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16 months post op total laryngectomy
Hello My name is Brenda and my husband Jim had a total laryngectomy 16 months ago. I cannot beleive how scared we both were about what our future would hold, how would get through it all, but we did. We have been on a huge emotional rollercoaster but have learned such a lot and we know our positivity and our ' glass half…
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Checking in
Hi all: Basketcase checking in. I got back from Destin, FL on Sat. nite after a week with my two closest friends. We had a blast; a lot of fun and sun. Of course, I had an overwhelming welcome Sat. nite when I got in; the boys were more than happy to see Mama. I'll be home for a while now; a couple of weekend trips in Oct.…
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Pet scan today
Please send my husband, Andy, your thoughts and prayers. Thanks bunches, Robinleigh
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An update on my Father
Well, for those of you who don't know, my Father was diagnosed with Squamous Cell Carcinoma in March of this year. He had his radical neck dissection surgery where they removed 29 lymph nodes and his jugglar vein, and 7 weeks of Chemo and Radiation. His last treatment was August 3rd, the day before his 65th birthday. It…
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Rochester Road Trip!
Well, in three weeks my wife (DrMary) and I are going to be in Rochester, NY for the weekend of 30 September (also her birthday). I know that there are a few people there from the list and we would be happy to get together at some point while there. Also Sweet Dawn, since we are coming up from Maryland, we are likely…
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SWOLLEN TISSUE NEAR BACK OF WISDOM TOOTH
Looks like I will be trying to have my one year ENT exam today instaed of October 20th. I had thought for a few days that I might have bitten some tissue in the rear of my mouth, and or have something stuck in the gum / tissue near my wisdom tooth on the same side as my Tonsillectomy. No bleeding or ulcer like, just white…
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Beard/hair
Okay, this is a superficial question, I know, but here goes: My husband had a beard for over 45 years - I'd never seen him without one - and of course it all went way during radiation. Now he's over a month post radiation, and nothing seems to be coming back. I tell him I love him without his beard, but to him, I guess…
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Foods I can Eat without sipping Water
I always could eat a good Salad & Red Beans with out drinking water but I never tried to eat anything else that way for fear of chocking. Well this morning I just found out I can eat my Oatmeal with out taking a sip of water between each bite; it has a hold new taste that way. Sometime we get so use to doing something a…
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PM
How do you send a pm message on this site? Thanks, Linda
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Radiation has Started
Hi everyone, My husbands radiation has finally started. Two treatments and 32 more to go. Once a week chemo with it. The 4th and hopefully the final kind of chemo (Carboplatin). He had a couple of rough rounds and needed IV's at home with the Cisplatin, Platinol, F5U and the Neulasta shots. Just when he started to feel…
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Recurrances
Is it my imagination or are we seeing a growth (no pun intended) of people with recurrances? My wish is all of these get well and the surge stops now. Maybe its just my imagination....I worry about you guys. Denny PS Not you John (Skiffen), Shelly worries enough for the te=wo of us. :>)
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Chief daddy son update?
Any update on Mike's Son? Last heard he was improving but still hospitalized.
