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Bump in the road
Just that, a bump, scar tissure, no sign of cancer. Yipee! Took a little longer to get diagnosis because Anthem Blue Cross and Stanford were in negotiations. I only had permission to see the doctor--no blood work, no proceedures. A bump on the scar site, I have no idea if it hurt, I am numb. Bump did not change in 2 weeks,…
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Decided to start some morphine... am I sleeping to much?
They gave me morphine elixir in anticipation of what's to come, it says 1-2mL every 4 hours = 1-2mg. My oral cavity isn't too sore, just the tonsil bed and left side of my tongue, but my rad burns are really sensitive... so I took .5 mL at 830am and soon after I felt really sleepy, napped. Took another .5 mL at 1230 and…
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New Cancer patient
I just found out that I have Head and Neck Cancer. I will go to MD Anderson in two weeks for test and then treatment. I have had two biopsies and have an enlarged lymph node. I have Squamous Cell Carcinoma. They do not know where the primary tumor is. I have two children, full time job and am a bit afraid of the changes…
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Radiation burns
Everyone reacts differently. I have 6 rads left, fortunately so far, my mouth isn't too sore, just the left side of my tongue and the tonsil base, like a mild sore throat. I'm still swallowing my supplements. The mucus isn't that bad and the glands are working overtime trying to survive, perhaps the right parotid being…
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Another Mucoepidermoid Carcinoma
Hi Everyone, I'm really glad I found you all here. Very nice to be able to read about others experiences and learn from it. This is not my first post but my first topic heading. My case is similar to others. Have had a lump on my right neck for almost a year. Showed it to at least four doctors who dismissed it as nothing.…
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Keep us in your Prayers - My moms cancer may be back
My mom had stage IVA Base of tongue cancer that had spread to the lymph nodes in both sides of her neck. It came back as HPV positive. She had 35 rads and 3 cisplatin chemo treatments. During her treatment we lost my dad to his cancer that he had been battling for 3 years. So we have had a rough time since April. She…
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Hondo's scan
I believe Hondo has a scan coming up next week. Praying for a great result and for his anxiety free wait. Blessings to all my CS family Debbie
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A Tale of Two Christmas's
Last year, just before Christmas, I was pronounced NED and the 2010 Christmas season was gloriously happy for me. Also, because my scan was clean, I turned down a early retirement from my job. Now, just before Christmas this year, I am looking for the results of a scan after two rounds of chemo after I got mets to lungs…
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Scan results....over 2 weeks now.
Hello everyone, It has been a little stressful since the 17th of Nov. My partner had her scan to see if her tongue cancer has spreaded. It has been over 2 weeks. It is a torture to wait for the results. Just in case you don't remember what I wrote a while ago. On the 7th of Oct, the doctor removed a 2 centimeter (appx)…
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update on fsdman-its back !
Hi all, I havent posted in quite a while for two reasons-1 is that you guys do such agreat job with newcomers and 2 is that I was really feeling great until Sept when I had a bloody nose. Went to the ENT and scope showed nothing. About a month later I got another scope and sure enough a growth was found. Biopsy showed NPC…
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Boost - no not the supplement
At the end of my nightly rad treatment today, the tech said they will be doing a boost, she explained that I will have a CT scan next tues, she explained they plan to reduce the area of treatment on my neck, however the rad dosage remains the same. Additionaly the mask will be evaluated for fit, it's still as tight as it…
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One more session of Cisplatin? Maybe not?
So I'm a little confused. My rad onco wants me to do the last chemo, no regrets later he puts it. My chemo onco trumps him saying the Cisplatin is very hard on me, I suffered uncontrollable hiccups and nausea with the first session despite a slew of drugs, lost weight not eating for 3 days. The second session, my counts…
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Scans Day, Saturday
So I had my three-month PET/CT scans today. They were supposed to be yesterday, but the machines at Georgetown were down, so I went instead today. I have appointments scheduled to discuss the scans, so I wanted to get them over. Like everybody, I'll always be apprehensive about getting those scans. The first time, they…
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Dry skin?
My whole body is shedding like a snake, dry small flakes, like dandruff is coming off everywhere. With my new stomach tube, I am afraid of getting it infected again, so I only shower 2x/week. I use a transparent waterproof bandage to cover it when I do. The other days I'll sponge bath. I don't think I'm dehydrated, my…
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Saunas Baths
Just wondering if any one does Saunas Baths and what do you think about them? While I was in Honduras I was doing a Sauna Bath once every week and I was feeling really good and my skin was very clean. I am thinking about getting one but just not sure what type to get, any help on what type is the best to buy. Thanks Hondo
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Connie is doing very well!
