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Those who have or had a PEG...
The stitches were out 4 days ago. I have one of those Foley urinary catheters as my PEG, size 14 I think (ink is wearing off). The Foley is the standard tube they use now for most PEGs from what I see in the hospital and nursing homes. When I use to do home care over 10y ago, I saw the clear ones with a ring at the base…
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How ??
How is it possible to have a secondary without a primary? Now that the secondary has been treated and I have been thru hell will they find the primary? One more question. I completed my treatments , which consisted on 39 radiation treatments, I cant get another pet scan until the end of November because the insurance…
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On Edge
My husband is very tense these days. The littlest things are aggravating him. It started about 2-3 days after he got the all clear. I guess everything is finally catching up to him. I told him to go to his GP and see what they can give him. He is no fun right now.
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Another Platelet Question
Last month before my infusion day, my bllod work showed my platelets @ 115 , today they are @ 83, so the onco nurse doesn't think I'll have my 3rd infusion ( was supposed to be final all day infusion session) next monday. Has any one here experienced low platelet counts that slowed your treatments? Thanks, Linda
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Squamous
Hi everyone This message board has really been a blessing to me. I have sat in front of my lap top for hours reading and learning a lot about what I can expect. I am 48 yr old married male I am 5' 9" and weigh 165 lbs. I was diagnosed with squamous cell on 6/20/11. The cancer was on my left lymph-node. The doc said it was…
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Hands shaking
Hi, Has anyone experienced hands shaking and body twitching (only when he is sleeping the body twitching) Currently receiving carboplatin 5fu decadron rengal and zofran for tonsil and lymph cancer This is the second round Chemo Thanks for your help Michelle
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Real Estate vs Cancer
Real Estate = Location, location, location Cancer = Attitude, Attitude, Attitude Don't let the SOB beat you down.
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HNC SUPERTHREAD. Excellent for people new to CSN. Answers to FAQ. Please do not bump or post to t
**THIS THREAD IS UPDATED AT LEAST EVERY SUNDAY. I WILL ALWAYS KEEP IT ON THE FIRST PAGE. THANK YOU FOR NOT POSTING TO IT** HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. Help for some Frequently Asked Questions. Head and Neck Superthread. ***PLEASE DO NOT POST OR ADD TO THIS THREAD**** There is a separate thread for…
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Post-treatment follow-up question
My husband has SCC T4, had neck dissection in mid April, radiation through most June & July (seven weeks.) He's still "recovering," but here's my question: He is followed only by ENT. The radiation Onc. released him to her, saying she could better follow his care, because she has equip. to scope throat, etc. Okay, that…
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chin and neck edema post radiation
My husband looks like he is trying to swallow a grapefruit. Does anyone know how to help the fluid subside?
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It has been awhile...
Hi All, I am so sorry for not posting for so long. I do come and read the posts and stay tuned in. I am not sure when the last post was but I do know it was a very dark and difficult time mostly for Ron but also for me and there was a point we did not want to only post negative comments. So here is the update...Ron will be…
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2 months post radiation
and now it seems like my husband's voice is going away. It was fine during radiation, got a little gravely at the very end of radiation, and it just gets worse and worse every day. Is that common? Another question: He has this "tingling" sensation on the skin of his forearms and up his shoulders and on his scalp. He says…
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surgery vs. radiation and chemo
i took aggressive surgical treatment 61/2 trs ago. would like to discuss results for people with a choice.. George
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7 weeks of treatment - done!
My husband just finished his 7 weeks of chemo. rads (1 cisplatin, 3 carboplatin) 2 days ago! I thought he did really well through treatment and his throat did not start to hurt until this last week or so. He is still eating a very small amount of food by mouth (banana's, oatmeal, scrambled eggs, cinnamon waffles with…
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handling depression
I am 84 treated twice for neck cancer, radiation 7 years ago, thought done, last year had to have radiacal surgery, this not speaking is driving me nuts, can use EL but is not loud enough in social settings or restaurants and feel left out, sometimes just have kind of panic attacks feel cannot breath well and get very…
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For molinaar: Hello A Question
Hey Gang, I'm re-posting molinaar's original post, which I'm afraid would get lost in a large, older post. hello a question new I am going through the same thing half my tongue was removed and replaced with my skin....well wat i want to ask is how long did it take for you to recover this and another question has yr tongue…
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suburn look - any kind of cream I should use?