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Follow up Questions
I am going back to the surgical oncologist tomorrow. I am trying to think of what to ask. First, here is a run down on my situation. I am 6 months out from treatment, a lot of the saliva production is back, but swallowing seams to be getting more difficult in the last month or so, because i feel like i have a lump in my…
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Neck dissection coming
Hi everyone, Sorry that I haven't posted in a while, but all is well. Had my first post treatment and yep, false positives.... My ENT surgeon wants to go ahead and take out the involved lymphnodes on my right side of neck. So here we go on 6 October. Everyone has said that this is nothing compared to the tonsillectomy/BOT…
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New here, hello :-)
Hello everyone, I can't seem to find something like this in Canada, I also joined CancerCompass. I am 43 and I have been a RN for over 20 years and was diagnosed with squamous cell in my left upper lymph, primary unknown. I do not smoke or drink. That is a picture of my little girl who is 2 now. I think last night will be…
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HNC Superthread. Links that provide answers to FAQ. EXCELLENT FOR PEOPLE NEW TO CSN. please do not b
**THIS THREAD IS UPDATED AT LEAST EVERY SUNDAY. I WILL ALWAYS KEEP IT ON THE FIRST PAGE. THANK YOU FOR NOT POSTING TO IT** HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. (please post only informative links here) Help for some FAQ. Head and Neck Superthread. ***PLEASE ADD ONLY INFORMATION IN THE FORM OF LINKS ON THIS…
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Return of my tumor
Only two months past a clear PET and an MRI shows the return of the tumor and it is even more aggressive. It is paralyzingly the left side of my head and neck. Doctors given me a few weeks to months. Declining surgery since it has invaded my brain case and brain stem. I'm now on erbetrex chemo for palliative care.…
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ENT visit - no better news
Dad saw the ENT today and it was not any better. He does not recommend doing the neck dissection, because he does not think that is what is causing his pain. He feels it is all coming from his tongue. The chemo doctor thought it was the lympe node pressing on the nerve. He told him he did not think the major surgery would…
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Alpha Male
Men don’t like to ask for help because we feel it is a show of weakness or not being in control. It is a man's thing of trying to always be the Alpha male; you know the biggest and greatest. But having cancer sure puts a damper on any Alpha male thing, and it showed us that as humans we all need one another in order to…
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Transderm scop
Hi, My dad is receiving Chemo and radiation and has excessive mucous. Has anyone ever heard of transderm scop to stop the mucous. I read the side effects and seem a bit uneasy to try. Anyone heard of this patch to try for mucous problem? Thanks for your help Michelle
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possible recurrance
hello all, I am new to this site. I normally use Cacnercompass. My mom is 8 months post tratment for stage 3 tonsil cancer with 1 lymph node. she had surgury to remove the cancer as well as neck dissection with 15 lymph nodes removed. pathology confirmed that only 1 lymp node was positive and all margins were negative.…
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My best friend has recently been diagnosed with squamous cell carcinoma at the base of his tongue an
I'm here hoping to get as much information as possible to help my friend through his radiation and chemo treatments. I took him to the oral surgeon, he had his molars removed last week in preparation for the radiation part of his treatmnt. His oncologist has strongly suggested that he have a feeding tube put in (stomach)…
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1 good day 5 bad ones
1 good day 5 bad ones last week I thought I was improving I had a good day but it seems it’s went down hill I am unable to swallow very much and the dry mouth is bad I wake very early with all that mucus it takes a while to get it up then it’s all day coughing it up I walk around with napkins. I am 10 month's past…
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good news
Jim had one month check up with rad doctor. Could not feel the tumor, wich was very firm when diagnosed. He did not scope since Monday Jim goes to ENT and he will scope. PET set for November. Hate waiting but this is encouraging. Debbie
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breathing
my husband is in hospial. he woke up last night finding it hard to breath,lots of mucous in throat,chest felt heavy,coloured saliva on pillowcase for a few nights.is this what they mean about mucosis and would a vaporiser help?
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possible recurrance
hello all, I am new to this site. I normally use Cacnercompass. My mom is 8 months post tratment for stage 3 tonsil cancer with 1 lymph node. she had surgury to remove the cancer as well as neck dissection with 15 lymph nodes removed. pathology confirmed that only 1 lymp node was positive and all margins were negative.…
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Ear Problems: Wax or Loss or What
Over the past couple of weeks, my right ear will "pop" or become unplugged when I wake up in the morning and suddenly I can hear better. Having sinus problems and previous ear wax problems, I attributed it to that. Now, it isn't becoming unplugged and I'm hearing less. I also had two rounds of Cisplatin with some ringing…
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Connie has a red blotch on her cheek
Well here we go again. Connie had some redness on one side of her neck last week. This week that redness has gone but now she has a red blotch on her cheek. It kinda looks like shingles. Has anyone ever had shingles as a side effect or had these blotches and should we be concerned enough to see a oncologists or should she…
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Neck dissection coming
Hi everyone, Sorry that I haven't posted in a while, but all is well. Had my first post treatment and yep, false positives.... My ENT surgeon wants to go ahead and take out the involved lymphnodes on my right side of neck. So here we go on 6 October. Everyone has said that this is nothing compared to the tonsillectomy/BOT…
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Can you say NED!!!!!
My husbands post biopsy came back clean. Doctor says, at this time you are cancer free and I will see you in 3 months. For a scope. No pet scans, he said if he thinks he is at a high risk he will order one. Now, we need to learn to relax and get used to our new normal. Thank you everyone for your kind words, jokes, and…