Hello Everyone, Just thought I would check in and let you know that Connie is doing great! She had a clean CT scan last week and also did a barrium swallow test and did so well the doctor told her their was no need to see her speech therapist anymore. She is trying to go without tube feeding at this time and see if she can…
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Nausea
After my first two rad treatments I became nauseated. I have been nauseated for the last five days. It's an all day thing and I don't want to eat because it makes the nausea worse. The Radiation Doc said it could not be caused from the radiation - must be something else. Did any of you have nausea as a side effect so early…
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Tinny Taste
Has anyone expierenced a tinny or metalic taste in their mouth? I get a weekly carboplatin infusion and have finished 21 of 39 rad treatments so far. I get this taste without eating or drinking anything. Linda
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newly diagnosed thorat cancer - hypotharthnyx 2nd primary
I am absolultely devastated. I have just been diagnosed with throat cancer. I just found out with the mri that I won't be needing chem but starting Thurs. 30 radiation treatments. Sept. 13 I was doing my 5 yr. happy dance after surviving advanced esophageal cancer. I have had my espophagus removed and consequently only…
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THE ESSENTIAL TREATMENT KIT FOR HNC PATIENTS.
This was an idea and thread started by adventurebob last year some time. These are all items we compiled as things we found we really needed to help us get through treatment. Obviously, no one needs everything, but I know I used a lot of stuff off this list. So perhaps if you are just starting treatment, or know some one…
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Receding gums.
Anyone know if radiation causes this issue or makes it worse? Or can all this brushing I do make it hard on my gums? Those that use the water pic thingie, does it hurt? Would that be better for my gums?
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Pain at tumor site 3 weeks post rad normal?
Hi all, I'm new to this board. I'm 27 and was diagnosed with stage IV tongue cancer back in april of this year. It is in both the base and oral parts of my tongue, mostly on the right side, but also dips into the left far enough that if I have surgery we're talking total glossectomy. I've been through 3 rounds of chemo…
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LHERMITTE'S AS A SIDE EFFECT OF TREATMENT
I noticed that I started to feel the signs of Lhermitte's coming on last February while on a trip in San Antonio. I was taking a brisk walk when I looked down for some reason and felt the "electrical shock sensation." I am 13 months post treatment and still have this side effect. I am looking for feedback from people who…
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How do they decide on neck dissection post chemorad? Most who had it have side effects?
Been reading people's experiences with their neck dissections and it doesn't sound so easy. Do most people have side effects and long term symptoms from their neck dissections? Primarily, how do they exactly decide if you need one after you're done with chemorad treatments? (I am left tonsil SCC, left lymph involvement.…
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RayTodd
Has anyone heard from are friend down under? Last I heard he had gotten out of the hospital and was feeling poorly.
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Are these from Swallowing Issues?? Or dilation??
For anyone whose had esophageal dilation - Have you experienced food and liquid running out of your nose???? This just started today. Everything my husband Louis is eating or drinking is now running out of his nose. This is so ironic since we saw his ENT yesterday and she is now suggesting a GTube, which he WAS resisting.…
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Does activity on the petscan always mean the cancer is back?
My mom had HP+ BOT cancer that had spread to lymph nodes in both sides of her neck. She had 35 rad treatments with 3 cisplatin. The first petscan post treatment showed NED. However, yesterday she had her second Petscan and it showed activity at the site of the original tongue tumor and two small lymph nodes in the thoracic…
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difficulty swallowing after radiation for throat cancer
I am looking for anyone who has experience in this area.My husband was diagnosed on July 1,2009. He finished chemo & radiation Sept.10 and is still unable to swallow. He still has very thick mucous that he has to spit out & this keeps him awake most of the night. There is also still alot of blood coughed up. Has been tube…
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Cat scan tomorrow-Base of tongue cancer
Hello everyone. Gee it is hard. Tomorrow is the CAT scan to find out if my partner's cancer has spread or not. It is scary but we have to remain strong I know. She was diagnosed with base of tongue cancer on the 21st of October. They removed the tumor a couple of weeks before that and the results came back that it is…
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Gabapentin for post dissection symptoms
For all of you out there who have ongoing tightness, stinging, or aching in the area of the neck from partial or impartial neck dissections, I've been on gabapentin long enough now to see how it's working for me. For me it's been very helpful. As I've said before, the left side of my neck was ever present. The stiffness,…