My skin is starting to feel different on my neck and face so I am sure it's just a matter of days before I look like I'm sunburn? Is there a cream I should use? Oil of Olay? No perfume base cream? Aloe? Any suggestions. I will see the radiation oncologist tomorrow as my scheduled visits are for Thursday, I will ask but…
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Nasopharnygial (Pretty sure I spelled it wrong :)
Well....I have been dealing with this for about 2 months now and am on my 2nd rad and finished my first chemo. The Doc says she is sure she can cure me of this but it is tough to take comfort in this when I thought i just had a allergys for 2 years.lol I am 43 and have Chinese ancestry from my great grand father but smoked…
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RayTodd How are you doing!
Hi Ray just wondering how you doing, last your Wife posted you were in the Hospital. Just things about you my friend and hoping you are doing well. Hondo
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Post Radiation
What a great forum. I am BOT cancer 7 days ago today I finished all my treatments and must confess looking to feel better NOW. Well find myself more than a little depressed about my symptoms still very tight throat flem that chokes me at night . Sorry about my whining just wonder if any here can share a bit about the end…
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Erbitux vs Cisplatin
I was recently diagnosed with throat cancer that has involved a single lymph node. I had no symptoms except I felt a small lump way up under my jaw bone, it turned out to be larger than I thought at about 3cm but still very difficult to find. That was the lymph node which I had removed. The cancer was very small but it…
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Reeling from remarks of a surgeon
Buzz was hospitalized for a week with an abcess in the side of his neck in addition to the return of his cancer. While there, a head/neck surgeon came in to see him. She is actually the one who did Buzz's right radical neck operation 10 years ago. She did an incision and drainage of the abcess by using a scapel then…
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You are all wonderful!
You made me cry and crying as you know hurts as well. I have never had so many people understand. You are all amazing. I will do my best and try one day at a time. I didn't know you could put prune juice or anything other than the enjevity (which comes up into my throat somehow and has an awful taste. I was embaressed to…
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throat cancer
Have not been here for awhile, come and sneak a peek now and than to hope everyone else is doing well. I have a question for anyone having throat cancer and rad to that area. I am about 8 weeks done. I first had chemo and rad for the tumor, as it was actually lung cancer, on my vocal cords. When that was done I had a pet…
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Biopsy Results: Dysplasia.
I am a survivor of Stage II Laryngial Cancer, treated with radiation only. The radiation ended in August of 2010. Last week, a follow-up biopsy of the sub-glottis showed dysplasia. As it was explained to me, the cells were abnormal but NOT CLEARLY CANCEROUS. I have some throat and ear pain. The ENT said I do not have an…
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reccurances - here is my fear. Tell me what you think?
OK!!! Doctor gives a clean bill of health and tells us, that he will see us in 3 months. I asked if he would need to schedule a pet scan prior to the visit. He says "no, only if he is a high risk". I know he will get scoped every 3 months. I am kinda scared, not having the pet done on my husband. It's like a safety…
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Eating Problems
I just wonder sometimes if I am the only person in the world who when I sit down to eat has all these problems. 1. I am always first at the table and last to leave. (I hate eating alone) 2. My plate of food is always smaller then everyone else 3. My food is always hot when I get it and cold when I finish it. 4. I can’t…
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1 year out - light at the end of a long year
Hi, I have not gotten onto this board in such a long time but just wanted to say a quick note. My husband started treatment (35 rounds of rad + chemo)a year ago on 9/28/10 for tonsil SCC. Today driving into work with him, he turned to me and, "I am finally starting to feel better. I can smell again, I can taste again, I…
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Oral surgery
Now that all the scans are done, the time is here. The remaining 17 teeth (which are really painful) get removed tomorrow by the oral surgeon, they are doing it in the hospital operating room. have to be there at six and surgery is scheduled for 9:20. Got a letter from the hospital telling me if this kept up I would have…
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Caregiver perspective
My 50 yr old husband was diagnosed with Tonsil Cancer in June. He noticed a lump on the left side of his neck while shaving. No other symptoms. No sore throat, no cough, nothing. He went to his dr. who put him on antibiotics and prednisone, and said if it didn't go away in 2 weeks to see an ENT. So 3 weeks later he had the…