they add a chemical to flush your kidneys. Has anyone had this problem? This is only my 2nd wk. of cemo on Fri. & radation the other five days-does it get better or what--this 1st…